"Hospice Volunteers’ Experience of Supporting Family Caregivers: Phenomenological Study"

2020 ◽  
Vol 25 (3) ◽  
pp. 61-80
Author(s):  
Kyung-Ja Park ◽  
Jinhee Lee
Keyword(s):  
Family Caregivers ◽  
Phenomenological Study ◽  
Hospice Volunteers

Healing experience for family caregivers after an intensive care unit death

2019 ◽  
pp. bmjspcare-2018-001561 ◽  
Author(s):  
Susan DeSanto-Madeya ◽  
Dan Willis ◽  
Julie McLaughlin ◽  
Aristotle Boslet
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Family Caregivers ◽  
Phenomenological Study ◽  
Healthcare Providers ◽  
Loved One ◽  
Hermeneutic Phenomenological ◽  
Telephone Interviews ◽  
Hermeneutic Phenomenological Study ◽  
Purposive Sample

ObjectivesFamily caregivers suffer a high burden of emotional and psychological distress following the death of a loved one in the intensive care unit and often struggle to heal in the weeks following their loss. The purpose of this hermeneutic phenomenological study was to describe and interpret the experience of healing for family caregivers six weeks following the death of a loved one in the ICU.MethodsSemi-structured telephone interviews were conducted with a purposive sample of twenty-four family caregivers six weeks following the death of their loved ones in the ICU. Qualitative analysis techniques were used to identify common themes central to the experience of healing across all interviews.ResultsSeven themes were interpreted from the data: searching for clarity from a time of uncertainty; riding an emotional rollercoaster; seeking peace in one’s decisions; moving forward with each new day; taking comfort in the memories; valuing layers of support; and discovering life on one’s own.ConclusionBy identifying and gaining an understanding of healing following the death of a loved one in the ICU, nursing and other healthcare providers have an opportunity to promote healing and positively impact family caregiver’s bereavement.

scholarly journals A Resilient Care of the Patient With COVID-19: A Phenomenological Study

2021 ◽  
pp. 0272684X2110334
Author(s):  
Parvaneh Asgari ◽  
Alun C. Jackson ◽  
Ali Khanipour-Kencha ◽  
Fatemeh Bahramnezhad
Keyword(s):  
Problem Solving ◽  
Family Caregivers ◽  
Spiritual Care ◽  
Phenomenological Study ◽  
Psychiatric Nurses ◽  
Religious Practices ◽  
Iranian Family ◽  
Data Saturation ◽  
Multiple Media ◽  
Media Channels

This study a utilized phenomenological hermeneutic design. Fourteen Iranian family caregivers of patients with COVID-19 who were isolated at home were included in the study using purposive sampling. In-depth unstructured interviews were conducted via WhatsApp. Sampling continued until data saturation. Interviews were transcribed and analyzed using Van Manen’s approach. Three primary themes and eight subthemes emerged. The primary themes included: “captured in a whirlpool of time”, “resilient care’ and “feeling helpless”. It seems that the families of patients with COVID-19 attempt to resist the pressures of this disease with religious practices and problem solving. However, due to the nature of the disease and its severity, they sometimes feel ashamed or lonely and are afraid of losing their loved ones. It is recommended that psychiatric nurses should develop programs in the form of comprehensive spiritual care packages or psychological support and utilize multiple media channels to deliver these.

Volunteers as Facilitators of Communication About Pain

2011 ◽  
Vol 34 (2) ◽  
pp. 246-253 ◽  
Author(s):  
Elaine Wittenberg-Lyles ◽  
George Demiris ◽  
Betty Ferrell ◽  
Sara Shaunfield
Keyword(s):  
Pain Management ◽  
Family Caregivers ◽  
Administrative Support ◽  
Pilot Project ◽  
Future Research ◽  
Positive Experience ◽  
Staff Members ◽  
Hospice Volunteers ◽  
Need Support ◽  
Care At Home

Often unskilled for the hospice caregiving role, family members who provide patient care at home need support to facilitate pain management. Volunteers who serve as members of the hospice team may be able to complement staff efforts to discuss pain with caregivers. A pilot project was developed to determine if volunteers could be trained to facilitate communication about pain with family caregivers. Two hospice volunteers were trained and three family caregivers received the intervention in their homes. Caregivers and volunteers were interviewed about the experience. Both caregivers and volunteers reported a rewarding and positive experience. Caregivers prioritized the need to talk with someone, and volunteers preferred working with caregivers instead of administrative support duties. Volunteers could be trained to deliver the intervention material, but information from volunteer visits was not immediately reported to hospice staff members. Future research should assess the benefits of using hospice volunteers to support clinical efforts.

