scholarly journals Lessons on Patient and Stakeholder Engagement Strategies for Pipeline to Proposal Awards

2018 ◽  
Vol 28 (Supp) ◽  
pp. 303-310 ◽  
Author(s):  
Ashley Wennerstrom ◽  
Benjamin F. Springgate ◽  
Felica Jones ◽  
Diana Meyers ◽  
Norris Henderson ◽  
...  
Keyword(s):  
Los Angeles ◽  
Outcomes Research ◽  
Technical Assistance ◽  
African American Men ◽  
Knowledge Exchange ◽  
Lessons Learned ◽  
Research Network ◽  
Patient Centered ◽  
Research Partnerships ◽  
New Research

The Patient Centered Outcomes Research Institute (PCORI) supports patient-centered clinical comparative effectiveness research (CER) including health disparities and engagement portfolios. In 2013, PCORI launched the Pipeline to Proposal (P2P) mechanism to support development of nov­el patient- and stakeholder-centered part­nerships focused on designing clinical CER funding proposals. By providing a tiered structure of successive small contracts and technical assistance, the P2P mechanism encourages development of new research partnerships among diverse stakeholders. As a comparatively new field, patient-centered outcomes research (PCOR) has few well-delineated methods for engaging patients and other non-scientists in effective teams with academics or clinicians to develop and implement rigorous, scientific research pro­posals. Community partnered participatory research (CPPR) provides a useful frame­work for structuring new partnerships.In this article we highlight the origins, de­velopment, and prospects of three current examples of funded P2P initiatives based in New Orleans and Los Angeles. We outline how these projects – Prisoner to Patient, the NOLA Partnership, and Resilience Among African American Men – use CPPR principles. We also describe how they have collaborated with, and contributed to, a two-way learning and knowledge exchange among members of the PCORI-funded Community and Patient Partnered Research Network. Lessons learned may be ap­plicable to other groups planning to create new partnerships focused on implementing PCOR.Ethn Dis. 2018;28(Suppl 2):303- 310; doi:10.18865/ed.28.S2.303.

scholarly journals Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions

2021 ◽  
Vol 8 (1) ◽  
pp. 148-156
Author(s):  
Karen L. Fortuna ◽  
Amanda Myers ◽  
Jessica Brooks ◽  
Caroline Collins-Pisano ◽  
Skyla Marceau ◽  
...  
Keyword(s):  
Mental Health ◽  
Outcomes Research ◽  
Health Conditions ◽  
Patient Centered ◽  
Research Partnerships ◽  
Mental Health Conditions

scholarly journals Mobilising knowledge on newcomers: Engaging key stakeholders to establish a research hub for Alberta

2020 ◽  
Vol 13 (1) ◽  
Author(s):  
Mary O'Brien ◽  
Beren Cancino ◽  
Francis Apasu ◽  
Tanvir Chowdhury
Keyword(s):  
Knowledge Exchange ◽  
Lessons Learned ◽  
Research Network ◽  
Step Process ◽  
Community Engaged Research ◽  
Stakeholder Groups ◽  
Temporary Foreign Workers ◽  
Key Stakeholders ◽  
University Of Calgary ◽  
The University

As immigration to Canada increases, so, too, do the complexities associated with serving various groups of newcomers, including immigrants, refugees, temporary foreign workers and international students. A range of stakeholder groups, such as grassroots community organisations, immigrant service provider organisations and academic researchers, have developed knowledge about how to best serve newcomers as they integrate into life in Canada. To date, there have been few opportunities for members of these and other stakeholder groups to work together to ensure that the needs of newcomers are being efficiently met. In this article, we describe a multi-step process of reciprocal knowledge engagement involving diverse stakeholders and led by the Newcomer Research Network at the University of Calgary. This engagement has the ultimate goal of developing a knowledge mobilisation hub focused on building capacity in community-engaged research with newcomers. In order to understand how we will reach this goal, this article outlines the efforts, priorities, challenges and important lessons learned that occurred as part of the multi-step process undertaken to establish a knowledge exchange with newcomer communities at its core.

scholarly journals Leveraging Patient/Community Partnerships to Disseminate Patient Centered Outcomes Research in Geriatrics

Geriatrics ◽  
2019 ◽  
Vol 4 (2) ◽  
pp. 35
Author(s):  
Lee A. Lindquist ◽  
Anne Seltzer ◽  
Chris Forcucci ◽  
Norine Wong ◽  
Vanessa Ramirez-Zohfeld
Keyword(s):  
Outcomes Research ◽  
Qualitative Interviews ◽  
Medical Patient ◽  
Community Partnerships ◽  
Lessons Learned ◽  
Future Research ◽  
Community Partner ◽  
Patient Centered ◽  
Community Partners ◽  
Future Researcher

