scholarly journals Putting the Focus Back on the Patient: How Privacy Concerns Affect Personal Health Information Sharing Intentions

2017 ◽  
Vol 19 (9) ◽  
pp. e169 ◽  
Author(s):  
Mohamed Abdelhamid ◽  
Joana Gaia ◽  
G Lawrence Sanders
Keyword(s):  
Information Sharing ◽  
Health Information ◽  
Personal Health Information ◽  
Personal Health ◽  
Privacy Concerns ◽  
Health Information Sharing

scholarly journals “Clearly they are in the circle of care, but . . .”: A qualitative study exploring perceptions of personal health information sharing with community pharmacists in an integrated care model

2020 ◽  
Vol 153 (6) ◽  
pp. 378-398
Author(s):  
Teagan Rolf von den Baumen ◽  
Jennifer Lake ◽  
Amanda C. Everall ◽  
Katie Dainty ◽  
Zahava Rosenberg-Yunger ◽  
...  
Keyword(s):  
Information Sharing ◽  
Integrated Care ◽  
Health Information ◽  
Health Care Professionals ◽  
Community Pharmacists ◽  
Personal Health Information ◽  
Personal Health ◽  
Care Models ◽  
Circle Of Care ◽  
Integrated Care Models

Background: Ontario’s Health Links approach to care is an integrated care model designed to optimize care for patients with complex needs. Currently, community pharmacists have no formalized role. This study aimed to explore stakeholders’ perceptions about privacy and its impact on community pharmacists’ involvement with integrated care models. Methods: A qualitative study using semistructured telephone-based interviews was conducted. Participants worked in Ontario as pharmacists, providers in Health Links or team-based models or decision-makers in Health Links or health regions. Thematic analysis followed the Qualitative Analysis Guide of Leuven. Results: Twenty-two participants were interviewed, and all but one commented on privacy or information sharing in integrating community pharmacists with integrated care models. The 4 themes identified were as follows: 1) what does the circle of care look like? 2) value of sharing information, 3) uncertainty of what information to share and 4) perceptions on how to share information. Interpretation: The concerns surrounding privacy of personal health information and who is included in the circle of care represented an important barrier for integration. Enablers to mitigate privacy concerns included relationship building between community pharmacists, patients and other health care professionals and mutual access to information-sharing platforms such as electronic health records. Conclusion: Providers’ and decision-makers’ perceptions about community pharmacists and privacy affect information sharing and are incongruent with Ontario’s Personal Health Information Protection Act. Education is needed for health care professionals on legislation, especially as health systems move towards integrated care models to improve care. Can Pharm J (Ott) 2020;153:xx-xx.

scholarly journals Willingness to share personal health information: impact of attitudes, trust and control

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Jari Juga ◽  
Jouni Juntunen ◽  
Timo Koivumäki
Keyword(s):  
Health Care ◽  
Information Sharing ◽  
Health Information ◽  
Structural Equation ◽  
Personal Information ◽  
Personal Health Information ◽  
Equation Modeling ◽  
Personal Health ◽  
Content Type ◽  
And Control

Purpose This study aims to explicate the behavioral factors that determine willingness to share personal health data for secondary uses. Design/methodology/approach A theoretical model is developed and tested with structural equation modeling using survey data from Finland. Findings It is shown that attitude toward information sharing is the strongest factor contributing to the willingness to share personal health information (PHI). Trust and control serve as mediating factors between the attitude and willingness to share PHI. Research limitations/implications The measures of the model need further refinement to cover the various aspects of the behavioral concepts. Practical implications The model provides useful insights into the factors that affect the willingness for information sharing in health care and in other areas where personal information is distributed. Social implications Sharing of PHI for secondary purposes can offer social benefits through improvements in health-care performance. Originality/value A broad-scale empirical data gives a unique view of attitudes toward sharing of PHI in one national setting.

Privacy Concerns About Personal Health Information and Fear of Unintended Use of Biospecimens Impact Donations by African American Patients

2019 ◽  
Vol 35 (3) ◽  
pp. 522-529
Author(s):  
Arthi Reddy ◽  
Abhimanyu Amarnani ◽  
Michael Chen ◽  
Sophia Dynes ◽  
Bryan Flores ◽  
...  
Keyword(s):  
African American ◽  
Health Information ◽  
Personal Health Information ◽  
Personal Health ◽  
Privacy Concerns
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