scholarly journals Family Caregivers' Experiences of Caring for Patients with COVID-19: A Phenomenological Study

2020 ◽  
Author(s):  
Tahereh Rahimi ◽  
Neda Dastyar ◽  
Foozieh Rafati
Keyword(s):  
Family Caregivers ◽  
Phenomenological Study ◽  
Social Experiences ◽  
Physical And Mental Health ◽  
Structured Interviews ◽  
Community Members ◽  
Step Method ◽  
Positive Experiences ◽  
Qualitative Phenomenological ◽  
Qualitative Phenomenological Study

Abstract Background: Family caregivers of patients with COVID-19 face many challenges that affect their physical and mental health. Aim: The aim of the present study was to explore the family caregivers' experiences of caring for patients with COVID-19. Methods: This qualitative phenomenological study was performed based on 13 family caregivers who had experience in home caring for patients with COVID-19. Data were collected through purposive sampling with in-depth semi-structured interviews. The Colaizzi's 7-step method was used to determine themes. The MAXQDA10 software was used to manage qualitative data analysis.Results: Five themes of (a) “nature of the disease” with 2 subcategories, including “fluctuating symptoms” and “emergent and unpredictable disease;” (b) “unmet needs” with 3 subcategories, including “lack of knowledge,” “lack of health facilities,” and” financial problems;” (c) “unpleasant physical, psychological, and social experiences” with 3 subcategories, including “unpleasant physical experiences,” “unpleasant psychological experiences,” and “unpleasant social experiences;” (d) “care facilitators” with 3 subcategories, including “social support,” “adaptive mechanisms,” and “intrinsic motivations;” and (e) “positive experiences” with 3 subcategories, including “promoting spirituality,” “improving relationships,” and “growth” were extracted.Conclusion: Information and financial support for COVID-19 should be provided to family caregivers. Also, community members should embrace patients and family caregivers and reinforce the positive experiences of caregivers.

scholarly journals Communication on Safe Caregiving between Community Nurse Case Managers and Family Caregivers

Healthcare ◽  
2021 ◽  
Vol 9 (2) ◽  
pp. 205
Author(s):  
María Eulalia Macías-Colorado ◽  
Margarita Rodríguez-Pérez ◽  
María Jesús Rojas-Ocaña ◽  
Cristina Teresa-Morales
Keyword(s):  
Family Caregivers ◽  
Phenomenological Study ◽  
Family Members ◽  
Case Managers ◽  
Community Nurse ◽  
Healthcare Facilities ◽  
Elderly Individuals ◽  
Nurse Case Managers ◽  
Dependent Elderly ◽  
At Home

Dependent elderly individuals are usually cared for at home by untrained family members who are unaware of the risks involved. In this setting, communication on safe caregiving is key. The aim of this study is to describe the factors influencing the process followed by community nurse case managers to provide communication on safe caregiving to family members caring for dependent elderly individuals. A phenomenological study, by focus group, was done in urban healthcare facilities. Key informants were seven community nurses, case managers with more than 12 years’ experience. We did a thematic analysis and we identified the units of meaning to which the most relevant discourses were assigned. The concepts expressed were grouped until subcategories were formed, which were then condensed into categories. Four categories of analysis emerged: communication-related aspects; professional skills of nurse case managers; communication on safety and the caregiving role. To planner interventions, for the prevention of adverse events at home, is essential to consider these aspects: nurses’ professional communication skills, factors inherent to safe caregiving, the characteristics of the home where care is provided, the personal and family circumstances of the caregiver, and whether or not the caregiver’s role has been assumed by the family caregivers.

The experiences and needs of primary family caregivers of patients with multiple myeloma: A qualitative analysis

2019 ◽  
Vol 33 (5) ◽  
pp. 500-509 ◽  
Author(s):  
Carmen Quiñoa-Salanova ◽  
Josep Porta-Sales ◽  
Cristina Monforte-Royo ◽  
Montserrat Edo-Gual
Keyword(s):  
Multiple Myeloma ◽  
Lived Experience ◽  
Family Caregivers ◽  
Phenomenological Study ◽  
Care And Support ◽  
Data Saturation ◽  
Health Related ◽  
The Impact ◽  
Primary Family ◽  
Main Family

