Public Attitudes to Digital Health Research Repositories: a Cross-Sectional International Survey (Preprint)

2021 ◽  
Author(s):  
Giovanna Nunes Vilaza ◽  
David Coyle ◽  
Jakob Bardram
Keyword(s):  
Health Research ◽  
Online Survey ◽  
Digital Health ◽  
Public Awareness ◽  
Public Attitudes ◽  
Data Access ◽  
Cross Sectional ◽  
Data Repositories ◽  
Sensing Data ◽  
Future Developments

BACKGROUND Digital health research repositories propose sharing longitudinal streams of health records and personal sensing data between multiple projects and researchers. Motivated by the prospect of personalizing patient care (precision medicine), these initiatives demand broad public acceptance and large numbers of data contributors, which is challenging. OBJECTIVE This study investigates public attitudes towards possibly contributing to digital health research repositories in order to identify factors for their acceptance and to inform future developments. METHODS A cross-sectional online survey was conducted from March 2020 to December 2020. Recruitment targetted young adults in Denmark and Brazil. Through closed-ended questions, the survey examined: participants' willingness to share different data types, data access preferences, reasons for concern and motivations to contribute. The survey also collected information about participants' demographics, level of interest in health topics, previous participation in health research, awareness of examples of existing research data repositories, and current attitudes about digital health research repositories. Data analysis consisted of descriptive frequency measures and statistical inferences (bivariate associations and logistic regressions). RESULTS The analysis of 1600 responses from 583 participants in Denmark and 1017 in Brazil shows a vast majority very motivated by helping future patients (1366/1600, 85.37%), helping researchers (1253/1600, 78.31%), and receiving results about themselves (1170/1600, 73.12%), yet very concerned about unethical projects (1219/1600, 76.18%), profit-making without consent (1096/1600, 68.5%) and cyber-attacks (1055/1600, 65.93%). Participants’ willingness to share data is lower when it comes to sharing personal sensing data, such as the content of calls and texts (1206/1600, 75.37%), in contrast to more traditional health research information, but those uncomfortable sharing data about mental illness worry about being discriminated against (OR 2.26, 95%CI, 1.66-3.07, P<.001). Only 13.43% (215/1600) find it desirable to grant data access to private companies, and most would like to stay informed about which projects use their data (1334/1600, 83.37%) and control future data access (1181/1600, 73.81%). Findings indicate that favorable attitudes towards digital health research repositories are related to personal interest in health topics (OR 1.49, 95%CI, 1.10-2.02, P=.01), previous participation in health research studies (OR 1.70, 95%CI, 1.24-2.35, P=.001), and awareness of examples of research repositories (OR 2.78, 95%CI, 1.83-4.38, P<.001). CONCLUSIONS This study reveals essential factors for acceptance and willingness to share personal data with digital health research repositories. Implications include the importance of being more transparent about the goals and beneficiaries of research projects using and re-using data from repositories, providing participants with greater autonomy for choosing who gets access to which parts of their data, and raising public awareness of the benefits of data sharing for research. In addition, future developments should engage with and reduce risks for those unwilling to participate so that personalized medicine's potential benefits can be fairly distributed.

scholarly journals Dissociation, Cognitive Reflection and Health Literacy Have a Modest Effect on Belief in Conspiracy Theories about COVID-19

2021 ◽  
Vol 18 (10) ◽  
pp. 5065
Author(s):  
Vojtech Pisl ◽  
Jan Volavka ◽  
Edita Chvojkova ◽  
Katerina Cechova ◽  
Gabriela Kavalirova ◽  
...  
Keyword(s):  
Health Literacy ◽  
Online Survey ◽  
Digital Health ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Conspiracy Theories ◽  
Cognitive Reflection ◽  
Variance Explained ◽  
Modest Effect

