Reproductive Health and Medication Concerns for Patients with Inflammatory Bowel Disease: Investigation of Information-Seeking and Concerns Using Social Listening

2018 ◽  
Author(s):  
Michelle Sophie Keller ◽  
Sasan Mosadeghi ◽  
Erica R Cohen ◽  
James Kwan ◽  
Brennan Mason Ross Spiegel
Keyword(s):  
Inflammatory Bowel Disease ◽  
Reproductive Health ◽  
Bowel Disease ◽  
Information Seeking ◽  
Inflammatory Bowel ◽  
Social Listening

scholarly journals Systematic review: the consequences of psychosocial effects of inflammatory bowel disease on patients′ reproductive health

2018 ◽  
Vol 48 (11-12) ◽  
pp. 1202-1212 ◽  
Author(s):  
Satvinder Purewal ◽  
Sarah Chapman ◽  
Wladyslawa Czuber-Dochan ◽  
Christian Selinger ◽  
Helen Steed ◽  
...  
Keyword(s):  
Systematic Review ◽  
Inflammatory Bowel Disease ◽  
Reproductive Health ◽  
Bowel Disease ◽  
Psychosocial Effects ◽  
Inflammatory Bowel

scholarly journals Reproductive Health and Medication Concerns for Patients With Inflammatory Bowel Disease: Thematic and Quantitative Analysis Using Social Listening (Preprint)

2018 ◽  
Author(s):  
Michelle Sophie Keller ◽  
Sasan Mosadeghi ◽  
Erica R Cohen ◽  
James Kwan ◽  
Brennan Mason Ross Spiegel
Keyword(s):  
Inflammatory Bowel Disease ◽  
Social Media ◽  
Reproductive Health ◽  
Bowel Disease ◽  
Medication Use ◽  
Reproductive Age ◽  
Office Visits ◽  
Voluntary Childlessness ◽  
Qualitative Descriptive ◽  
Inflammatory Bowel

BACKGROUND Inflammatory bowel disease (IBD) affects many individuals of reproductive age. Most IBD medications are safe to use during pregnancy and breastfeeding; however, observational studies find that women with IBD have higher rates of voluntary childlessness due to fears about medication use during pregnancy. Understanding why and how individuals with IBD make decisions about medication adherence during important reproductive periods can help clinicians address patient fears about medication use. OBJECTIVE The objective of this study was to gain a more thorough understanding of how individuals taking IBD medications during key reproductive periods make decisions about their medication use. METHODS We collected posts from 3000 social media sites posted over a 3-year period and analyzed the posts using qualitative descriptive content analysis. The first level of analysis, open coding, identified individual concepts present in the social media posts. We subsequently created a codebook from significant or frequently occurring codes in the data. After creating the codebook, we reviewed the data and coded using our focused codes. We organized the focused codes into larger thematic categories. RESULTS We identified 7 main themes in 1818 social media posts. Individuals used social media to (1) seek advice about medication use related to reproductive health (13.92%, 252/1818); (2) express beliefs about the safety of IBD therapies (7.43%, 135/1818); (3) discuss personal experiences with medication use (16.72%, 304/1818); (4) articulate fears and anxieties about the safety of IBD therapies (11.55%, 210/1818); (5) discuss physician-patient relationships (3.14%, 57/1818); (6) address concerns around conception, infertility, and IBD medications (17.38%, 316/1818); and (7) talk about IBD symptoms during and after pregnancy and breastfeeding periods (11.33%, 206/1818). CONCLUSIONS Beliefs around medication safety play an important role in whether individuals with IBD decide to take medications during pregnancy and breastfeeding. Having a better understanding about why patients stop or refuse to take certain medications during key reproductive periods may allow clinicians to address specific beliefs and attitudes during office visits.

scholarly journals Corrigendum: Perception of Reproductive Health in Women with Inflammatory Bowel Disease

2019 ◽  
Vol 13 (6) ◽  
pp. 815-815
Author(s):  
Pierre Ellul ◽  
Stefania Chetcuti Zammit ◽  
Konstantinos H Katsanos ◽  
Monica Cesarini ◽  
Mariangela Allocca ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Reproductive Health ◽  
Bowel Disease ◽  
Inflammatory Bowel

scholarly journals Inflammatory bowel disease and women’s sexual and reproductive health: a narrative review