Background: With the growth of patient-centered outcomes research (PCOR), partnerships between researchers and patients have presented novel opportunities for disseminating results. A large gap exists in disseminating patient-centered research results to older adult patient end-users. We sought to examine the experiences of patient/community partners in disseminating PCOR results and characterize lessons learned that may facilitate future researcher-patient/community dissemination partnerships. Methods: Patient/community partners who participated in geriatrics-focused PCORI-funded research and were active in disseminating results, as part of their planned activities, were recruited for one-to-one qualitative interviews. Constant comparative and thematic analysis were used to identify and describe common themes that emerged in a survey of open-ended questions. Results: Ten individuals (four community partners, six patients) aged 55–87 years were interviewed. Analysis revealed that for successful dissemination, subjects felt it was vital to reach out to people affected by the results, leverage personal stories, and tap into pre-developed programming. Patient/Community partners identified potential audiences through word-of-mouth, community requests, and mapping a list of audiences—targeting those directly affected as well as those who worked with the audience (e.g., not specifically medical). Patient/community partners recommended that researchers engage patient/community partners for suggestions on audiences, show empathy, include diverse populations, and maintain a community-focus. One community partner stated, “Why wouldn’t we help disseminate results? It’s a no-brainer. We know people!” Conclusion: Patient/community partners provide effective ways to communicate results, new audiences to reach, improved communication with different audiences, and improved credibility of the findings. The lessons learned have implications for assisting future research-patient/community partnerships in the dissemination of their patient-centered research.

scholarly journals The Patient-Centered Outcomes Research Network Antibiotics and Childhood Growth Study: Implementing Patient Data Linkage

2020 ◽  
Vol 23 (6) ◽  
pp. 438-444
Author(s):  
Melanie Canterberry ◽  
Alan F. Kaul ◽  
Satyender Goel ◽  
Pi-I Debby Lin ◽  
Jason P. Block ◽  
...  
Keyword(s):  
Outcomes Research ◽  
Data Linkage ◽  
Patient Data ◽  
Research Network ◽  
Growth Study ◽  
Patient Centered ◽  
Childhood Growth

scholarly journals Assessing the Outcomes of Community-University Engagement Networks in a Canadian Context

2018 ◽  
Vol 3 (2) ◽  
pp. 1-21
Author(s):  
Crystal Tremblay ◽  
Robyn Spilker ◽  
Rhianna Nagel ◽  
Jennifer Claire Robinson ◽  
Leslie Brown
Keyword(s):  
Well Being ◽  
Lessons Learned ◽  
Research Network ◽  
Organizational Networks ◽  
Research Partnerships ◽  
Community Based Research ◽  
The Pacific ◽  
Knowledge Democracy ◽  
Housing Research ◽  
University Engagement

  Inter-organizational networks are proliferating as a tool for community-university engagement (CUE). Focusing on three Canadian inter-organizational networks that bring communities and universities together, Community Based Research Canada (CBRC), the Pacific Housing Research Network (PHRN) and the Indigenous Child Well-being Research Network, this paper identifies key criteria for assessing these networks’ outcomes and highlights factors that contribute to these networks’ challenges and successes. This work is part of a growing body of scholarship seeking to better understand the role and contribution of networks in society and more specifically how the outcomes of these engagements might benefit and enhance collaborative research partnerships between civil society and higher education institutions. The results illuminate lessons learned from each of these three networks and their members. These findings inform broader research into community-university engagement networks and illustrate how these types of engagements can help build a stronger knowledge democracy in Canada and elsewhere.

A Comprehensive Stakeholder Engagement Plan for the Patient Centered Outcomes Research Network (PCORnet) Bariatric Study

2016 ◽  
Vol 12 (7) ◽  
pp. S194-S195
Author(s):  
Karen Coleman ◽  
Neely Williams ◽  
Jane Anau ◽  
Caroline Apovian ◽  
Anita Courcoulas ◽  
...  
Keyword(s):  
Outcomes Research ◽  
Stakeholder Engagement ◽  
Research Network ◽  
Patient Centered

scholarly journals Training in patient-centered outcomes research for specific researcher communities

2017 ◽  
Vol 1 (5) ◽  
pp. 278-284
Author(s):  
Douglas P. Landsittel ◽  
Larry Kessler ◽  
Christopher H. Schmid ◽  
Paul Marantz ◽  
Maria E. Suarez-Almazor ◽  
...  
Keyword(s):  
Comparative Effectiveness Research ◽  
Outcomes Research ◽  
Comparative Effectiveness ◽  
Training Programs ◽  
Healthcare Research ◽  
Lessons Learned ◽  
Effectiveness Research ◽  
Patient Centered ◽  
Experiential Training ◽  
Number Of Publications

A number of publications have discussed approaches to training the scientific workforce in comparative effectiveness research (CER) and patient-centered outcomes research (PCOR). To meet this need, funders have offered resources for developing educational materials and establishing training programs. To extend these efforts into specific researcher communities, the Agency for Healthcare Research and Quality developed an R25 Funding Opportunity Announcement that called for basic, advanced, and experiential training for a specific researcher community in collaboration with associated program partners. This paper describes the strategies developed by the 5 subsequently funded programs, their specific researcher communities and program partners, and the challenges associated with developing in-person and online programs. We focus on lessons learned that can be translated into developing training programs nationwide and on training for the special populations of interest. We also discuss the creation of a sustainable network for training and the conduct of comparative effectiveness research/patient-centered outcomes research in targeted communities.

scholarly journals CAPriCORN: Chicago Area Patient-Centered Outcomes Research Network

2014 ◽  
Vol 21 (4) ◽  
pp. 607-611 ◽  
Author(s):  
A. N. Kho ◽  
D. M. Hynes ◽  
S. Goel ◽  
A. E. Solomonides ◽  
R. Price ◽  
...  
Keyword(s):  
Outcomes Research ◽  
Research Network ◽  
Patient Centered ◽  
Chicago Area
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