scholarly journals Public Attitudes to Digital Health Research Repositories: a Cross-Sectional International Survey (Preprint)

10.2196/31294 ◽  
2021 ◽  
Author(s):  
Giovanna Nunes Vilaza ◽  
David Coyle ◽  
Jakob E. Bardram
Keyword(s):  
Health Research ◽  
Digital Health ◽  
Public Attitudes ◽  
International Survey ◽  
Cross Sectional

Public Attitudes to Digital Health Research Repositories: a Cross-Sectional International Survey (Preprint)

2021 ◽  
Author(s):  
Giovanna Nunes Vilaza ◽  
David Coyle ◽  
Jakob Bardram
Keyword(s):  
Health Research ◽  
Online Survey ◽  
Digital Health ◽  
Public Awareness ◽  
Public Attitudes ◽  
Data Access ◽  
Cross Sectional ◽  
Data Repositories ◽  
Sensing Data ◽  
Future Developments

BACKGROUND Digital health research repositories propose sharing longitudinal streams of health records and personal sensing data between multiple projects and researchers. Motivated by the prospect of personalizing patient care (precision medicine), these initiatives demand broad public acceptance and large numbers of data contributors, which is challenging. OBJECTIVE This study investigates public attitudes towards possibly contributing to digital health research repositories in order to identify factors for their acceptance and to inform future developments. METHODS A cross-sectional online survey was conducted from March 2020 to December 2020. Recruitment targetted young adults in Denmark and Brazil. Through closed-ended questions, the survey examined: participants' willingness to share different data types, data access preferences, reasons for concern and motivations to contribute. The survey also collected information about participants' demographics, level of interest in health topics, previous participation in health research, awareness of examples of existing research data repositories, and current attitudes about digital health research repositories. Data analysis consisted of descriptive frequency measures and statistical inferences (bivariate associations and logistic regressions). RESULTS The analysis of 1600 responses from 583 participants in Denmark and 1017 in Brazil shows a vast majority very motivated by helping future patients (1366/1600, 85.37%), helping researchers (1253/1600, 78.31%), and receiving results about themselves (1170/1600, 73.12%), yet very concerned about unethical projects (1219/1600, 76.18%), profit-making without consent (1096/1600, 68.5%) and cyber-attacks (1055/1600, 65.93%). Participants’ willingness to share data is lower when it comes to sharing personal sensing data, such as the content of calls and texts (1206/1600, 75.37%), in contrast to more traditional health research information, but those uncomfortable sharing data about mental illness worry about being discriminated against (OR 2.26, 95%CI, 1.66-3.07, P<.001). Only 13.43% (215/1600) find it desirable to grant data access to private companies, and most would like to stay informed about which projects use their data (1334/1600, 83.37%) and control future data access (1181/1600, 73.81%). Findings indicate that favorable attitudes towards digital health research repositories are related to personal interest in health topics (OR 1.49, 95%CI, 1.10-2.02, P=.01), previous participation in health research studies (OR 1.70, 95%CI, 1.24-2.35, P=.001), and awareness of examples of research repositories (OR 2.78, 95%CI, 1.83-4.38, P<.001). CONCLUSIONS This study reveals essential factors for acceptance and willingness to share personal data with digital health research repositories. Implications include the importance of being more transparent about the goals and beneficiaries of research projects using and re-using data from repositories, providing participants with greater autonomy for choosing who gets access to which parts of their data, and raising public awareness of the benefits of data sharing for research. In addition, future developments should engage with and reduce risks for those unwilling to participate so that personalized medicine's potential benefits can be fairly distributed.

Collecting patient reported outcomes to facilitate prescription opioid management: Development and testing of the Opioid Management App (OM-App) (Preprint)

2020 ◽  
Author(s):  
Jessica Robinson-Papp ◽  
Gabriela Cedillo ◽  
Richa Deshpande ◽  
Mary Catherine George ◽  
Qiuchen Yang ◽  
...  
Keyword(s):  
Chronic Pain ◽  
Pain Intensity ◽  
Risk Behaviors ◽  
Digital Health ◽  
Monitoring Program ◽  
Prescription Opioid ◽  
Research Database ◽  
Cross Sectional ◽  
Study Duration ◽  
Patient Reported