Understanding the predictors of belief in COVID-related conspiracy theories and willingness to get vaccinated against COVID-19 may aid the resolution of current and future pandemics. We investigate how psychological and cognitive characteristics influence general conspiracy mentality and COVID-related conspiracy theories. A cross-sectional study was conducted based on data from an online survey of a sample of Czech university students (n = 866) collected in January 2021, using multivariate linear regression and mediation analysis. Sixteen percent of respondents believed that COVID-19 is a hoax, and 17% believed that COVID-19 was intentionally created by humans. Seven percent of the variance of the hoax theory and 10% of the variance of the creation theory was explained by (in descending order of relevance) low cognitive reflection, low digital health literacy, high experience with dissociation and, to some extent, high bullshit receptivity. Belief in COVID-related conspiracy theories depended less on psychological and cognitive variables compared to conspiracy mentality (16% of the variance explained). The effect of digital health literacy on belief in COVID-related theories was moderated by cognitive reflection. Belief in conspiracy theories related to COVID-19 was influenced by experience with dissociation, cognitive reflection, digital health literacy and bullshit receptivity.

scholarly journals The Public Attitudes, Concerns and Behaviors towards Children Vaccination

2021 ◽  
pp. 39-43
Author(s):  
Nehad J. Ahmed ◽  
Abdulrahman S. Alrawili ◽  
Faisal Z. Alkhawaja
Keyword(s):  
Online Survey ◽  
Public Attitudes ◽  
Active Role ◽  
Arabic Language ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
The Public ◽  
And Behavior ◽  
Attitudes And Behavior ◽  
Public Concerns

Aim: The aim of this study was to identify the public concerns, attitudes and behavior towards vaccination. Methodology: This was a cross-sectional study that included an online survey about the public concerns, attitudes and behavior towards vaccination in Saudi Arabia. The survey was translated to Arabic language and converted to an online form using google forms and after that it was sent to be filled by the parents. Results: About 92% of the respondents said that children should be vaccinated in order to protect them and about 86% of them believed that vaccinations are safe for children in general. Regarding the concerns about vaccination, about 69% of the respondents were concerned about the distress to children of the injection itself and 59% of them were concerned about the increasing number of vaccines recommended for children. Furthermore, about 62% of the respondents were concerned that vaccines are not tested enough for safety. Conclusion: The majority of respondents in this study reported positive attitude but more than half of them expressed some degree of concern regarding children vaccination. Healthcare professionals should play an active role in clarifying these concerns about vaccination with the public. Moreover, they should communicate with parents regarding the vaccinations and provide them with a trusted information about the vaccine.

scholarly journals Pharmacists’ Perspectives on the Use of My Health Record

Pharmacy ◽  
2020 ◽  
Vol 8 (4) ◽  
pp. 190
Author(s):  
Sam Kosari ◽  
Kwang Choon Yee ◽  
Stephanie Mulhall ◽  
Jackson Thomas ◽  
Shane L. Jackson ◽  
...  
Keyword(s):  
General Practice ◽  
Online Survey ◽  
Digital Health ◽  
Cross Sectional Study ◽  
Professional Relationships ◽  
Health Record ◽  
Security Measures ◽  
Record System ◽  
Cross Sectional ◽  
Potential Benefits

(1) Background: My Health Record (MHR) is a relatively new nationwide Australian digital health record system accessible by patients and a range of healthcare professionals. Pharmacists will be key contributors and users of the MHR system, yet little is known about the perceived barriers and benefits of use. (2) Objective: To explore pharmacists’ perspectives related to potential benefits and barriers associated with use of MHR. (3) Methods: An online survey was developed and face-validated. The survey was advertised to Australian pharmacists on pharmacy professional bodies’ websites. This was a cross-sectional study using an anonymous questionnaire. Descriptive statistics were used to describe the distribution of the data. Chi-square, Kendall’s tau coefficient (tau-c) and Kruskal–Wallis tests were used to examine the relationships where appropriate. (4) Results: A total of 63 pharmacists completed the survey. The majority of respondents worked in a metropolitan area (74%), and the most common workplace setting was community pharmacy (65%). Perceived benefits identified by responders include that the use of MHR would help with continuity of care (90%), and that it would improve the safety (71%) and quality (75%) of care they provided. Importantly, more than half of pharmacists surveyed agreed that MHR could reduce medication errors during dispensing (57%) and could improve professional relationships with patients (57%) and general practitioners (59%). Potential barriers identified by pharmacists included patients’ concerns about privacy (81%), pharmacists’ own concern about privacy (46%), lack of training, access to and confidence in using the system. Sixty six percent of respondents had concerns about the accuracy of information contained within MHR, particularly among hospital and general practice pharmacists (p = 0.016) and almost half (44%) had concerns about the security of information in the system, mainly pharmacists working at general practice and providing medication review services (p = 0.007). Overall satisfaction with MHR varied, with 48% satisfied, 33% neither satisfied nor dissatisfied, and 19% dissatisfied, with a higher satisfaction rate among younger pharmacists (p = 0.032). (5) Conclusions: Pharmacists considered that the MHR offered key potential benefits, notably improving the safety and quality of care provided. To optimize the use of MHR, there is a need to improve privacy and data security measures, and to ensure adequate provision of user support and education surrounding the ability to integrate use of MHR with existing workflows and software.

