Accounts of Suicidality in the Huntington Disease Community

2012 ◽  
Vol 65 (4) ◽  
pp. 317-334 ◽  
Author(s):  
Michael Halpin

Health professionals, researchers, and philosophers have debated extensively about suicide. Some believe suicides result from mental pathology, whereas others argue that individuals are capable of rational suicide. This debate is particularly poignant within illness communities, where individuals may be suffering from chronic and incurable conditions. This article engages with these issues by presenting the accounts of 20 individuals with Huntington disease (HD), a fatal degenerative condition, and 10 informal caregivers (e.g., spouses). Suicide is a leading cause of death amongst people with HD, with an incidence rate many times higher than the general population. In contrast to the majority of the academic literature on HD suicidality, study participants did not connect suicide with mental pathology. Instead, they perceived suicide as a response to the realities of living with HD, such as prolonged physiological degeneration and the need for long-term intensive health care. These findings are subsequently discussed in relation to the rational-pathological suicide binary.

2019 ◽  
Author(s):  
Tigist Demssew Adane ◽  
Birhan Gebresillassie Gebregiorgis ◽  
Elda Mekonnen Nigussie ◽  
Abate Dargie Wubetu

Abstract Background These days, engaging at sufficient regular physical activity strongly recommended for good health and physical functioning. Physical activity can increase the self-confidence of the health professionals and they would become fit for daily activities with patients. Knowing the level of physical activity can help health care professionals to plan for physical activity programs. This study aimed to measure the level of physical activity and associated factors among adult health professionals at Tirunesh Beijing general hospital.Objective The aim of this study was to assess the level of physical activity and associated factors among health care workers in Ethiopia, 2019.Methods Institution based cross-sectional study conducted level of physical activity and associated factors among health care workers in Ethiopia, 2019. Two hundred nighty seven adult health professionals were participated, which was a 97.4% response rate. The global physical activity questionnaire used to measure the level of physical activity. Descriptive statistics and binary logistic regression analyses was done to affirm the variables characteristics. A predictor variable with a p-value of less than 0.2 exported to multivariate analysis. During multivariate analysis, statistical significance declared at a p-value of < 0.05.Results In general, the majority of the study participants, 89.2% (95% CI: 85.9-92.6) were achieved recommended levels of physical activity. Regarding the intensity of the physical activity, the overall mean time score was 518.4 mints per week or 2352.6 MET/week. For moderate-intensity physical activity, 83.5% of the study participants were physically active, (≥150 minutes/week). In the case of vigorous activity, about 32.7% of the study participants were physically active and engaged in vigorous physical activity (≥75 minutes /week). The study participants, who had self-motivation for physical activity, had a BMI of less than 25 kg/m2 and aged < 40 years were physically active.Conclusions Health care providers’ habit of physical activity improved as compared with the previous studies. However, the current level of physical activity of health professionals is not adequate. Health care providers’ age, body mass index and self-motivation attribute to physical activity. The level of physical activity can increase by enhancing staff motivation towards physical activity.


1992 ◽  
Vol 30 (21) ◽  
pp. 83-84

If NHS resources are to be deployed to give maximum benefit to patients, then health technologies – a broad term that includes all the methods used by health professionals to promote health, prevent and treat disease and improve rehabilitation and long-term care – must be rigorously assessed. Assessing the Effects of Health Technologies* is a report from an advisory group appointed by the Department of Health’s Director of Research and Development. The report, which is published today, describes ways in which the NHS should be involved in research on health provision and discusses how the results of such research could be implemented.


2006 ◽  
Vol 25 (5) ◽  
pp. 329-337 ◽  
Author(s):  
Mary McAllister ◽  
Kim Dionne

Advances in health care have led to unprecedented innovation in the care provided to critically ill newborns. One outcome of this new reality is that newborn intensive care units have become “homes” for fragile infants who require long-term hospitalization. Clearly, NICUs were never so envisioned; thus, this reality has resulted in challenges for families and health professionals alike. As the duration of hospitalization increases, relationships between families and health care professionals become increasingly important. Parents of hospitalized newborns face fear, anxiety, and frustration as they struggle to cope with an ill child while developing their parental role. The quality of relationships established between families and health care professionals is crucial to their coping and adaptation. This article addresses challenges faced by families whose infants experience extended hospitalization, applies a model to help health care professionals understand parent perspectives, and proposes strategies to promote effective partnerships and alliances with families.


2005 ◽  
Vol 6 (4) ◽  
pp. 178-184 ◽  
Author(s):  
James D. Wright

Demographic projections confirm a dramatic increase in the size of America’s elderly population over the next several decades. The elderly now comprise 13% of the population; by 2045, they will comprise 22%. As the elderly population grows, so too will the elderly poor, the elderly homeless, and the elderly uninsured. The implications of the so-called graying of America for the health care system, particularly the long-term care industry, are staggering.


2017 ◽  
Vol 4 (5) ◽  
pp. 150
Author(s):  
Mitesh D Kathariya ◽  
Antarikshya Prabir ◽  
Shurti R Sahasrabudhe ◽  
Anil Kumar Reddy ◽  
Saghiruddin Azad ◽  
...  

