scholarly journals Patients’ Experiences of Accessing Their Electronic Health Records: National Patient Survey in Sweden

2018 ◽  
Vol 20 (11) ◽  
pp. e278 ◽  
Author(s):  
Jonas Moll ◽  
Hanife Rexhepi ◽  
Åsa Cajander ◽  
Christiane Grünloh ◽  
Isto Huvila ◽  
...  
Keyword(s):  
Electronic Health Records ◽  
Patient Survey ◽  
Health Records ◽  
National Patient ◽  
Electronic Health

scholarly journals Online electronic healthcare records: Comparing the views of cancer patients and others

2020 ◽  
Vol 26 (4) ◽  
pp. 2915-2929
Author(s):  
Hanife Rexhepi ◽  
Jonas Moll ◽  
Isto Huvila
Keyword(s):  
Electronic Health Records ◽  
Cancer Patients ◽  
Patient Survey ◽  
General Interest ◽  
Health Records ◽  
Positive Effects ◽  
Health History ◽  
Survey Response Rate ◽  
National Patient ◽  
Electronic Health

This study investigates differences in attitudes towards, and experiences with, online electronic health records between cancer patients and patients with other conditions, highlighting what is characteristic to cancer patients. A national patient survey on online access to electronic health records was conducted, where cancer patients were compared with all other respondents. Overall, 2587 patients completed the survey (response rate 0.61%). A total of 347 respondents (13.4%) indicated that they suffered from cancer. Results showed that cancer patients are less likely than other patients to use online electronic health records due to general interest (p < 0.001), but more likely for getting an overview of their health history (p = 0.001) and to prepare for visits (p < 0.001). Moreover, cancer patients rate benefits of accessing their electronic health records online higher than other patients and see larger positive effects regarding improved communication with and involvement in healthcare.

scholarly journals Patients’ Experiences of Accessing Their Electronic Health Records: National Patient Survey in Sweden (Preprint)

2017 ◽  
Author(s):  
Jonas Moll ◽  
Hanife Rexhepi ◽  
Åsa Cajander ◽  
Christiane Grünloh ◽  
Isto Huvila ◽  
...  
Keyword(s):  
Health Care ◽  
Electronic Health Records ◽  
Health Care Professionals ◽  
Patient Survey ◽  
Patient Portal ◽  
Health Records ◽  
Web Based ◽  
Number Of Patients ◽  
National Patient ◽  
Electronic Health

BACKGROUND Internationally, there is a movement toward providing patients a Web-based access to their electronic health records (EHRs). In Sweden, Region Uppsala was the first to introduce patient-accessible EHRs (PAEHRs) in 2012. By the summer of 2016, 17 of 21 county councils had given citizens Web-based access to their medical information. Studies on the effect of PAEHRs on the work environment of health care professionals have been conducted, but up until now, few extensive studies have been conducted regarding patients’ experiences of using PAEHRs in Sweden or Europe, more generally. OBJECTIVE The objective of our study was to investigate patients’ experiences of accessing their EHRs through the Swedish national patient portal. In this study, we have focused on describing user characteristics, usage, and attitudes toward the system. METHODS A national patient survey was designed, based on previous interview and survey studies with patients and health care professionals. Data were collected during a 5-month period in 2016. The survey was made available through the PAEHR system, called Journalen, in Sweden. The total number of patients that logged in and could access the survey during the study period was 423,141. In addition to descriptive statistics reporting response frequencies on Likert scale questions, Mann-Whitney tests, Kruskal-Wallis tests, and chi-square tests were used to compare answers between different county councils as well as between respondents working in health care and all other respondents. RESULTS Overall, 2587 users completed the survey with a response rate of 0.61% (2587/423,141). Two participants were excluded from the analysis because they had only received care in a county council that did not yet show any information in Journalen. The results showed that 62.97% (1629/2587) of respondents were women and 39.81% (1030/2587) were working or had been working in health care. In addition, 72.08% (1794/2489) of respondents used Journalen about once a month, and the main reason for use was to gain an overview of one’s health status. Furthermore, respondents reported that lab results were the most important information for them to access; 68.41% (1737/2539) of respondents wanted access to new information within a day, and 96.58% (2454/2541) of users reported that they are positive toward Journalen. CONCLUSIONS In this study, respondents provided several important reasons for why they use Journalen and why it is important for them to be able to access information in this way—several related to patient empowerment, involvement, and security. Considering the overall positive attitude, PAEHRs seem to fill important needs for patients.