BACKGROUND Collecting patient-reported data needed by clinicians to adhere to opioid prescribing guidelines represents a significant time burden. OBJECTIVE We developed and tested an opioid management app (OM-App) to collect these data directly from patients. METHODS OM-App used a pre-existing digital health platform to deliver daily questions to patients via text-message and organize responses into a dashboard. We pilot tested OM-App over 9 months in 40 diverse participants with HIV who were prescribed opioids for chronic pain. Feasibility outcomes included: ability to export/integrate OM-App data with other research data; patient-reported barriers and adherence to OM-App use; capture of opioid-related harms, risk behaviors and pain intensity/interference; comparison of OM-App data to urine drug testing, prescription drug monitoring program data, and validated questionnaires. RESULTS OM-App data was exported/integrated into the research database after minor modifications. Thirty-nine of 40 participants were able to use OM-App, and over the study duration 70% of all OM-App questions were answered. Although the cross-sectional prevalence of opioid-related harms and risk behaviors reported via OM-App was low, some of these were not obtained via the other measures, and over the study duration all queried harms/risks were reported at least once via OM-App. Clinically meaningful changes in pain intensity/interference were captured. CONCLUSIONS OM-App was used by our diverse patient population to produce clinically relevant opioid- and pain-related data, which was successfully exported and integrated into a research database. These findings suggest that OM-App may be a useful tool for remote monitoring of patients prescribed opioids for chronic pain. CLINICALTRIAL NCT03669939 INTERNATIONAL REGISTERED REPORT RR2-doi:10.1016/j.conctc.2019.100468

scholarly journals Assessing and piloting interoperability for population health research

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
F Estupiñán-Romero ◽  
J Gonzalez-García ◽  
E Bernal-Delgado
Keyword(s):  
Case Studies ◽  
Population Health ◽  
Health Research ◽  
Network Architecture ◽  
Digital Health ◽  
Data Extraction ◽  
Health Data ◽  
Research Network ◽  
Technical Solution ◽  
Privacy And Security

Abstract Issue/problem Interoperability is paramount when reusing health data from multiple data sources and becomes vital when the scope is cross-national. We aimed at piloting interoperability solutions building on three case studies relevant to population health research. Interoperability lies on four pillars; so: a) Legal frame (i.e., compliance with the GDPR, privacy- and security-by-design, and ethical standards); b) Organizational structure (e.g., availability and access to digital health data and governance of health information systems); c) Semantic developments (e.g., existence of metadata, availability of standards, data quality issues, coherence between data models and research purposes); and, d) Technical environment (e.g., how well documented are data processes, which are the dependencies linked to software components or alignment to standards). Results We have developed a federated research network architecture with 10 hubs each from a different country. This architecture has implied: a) the design of the data model that address the research questions; b) developing, distributing and deploying scripts for data extraction, transformation and analysis; and, c) retrieving the shared results for comparison or pooled meta-analysis. Lessons The development of a federated architecture for population health research is a technical solution that allows full compliance with interoperability pillars. The deployment of this type of solution where data remain in house under the governance and legal requirements of the data owners, and scripts for data extraction and analysis are shared across hubs, requires the implementation of capacity building measures. Key messages Population health research will benefit from the development of federated architectures that provide solutions to interoperability challenges. Case studies conducted within InfAct are providing valuable lessons to advance the design of a future pan-European research infrastructure.

scholarly journals Dissociation, Cognitive Reflection and Health Literacy Have a Modest Effect on Belief in Conspiracy Theories about COVID-19

2021 ◽  
Vol 18 (10) ◽  
pp. 5065
Author(s):  
Vojtech Pisl ◽  
Jan Volavka ◽  
Edita Chvojkova ◽  
Katerina Cechova ◽  
Gabriela Kavalirova ◽  
...  
Keyword(s):  
Health Literacy ◽  
Online Survey ◽  
Digital Health ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Conspiracy Theories ◽  
Cognitive Reflection ◽  
Variance Explained ◽  
Modest Effect

Understanding the predictors of belief in COVID-related conspiracy theories and willingness to get vaccinated against COVID-19 may aid the resolution of current and future pandemics. We investigate how psychological and cognitive characteristics influence general conspiracy mentality and COVID-related conspiracy theories. A cross-sectional study was conducted based on data from an online survey of a sample of Czech university students (n = 866) collected in January 2021, using multivariate linear regression and mediation analysis. Sixteen percent of respondents believed that COVID-19 is a hoax, and 17% believed that COVID-19 was intentionally created by humans. Seven percent of the variance of the hoax theory and 10% of the variance of the creation theory was explained by (in descending order of relevance) low cognitive reflection, low digital health literacy, high experience with dissociation and, to some extent, high bullshit receptivity. Belief in COVID-related conspiracy theories depended less on psychological and cognitive variables compared to conspiracy mentality (16% of the variance explained). The effect of digital health literacy on belief in COVID-related theories was moderated by cognitive reflection. Belief in conspiracy theories related to COVID-19 was influenced by experience with dissociation, cognitive reflection, digital health literacy and bullshit receptivity.

