scholarly journals Best practices for virtual patient-centered outcomes research team engagement during the era of COVID-19 and beyond: A qualitative research study (Preprint)

2020 ◽  
Author(s):  
Erin K Thayer ◽  
Molly Pam ◽  
Emily Godfrey ◽  
Laura Mentch ◽  
Georgia Brown ◽  
...  
Keyword(s):  
Best Practices ◽  
Outcomes Research ◽  
Team Member ◽  
Lessons Learned ◽  
Ease Of Use ◽  
Structured Interviews ◽  
Patient Centered ◽  
Non Profit ◽  
Online Platforms ◽  
Infection Control Guidelines

BACKGROUND Patient-Centered Outcomes Research (PCOR) engages patients as partners in research and focuses on questions and outcomes that are important to patients. Traditionally done in person, COVID-19 has forced PCOR teams to engage via online platforms. Similarly, virtual engagement is the only safe choice for members of the cystic fibrosis (CF) community who spend their lives living under strict infection control guidelines. In the absence of universal best practices, the CF community developed its own guide to help PCOR teams engage virtually. OBJECTIVE To identify the important attributes, facilitators, and barriers to teams when selecting online platforms. METHODS We conducted semi-structured interviews with CF community members, non-profit stakeholders, and researchers about their experiences using online tools including the effectiveness, efficiency, satisfaction with, and confidence using each platform. Interviews conducted via Zoom conferencing were audio recorded and transcribed. We identified key themes using content analysis with an iterative inductive and deductive coding process. RESULTS Fifteen participants reported using online platforms for meetings, project management, document sharing, scheduling, and communication. When selecting online platforms, participants valued accessibility, ease of use, and integration of the platforms with other platforms. Participants thought successful online collaboration utilized platforms that resemble in-person interactions, recognized team member technological literacy levels, provided intentional alignment of platforms with collaboration goals, and achieved team member buy-in to adopt new platforms. CONCLUSIONS Successful online PCOR engagement requires using multiple platforms in order to fully meet the asynchronous or synchronous goals for the project. This study identified key attributes beneficial for conducting PCOR online, as well as common challenges and solutions to using online platforms. Our study findings provide best practices for selecting types of platforms and lessons learned from online PCOR collaborations.

scholarly journals Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics

Geriatrics ◽  
2019 ◽  
Vol 4 (2) ◽  
pp. 35
Author(s):  
Lee A. Lindquist ◽  
Anne Seltzer ◽  
Chris Forcucci ◽  
Norine Wong ◽  
Vanessa Ramirez-Zohfeld
Keyword(s):  
Outcomes Research ◽  
Qualitative Interviews ◽  
Medical Patient ◽  
Community Partnerships ◽  
Lessons Learned ◽  
Future Research ◽  
Community Partner ◽  
Patient Centered ◽  
Community Partners ◽  
Future Researcher

Background: With the growth of patient-centered outcomes research (PCOR), partnerships between researchers and patients have presented novel opportunities for disseminating results. A large gap exists in disseminating patient-centered research results to older adult patient end-users. We sought to examine the experiences of patient/community partners in disseminating PCOR results and characterize lessons learned that may facilitate future researcher-patient/community dissemination partnerships. Methods: Patient/community partners who participated in geriatrics-focused PCORI-funded research and were active in disseminating results, as part of their planned activities, were recruited for one-to-one qualitative interviews. Constant comparative and thematic analysis were used to identify and describe common themes that emerged in a survey of open-ended questions. Results: Ten individuals (four community partners, six patients) aged 55–87 years were interviewed. Analysis revealed that for successful dissemination, subjects felt it was vital to reach out to people affected by the results, leverage personal stories, and tap into pre-developed programming. Patient/Community partners identified potential audiences through word-of-mouth, community requests, and mapping a list of audiences—targeting those directly affected as well as those who worked with the audience (e.g., not specifically medical). Patient/community partners recommended that researchers engage patient/community partners for suggestions on audiences, show empathy, include diverse populations, and maintain a community-focus. One community partner stated, “Why wouldn’t we help disseminate results? It’s a no-brainer. We know people!” Conclusion: Patient/community partners provide effective ways to communicate results, new audiences to reach, improved communication with different audiences, and improved credibility of the findings. The lessons learned have implications for assisting future research-patient/community partnerships in the dissemination of their patient-centered research.