Aim: To assess knowledge, attitude, practice towards primary prevention of dental diseases among oral health professionals.Material and Methods: It is cross-sectional questionnaire study. The study was conducted among dental professionals running private dental clinics. . Among these 141 clinics, 202 dentists had given their informed consent to be included in the study.Results: Knowledge of dental health professionals towards primary health care was significantly (p=0.04*) below average among all age groups. Attitude of study participants towards primary health care shows that most of study participants in all age groups had significantly (p=0.00***) good attitude towards primary health care. Females study participants 36 (45%) practice primary prevention technique significantly (p=0.00***) more than the male study participants.Conclusions: It is concluded that knowledge among dental professionals regarding primary health care was low. Attitude towards primary prevention among the oral health professionals was positive. Dentist included in present study, practice techniques of primary preventive technique less frequently.


Author(s):  
Kleopatra Alamantariotou

The purpose of this chapter is to provide innovative knowledge and creative ideas of improving quality of care and to explore how risk management and Knowledge transfer and quality assurance can improve health care. Under careful consideration, our purpose is to summarize which factors improve and promote the quality of care and which factors diminish quality. There are forms of ongoing efforts to make performance better. Quality improvement must be a long-term, continuous effort, reducing errors and providing a safe trust environment for health professionals and patients. After reading this chapter, you should know the answer to these questions: What role can risk management and knowledge transfer play in quality of care? How can risk management and knowledge transfer work together? What are the factors that improve risk management and quality assurance in health care? How does knowledge transfer support, inform, and improve care?


2011 ◽  
Vol 3 (1) ◽  
pp. 16 ◽  
Author(s):  
Natasha Ashworth ◽  
Shona Thompson

INTRODUCTION: Long-term conditions (LTCs) are the leading cause of morbidity and mortality in New Zealand. The burden upon patients and health care services to manage these conditions has prompted calls for primary care to lead the way in early diagnosis and coordination of LTC care. The purpose of this study was to investigate the perspectives of health professionals in a geographically-isolated region of New Zealand regarding current levels of LTC management to provide direction for future service development. METHODS: Semi-structured, face-to-face interviews conducted in 2009 with 10 purposively sampled health professionals in the primary care field, including four general practitioners, four nurses and two management team personnel, all practising in a regional District Health Board. The resultant data were analysed using a general inductive thematic approach. FINDINGS: Three main themes were identified by the health professionals as being key issues pertaining to the management of LTCs. These are discussed as issues pertaining to management, information and communication and leadership. CONCLUSION: The results showed that LTC management is rated as highly important by health care professionals who are aware of the need to change current delivery methods to improve client outcomes. All those interviewed highlighted issues related to funding as being a significant barrier to implementing innovations in LTC management, including nurse-led services. Plans to develop integrated family health centres, information technology systems and increased collaboration between clinicians were hailed as potential solutions to improving LTC management. KEYWORDS: Chronic disease; family nursing; family practice; nurse led clinics; nurse’s practice patterns


2005 ◽  
Vol 68 (5) ◽  
pp. 235-237 ◽  
Author(s):  
Jo Copley Atkinson

There can be role conflicts for allied health professionals working in health care research that involves direct contact with study participants, particularly in relation to maintaining a duty of care. This opinion piece, drawn from the experience of working on an observational study, highlights the need for researchers to clarify their intent and purpose; to be aware of ethical demands; to have an established protocol to deal with the needs of participants arising through the course of the research; and to consider how the process of the study may affect the findings. Ultimately, the individual welfare of study participants should prevail over the aims of the study.


2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
H Kuusio ◽  
A Seppänen ◽  
E Lilja ◽  
T Vehko ◽  
S Jokela ◽  
...  

Abstract Background Prior studies suggest that people with foreign background (PFB) often face problems in access to health care, although access to care may vary between the different PFB groups. This study explores 1) the potential differences in perceived access to care between different PFB groups and the general population, and 2) if marital status, education, employment, self-perceived health, long-term illness, length of stay, age moved to Finland or language skills are associated with access to care among PFB. Methods The data were gathered from the cross-sectional survey on well-being among the PFB (FinMONIK), conducted in Finland 2018. Its random sample consisted of 12 877 persons, aged 18-64 years and the response rate was 53%. Three items were used to assess perceived access to care: I was able to contact the place of care smoothly, I was able to make an appointment without undue delay and I was examined without undue delay (e.g. laboratory tests, X-ray, ultrasound). Logistic regression was used to test which factors were associated with accesses to care, adjusted for age, sex and region. Results After controlling for age, sex and region, the results showed significant differences in access to care among different migrant groups and the general population (p &lt; 0.001). Of those of Estonian background 37% felt that access to care was smooth while only 17% of those coming from Middle-East, and 26% of the general population. Employed persons, persons who had good self-perceived health, and people with no long-term illness, and those who had lived in Finland less than five years, had better access to health care. Marital status, education, language skills and age moved to Finland, were not associated with access to care. Conclusions Large inequities in access to care were identified among people with foreign background. Access to services seems to be better for employed persons and those who have good self-perceived health. Key messages Special attention should be given to improve access to care among non-employed migrants. Migrants should not be considered as a uniform group when planning services.


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