Background: Family caregivers play a key role in the lives of patients with multiple myeloma. However, very little is known about the impact that the disease (its diagnosis, course and prognosis) has on the main family caregiver. Aim: To achieve a deeper understanding of the lived experience of individuals who are the primary caregiver of a relative with multiple myeloma and to shed light on their needs. Design: Interpretative phenomenological study. Setting and participants: A total of 12 individuals who were the main family caregivers of a relative with multiple myeloma who was under outpatient follow-up at a cancer unit in Barcelona were recruited via purposive sampling until data saturation was reached. In semi-structured in-depth interviews, participants described their experiences of caring for their relative with multiple myeloma. Interviews were recorded, transcribed and analysed using ATLAS.ti v7.2. The seven steps proposed by Colaizzi were used for data analysis, and the relationships among emerging themes were examined. Findings: Four main themes emerged: (a) a new life, adapting to the disease, (b) commitment to the patient, (c) the emotional sphere and (d) experiences in relation to the care and support received. The analysis also revealed a core overarching theme: uncertainty. Conclusion: Primary family caregivers experienced intense uncertainty, and they described a strong need to air their feelings. Specific practical initiatives, targeting both health-related and logistical aspects of care, need to be developed in order to support family caregivers of myeloma patients.

Meaning in Stroke Family Caregiving in China: A Phenomenological Study

2019 ◽  
Vol 25 (2) ◽  
pp. 260-286 ◽  
Author(s):  
Jingjun Zhang ◽  
Diana Tze Fan Lee
Keyword(s):  
Family Caregivers ◽  
Family Caregiving ◽  
Chinese Culture ◽  
Phenomenological Study ◽  
Hermeneutic Phenomenological ◽  
Role Meaning ◽  
Chinese Caregivers ◽  
Hermeneutic Phenomenological Study ◽  
Culturally Tailored Interventions ◽  
Depth Interviews

Meaning in caregiving plays an influential role in stroke family caregiver’s perception and adaptation to caregiving. Although the role meaning plays in stroke family caregiving has been recognized, knowledge about this subject among the Chinese population is fragmented and sparse. Therefore, a hermeneutic phenomenological study was conducted as a first step in a program of research focused on Chinese caregivers utilizing a purposive sample of five stroke family caregivers living in China to explore the meaning of the lived caregiving experience. Data were collected through in-depth interviews and analyzed by a phenomenological hermeneutic interpretation. Meaning in stroke family caregiving was interpreted as suffering, an obligation, a personal choice, a meaningful opportunity, and a natural part of living. These meanings were dynamic and interconnected and were affected deeply by the Chinese culture in how caregivers experience, interpret, and cope with caregiving. Findings highlight the need to understand the culture-shaped meanings in caregiving to better support family caregivers and develop culturally tailored interventions.

scholarly journals The experiences of caregivers providing home care for terminally ill family members at the end of life: A phenomenological study in Bahrain

2018 ◽  
Vol 6 (3) ◽  
pp. 57
Author(s):  
Fatima Saleh ◽  
Catherine S. O’Neill
Keyword(s):  
Home Care ◽  
Lived Experience ◽  
Family Caregivers ◽  
Nursing Care ◽  
Phenomenological Study ◽  
Family Members ◽  
Terminally Ill ◽  
Well Being ◽  
Care Clinic ◽  
Hermeneutic Phenomenological

Objective: The aim of the study was to explore the lived experience of caregivers providing home care for terminally ill family members, with the objectives of describing their experiences of caring for relatives who are terminally ill with cancer and the needs of home caregiving in Bahrain.Methods: The study adopted a Heideggerian, hermeneutic phenomenological design, with a purposive sample of eight family caregivers. Data was generated through one to one, in-depth interviews and analyzed using Interpretative Phenomenological Analysis.Results: Three main themes emerged from the data: (1) the burden of care, (2) comforts, and (3) coping. The findings showed that the lived experience of home caregiving includes physical, emotional and financial burdens, combined with a lack of professional support. The collective experience was infused with intense emotions because of a lack of structured support, resulting in negative emotions that frequently affected the caregivers’ well-being and their ability to care for the ill person. Nevertheless, caregivers tried to maintain care and comforts for their terminally ill relative in the home. They adopted the home environment, arranged resources to ease caring and provided psychological care. Caregivers utilized three coping mechanisms, faith, personal strategies and distribution of the care responsibilities among family members.Conclusions: Caregivers were not prepared for the commitment and burdens of home care when a family member is terminally ill. A recommendation from the study findings is that training be offered on nursing care before patients discharge. In addition, a reactivation of the palliative care clinic hotline service would support family caregivers. A further recommendation is that home nursing care and hospice services be established to improve homecare services for family caregivers in Bahrain.

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