scholarly journals Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia

2019 ◽  
Vol 138 (11-12) ◽  
pp. 1237-1246 ◽  
Author(s):  
Richard Milne ◽  
◽  
Katherine I. Morley ◽  
Heidi Howard ◽  
Emilia Niemiec ◽  
...  
Keyword(s):  
Data Sharing ◽  
General Public ◽  
Personal Experience ◽  
Online Survey ◽  
Latent Class ◽  
Public Attitudes ◽  
Genomic Medicine ◽  
Genomic Data ◽  
Cross Sectional ◽  
The Usa

Abstract Trust may be important in shaping public attitudes to genetics and intentions to participate in genomics research and big data initiatives. As such, we examined trust in data sharing among the general public. A cross-sectional online survey collected responses from representative publics in the USA, Canada, UK and Australia (n = 8967). Participants were most likely to trust their medical doctor and less likely to trust other entities named. Company researchers were least likely to be trusted. Low, Variable and High Trust classes were defined using latent class analysis. Members of the High Trust class were more likely to be under 50 years, male, with children, hold religious beliefs, have personal experience of genetics and be from the USA. They were most likely to be willing to donate their genomic and health data for clinical and research uses. The Low Trust class were less reassured than other respondents by laws preventing exploitation of donated information. Variation in trust, its relation to areas of concern about the use of genomic data and potential of legislation are considered. These findings have relevance for efforts to expand genomic medicine and data sharing beyond those with personal experience of genetics or research participants.

scholarly journals Digital health literacy and online information queries in Portuguese university students

2021 ◽  
Vol 31 (Supplement_3) ◽  
Author(s):  
R Rosário ◽  
C Augusto ◽  
MJ Silva ◽  
S Martins ◽  
A Duarte ◽  
...  
Keyword(s):  
Public Health ◽  
Health Literacy ◽  
University Students ◽  
Information Seeking ◽  
Online Survey ◽  
Digital Health ◽  
Cross Sectional Study ◽  
Online Information ◽  
Cross Sectional ◽  
Logistic Regression Models

Abstract Background Worldwide there is an overwhelming amount of information about COVID-19 circulating online, also named infodemic. Misinformation (the unintentional) and disinformation (the intentional) spreading of false information have proven to be very dangerous to public health. Hence, more than ever, people need skills for searching, evaluating and integrating information related to health in daily life, i.e., health literacy. Until now, little is known about the digital health literacy of university students and their information-seeking behaviour. Hence, this study aimed to analyse the associations between university students' digital health literacy and online information queries during the beginning of the COVID-19 pandemic (and infodemic) in Portugal. Methods A cross-sectional study of 3.084 Portuguese university students (75.7% females), with an average age of 24.2 (SD = 7.5), was conducted using an online survey. We used sociodemographic data (sex, age, subjective social status) and the digital health literacy questionnaire adapted to the specific COVID-19 context. Online information queries included the topics related to SARS-CoV-2 and COVID-19 searched by students. Logistic regression models were performed. Results Online information queries (e.g., individual measures to protect against infection, current spread of the virus, current situation assessments and recommendations) were associated with an increased odds of achieving sufficient digital health literacy. Conclusions Online information queries related to epidemiological and public health topics are significantly associated with digital health literacy in times of COVID-19. Further studies are needed, including programs that improve digital health literacy among university students and increase the availability of high-quality content information.

scholarly journals Revealing the “Hidden welfare state”: How policy information influences public attitudes about tax expenditures

2020 ◽  
Vol 3 (1) ◽  
Author(s):  
Matt Guardino ◽  
Suzanne Mettler
Keyword(s):  
Public Opinion ◽  
Welfare State ◽  
News Media ◽  
Online Survey ◽  
Public Awareness ◽  
Public Attitudes ◽  
Public Support ◽  
Specific Information ◽  
Tax Expenditures ◽  
Policy Information