scholarly journals Enrichment sampling for a multi-site patient survey using electronic health records and census data

2018 ◽  
Vol 26 (3) ◽  
pp. 219-227 ◽  
Author(s):  
Nathaniel D Mercaldo ◽  
Kyle B Brothers ◽  
David S Carrell ◽  
Ellen W Clayton ◽  
John J Connolly ◽  
...  
Keyword(s):  
Electronic Health Records ◽  
Census Data ◽  
Sampling Strategy ◽  
Fold Increase ◽  
Patient Survey ◽  
United States Census ◽  
Sampling Frame ◽  
Health Records ◽  
Adult Age ◽  
Electronic Health

Abstract Objective We describe a stratified sampling design that combines electronic health records (EHRs) and United States Census (USC) data to construct the sampling frame and an algorithm to enrich the sample with individuals belonging to rarer strata. Materials and Methods This design was developed for a multi-site survey that sought to examine patient concerns about and barriers to participating in research studies, especially among under-studied populations (eg, minorities, low educational attainment). We defined sampling strata by cross-tabulating several socio-demographic variables obtained from EHR and augmented with census-block-level USC data. We oversampled rarer and historically underrepresented subpopulations. Results The sampling strategy, which included USC-supplemented EHR data, led to a far more diverse sample than would have been expected under random sampling (eg, 3-, 8-, 7-, and 12-fold increase in African Americans, Asians, Hispanics and those with less than a high school degree, respectively). We observed that our EHR data tended to misclassify minority races more often than majority races, and that non-majority races, Latino ethnicity, younger adult age, lower education, and urban/suburban living were each associated with lower response rates to the mailed surveys. Discussion We observed substantial enrichment from rarer subpopulations. The magnitude of the enrichment depends on the accuracy of the variables that define the sampling strata and the overall response rate. Conclusion EHR and USC data may be used to define sampling strata that in turn may be used to enrich the final study sample. This design may be of particular interest for studies of rarer and understudied populations.

scholarly journals Do you want to receive bad news through your patient accessible electronic health record? A national survey on receiving bad news in an era of digital health

2021 ◽  
Vol 27 (3) ◽  
pp. 146045822110358
Author(s):  
Hanife Rexhepi ◽  
Jonas Moll ◽  
Isto Huvila ◽  
Rose-Mharie Åhlfeldt
Keyword(s):  
Educational Level ◽  
Medical Diagnosis ◽  
Digital Health ◽  
Patient Survey ◽  
Bad News ◽  
Health Records ◽  
National Patient ◽  
Electronic Health ◽  
To Receive ◽  
Diagnosis Age

Despite the fact that patient accessible electronic health records (PAEHRs) have been around for many years in several countries, there is a lack of research investigating patient’s preferences for receiving bad news, including through PAEHRs. Little is also known about the characteristics of the patients who prefer to receive bad news through the PAEHR in terms of, for example medical diagnosis, age and educational level. This study, based on a national patient survey in Sweden ( N = 2587), investigated this. Results show that, generally, receiving bad news by reading in the PAEHR is still among the least preferred options. Additionally, a higher proportion of men want to receive bad news in the PAEHR compared to women ( p = 0.001), and the same goes for those who are not working/have worked in healthcare ( p = 0.007). An effect of disease groups was also found, showing that diabetes patients in particular, want to receive bad news through the PAEHR.

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