scholarly journals Lessons on Patient and Stakeholder Engagement Strategies for Pipeline to Proposal Awards

2018 ◽  
Vol 28 (Supp) ◽  
pp. 303-310 ◽  
Author(s):  
Ashley Wennerstrom ◽  
Benjamin F. Springgate ◽  
Felica Jones ◽  
Diana Meyers ◽  
Norris Henderson ◽  
...  
Keyword(s):  
Los Angeles ◽  
Outcomes Research ◽  
Technical Assistance ◽  
African American Men ◽  
Knowledge Exchange ◽  
Lessons Learned ◽  
Research Network ◽  
Patient Centered ◽  
Research Partnerships ◽  
New Research

The Patient Centered Outcomes Research Institute (PCORI) supports patient-centered clinical comparative effectiveness research (CER) including health disparities and engagement portfolios. In 2013, PCORI launched the Pipeline to Proposal (P2P) mechanism to support development of nov­el patient- and stakeholder-centered part­nerships focused on designing clinical CER funding proposals. By providing a tiered structure of successive small contracts and technical assistance, the P2P mechanism encourages development of new research partnerships among diverse stakeholders. As a comparatively new field, patient-centered outcomes research (PCOR) has few well-delineated methods for engaging patients and other non-scientists in effective teams with academics or clinicians to develop and implement rigorous, scientific research pro­posals. Community partnered participatory research (CPPR) provides a useful frame­work for structuring new partnerships.In this article we highlight the origins, de­velopment, and prospects of three current examples of funded P2P initiatives based in New Orleans and Los Angeles. We outline how these projects – Prisoner to Patient, the NOLA Partnership, and Resilience Among African American Men – use CPPR principles. We also describe how they have collaborated with, and contributed to, a two-way learning and knowledge exchange among members of the PCORI-funded Community and Patient Partnered Research Network. Lessons learned may be ap­plicable to other groups planning to create new partnerships focused on implementing PCOR.Ethn Dis. 2018;28(Suppl 2):303- 310; doi:10.18865/ed.28.S2.303.

Building a patient-centered model: Palliative medicine and cancer care.

2014 ◽  
Vol 32 (31_suppl) ◽  
pp. 75-75
Author(s):  
Kavitha Ramchandran ◽  
Derek Galligan ◽  
Erika L Tribett ◽  
Melissa Valentine ◽  
Meryl Selig ◽  
...  
Keyword(s):  
Best Practices ◽  
Health Care Providers ◽  
Cancer Care ◽  
Palliative Medicine ◽  
Large Scale ◽  
Best Practice ◽  
Family Members ◽  
Care Providers ◽  
Structured Interviews ◽  
Patient Centered

75 Background: Palliative medicine (PM) improves outcomes for cancer patients. Still, there is limited evidence around components of an efficient, patient-centered model for integrating PM into oncologic care. While PM is committed to aligning with a patient's goals of care, very few programs incorporate their input into design or evaluation. The aim of this project is to combine best practice in PM with perspectives of patients, families and providers to develop an empathic PM service. We hypothesize that collaboration with stakeholders and user experience experts will result in a feasible, impactful and translatable model of care that aligns with patient and family goals. Methods: We are conducting semi-structured interviews with 30 patients, family members and 30 oncologists. Patient interviews assess needs and coping mechanisms. Provider interviews assess perceptions and experiences around PM. We will conduct observations to understand how patients and providers interact and how current protocols are operationalized. Data will be coded and analyzed for major themes. An expert panel of patients, family members, health care providers and design experts will assimilate the data and make recommendations for the prototype care model design. The model will be piloted and evaluated in fall 2014. Outcome metrics include patient satisfaction, symptom management, utilization, mortality, and others identified during development. Data from the pilot will inform intervention improvements in preparation for a large-scale, 12- month pilot in an outpatient PM clinic. Results: Preliminary work includes the development of a novel patient and family interview protocol that integrates cutting-edge research on PM with best practices for conducting empathic interviews. We will present initial results from these interviews at the symposium, as well as our iterative design process. Conclusions: This project integrates data on patient and family experience with known best practices to develop a patient-centered model for palliative cancer care. The development process and potential outcomes hold significant promise for the design of patient and provider-centered care models, especially those related to chronic and serious illnesses.