In this article, we explore how specific policy information shapes public opinion toward the “hidden welfare state” of tax expenditures. These politically and socioeconomically consequential policies—most of which bestow their greatest benefits on upper-income people—are complex and opaque, and scholars’ understanding of citizen attitudes toward them is limited. In response, we use a randomized, general population, online survey experiment to test the effects of providing people with varying amounts and kinds of information about three policies. We find that learning the basic design and rationale of key tax expenditures tends to increase public support for them. However, when informed of the distributive effects of the two policies that favor upper-income people, subjects become much less supportive of these policies. Moreover, policy-specific information appears to help subjects align their preferences with their immediate material interests. Learning the upward tilt of tax expenditures especially makes lower- and middle-income people less supportive of the policies. Our results suggest that if political elites, government administrators and news media routinely offered clear information about tax expenditures, public opinion toward the hidden welfare state would be more firmly grounded. By virtue of their design, these policies discourage public awareness of their mechanisms and distributive effects. Still, greater informational outreach regarding complicated and arcane tax expenditures could bolster public accountability for government actions that favor economically narrow and privileged segments of the population.

scholarly journals Knowledge, attitudes, and practices among the general population during COVID-19 outbreak in Iran: A national cross-sectional survey

2020 ◽  
Author(s):  
Edris Kakemam ◽  
Djavad Ghoddoosi-Nejad ◽  
Zahra Chegini ◽  
Khalil Momeni ◽  
Hamid Salehinia ◽  
...  
Keyword(s):  
Online Survey ◽  
Information Sources ◽  
Public Awareness ◽  
Hand Washing ◽  
Sample Population ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Attitudes And Practices ◽  
High Level ◽  
Knowledge Attitudes And Practices

AbstractBackgroundCOVID-19, which emerged in December 2019, is the largest pandemic ever to occur. During the early phase, little was known about public awareness relating to Coronavirus disease. This study was designed to determine knowledge, attitudes and practices (KAP) among the Iranian public towards COVID-19.MethodsA cross-sectional online survey was carried out in Iran from 2 March to 8 April 2020 using a self-administered questionnaire on 1,480 people. COVID-19-related KAP questions were adapted from other internationally validated questionnaires specific to infectious diseases.ResultsAll participants were aware of COVID-19. When asked unprompted, 80% of respondents could correctly cite fever, difficulty breathing and cough as signs/symptoms of COVID-19. Most of our sample population knew that by staying at home and staying isolated (95.3%, 95 % CI: 94.2-96.3) as well as constant hand washing and using disinfectants (92.5%, 95 % CI: 91.1-93.8) could prevent COVID-19. However, there was also widespread misconceptions such as the belief that COVID-19 can be transmitted by wild animals (58%, 95 % CI: 55.5-60.5) and by air (48.3%, 95 % CI: 45.7-50.8). Unprompted, self-reported actions taken to avoid COVID-19 infection included hand washing with soap and water (95.4%, 95 % CI: 94.3-96.4), avoiding crowded places (93%, 95 % CI: 91.7-94.3), cleaning hands with other disinfectants (80.9 %, 95 % CI: 78.9-82.9), and covering mouths and noses when coughing and sneezing (76.1 %, 95 % CI: 73.9-78.2). The internet and social media (94.5%, 95 % CI: 93.3-95.6) were the main Coronavirus information sources. However, the most trusted information sources on Coronavirus were health and medical professionals (79.3%, 95 % CI: 77.2-81.3). The majority of participants (77.0%, 95 % CI: 74.8-79.1) wanted more information about Coronavirus to be available.ConclusionOur findings suggest that people’s knowledge and attitude towards COVID-19 at the time of its outbreak was of a high level. Therefore, health systems should use multiple ways, such as mass media, phone applications, electronic, print, and tele-education to increase KAP related to COVID-19.

scholarly journals Public Attitudes toward Sustainable Development Goals: Evidence from Five Chinese Cities

