scholarly journals Brain Tumor Registry of Japan (2001-2004)

2014 ◽  
Vol 54 (Supplement) ◽  
pp. 9-102 ◽  
Keyword(s):  
Brain Tumor ◽  
Tumor Registry

scholarly journals Construction of the National Brain Tumor Registry of China for better management and more efficient use of data: a protocol

BMJ Open ◽  
2021 ◽  
Vol 11 (1) ◽  
pp. e040055
Author(s):  
Liwei Zhang ◽  
Wang Jia ◽  
Nan Ji ◽  
Deling Li ◽  
Dan Xiao ◽  
...  
Keyword(s):  
Brain Tumor ◽  
Clinical Research ◽  
Brain Tumour ◽  
Brain Tumours ◽  
Benefit Sharing ◽  
Data Quality Control ◽  
Clinical Trial Registry ◽  
Discharge Data ◽  
Tumor Registry ◽  
Depth Analysis

IntroductionBrain tumours encompass a complex group of intracranial tumours that mostly affect young adults and children, with a high incidence rate and poor prognosis. It remains impossible to systematically collect data on patients with brain tumours in China and difficult to perform in-depth analysis on the status of brain tumours, medical outcomes or other important medical issues through a multicentre clinical study. This study describes the first nation-wide data platform including the entire spectrum of brain tumour entities, which will allow better management and more efficient application of patient data in China.Methods and analysisThe National Brain Tumor Registry of China (NBTRC) is a registry of real-word clinical data on brain tumours. It is established and managed by the China National Clinical Research Center for Neurological Diseases and administered by its scientific and executive committees. The 54 participating hospitals of the NBTRC are located in 27 provinces/municipalities, performing more than 40 000 brain tumour surgeries per year. The data consist of in-hospital medical records, images and follow-up information after discharge. Data can be uploaded in three ways: the web portal, remote physical servers and offline software. The data quality control scheme is seven-dimensional. Each participating hospital could focus on a single pathology subtype and public subtypes of brain tumour for which they expect to conduct related multicentre clinical research. The standardised workflow to conduct clinical research is based on the benefit-sharing mechanism. Data collection will be conducted continuously from 1 February 2019 to 31 January 2024.Ethics and disseminationInformed consent will be obtained from all participants. Consent for the adolescents’ participation will be also obtained from their guardians via written consent. The results will be published in professional journals, in both Chinese and English.Trial registration numberChinese Clinical Trial Registry (ChiCTR1900021096).

scholarly journals Descriptive epidemiology of primary brain and CNS tumors: Results from the Central Brain Tumor Registry of the United States, 1990–1994

1999 ◽  
Vol 1 (1) ◽  
pp. 14-25 ◽  
Author(s):  
Tanya S. Surawicz ◽  
Bridget J. McCarthy ◽  
Varant Kupelian ◽  
Patti J. Jukich ◽  
Janet M. Bruner ◽  
...  
Keyword(s):  
United States ◽  
Brain Tumor ◽  
The United States ◽  
Cns Tumors ◽  
Descriptive Epidemiology ◽  
Tumor Registry ◽  
Central Brain

scholarly journals EPID-23. A SYSTEMIC REVIEW OF CENTRAL NERVOUS SYSTEM TUMORS IN AFRICA FROM 1960 – 2017 AND THE NEED FOR A CENTRAL BRAIN TUMOR REGISTRY IN AFRICA

2020 ◽  
Vol 22 (Supplement_2) ◽  
pp. ii83-ii83
Author(s):  
Marilyn Mbi Feh ◽  
Ankita Brahmaroutu ◽  
Kristopher Lyon ◽  
Ekokobe Fonkem
Keyword(s):  
Central Nervous System ◽  
Nervous System ◽  
Brain Tumor ◽  
Large Population ◽  
Cns Tumors ◽  
Systemic Review ◽  
Tumor Registry ◽  
Total Incidence ◽  
Incidence And Mortality ◽  
Central Brain

Abstract PURPOSE Central Nervous System (CNS) tumors pose a substantial health problem. Although data on specific time periods and regions of Africa has been previously reported, no study has yet to provide a systemic review on the frequency of CNS tumors for the entire continent of Africa. This study aims to analyze the frequency of CNS tumors in Africa from 1960 to 2017. METHODS A comprehensive literature search on CNS tumors in Africa was performed using multiple online scientific databases. The following keywords were queried in combination with the phrase “CNS tumors in Africa”: incidence, frequency, epidemiology, prevalence, brain, and cancer. A total of 26 articles met the inclusion criteria. Each selected article reported incidence and mortality rates from different regions of Africa between 1960 to 2017. SPSS21 statistical software was used to analyze the data. RESULTS Nigeria, Egypt, and Uganda were found to have the highest incidence of CNS tumors in Africa. Total incidence was 5902, the majority were males, 3190 with mean rate 122.67 (95% CI: 29.27, 216.07) compared to females, 2501 with a mean rate of 96.19 (95% CI: 26.24, 166.15). The most common CNS tumors found were astrocytoma (24.70%), meningioma (22.22%), pituitary adenoma (8.4%), medulloblastoma (4.26%), craniopharyngioma (4.07%), and other not specified (25.17%). CONCLUSION Given the large population of Africa, the reported total incidence may be underestimated when compared to other continents due to the lack of a central brain tumor registry in Africa. Comprehensive knowledge of CNS tumors in Africa is critical to research and the entire healthcare system.

French national histological brain tumor registry.

2015 ◽  
Vol 33 (15_suppl) ◽  
pp. e13051-e13051 ◽  
Author(s):  
Luc Bauchet ◽  
Valerie Rigau ◽  
Sonia Zouaoui ◽  
Amelie Darlix ◽  
Faiza Bessaoud ◽  
...  
Keyword(s):  
Brain Tumor ◽  
Tumor Registry

Louise Eisenhardt, M.D.: First editor of the Journal of Neurosurgery (1944–1965)

1994 ◽  
Vol 80 (2) ◽  
pp. 342-346 ◽  
Author(s):  
Lycurgus M. Davey
Keyword(s):  
Brain Tumor ◽  
Tumor Registry ◽  
Content Type ◽  
Harvey Cushing ◽  
Charter Member ◽  
High Standards ◽  
Literary Portrait ◽  
The Brain ◽  
Fine Print

✓ This is a literary portrait of Louise Eisenhardt, M.D., associate of Harvey Cushing, scholar, investigator, editor, teacher, and curator of the Brain Tumor Registry at Yale. She was a Charter Member of the Harvey Cushing Society which she served as President, long-term Secretary-Treasurer, and Historian. She achieved many “firsts” for women in medicine. A figure in the Homeric tradition of observing accurately and reporting honestly, Dr. Eisenhardt set high standards for both colleagues and students as well as for aspiring medical authors. She left a tradition worthy of emulation.

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