scholarly journals Training in patient-centered outcomes research for specific researcher communities

2017 ◽  
Vol 1 (5) ◽  
pp. 278-284
Author(s):  
Douglas P. Landsittel ◽  
Larry Kessler ◽  
Christopher H. Schmid ◽  
Paul Marantz ◽  
Maria E. Suarez-Almazor ◽  
...  
Keyword(s):  
Comparative Effectiveness Research ◽  
Outcomes Research ◽  
Comparative Effectiveness ◽  
Training Programs ◽  
Healthcare Research ◽  
Lessons Learned ◽  
Effectiveness Research ◽  
Patient Centered ◽  
Experiential Training ◽  
Number Of Publications

A number of publications have discussed approaches to training the scientific workforce in comparative effectiveness research (CER) and patient-centered outcomes research (PCOR). To meet this need, funders have offered resources for developing educational materials and establishing training programs. To extend these efforts into specific researcher communities, the Agency for Healthcare Research and Quality developed an R25 Funding Opportunity Announcement that called for basic, advanced, and experiential training for a specific researcher community in collaboration with associated program partners. This paper describes the strategies developed by the 5 subsequently funded programs, their specific researcher communities and program partners, and the challenges associated with developing in-person and online programs. We focus on lessons learned that can be translated into developing training programs nationwide and on training for the special populations of interest. We also discuss the creation of a sustainable network for training and the conduct of comparative effectiveness research/patient-centered outcomes research in targeted communities.

scholarly journals Vegetation monitoring using multispectral sensors – best practices and lessons learned from high latitudes

2018 ◽  
Author(s):  
Jakob J Assmann ◽  
Jeffrey T Kerby ◽  
Andrew M Cunliffe ◽  
Isla H Myers-Smith
Keyword(s):  
Best Practices ◽  
Spatial Data ◽  
Ecological Monitoring ◽  
Lessons Learned ◽  
Ease Of Use ◽  
Quality Data ◽  
Electromagnetic Spectrum ◽  
High Latitudes ◽  
Normalised Difference Vegetation Index ◽  
Multispectral Sensors

AbstractEmerging drone technologies have the potential to revolutionise ecological monitoring. The rapid technological advances in recent years have dramatically increased affordability and ease of use of Unmanned Aerial Vehicles (UAVs) and associated sensors. Compact multispectral sensors, such as the Parrot Sequoia (Paris, France) and MicaSense RedEdge (Seattle WA, USA) capture spectrally accurate high-resolution (fine grain) imagery in visible and near-infrared parts of the electromagnetic spectrum, providing supplement to satellite and aircraft-based imagery. Observations of surface reflectance can be used to calculate vegetation indices such as the Normalised Difference Vegetation Index (NDVI) for productivity estimates and vegetation classification. Despite the advances in technology, challenges remain in capturing consistently high-quality data, particularly when operating in extreme environments such as the high latitudes. Here, we summarize three years of ecological monitoring with drone-based multispectral sensors in the remote Canadian Arctic. We discuss challenges, technical aspects and practical considerations, and highlight best practices that emerged from our experience, including: flight planning, factoring in weather conditions, and geolocation and radiometric calibration. We propose a standardised methodology based on established principles from remote sensing and our collective field experiences, using the Parrot Sequoia sensor as an example. With these good practises, multispectral sensors can provide meaningful spatial data that is reproducible and comparable across space and time.