Digital Health Engagement in the US Population: Insights From the 2018 Health Information National Trends Survey

2021 ◽  
pp. e1-e4
Author(s):  
Chelsea L. Ratcliff ◽  
Melinda Krakow ◽  
Alexandra Greenberg-Worisek ◽  
Bradford W. Hesse
Keyword(s):  
Public Health ◽  
Health Information ◽  
Health Care Providers ◽  
Digital Health ◽  
Smart Device ◽  
P Value ◽  
Care Providers ◽  
Cross Sectional ◽  
The Us ◽  
National Trends

Objectives. To examine prevalence and predictors of digital health engagement among the US population. Methods. We analyzed nationally representative cross-sectional data on 7 digital health engagement behaviors, as well as demographic and socioeconomic predictors, from the Health Information National Trends Survey (HINTS 5, cycle 2, collected in 2018; n = 2698–3504). We fitted multivariable logistic regression models using weighted survey responses to generate population estimates. Results. Digitally seeking health information (70.14%) was relatively common, whereas using health apps (39.53%) and using a digital device to track health metrics (35.37%) or health goal progress (38.99%) were less common. Digitally communicating with one’s health care providers (35.58%) was moderate, whereas sharing health data with providers (17.20%) and sharing health information on social media (14.02%) were uncommon. Being female, younger than 65 years, a college graduate, and a smart device owner positively predicted several digital health engagement behaviors (odds ratio range = 0.09–4.21; P value range < .001–.03). Conclusions. Many public health goals depend on a digitally engaged populace. These data highlight potential barriers to 7 key digital engagement behaviors that could be targeted for intervention. (Am J Public Health. Published online ahead of print May 20, 2021: e1–e4. https://doi.org/10.2105/AJPH.2021.306282 )

COVID-19 and health information seeking behavior: Digital health literacy survey amongst university students in Pakistan (Preprint)

2021 ◽  
Author(s):  
Rubeena Zakar ◽  
Sarosh Iqbal ◽  
Muhammad Zakria Zakar ◽  
Florian Fischer
Keyword(s):  
Health Literacy ◽  
University Students ◽  
Information Seeking ◽  
Digital Health ◽  
Relevant Information ◽  
Health Concern ◽  
Information Seeking Behavior ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Seeking Behavior

BACKGROUND Amid to the COVID-19 pandemic, digital health literacy (DHL) has become a significant public health concern. OBJECTIVE This research aims to assess information seeking behavior, as well as the ability to find relevant information and deal with DHL among university students in Pakistan. METHODS An online-based cross-sectional survey, using a web-based interviewing technique, was conducted to collect data on DHL. Simple bivariate and multivariate linear regression was performed to assess the association of key characteristics with DHL. RESULTS The results show a high DHL related to COVID-19 in 54.3% of students. Most of the Pakistani students demonstrated ~50% DHL in all dimensions, except of reliability. Multivariate findings showed that gender, sense of coherence and importance of information were found to be significantly associated with DHL. However, a negative association was observed with students’ satisfaction with information. CONCLUSIONS This led to the conclusion that critical operational and navigations skills are essential to achieve COVID-19 DHL and cope with stress, particularly to promote both personal and community health. Focused interventions and strategies should be designed to enhance DHL amongst university students to combat the pandemic.

scholarly journals Implementation: The Next Giant Hurdle to Clinical Transformation With Digital Health

10.2196/16259 ◽  
2019 ◽  
Vol 21 (11) ◽  
pp. e16259 ◽  
Author(s):  
Lorraine Buis
Keyword(s):  
Health Research ◽  
Digital Health ◽  
Internet Research ◽  
Clinical Implementation ◽  
The Past ◽  
Barriers To Implementation ◽  
Clinical Transformation

