scholarly journals New problems of a new health system: the creation of a national public policy of rare diseases care in Brazil (1990s-2010s)

2020 ◽  
Vol 16 ◽  
pp. e2210
Author(s):  
Luiz Alves Araújo Neto ◽  
Luiz Antonio Teixeira
Keyword(s):  
Rare Diseases ◽  
Public Perception ◽  
Genetic Diseases ◽  
National Policy ◽  
Policy Framing ◽  
Social Studies Of Science ◽  
The Social ◽  
History Of ◽  
The Subject ◽  
The Right

This study discusses actors and institution movements leading to the disclosure in 2014 of Resolution 199 by the Brazilian Ministry of Health, which establishes the National Policy for the Comprehensive Care of Persons with Rare Diseases. Taking as sources the mainstream newspapers, drafts law, and secondary literature on the subject, we begin our analysis in the early 1990s when the first patient associations were created in Brazil – mainly for claiming more funds for research on genetic diseases – and arrive at the late 2010s when negotiations for a national policy are taking place in the National Congress. Resolution 199 is part of an ongoing process and the path towards its disclosure and the complications that followed have given us elements to discuss contemporary aspects of the Brazilian public health. Based on the references of the history of the present time and the social studies of science, we argue that two aspects have been fundamental to creating a national policy: framing different illnesses within the terminology “rare diseases” and the construction of a public perception about the right of health which is guaranteed by the 1988 Brazilian Constitution.

Tell me your story about the Chilean dictatorship: When doing memory is taking positions

2018 ◽  
Vol 13 (4) ◽  
pp. 601-616 ◽  
Author(s):  
Marcela Cornejo ◽  
Carolina Rocha ◽  
Nicolás Villarroel ◽  
Enzo Cáceres ◽  
Anastassia Vivanco
Keyword(s):  
Social History ◽  
Life Stories ◽  
Political Repression ◽  
Diverse Range ◽  
The Social ◽  
Political Orientations ◽  
History Of ◽  
The Subject ◽  
Chilean Dictatorship ◽  
The Right

The current memory struggles about the Chilean dictatorship makes it increasingly relevant to hear a diverse range of voices on the subject. One way of addressing this is to study autobiographical narratives, in which people construct a character to present themselves as the protagonists of a story by taking multiple positions regarding what is remembered. This article presents a study that analyzed the life stories of Chilean people (diverse in their generations, cities, experiences of political repression, political orientations and socio-economic levels) and that distinguished between the positions that they take when presenting themselves as the protagonists of an autobiographical story about the Chilean dictatorship. The results point to salient and recurrent positions that allow people to earn the right to be considered part of the social history of the dictatorship, that involve different definitions regarding those responsible and the victims of what happened, and that unveil a strong family and filial logic of remembering.

scholarly journals Public participation and rural management of Brazilian waters: an alternative to the deficit model

2008 ◽  
Vol 07 (04) ◽  
Author(s):  
Alessandro Luís Piolli ◽  
Maria Conceição da Costa
Keyword(s):  
Public Participation ◽  
Public Perception ◽  
Deficit Model ◽  
The Public ◽  
Social Studies Of Science ◽  
Knowledge Deficit ◽  
Scientific Institutions ◽  
The Social ◽  
The Right

The knowledge deficit model with regard to the public has been severely criticized in the sociology of the public perception of science. However, when dealing with public decisions regarding scientific matters, political and scientific institutions insist on defending the deficit model. The idea that only certified experts, or those with vast experience, should have the right to participate in decisions can bring about problems for the future of democracies. Through a type of "topography of ideas", in which some concepts from the social studies of science are used in order to think about these problems, and through the case study of public participation in the elaboration of the proposal of discounts in the fees charged for rural water use in Brazil, we will try to point out an alternative to the deficit model. This alternative includes a "minimum comprehension" of the scientific matters involved in the decision on the part of the participants, using criteria judged by the public itself.

