scholarly journals Conducting Health Literacy Research with Hard-to-Reach Regional Culturally and Linguistically Diverse Populations: An Evaluation of Recruitment and Retention Methods Before and During COVID-19 (Preprint)

10.2196/26136 ◽  
2020 ◽  
Author(s):  
Genevieve Perrins ◽  
Tabassum Ferdous ◽  
Dawn Hay ◽  
Bobby Harreveld ◽  
Kerry Reid-Searl
2020 ◽  
Author(s):  
Genevieve Perrins ◽  
Tabassum Ferdous ◽  
Dawn Hay ◽  
Bobby Harreveld ◽  
Kerry Reid-Searl

BACKGROUND Culturally and linguistically diverse (CALD) health care consumers residing within Australia are recognized as having low health literacy, leading to increased hospitalizations and poorer health outcomes. CALD populations living within regional Australia have been identified as a disadvantaged group. To understand and address this disadvantage, region-specific studies are required to map healthcare barriers related to geographic location, specific health services, and societal makeup. Despite the need to research the relationship between cultural and linguistic diversity and health literacy, CALD participants are often cited as hard-to-reach or hidden. This paper evaluates the approach used by researchers to attract and retain hard-to-reach CALD research participants for a study investigating health communication barriers between CALD health care users and health care professionals. As this study was taking place in 2020, the COVID-19 pandemic and subsequent restrictions emerged. Thus, recruitment and retention methods were adapted. This evaluation considers the effectiveness of recruitment and data collection methods used throughout pre-COVID and during-COVID periods. OBJECTIVE This evaluation sought to determine the effectiveness of recruitment and retention efforts of researchers, during a study which targeted regional-dwelling, hard-to-reach CALD participants. METHODS In this paper, recruitment and retention methods have been categorized into five phases: recruitment, pre-intervention data collection, intervention, post-intervention data collection and interviews. To compare the methods used by researchers, recruitment and retention rates have been dissected into pre-COVID and during-COVID periods. Researchers thereafter provide an in-depth reflection of the methods employed within this study. RESULTS This paper provides results relating to participant recruitment and retainment over the course of five research phases which occurred pre- and during-COVID. During the pre-COVID recruitment phase 22 participants were recruited. Of those, 68.2% of participants transitioned to the next phase and completed the initial data collection phase. By contrast, 18 participants completed the during-COVID recruitment phase, with a 72.2% continuance rate. The success rate of the intervention phase in the pre-COVID period was 93.3% versus 84.6% during-COVID. Lastly, 92.9% of participants completed the post-intervention data collection phase pre-COVID, compared with 90.9% during-COVID. Against the intended 30 participants, 40 participants took part in the initial data collection phase, with 23 going on to complete the project in its entirety. CONCLUSIONS The success of this program in recruiting and maintaining hard-to-reach CALD populations was preserved over pre and during-COVID periods. The emergence of COVID during the study period forced researchers to adjust study methods, thereby inadvertently contributing to the recruitment and retention success of the project. The maintenance of participants during this period is also due to flexibility offered by the research program through adoptive methods, such as the use of cultural gatekeepers, increased visibility of CALD researchers, limitation of intervention group size, use of digital platforms and more.


Author(s):  
Ashley M. Frazier

Abstract School speech-language pathologists (SLPs) are increasingly likely to serve children of gay, lesbian, bisexual, and transgender (GLBT) parents or GLBT students as cultural and societal changes create growth in the population and increased willingness to disclose sexual orientation. The American Speech-Language-Hearing Association (ASHA) has a progressive nondiscrimination statement that includes sexual orientation as a protected status and strongly urges the membership to develop cultural competence as a matter of ethical service delivery. The purpose of this article is to describe cultural competence in relation to GLBT culture, discuss GLBT parent and student cultural issues as they are important in parent-school or student-school relations, and to provide suggestions for increasing sensitivity in these types of interactions. A list of resources is provided.


2021 ◽  
Vol 42 (05) ◽  
pp. 395-418
Author(s):  
Keisey Fumero ◽  
Michelle Torres-Chavarro ◽  
Carla Wood

AbstractThe purpose of this study was to examine and describe experiences and perceptions of speech-language pathologists (SLPs) serving children and families from culturally and linguistically diverse populations. Twenty SLPs were interviewed using an online audio platform regarding common practices, resources and supports, challenges, and communication. Participants' responses to the semi-structured questions were transcribed and analyzed to identify themes in experiences. Results suggested six overall themes including: considerations for assessment; cultural impact; linguistic access and barriers; professional preparedness; impact of COVID-19; and helpful tips and resources. The discussion includes recommendations and resources to address obstacles.


Author(s):  
Marcie M. Belfi ◽  
Kristen E. Jones

The purpose of this chapter is to provide teacher educators with current research related to assistive technology (AT) in K-12 schools. The first two sections present findings from the literature, first related to providing AT to culturally and linguistically diverse populations within a family context, and secondly to helping students with learning disabilities use AT for writing. Implications for practice are discussed. This chapter concludes with an overview of a curriculum model for training preservice teachers to become familiar with AT across the lifespan, choose appropriate AT for their students, and be able to practically use AT in the classroom.


2021 ◽  
Vol 74 (5) ◽  
pp. 42,43,44
Author(s):  
Laura Gaeta ◽  
KatieM. Colella ◽  
Erica Friedland ◽  
Mary A. Hudson

Author(s):  
Jee Eun Sung ◽  
Hyanghee Kim

There is a growing need for speech and language pathology services in South Korea, especially for persons with neurogenic communication disorders, given that the population of elderly adults increases rapidly. This article provides information on (a) prevalence and incidence of neurogenic communication disorders, (b) speech and language service delivery system, and (c) demographics of speech-language pathologists (SLPs) and obtaining competency in neurogenic communication disorders in South Korea. The importance of international collaborations is discussed to better understand culturally and linguistically diverse populations with neurogenic communication disorders.


2002 ◽  
Vol 27 (3) ◽  
pp. 204-219 ◽  
Author(s):  
Martha Blue-Banning ◽  
Ann P. Turnbull ◽  
Lourdes Pereira

The rapid increase of culturally and linguistically diverse populations in the United States has important implications for service delivery. Addressing the needs of individuals transitioning from adolescence to adulthood and their families requires that outcomes of service recognize the cultural differences of people with disabilities. The Hispanic population is one of the fastest growing of the culturally and linguistically diverse populations in the United States. To provide effective support services, a clearer understanding is needed of the perspectives of Hispanic parents of youth/young adults with disabilities concerning their hopes and expectations for their child's future. To address this issue, focus group interviews were conducted with 38 Hispanic parents of youth/young adults with developmental disabilities. The findings suggest that Hispanic parents have a diversity of hopes and expectations concerning future living, employment, and free-time options for their children with disabilities. Key recommendations focus on the implications for education and human service systems as well as directions for future research.


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