2020 ◽  
Vol 19 (1) ◽  
pp. 48-56
Author(s):  
Sara M. B. Cunha ◽  
Maria C. F. Carneiro ◽  
Cátia D. Rodrigues ◽  
Cátia L. S. N. S. Rasteiro ◽  
Teresa P. Teles
Keyword(s):  
Inflammatory Bowel Disease ◽  
Reproductive Health ◽  
Bowel Disease ◽  
Sexual And Reproductive Health ◽  
Intrauterine Death ◽  
Health Issues ◽  
Childbearing Age ◽  
Increased Risk ◽  
Inflammatory Bowel ◽  
Obstetrical Management

Introduction: Inflammatory bowel disease is a chronicidiopathic condition involving the gastrointestinal tract.The disease prevalence is increasing worldwide, affectingwomen in childbearing age. Objective: Clinical and practicalreview of the women´s sexual and reproductive health ininflammatory bowel disease with focus in gynaecologicaland obstetrical management. Materials and Methods: In thisarticle we review sexual and reproductive health issues inwomen with inflammatory bowel disease in all life stagesand the main particularities of the approach of inflammatorybowel disease in pregnancy and breastfeeding. Results andConclusion: Fertility in women without disease activity isnot decreased comparing to general population, but despiteresearch is inconsistent there are reports of increased risk ofsmall for gestational age, preterm delivery, low Apgar score,congenital anomalies, intrauterine death, miscarriage, venousthromboembolism and preeclampsia. To improve obstetricoutcomes, a period of 3 to 6 months of disease remission isrecommended before conception. Medication adjustmentmay be necessary, and supplementation should be adapted. Amultidisciplinary approach and a comprehensive knowledgeof the disease through all women life stages allows a betterhealth care.Keywords: Inflammatory bowel disease, Sexual health,Reproduction, Pregnancy, Breastfeeding.

Female reproductive health and inflammatory bowel disease: A practice-based review

2021 ◽  
Author(s):  
Alessandro Armuzzi ◽  
Aurora Bortoli ◽  
Fabiana Castiglione ◽  
Antonella Contaldo ◽  
Marco Daperno ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Reproductive Health ◽  
Bowel Disease ◽  
Female Reproductive Health ◽  
Inflammatory Bowel

scholarly journals COVID-19-related health anxieties and impact of specific interventions in patients with inflammatory bowel disease in the UK

2020 ◽  
pp. flgastro-2020-101633
Author(s):  
Nasir Mir ◽  
Jonathan Cheesbrough ◽  
Thomas Troth ◽  
Nasir Hussain ◽  
Laurence Joseph Hopkins ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Information Seeking ◽  
Information Dissemination ◽  
Risk Groups ◽  
Health Related ◽  
Inflammatory Bowel ◽  
The Uk ◽  
Clinical Interactions ◽  
The Impact

ObjectiveHealth-related concerns brought on by the COVID-19 pandemic and the impact of specific local and national interventions have not been explored in patients with inflammatory bowel disease (IBD) in the UK. We evaluated perspectives of patients with IBD on the pandemic and effectiveness of information dissemination in addressing concerns.MethodsWe prospectively conducted a survey among patients with IBD during the COVID-19 pandemic to assess concerns, information-seeking behaviours, risk perception, compliance and effect of specific interventions.ResultsA total of 228 patients were interviewed of whom 89% reported being concerned about the impact of COVID-19 on their health. Access to at least one IBD-specific clinical interaction during the pandemic (COVID-19 information letter from IBD team, interaction with IBD team or general practitioner, Crohn and Colitis UK website visit) was significantly associated with alleviating concerns (OR 2.66; 95% CI 1.35 to 5.24; p=0.005). Seeking health information solely through unofficial channels (search engines or social media) was less likely to ease concerns (OR 0.15; 95% CI 0.03 to 0.61; p=0.008). A quarter of patients disagreed with their assigned risk groups, with majority perceiving higher-risk profiles. This discordance was greatest in patients within the moderate-risk group and constituted immunosuppression use. Nearly 40% of patients had ongoing concerns with regard to their medications of whom a third felt their concerns were not addressed.ConclusionIBD-specific clinical interactions are associated with alleviation of COVID-19 health concerns. These findings have wider implications and emphasise importance of innovative solutions that facilitate effective communication with patients without overburdening current services.

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