Using Telehealth to Address Disparities: A Scoping Review of Early Patient-Centered Outcomes Research Experience (Preprint)

2021 ◽  
Author(s):  
James E. Bailey ◽  
Cathy Gurgol ◽  
Eric Pan ◽  
Shirilyn Njie ◽  
Susan Emmett ◽  
...  
Keyword(s):  
At Risk ◽  
Health Disparities ◽  
Best Practices ◽  
Scoping Review ◽  
Low Income ◽  
Outcomes Research ◽  
Comparative Effectiveness ◽  
Barriers And Facilitators ◽  
Patient Centered ◽  
Populations At Risk

BACKGROUND Increasingly, health systems and providers across America are employing telehealth technologies to better serve medically underserved low-income, minority, and rural populations at highest risk for health disparities. The Patient Centered Outcomes Research Institute (PCORI) has invested $386 million in comparative effectiveness research in telehealth, yet little is known about the key early lessons garnered from this research regarding best practices in using telehealth to address disparities. OBJECTIVE This paper describes preliminary lessons from this body of research using study findings and case studies drawn from these seminal patient-centered outcomes research (PCOR) initiatives. The primary purpose is to identify common barriers and facilitators to implementing telehealth technologies in populations at risk for disparities. METHODS A systematic scoping review of telehealth studies addressing disparities was performed, guided by the Arksey and O’Malley Scoping Review Framework, focused on PCORI’s active portfolio of telehealth studies and key PCOR identified by investigators of these studies. We drew on this broad literature using illustrative examples from early PCOR experience and published literature to assess barriers and facilitators to implementing telehealth in populations at risk for disparities, using the active implementation framework to extract data. Major themes regarding how telehealth interventions can overcome barriers to telehealth adoption and implementation were identified through review of both the extracted data and illustrative examples using an iterative Delphi process to achieve consensus among the PCORI investigators participating in the study. RESULTS PCORI has funded 89 comparative effectiveness studies in telehealth, of which 41 were identified and assessed use of telehealth to improve outcomes for populations at risk for health disparities as part of this scoping review. These 41 studies employed various overlapping modalities including: mobile devices (n=29), web-based interventions (n=30), real-time video (n=15), remote patient monitoring (n=8), and store-and-forward (asynchronous electronic transmission) interventions (n=5). The studies targeted one or more of PCORI’s priority populations, which include racial and ethnic minorities, people living in rural areas, people with low-income or low socioeconomic status, people with low-health literacy, and people with disabilities. Major themes identified across these studies included the importance of patient-centered design, cultural tailoring of telehealth solutions, delivering telehealth through trusted intermediaries, partnering with payers to expand telehealth reimbursement, and ensuring confidential sharing of private information. CONCLUSIONS Early PCOR evidence suggests that the most effective health system- and provider-level telehealth implementation solutions to address disparities employ patient-centered and culturally tailored telehealth solutions whose development is actively guided by patients themselves to meet the needs of specific communities and populations. Further, this evidence shows that best practices in telehealth implementation include delivering telehealth through trusted intermediaries, close partnership with payers to facilitate reimbursement and sustainability, and safeguards to ensure patient-guided confidential sharing of personal health information.

scholarly journals Conducting operational research during outbreaks to improve preparedness and response

2018 ◽  
Vol 10 (1) ◽  
Author(s):  
Jennifer Nuzzo ◽  
Matthew P. Shearer ◽  
Diane Meyer
Keyword(s):  
Public Health ◽  
Best Practices ◽  
Team Member ◽  
Lessons Learned ◽  
Joint Analysis ◽  
Outbreak Response ◽  
Public Health Community ◽  
Project Director ◽  
Health Community ◽  
Health Communities

