scholarly journals Military Injuries - Understanding Post-Traumatic Epilepsy (MINUTE), Health, and Quality-of-Life Effects of Caregiving: Protocol for a Longitudinal Mixed Methods Observational Study (Preprint)

10.2196/30975 ◽  
2021 ◽  
Author(s):  
Erin D Bouldin ◽  
Roxana Delgado ◽  
Kimberly Peacock ◽  
Willie Hale ◽  
Ali Roghani ◽  
...  
2021 ◽  
Author(s):  
Erin D Bouldin ◽  
Roxana Delgado ◽  
Kimberly Peacock ◽  
Willie Hale ◽  
Ali Roghani ◽  
...  

BACKGROUND Veterans with post-traumatic epilepsy (PTE), particularly those with comorbidities associated with epilepsy and/or traumatic brain injury (TBI), have poorer health status and higher symptom burden than their peers without PTE. One area that has been particularly poorly studied is that of the role of caregivers in the health of Veterans with PTE and the impact caring for someone with PTE has on the caregivers themselves. OBJECTIVE This will address the following aims: Aim 1: Describe and compare the health and quality of life of Veterans and caregivers of Veterans with and without PTE. Aim 2: Evaluate the change in available supports and unmet needs for services among caregivers of post-9/11 Veterans with PTE over a 2-year period, and compare supports and unmet needs to those without PTE. Aim 3: Identify Veteran and caregiver characteristics associated with the two-year health trajectories of caregivers and of Veterans with PTE compared to Veterans without PTE. METHODS We will conduct a prospective cohort study of the health and quality of life among four groups of Veterans and their caregivers: Veterans with (1) PTE, (2) nontraumatic epilepsy, (3) TBI only, and (4) neither epilepsy nor TBI. We will recruit participants from previous related studies and will collect information about both the Veteran and their primary informal caregivers on health, quality of life, unmet needs for care, PTE/TBI symptoms and treatment, relationship, and caregiver experience. Data sources will include existing data supplemented with primary data: (1) survey data collected at baseline, (2) intermittent brief reporting using ecological momentary assessment, and (3) qualitative interviews. We will make both cross-sectional and longitudinal comparisons, using Veteran-caregiver dyads, along with qualitative findings to better understand risk and promotive factors for quality of life and health among Veterans and caregivers, as well as the bi-directional impact of caregivers and care recipients on one another. RESULTS This study has been approved by the University of Utah and the Salt Lake City VA IRBs and is under review at the Human Research Protection Office of the US Army Medical Research and Development Command. The Service Member, Veteran, and Caregiver Community Stakeholders Group has been formed and the study questionnaire will be finalized once the panel reviews it. We anticipate beginning recruitment and primary data collection in summer, 2021. CONCLUSIONS New national initiatives aim to incorporate the caregiver into the Veteran’s treatment plan; however, we know little about the impacts of caregiving – both positive and negative – on the caregivers themselves and on the Veterans for whom they provide care. We will identify specific needs in this understudied population, which will inform clinicians, patients, families, and policy makers about the specific impacts and needs to equip caregivers in caring for Veterans at home.


2008 ◽  
Vol 05 (02) ◽  
pp. 93-94
Author(s):  
KI Mathai ◽  
MS Sasivadanan ◽  
S Sudumbraker ◽  
PK Sahoo

AbstractAn analysis of the mechanism of epilepsy and epileptogenesis after traumatic brain injury will give us an insight into neural circuitry. In a retrospective analysis of 48 cases of moderate and severe traumatic brain injury, who reported for follow up to our centre over a period of two years. Of these, 12 patients with post traumatic epilepsy were identified. The risk factors, EEG patterns and the quality of control were analyzed. The pathophysiology and paradigms of management have been discussed.


Author(s):  
Yu. V. Antonova ◽  
A. M. Iskandarov ◽  
I. B. Mizonova

Introduction.Coccygodynia is a multidisciplinary disease which is diffi cult to treat. It seriously limits the ability to work and signifi cantly affects the quality of life of patients. The study of somatic dysfunctions in patients with coccygodynia and the analysis of the results of osteopathic treatment of such patients makes it possible to justify the necessity of osteopathic correction of coccygodynia.Goal of the study— to determine the structure of the leading somatic dysfunctions in patients with coccygodynia and to study the effectiveness of osteopathic treatment of this pathology.Materials and methods.The study involved 44 patients from 25 to 65 years old, randomly divided into two groups. The main group of 24 people (20 women and 4 men) received osteopathic treatment, in accordance with the identifi ed leading somatic dysfunctions. Patients of the control group (16 women and 4 men) were treated locally with soft manual techniques (the treatment area was limited by the pelvic region). In order to assess the results of the treatment, we examined the intensity of the pain syndrome and the psycho-emotional state of patients. The severity of the pain syndrome was assessed in accordance with the visual analogue scale (VAS). The psycho-emotional state (with physical and mental components) was assessed with the help of the SF-36 quality of life questionnaire.Results.Somatic dysfunctions typical for patients with coccygodynia have been identifi ed. Osteopathic treatment has proven to be more effective in comparison with local manual therapy of coccygodynia both in early periods and in 3 months after the end of the treatment course.Conclusion.Osteopathic treatment of post-traumatic coccygodynia is effective, and can be recommended for treatment of such patients.


2015 ◽  
Vol 33 (2) ◽  
pp. 1-14 ◽  
Author(s):  
Myoung-ran Yoo ◽  
Seon Young Choi ◽  
Hye Lee Han ◽  
Yu-mi Seo ◽  
Myoung In Noh

2015 ◽  
Vol 23 (1) ◽  
pp. 150-153
Author(s):  
Vinicius Ricieri Ferraz ◽  
Alexandros Theodoros Panagopoulos ◽  
José Carlos Esteves Veiga ◽  
Guilherme Brasileiro de Aguiar

Objetivo. Verificar as indicações de uso de anticonvulsivantes em pa­cientes vítimas de traumatismo cranioencefálico (TCE), avaliando os malefícios e benefícios do uso de diferentes drogas anticonvulsivan­tes descritas na literatura. Método. Foi realizada revisão de literatu­ra, utilizando as bases de dados MEDLINE e SCIELO, utilizando os termos: “Epilepsia Pós-Traumática”, “Traumatismos Craniocerebrais ”, “Anticonvulsivantes”, “Post-Traumatic Epilepsy”, “Craniocerebral Trauma” e “Anticonvulsants”. Foram incluídos artigos com enfoque tanto no uso profilático quanto terapêutico de drogas anticonvulsi­vantes no TCE. Foram selecionados os artigos mais relevantes entre os anos de 1980 e 2014. Resultados. Vários autores têm estudado o uso de anticonvulsivantes de forma profilática ou terapêutica em vítimas de TCE, demonstrando o risco de desenvolver convulsão pós traumática em relação ao tipo de lesão cerebral apresentada e com a gravidade do trauma. Conclusão. A maior parte dos artigos não demonstra benefício em se realizar profilaxia anticonvulsivante por mais de sete dias após o trauma. Mais estudos randomizados com uma amostra significativa de pacientes poderiam ser conduzidos no intui­to de comparar o efeito de diferentes drogas anticonvulsivantes tanto na profilaxia quanto no tratamento da epilepsia pós traumática e seu impacto na qualidade de vida desses pacientes e também na morbi­mortalidade dos mesmos.


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