scholarly journals Educational needs and preferences for patient-centered outcomes research in the cystic fibrosis community: A mixed-methods study (Preprint)

10.2196/24302 ◽  
2020 ◽  
Author(s):  
Emily M. Godfrey ◽  
Traci M. Kazmerski ◽  
Georgia Brown ◽  
Erin Thayer ◽  
Laura Mentch ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Mixed Methods ◽  
Outcomes Research ◽  
Educational Needs ◽  
Mixed Methods Study ◽  
Patient Centered

scholarly journals Methodological standards for qualitative and mixed methods patient centered outcomes research

BMJ ◽  
2020 ◽  
pp. m4435
Author(s):  
Bridget Gaglio ◽  
Michelle Henton ◽  
Amanda Barbeau ◽  
Emily Evans ◽  
David Hickam ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Outcomes Research ◽  
Patient Centered

scholarly journals Educational needs in patients with spondyloarthritis in Sweden – a mixed-methods study

2017 ◽  
Vol 18 (1) ◽  
Author(s):  
Emma Haglund ◽  
Ann Bremander ◽  
Stefan Bergman ◽  
Ingrid Larsson
Keyword(s):  
Mixed Methods ◽  
Educational Needs ◽  
Mixed Methods Study

scholarly journals Data Driven Decision Making to Characterize Clinical Personas of Parents of Children with Cystic Fibrosis: A Mixed Methods Study

2020 ◽  
Author(s):  
Rhonda Szczesniak ◽  
Teresa Pestian ◽  
Leo L Duan ◽  
Dan Li ◽  
Sophia Stamper ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Mixed Methods ◽  
Self Efficacy ◽  
Care Center ◽  
Mixed Methods Study ◽  
Clinical Implications ◽  
Quantitative Phase ◽  
Airway Clearance ◽  
Child Bmi ◽  
Qualitative Phase

Abstract Background: Beginning at a young age, children with cystic fibrosis (CF) embark on demanding care regimens that pose challenges to parents. We examined the extent to which clinical, demographic and psychosocial features inform patterns of adherence to pulmonary therapies and how these patterns can be used to develop clinical personas, defined as aspects of adherence barriers that are presented by parents and/or perceived by clinicians, in order to enhance personalized CF care delivery. Methods: We undertook an explanatory sequential mixed-methods study consisting of i) multivariate clustering to create clusters corresponding to parental adherence patterns (quantitative phase); ii) parental participant interviews to create clinical personas interpreted from clustering (qualitative phase). Clinical, demographic and psychosocial features were used in supervised clustering against clinical endpoints, which included adherence to airway clearance and aerosolized medications and self-efficacy score, which was used as a feature for modeling adherence. Clinical implications were developed for each persona by combing quantitative and qualitative data (integration phase). Results: The quantitative phase showed that the 87 parent participants were segmented into three distinct patterns of adherence based on use of aerosolized medication and practice of airway clearance. Patterns were primarily influenced by self-efficacy, distance to CF care center and child BMI percentile. The two key patterns that emerged for the self-efficacy model were most heavily influenced by distance to CF care center and child BMI percentile. Eight clinical personas were developed in the qualitative phase from parent and clinician participant feedback of latent components from these models. Findings from the integration phase include recommendations to overcome specific challenges with maintaining treatment regimens and increasing support from social networks. Conclusions: Adherence patterns from multivariate models and resulting parent personas with their corresponding clinical implications have utility as clinical decision support tools and capabilities for tailoring intervention study designs that promote adherence. Trial registration: Not applicable.

scholarly journals Data driven decision making to characterize clinical personas of parents of children with cystic fibrosis: a mixed methods study

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Rhonda D. Szczesniak ◽  
Teresa Pestian ◽  
Leo L. Duan ◽  
Dan Li ◽  
Sophia Stamper ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Decision Making ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Data Driven ◽  
Data Driven Decision Making

scholarly journals The association of visit length and measures of patient-centered communication in HIV care: A mixed methods study

2011 ◽  
Vol 85 (3) ◽  
pp. e183-e188 ◽  
Author(s):  
Michael Barton Laws ◽  
Lauren Epstein ◽  
Yoojin Lee ◽  
William Rogers ◽  
Mary Catherine Beach ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Mixed Methods Study ◽  
Hiv Care ◽  
Patient Centered

scholarly journals Do medical residents perform patient-centered medical home tasks? A mixed-methods study

2017 ◽  
Vol 22 (1) ◽  
pp. 1352434 ◽  
Author(s):  
Lauren Block ◽  
Nancy LaVine ◽  
Jennifer Verbsky ◽  
Ankita Sagar ◽  
Miriam A. Smith ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Medical Home ◽  
Mixed Methods Study ◽  
Medical Residents ◽  
Patient Centered Medical Home ◽  
Patient Centered

scholarly journals Educational needs and application of guidelines in the management of patients with mitral regurgitation. A European mixed-methods study

2018 ◽  
Vol 39 (15) ◽  
pp. 1295-1303 ◽  
Author(s):  
Bernard Iung ◽  
Victoria Delgado ◽  
Patrice Lazure ◽  
Suzanne Murray ◽  
Per Anton Sirnes ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Mitral Regurgitation ◽  
Educational Needs ◽  
Mixed Methods Study
Sign in / Sign up

Export Citation Format

Share Document