2019 ◽  
Vol 11 (20) ◽  
pp. 5793 ◽  
Author(s):  
Ting Guan ◽  
Ke Meng ◽  
Wei Liu ◽  
Lan Xue
Keyword(s):  
Sustainable Development ◽  
Online Survey ◽  
Sustainable Development Goals ◽  
Public Awareness ◽  
Public Attitudes ◽  
National Level ◽  
Public Support ◽  
The Public ◽  
Heuristic Systematic Model ◽  
Development Goals

Raising public awareness of the Sustainable Development Goals (SDGs) is a critical prerequisite for their implementation. However, little is known about attitude formation among the public toward SDGs at the national level. We explored this topic in China, a country that has emerged as a leading world economy with strong transformational imperatives to work toward sustainable development. Following Chaiken’s heuristic–systematic model and using data from an online survey with 4128 valid respondents, this study investigated the factors that affect public support for SDGs and explains how individuals form supportive attitudes. Our empirical evidence showed that in China, first, public support is mainly shaped by demographic attributes (gender, age, and educational attainment), value predispositions (e.g., altruistic values and anthropocentric worldviews), and the level of SDG-relevant knowledge. Second, an interaction effect exists between value predispositions and knowledge among the public concerning support for SDGs. Third, the Chinese public views the implementation of SDGs as a part of development policy rather than environmental policy. This study provides empirical findings on the factors that account for public attitudes toward SDGs, outlining some useful implications for designing policy tools that would bolster SDG action.

Awareness, views, perceptions, and beliefs of Pharmacy Interns regarding digital health: a cross-sectional study from Saudi Arabia (Preprint)

2021 ◽  
Author(s):  
SAUD Alsahali
Keyword(s):  
Saudi Arabia ◽  
Online Survey ◽  
Digital Health ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
The Mean ◽  
And Training ◽  
Very High ◽  
Health Applications

BACKGROUND : Digital health technologies and applications are rapidly advancing and have gained attention in recent years. It is expected to have more roles and functions to transform the healthcare system in this era of digital consumers and services. However, limited research is available regarding delivering digital health education and training in pharmacy education and the pharmacy students’ perspectives on digital health. OBJECTIVE To assess pharmacy interns’ awareness of digital health applications in Saudi Arabia and their views regarding the coverage of digital health in the education of pharmacists. We will also assess the interns’ perceptions and beliefs about the concepts, benefits, and implementation of digital health in the practice settings METHODS A cross-sectional study using an online survey was conducted among pharmacy interns at Unaizah College of Pharmacy, Qassim University, Saudi Arabia. An invitation with the link to the online survey was sent to all interns registered at the College during the period of January to March 2021 RESULTS A total of 68 out of 77 interns registered in the internship year participated in the study, giving a response rate of 88.31%. The mean total score for pharmacy interns’ awareness of digital health applications in Saudi Arabia was 5.66 ± 1.74 (the maximum attainable score = 7). The awareness with different applications ranged from 97% for the Tawakkalna app to 64.7% for the Ministry of Health 937 call center. The mean total score for attitude and beliefs toward concepts and benefits of telehealth and telemedicine applications was 58.25 ± 10.44 (Maximum attainable score = 75). In this regard, 83.8% of the interns believed that telehealth could enhance the quality of care, 72% believed that it could enable pharmacists to accomplish tasks more quickly, and 70.6% believed that it could help effectively provide patient counseling, and 69.1% believed it could improve patients’ adherence to therapy. In this study, 40.6% believed that the current coverage of telehealth and telemedicine in the curriculum was average, while only 17.6% believed it was high/very high coverage. Moreover, only 38.2% attended additional educational activities related to digital health. Consequently, the majority (63.2%) were of the opinion that there is a high/very high need to educate and train pharmacists in the field of digital health CONCLUSIONS Overall, the interns showed good awareness of the common digital health applications in Saudi Arabia. In addition, majority of the interns had positive perceptions and beliefs towards the concepts, benefits, and implementation of digital health. However, the findings showed there is still further scope for improvement in some areas. Moreover, most interns indicated that there is a need for more education and training in the field of digital health and pharmacy informatics. Consequently, early exposure to content related to digital health and pharmacy informatics is an important step to help in the wide use and application of these technologies in the graduates’ future careers and practice CLINICALTRIAL Ethical approval was obtained from Health Research Ethics Committee at Qassim University, Saudi Arabia (reference number 20-06-12).

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