The Impact of Personality on Users' Specific Privacy Concerns Regarding Personal Health Information

2018 ◽  
Author(s):  
Renée Pratt ◽  
Donald Wynn Jr. ◽  
Oscar Lopez
Keyword(s):  
Health Information ◽  
Personal Health Information ◽  
Personal Health ◽  
Privacy Concerns ◽  
The Impact

Health Information Systems (HIS) Privacy Restrictions for GDPR

2021 ◽  
Vol 10 (2) ◽  
pp. 4-16
Author(s):  
Marcelo Carvalho ◽  
Paulo Bandiera-Paiva ◽  
Eduardo Marques ◽  
José Manuel Machado
Keyword(s):  
Health Information ◽  
Health Information System ◽  
Personal Health Information ◽  
Control Element ◽  
Personal Health ◽  
Clear Understanding ◽  
General Data Protection Regulation ◽  
Standards And Regulations ◽  
General Data ◽  
The Impact

The personal health information (PHI) that a health information system (HIS) stores and processes requires special caution to ensure authorized manipulation by system users. A diverse set of best practices, standards, and regulations are in place nowadays to achieve that purpose. To the access control element in a HIS, general data protection regulation (GDPR) will require explicit authorization and informed consent prior to this manipulation of patient information by healthcare practitioners in a system. The adaptations to cope this type of previous authorization on HIS requires not only a clear understanding of technicalities and modification to the underlying computational infrastructure but also the impact on players that interact with this type of system during healthcare service provision, namely patients and healthcare professionals. This article is an effort to understand this effect by means of collecting opinion from both players in a multicentric survey that presents different questions establishing scenarios that reflect this new control and its consequences.

scholarly journals Data protection, data management, and data sharing: Stakeholder perspectives on the protection of personal health information in South Africa

PLoS ONE ◽  
2021 ◽  
Vol 16 (12) ◽  
pp. e0260341
Author(s):  
Ciara Staunton ◽  
Kathrina Tschigg ◽  
Gayle Sherman
Keyword(s):  
South Africa ◽  
Health Information ◽  
Data Protection ◽  
Personal Information ◽  
Data Use ◽  
Personal Health Information ◽  
Personal Health ◽  
Structured Interviews ◽  
Laboratory Service ◽  
The Impact

The Protection of Personal Information Act (POPIA) 2013 came into force in South Africa on 1 July 2020. It seeks to strengthen the processing of personal information, including health information. While POPIA is to be welcomed, there are concerns about the impact it will have on the processing of health information. To ensure that the National Health Laboratory Service [NHLS] is compliant with these new strict processing requirements and that compliance does not negatively impact upon its current screening, treatment, surveillance and research mandate, it was decided to consider the development of a NHLS POPIA Code of Conduct for Personal Health. As part of the process of developing such a Code and better understand the challenges faced in the processing of personal health information in South Africa, 19 semi-structured interviews with stakeholders were conducted between June and September 2020. Overall, respondents welcomed the introduction of POPIA. However, they felt that there are tensions between the strengthening of data protection and the use of personal information for individual patient care, treatment programmes, and research. Respondents reported a need to rethink the management of personal health information in South Africa and identified 5 issues needing to be addressed at a national and an institutional level: an understanding of the importance of personal information; an understanding of POPIA and data protection; improve data quality; improve transparency in data use; and improve accountability in data use. The application of POPIA to the processing of personal health information is challenging, complex, and likely costly. However, personal health information must be appropriately managed to ensure the privacy of the data subject is protected, but equally that it is used as a resource in the individual’s and wider public interest.

Privacy Concerns About Personal Health Information and Fear of Unintended Use of Biospecimens Impact Donations by African American Patients

2019 ◽  
Vol 35 (3) ◽  
pp. 522-529
Author(s):  
Arthi Reddy ◽  
Abhimanyu Amarnani ◽  
Michael Chen ◽  
Sophia Dynes ◽  
Bryan Flores ◽  
...  
Keyword(s):  
African American ◽  
Health Information ◽  
Personal Health Information ◽  
Personal Health ◽  
Privacy Concerns
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