Primer on Consumer Data Infrastructure

2019 ◽  
Author(s):  
Malavika Raghavan ◽  
Beni Chugh ◽  
Anubhutie Singh
2020 ◽  
Author(s):  
W. Jason Choi ◽  
Kinshuk Jerath ◽  
Miklos Sarvary

2016 ◽  
Vol 910 (4) ◽  
pp. 18-25
Author(s):  
S.S. Dyshlyuk ◽  
◽  
O.N. Nikolaeva ◽  
L.A. Romashova ◽  
◽  
...  

2018 ◽  
Author(s):  
Paul Longley ◽  
James Cheshire ◽  
Alex Singleton
Keyword(s):  

Author(s):  
Rebecca N. Dudovitz ◽  
Shirley Russ ◽  
Mary Berghaus ◽  
Iheoma U. Iruka ◽  
Jessica DiBari ◽  
...  

Abstract Purpose Understanding the full impact of COVID-19 on U.S. children, families, and communities is critical to (a) document the scope of the problem, (b) identify solutions to mitigate harm, and (c) build more resilient response systems. We sought to develop a research agenda to understand the short- and long-term mechanisms and impacts of the COVID-19 pandemic on children’s healthy development, with the goal of devising and ultimately testing interventions to respond to urgent needs and prepare for future pandemics. Description The Life Course Intervention Research Network facilitated a series of virtual meetings that included members of 10 Maternal and Child Health (MCH) research programs, their research and implementation partners, as well as family and community representatives, to develop an MCH COVID-19 Research Agenda. Stakeholders from academia, clinical practice, nonprofit organizations, and family advocates participated in four meetings, with 30–35 participants at each meeting. Assessment Investigating the impacts of COVID-19 on children’s mental health and ways to address them emerged as the highest research priority, followed by studying resilience at individual and community levels; identifying and mitigating the disparate negative effects of the pandemic on children and families of color, prioritizing community-based research partnerships, and strengthening local, state and national measurement systems to monitor children’s well-being during a national crisis. Conclusion Enacting this research agenda will require engaging the community, especially youth, as equal partners in research co-design processes; centering anti-racist perspectives; adopting a “strengths-based” approach; and integrating young researchers who identify as Black, Indigenous, and People of Color (BIPOC). New collaborative funding models and investments in data infrastructure are also needed.


2021 ◽  
pp. 002203452110202
Author(s):  
F. Schwendicke ◽  
J. Krois

Data are a key resource for modern societies and expected to improve quality, accessibility, affordability, safety, and equity of health care. Dental care and research are currently transforming into what we term data dentistry, with 3 main applications: 1) medical data analysis uses deep learning, allowing one to master unprecedented amounts of data (language, speech, imagery) and put them to productive use. 2) Data-enriched clinical care integrates data from individual (e.g., demographic, social, clinical and omics data, consumer data), setting (e.g., geospatial, environmental, provider-related data), and systems level (payer or regulatory data to characterize input, throughput, output, and outcomes of health care) to provide a comprehensive and continuous real-time assessment of biologic perturbations, individual behaviors, and context. Such care may contribute to a deeper understanding of health and disease and a more precise, personalized, predictive, and preventive care. 3) Data for research include open research data and data sharing, allowing one to appraise, benchmark, pool, replicate, and reuse data. Concerns and confidence into data-driven applications, stakeholders’ and system’s capabilities, and lack of data standardization and harmonization currently limit the development and implementation of data dentistry. Aspects of bias and data-user interaction require attention. Action items for the dental community circle around increasing data availability, refinement, and usage; demonstrating safety, value, and usefulness of applications; educating the dental workforce and consumers; providing performant and standardized infrastructure and processes; and incentivizing and adopting open data and data sharing.


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