scholarly journals Effectiveness of a Two-Tier Family-Oriented Intervention in Enhancing Family Functioning and Care Capacity of Family Caregivers of Stroke Survivors: Protocol for a Randomized Controlled Trial (Preprint)

10.2196/16703 ◽  
2019 ◽  
Author(s):  
Vivian Weiqun Lou ◽  
Jennifer Yee Man Tang ◽  
Gary Kui Kai Lau ◽  
Terry Yat Sang Lum ◽  
Kenneth Fong ◽  
...  
2019 ◽  
Author(s):  
Vivian Weiqun Lou ◽  
Jennifer Yee Man Tang ◽  
Gary Kui Kai Lau ◽  
Terry Yat Sang Lum ◽  
Kenneth Fong ◽  
...  

BACKGROUND Stroke brings about abrupt and immense changes to stroke families’ dynamics and responsibilities. Adaptation to new family roles is challenging, as support for caregivers of stoke survivors is minimal, presenting a major obstacle towards restoring family functioning and maximizing care capacity. OBJECTIVE This study aims to implement and examine the effectiveness of a two-tier family- oriented intervention involving care managers and volunteers for enhancing family functioning and care capacity of family caregivers of stroke survivors. METHODS This is a multicenter, two-armed, randomized, controlled study (intervention group, n=150; control group, n=150). Following case referral from hospital, family caregivers of stroke survivors and stroke survivors provide informed consent and undergo initial screening. Caregivers report significant caregiver burden, and/or depressive mood, and/or family dysfunctioning are randomly assigned to undergo two-tier family-oriented intervention (intervention group) or psychoeducation (control group). The primary outcome is the change in i) family role performance, ii) family caregiver conflict, iii) care management strategies, and iv) general family functioning from baseline to 2 weeks and 2 months after completion of intervention. RESULTS This study began in January 2017 and is being conducted at three participating facilities in Hong Kong. CONCLUSIONS This study will examine the effectiveness of a two-tier family- oriented intervention in enhancing family functioning and care capacity of family caregivers of stroke survivors. Through this study, we expect that this intervention can fill the service gap in the current stroke care system and serves as an important basis on which future evidence-based programs supporting family caregivers of stroke survivors could develop. CLINICALTRIAL ClinicalTrials.gov NCT03034330; https://ichgcp.net/clinical-trials-registry/NCT03034330


2019 ◽  
Author(s):  
Shuanglan Lin ◽  
Lily Xiao ◽  
Diane Chamberlain

Abstract Background: Hospital to home transition care is a most stressful period for stroke survivors and their caregivers to learn self-management of stroke-related health conditions and to engage in rehabilitation. Health coaching has been identified as a strategy to enhance self-management of poststroke care at home. However, interventions in this field that are informed by a health coaching framework are scarce. This study will address a gap in research by testing the hypothesis that a nurse-led health coaching intervention can improve health outcomes for stroke survivors and their family caregivers in hospital to home transition care.Methods: This is a single-blind, two-arm parallel randomized controlled trial of a nurse-led health coaching program versus routine care situated in two tertiary hospitals in Chongqing, China. Stroke survivors and their primary family caregivers will be recruited together as “participant dyads”, and the estimated sample size is 140 (70 in each group). The intervention includes a 12-week nurse-led health coaching program in hospital to home transition care commencing at discharge from the hospital. The primary outcomes are changes in self-efficacy and quality of life of stroke survivors at 12 weeks from the baseline. The secondary outcomes are changes in stroke survivors’ functional ability, stroke-related knowledge, the number of adverse events, and unplanned hospital admissions, and caregivers’ self-efficacy and caregiver-related burden at 12 weeks from the baseline. The outcomes will be measured at 12 weeks and 24 weeks from the baseline.Discussion: This study will examine the effect of nurse-led health coaching on hospital to home transition care for stroke survivors and their caregivers. It is anticipated that findings from this trial will provide research evidence to inform policy, and resource and practice development to improve hospital to home transition care for stroke survivors and their caregivers.Trial registration: The Australian New Zealand Clinical Trials Registry (ANZCTR): ACTRN12619000321145, registered on 1st March 2019.


2014 ◽  
Vol 82 (4) ◽  
pp. 628-643 ◽  
Author(s):  
Klaus Pfeiffer ◽  
Denis Beische ◽  
Martin Hautzinger ◽  
Jack W. Berry ◽  
Julia Wengert ◽  
...  

2020 ◽  
Author(s):  
Lily Xiao ◽  
Shuanglan Lin ◽  
Diane Chamberlain

Abstract Background Hospital to home transition care is a most stressful period for stroke survivors and their caregivers to learn self-management of stroke-related health conditions and to engage in rehabilitation. Health coaching has been identified as a strategy to enhance self-management of poststroke care at home. However, interventions in this field that are informed by a health coaching framework are scarce. This study will address a gap in research by testing the hypothesis that a nurse-led health coaching intervention can improve health outcomes for stroke survivors and their family caregivers in hospital to home transition care. Methods This is a single-blind, two-arm parallel randomized controlled trial of a nurse-led health coaching program versus routine care situated in two tertiary hospitals in Chongqing, China. Stroke survivors and their primary family caregivers will be recruited together as “participant dyads”, and the estimated sample size is 140 (70 in each group). The intervention includes a 12-week nurse-led health coaching program in hospital to home transition care commencing at discharge from the hospital. The primary outcomes are changes in self-efficacy and quality of life of stroke survivors at 12 weeks from the baseline. The secondary outcomes are changes in stroke survivors’ functional ability, stroke-related knowledge, the number of adverse events, and unplanned hospital admissions, and caregivers’ self-efficacy and caregiver-related burden at 12 weeks from the baseline. The outcomes will be measured at 12 weeks and 24 weeks from the baseline. Discussion This study will examine the effect of nurse-led health coaching on hospital to home transition care for stroke survivors and their caregivers. It is anticipated that findings from this trial will provide research evidence to inform policy, and resource and practice development to improve hospital to home transition care for stroke survivors and their caregivers.


2020 ◽  
Vol 41 (9) ◽  
pp. 761-772
Author(s):  
De-Hui Ruth Zhou ◽  
Yu-Lung Marcus Chiu ◽  
Tak-Lam William Lo ◽  
Wai-Fan Alison Lo ◽  
Siu-Sing Wong ◽  
...  

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