scholarly journals Reproductive Health and Medication Concerns for Patients With Inflammatory Bowel Disease: Thematic and Quantitative Analysis Using Social Listening (Preprint)

2018 ◽  
Author(s):  
Michelle Sophie Keller ◽  
Sasan Mosadeghi ◽  
Erica R Cohen ◽  
James Kwan ◽  
Brennan Mason Ross Spiegel
Keyword(s):  
Inflammatory Bowel Disease ◽  
Social Media ◽  
Reproductive Health ◽  
Bowel Disease ◽  
Medication Use ◽  
Reproductive Age ◽  
Office Visits ◽  
Voluntary Childlessness ◽  
Qualitative Descriptive ◽  
Inflammatory Bowel

BACKGROUND Inflammatory bowel disease (IBD) affects many individuals of reproductive age. Most IBD medications are safe to use during pregnancy and breastfeeding; however, observational studies find that women with IBD have higher rates of voluntary childlessness due to fears about medication use during pregnancy. Understanding why and how individuals with IBD make decisions about medication adherence during important reproductive periods can help clinicians address patient fears about medication use. OBJECTIVE The objective of this study was to gain a more thorough understanding of how individuals taking IBD medications during key reproductive periods make decisions about their medication use. METHODS We collected posts from 3000 social media sites posted over a 3-year period and analyzed the posts using qualitative descriptive content analysis. The first level of analysis, open coding, identified individual concepts present in the social media posts. We subsequently created a codebook from significant or frequently occurring codes in the data. After creating the codebook, we reviewed the data and coded using our focused codes. We organized the focused codes into larger thematic categories. RESULTS We identified 7 main themes in 1818 social media posts. Individuals used social media to (1) seek advice about medication use related to reproductive health (13.92%, 252/1818); (2) express beliefs about the safety of IBD therapies (7.43%, 135/1818); (3) discuss personal experiences with medication use (16.72%, 304/1818); (4) articulate fears and anxieties about the safety of IBD therapies (11.55%, 210/1818); (5) discuss physician-patient relationships (3.14%, 57/1818); (6) address concerns around conception, infertility, and IBD medications (17.38%, 316/1818); and (7) talk about IBD symptoms during and after pregnancy and breastfeeding periods (11.33%, 206/1818). CONCLUSIONS Beliefs around medication safety play an important role in whether individuals with IBD decide to take medications during pregnancy and breastfeeding. Having a better understanding about why patients stop or refuse to take certain medications during key reproductive periods may allow clinicians to address specific beliefs and attitudes during office visits.

Patients Report Infrequent Counseling by Physicians and Inadequate Knowledge about Inflammatory Bowel Disease and Reproductive Health Issues

2021 ◽  
Author(s):  
Aarti K. Rao ◽  
Thomas A. Zikos ◽  
Gotzone Garay ◽  
Ko-Eun Lee ◽  
Sarah E. Streett
Keyword(s):  
Inflammatory Bowel Disease ◽  
Reproductive Health ◽  
Bowel Disease ◽  
Tertiary Care ◽  
Categorical Variables ◽  
Exact Test ◽  
Health Counseling ◽  
Voluntary Childlessness ◽  
Inadequate Knowledge ◽  
Inflammatory Bowel

Objective Inflammatory bowel disease (IBD) reproductive health counseling is associated with higher knowledge, lower voluntary childlessness, greater medication adherence during pregnancy, and improved outcomes of pregnancy. Our aims were to assess counseling and knowledge about IBD and reproductive health in a tertiary care IBD patient population. Study Design We anonymously surveyed women and men ages 18 to 45 cared for at the Stanford IBD clinic about reproductive health and administered the CCPKnow questionnaire. STATA was used to summarize descriptive statistics and compare categorical variables using Fisher's exact test. Results Of the 100 patients (54% women) who completed the survey, only 33% reported prior reproductive health counseling. Both men and women considered not having a child due to IBD (31% women, 15% men) and most (83%) had no prior counseling. A minority of patients had an adequate (>8/17) CCPKnow score (45% women, 17% men). The majority of women with prior pregnancy had pre-existing IBD (67%), yet many did not seek gastrointestinal (GI) care (38% preconception, 25% during pregnancy) and 33% stopped/changed medications, with 40% not discussing this with a physician. Prior counseling was significantly associated with education level (p = 0.013), biologic use (p = 0.003), and an adequate CCPKnow score (p = 0.01). Overall, 67% of people wanted more information on IBD and reproductive health. Conclusion In an educated tertiary care cohort, the majority of patients had low CCPKnow scores and rates of IBD reproductive health counseling. Many patients with IBD prior to pregnancy reported no GI care preconception or during pregnancy and stopped/changed medications without consulting a physician. There is an urgent need for proactive counseling by gastroenterologists and obstetricians on IBD and reproductive health. Key Points

scholarly journals Systematic review: the consequences of psychosocial effects of inflammatory bowel disease on patients′ reproductive health

2018 ◽  
Vol 48 (11-12) ◽  
pp. 1202-1212 ◽  
Author(s):  
Satvinder Purewal ◽  
Sarah Chapman ◽  
Wladyslawa Czuber-Dochan ◽  
Christian Selinger ◽  
Helen Steed ◽  
...  
Keyword(s):  
Systematic Review ◽  
Inflammatory Bowel Disease ◽  
Reproductive Health ◽  
Bowel Disease ◽  
Psychosocial Effects ◽  
Inflammatory Bowel

scholarly journals Corrigendum: Perception of Reproductive Health in Women with Inflammatory Bowel Disease

2019 ◽  
Vol 13 (6) ◽  
pp. 815-815
Author(s):  
Pierre Ellul ◽  
Stefania Chetcuti Zammit ◽  
Konstantinos H Katsanos ◽  
Monica Cesarini ◽  
Mariangela Allocca ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Reproductive Health ◽  
Bowel Disease ◽  
Inflammatory Bowel

P013 UNREGULATED: MEDICAL COMPANIES USE SOCIAL MEDIA TO SELL ALTERNATIVE TREATMENTS FOR INFLAMMATORY BOWEL DISEASE

2019 ◽  
Vol 156 (3) ◽  
pp. S11
Author(s):  
Daniel Szvarca ◽  
Nadeem Tabbara ◽  
Jack Masur ◽  
Adam Greenfest ◽  
Lindsay M. Clarke ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Social Media ◽  
Bowel Disease ◽  
Alternative Treatments ◽  
Inflammatory Bowel

P013 UNREGULATED: MEDICAL COMPANIES USE SOCIAL MEDIA TO SELL ALTERNATIVE TREATMENTS FOR INFLAMMATORY BOWEL DISEASE

2019 ◽  
Vol 25 (Supplement_1) ◽  
pp. S8-S8
Author(s):  
Daniel Szvarca ◽  
Nadeem Tabbara ◽  
Jack Masur ◽  
Adam Greenfest ◽  
Lindsay M Clarke ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Social Media ◽  
Bowel Disease ◽  
Alternative Treatments ◽  
Inflammatory Bowel

scholarly journals 591: The obstetric and neonatal outcomes of inflammatory bowel disease in pregnancy and associated medication use

2019 ◽  
Vol 220 (1) ◽  
pp. S392-S393
Author(s):  
Patricia Rekawek ◽  
Christine Roy-Mcmahon ◽  
Catherine Bigelow ◽  
Jessica Overbey ◽  
Stephanie Pan ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Medication Use ◽  
Neonatal Outcomes ◽  
Inflammatory Bowel ◽  
In Pregnancy
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