Clinical implementation of digital health is a major hurdle to overcome in the coming years. Considering the role of the Journal of Medical Internet Research in the past 20 years and looking toward the journal’s future, this viewpoint acknowledges the vision of medicine and the role that digital health plays in that vision. It also highlights barriers to implementation of digital health as an obstacle to achieving that vision. In particular, this paper focuses on how digital health research must start looking toward implementation as an area of inquiry and the role that the Journal of Medical Internet Research and its' sister journals from JMIR Publications can play in this process.

scholarly journals Pneumonia pada Anak Balita di Indonesia

2014 ◽  
Vol 8 (8) ◽  
pp. 359
Author(s):  
Athena Anwar ◽  
Ika Dharmayanti
Keyword(s):  
Physical Environment ◽  
Health Research ◽  
Maternal Education ◽  
Smoking Habit ◽  
Individual Characteristics ◽  
Cross Sectional ◽  
Children Under Five ◽  
Under Five ◽  
Basic Health ◽  
Determinant Factors

Pneumonia adalah penyakit infeksi yang merupakan penyebab utama kematian pada balita di dunia. Riset Kesehatan Dasar (Riskesdas) tahun 2007 melaporkan bahwa kematian balita di Indonesia mencapai 15,5%. Penelitian ini bertujuan untuk mengidentifikasi faktor determinan terjadinya pneumonia pada balita di Indonesia. Desain penelitian ini adalah potong lintang dengan menggunakan data Riskesdas 2013. Kriteria sampel adalah balita (0 – 59 bulan) yang menjadi responden Riskesdas 2013. Variabel dependen adalah kejadian pneumonia balita, sedangkan variabel independennya adalah karakteristik individu, lingkungan fisik rumah, perilaku penggunaan bahan bakar, dan kebiasaan merokok. Penetapan kejadian pneumonia berdasarkan hasil wawancara, dengan batasan operasional diagnosis pneumonia oleh tenaga kesehatan dan/atau dengan gejala pneumonia dalam periode 12 bulan terakhir. Jumlah sampel yang memenuhi kriteria adalah 82.666 orang. Hasil menunjukkan bahwa faktor risiko yang paling berperan dalam kejadian pneumonia balita adalah jenis kelamin balita (OR = 1,10; 95% CI = 1,02 - 1,18), tipe tempat tinggal (OR = 1,15; 95% CI = 1,06 – 1,25), pendidikan ibu (OR = 1,20; 95% CI = 1,11 – 1,30), tingkat ekonomi keluarga/kuintil indeks kepemilikan (OR = 1,19; 95% CI = 1,10 – 1,30), pemisahan dapur dari ruangan lain (OR = 1,19; 95% CI = 1,05 – 1,34), keberadan/kebiasaan membuka jendela kamar (OR = 1,17; 95% CI = 1,04 – 1,31), dan ventilasi kamar yang cukup (OR = 1,16; 95% CI = 1,04 – 1,30). Disimpulkan bahwa faktor sosial, demografi, ekonomi dan kondisi lingkungan fisik rumah secara bersama-sama berperan terhadap kejadian pneumonia pada balita di Indonesia.Pneumonia is an infectious disease which is a major cause of mortality in children under five years of age in the world. National Basic Health Research 2007 reported that infant mortality in Indonesia has reached 15.5%. The objective of the study was to identify the determinant factors related to the incidence of pneumonia in children under five years of age in Indonesia. The research design was cross sectional, using National Basic Health Research 2013 data. Sample criteria were children under five years of age (0 – 59 months). The dependent variable was the incidence of pneumonia among children under five years of age, while the independent variables were individual characteristics, physical environment of house, types of fuel used, and smoking habit. There were 82,666 samples that fulfilled the study criteria. The result showed that determinant factors contributing to the incidence of pneumonia in children were sex (OR = 1.10; 95% CI = 1.02 – 1.18), residence (urban/rural) (OR = 1.15; 95% CI = 1,06 – 1,25), maternal education (OR = 1.20; 95% CI = 1.11 – 1.30), household poverty index quintile (OR = 1.19; 95% CI = 1.10 – 1.30) , kitchen separation (OR = 1.19; 95% CI = 1.05 – 1.34), window availability in bedroom (OR = 1.17; 95% CI = 1.04 – 1.31), and bedroom ventilation (OR = 1.16; 95% CI = 1.04 – 1.30). This study concluded that social factors, demographic, economic levels and the physical environment of house simultaneously contributed to the incidence of pneumonia in children under five of age. 