ObjectiveThe Outbreak Observatory (OO) aims to:●Strengthen outbreak/epidemic preparedness and response activities through real-time, one-the-ground observations and analyses●Identify best practices based on operational experience that are broadly applicable across outbreak response agencies●Serve as an independent voice to advocate for policies that support preparedness and response activities based on expert assessment of the resources required to build and maintain necessary outbreak response capabilities●Support local practitioners’ efforts to publish their experiencesSharing the firsthand experience of responders is critical for building outbreak preparedness and response capacity, and OO will serve as a dedicated mechanism to collect, analyze and disseminate this informationIntroductionEach significant outbreak and epidemic raises questions that must be answered in order to better inform future preparedness and response efforts, such as:●What are the systems and resources needed to characterize an outbreak?●What systems and resources are needed to bring an outbreak to a close?While we can anticipate these types of questions, the absence of dedicated mechanisms to record operational experiences and challenges can result in valuable, ephemeral data that are crucial for improving outbreak response not being consistently collected or analyzed.Participation in outbreaks by external experts can be instrumental in ensuring that this important operational information is documented, analyzed and shared with the broader public health community. There is a particular need for observers external to the response who can capture and analyze applied data about the operational response to outbreaks—eg, the systems and strategies involved in responding to the such events—in order to improve our understanding of best practices for detecting and responding to these events. These can then be shared so that the entire public health community can access and incorporate lessons learned into their own preparedness and response plans. External observers can also help describe the important work performed by local responders during outbreaks and advocate for necessary preparedness and response program resources.The Outbreak Observatory is currently in a pilot phase and is looking for international and US partners who may be interested in collaborating with members of our team during their next outbreak response. MethodsWhen an outbreak occurs, OO will reach out to our partners to assess their interest in having project team member(s) travel to their location to observe the ongoing outbreak for the purpose of collaborating on a joint analysis of the response. The team member(s) would engage with local officials to identify operational challenges and best practices to better understand their perspectives and experiences.Prior to the OO team’s arrival, they will provide local responders a list of sample questions that the team is interested in exploring for the purpose of potential future written analysis, with the goal of focusing on those questions that are most relevant to both the local and broader public health communities. Once a preliminary list of study questions is developed, team members will engage with local responders to discuss their experiences.Once on location, the OO team member(s) will regularly report their findings back to the Project Director. The OO team will work with the Project Director and local partners to compose and submit the findings to a peer-reviewed journal, ensuring that local practitioners receive appropriate authorship credit.ResultsOO aims to fill gaps in existing health security literature by sharing the experiences of practitioners involved in outbreak responses and co-authoring peer-reviewed publications with those responders. We envision that these publications will be available more quickly than existing outbreak reports. We will disseminate our findings to pertinent policymakers, members of the broader biosecurity and public health communities and the public to ensure that important lessons reach all appropriate audiences, especially those responsible for planning and resource allocation decisions for outbreak and epidemic response. In support of this, we have created a communication platform (www.outbreakobservatory.org) to publish interim observations via rapid communication channels (eg, communications with policymakers, social media, blog posts, video logs). All publications will be developed in partnership with local practitioners.ConclusionsThe lessons learned from previous epidemic and outbreak responses are critical to informing future response efforts. However, this data is often lost in the midst of an outbreak, when responders are too busy with the situation at hand to collect and analyze operational data. Outbreak Observatory endeavors to bridge this research gap, helping to capture and analyze this data and making it available to the broader public health community.

scholarly journals Construction in Occupied Spaces

2017 ◽  
Vol 25 (2) ◽  
pp. 15-23
Author(s):  
Andrew E. Ward ◽  
Salman Azhar ◽  
Malik Khalfan
Keyword(s):  
Best Practices ◽  
Construction Industry ◽  
Qualitative Data ◽  
Lessons Learned ◽  
Structured Interviews ◽  
Exploratory Approach ◽  
Management Techniques ◽  
The Impact ◽  
Industry Professionals ◽  
Critical Aspects

Abstract Conducting construction activities in occupied environments presents a great challenge due to the additional logistical requirements and the presence of the building occupants. The aim of this research is to gather and evaluate the means and methods to successfully plan, manage, and execute construction activities in occupied spaces in an effort to provide consolidated industry tools and strategies for maintaining a schedule and minimizing the impact on the occupants. The methodology of the research utilizes an exploratory approach to gather qualitative data. The data was collected through interviews with industry professionals to identify industry best practices. The semi-structured interviews provided a platform for the documents, lessons learned, and the techniques and strategies used for occupied construction by the construction industry. The information obtained in the interview process identified six themes that are critical to achieving and maintaining quality in occupied construction. These themes of the schedule, cost, customer satisfaction, planning, fire/life safety and utilities, and contractor management are reviewed in detail, and the paper discusses how to manage each element. The analysis and extracted management techniques, procedures and strategies can be used by the construction industry for future projects by focusing on the critical aspects of occupied construction and the manner in which to succeed with it.

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