scholarly journals The Public Attitudes, Concerns and Behaviors towards Children Vaccination

2021 ◽  
pp. 39-43
Author(s):  
Nehad J. Ahmed ◽  
Abdulrahman S. Alrawili ◽  
Faisal Z. Alkhawaja
Keyword(s):  
Online Survey ◽  
Public Attitudes ◽  
Active Role ◽  
Arabic Language ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
The Public ◽  
And Behavior ◽  
Attitudes And Behavior ◽  
Public Concerns

Aim: The aim of this study was to identify the public concerns, attitudes and behavior towards vaccination. Methodology: This was a cross-sectional study that included an online survey about the public concerns, attitudes and behavior towards vaccination in Saudi Arabia. The survey was translated to Arabic language and converted to an online form using google forms and after that it was sent to be filled by the parents. Results: About 92% of the respondents said that children should be vaccinated in order to protect them and about 86% of them believed that vaccinations are safe for children in general. Regarding the concerns about vaccination, about 69% of the respondents were concerned about the distress to children of the injection itself and 59% of them were concerned about the increasing number of vaccines recommended for children. Furthermore, about 62% of the respondents were concerned that vaccines are not tested enough for safety. Conclusion: The majority of respondents in this study reported positive attitude but more than half of them expressed some degree of concern regarding children vaccination. Healthcare professionals should play an active role in clarifying these concerns about vaccination with the public. Moreover, they should communicate with parents regarding the vaccinations and provide them with a trusted information about the vaccine.

scholarly journals Pharmacists’ Perspectives on the Use of My Health Record

Pharmacy ◽  
2020 ◽  
Vol 8 (4) ◽  
pp. 190
Author(s):  
Sam Kosari ◽  
Kwang Choon Yee ◽  
Stephanie Mulhall ◽  
Jackson Thomas ◽  
Shane L. Jackson ◽  
...  
Keyword(s):  
General Practice ◽  
Online Survey ◽  
Digital Health ◽  
Cross Sectional Study ◽  
Professional Relationships ◽  
Health Record ◽  
Security Measures ◽  
Record System ◽  
Cross Sectional ◽  
Potential Benefits

(1) Background: My Health Record (MHR) is a relatively new nationwide Australian digital health record system accessible by patients and a range of healthcare professionals. Pharmacists will be key contributors and users of the MHR system, yet little is known about the perceived barriers and benefits of use. (2) Objective: To explore pharmacists’ perspectives related to potential benefits and barriers associated with use of MHR. (3) Methods: An online survey was developed and face-validated. The survey was advertised to Australian pharmacists on pharmacy professional bodies’ websites. This was a cross-sectional study using an anonymous questionnaire. Descriptive statistics were used to describe the distribution of the data. Chi-square, Kendall’s tau coefficient (tau-c) and Kruskal–Wallis tests were used to examine the relationships where appropriate. (4) Results: A total of 63 pharmacists completed the survey. The majority of respondents worked in a metropolitan area (74%), and the most common workplace setting was community pharmacy (65%). Perceived benefits identified by responders include that the use of MHR would help with continuity of care (90%), and that it would improve the safety (71%) and quality (75%) of care they provided. Importantly, more than half of pharmacists surveyed agreed that MHR could reduce medication errors during dispensing (57%) and could improve professional relationships with patients (57%) and general practitioners (59%). Potential barriers identified by pharmacists included patients’ concerns about privacy (81%), pharmacists’ own concern about privacy (46%), lack of training, access to and confidence in using the system. Sixty six percent of respondents had concerns about the accuracy of information contained within MHR, particularly among hospital and general practice pharmacists (p = 0.016) and almost half (44%) had concerns about the security of information in the system, mainly pharmacists working at general practice and providing medication review services (p = 0.007). Overall satisfaction with MHR varied, with 48% satisfied, 33% neither satisfied nor dissatisfied, and 19% dissatisfied, with a higher satisfaction rate among younger pharmacists (p = 0.032). (5) Conclusions: Pharmacists considered that the MHR offered key potential benefits, notably improving the safety and quality of care provided. To optimize the use of MHR, there is a need to improve privacy and data security measures, and to ensure adequate provision of user support and education surrounding the ability to integrate use of MHR with existing workflows and software.

Sign in / Sign up

Export Citation Format

Share Document