The Dimensions of Scientific Controversy: The Biometric—Mendelian Debate

1989 ◽  
Vol 22 (3) ◽  
pp. 299-320 ◽  
Author(s):  
Robert Olby
Keyword(s):  
Social History ◽  
Scientific Activity ◽  
Scientific Controversy ◽  
Sociological Factors ◽  
Sociological Approach ◽  
Scientific Controversies ◽  
History Of ◽  
The Subject ◽  
The Right ◽  
Scientific Arguments

The increasing attention which has been given to social history of science and to the sociological analysis of scientific activity has resulted in a renewed interest in scientific controversies. Furthermore, the rejection of the presentist view of history, according to which those contestants who took what we can identify, with the benefit of modern knowledge, as the ‘right’ stand in a controversy, were right and their opponents were ‘wrong’, left the subject of scientific controversies with many questions. What determines their emergence, course and resolution? When Froggatt and Nevin wrote on the Bio-metric-Mendelian controversy in 1971 they called their article ‘descriptive rather than interpretative’, so they avoided the very questions we would like to ask. Provine, in the same year, concentrated on the strong personalities of the contestants, their clashes, and the scientific arguments in play. But in 1975 Mackenzie and Barnes argued that the controversy could not be accounted for unless recourse was had to sociological factors. Their view has become widely known and figured prominently in 1982 in Steven Shapin's recital of the empirical achievements of the application of the sociological approach. I have returned to this subject because I do not yet feel altogether convinced by Mackenzie and Barnes' analysis. Even if their analysis of the controversy between Pearson and Bateson be accepted, it is not so obvious how effectively it can be used to explain the controversy between Weldon and Bateson, and I am not confident that it is adequate for an understanding of the evolution of their differing views of the mechanism of evolution.

Intergenerational Wealth Transfer and the Need to Revive and Metamorphose the Israeli Estate Tax

2014 ◽  
Vol 8 (1) ◽  
pp. 59-101 ◽  
Author(s):  
Daphna Hacker
Keyword(s):  
Social Justice ◽  
Property Rights ◽  
Wealth Transfer ◽  
Estate Tax ◽  
Inheritance Tax ◽  
History Of ◽  
The Subject ◽  
The Rich ◽  
The Right ◽  
The Needy

Abstract This article suggests enacting an accession tax instead of the estate duty – which was repealed in Israel in 1981. This suggestion evolves from historical and normative explorations of the tension between perceptions of familial intergenerational property rights and justifications for the “death tax,” as termed by its opponents, i.e., estate and inheritance tax. First, the Article explores this tension as expressed in the history of the Israeli Estate Duty Law. This chronological survey reveals a move from the State’s taken-for-granted interest in revenue justifying the Law’s enactment in 1949; moving on to the “needy widow” and “poor orphan” in whose name the tax was attacked during the years 1959–1964, continuing to the abolition of the tax in 1981 in the name of efficiency and the right of the testator to transfer his wealth to his family, and finally cumulating with the targeting of tycoon dynasties that characterizes the recent calls for reintroducing the tax. Next, based on the rich literature on the subject, the Article maps the arguments for and against intergenerational wealth transfer taxation, placing the Israeli case in larger philosophical, political, and pragmatic contexts. Lastly, it associates the ideas of accession tax and “social inheritance” with inspirational sources for rethinking a realistic wealth transfer taxation to bridge the gap between notions of intergenerational familial rights and intergenerational social justice.

scholarly journals Introduction: Some ponderings on the use of the law in the writing of histories

2001 ◽  
Vol 16 (2) ◽  
pp. 169-175
Author(s):  
NIMROD HURVITZ ◽  
EDWARD FRAM
Keyword(s):  
Legal Doctrine ◽  
Legal Cases ◽  
Legal Documents ◽  
Historical Significance ◽  
Partial Reconstruction ◽  
The Social ◽  
The Hours ◽  
History Of ◽  
The Subject ◽  
The Law

Professional jurists are often inquisitive about the subject matter of their calling and in the course of their careers may well develop fascinating insights into the law and those who interpret it. Their employers, however, be they governments, corporations, firms, or private clients, rarely show similar enthusiasm for such insights unless the hours spent pondering the social or historical significance of this or that legal view have a contemporary value that justifies the lawyer's fee.Thankfully, other members of society are rewarded for mining the legal records of the past. For legal historians, the search often focuses on the changing legal ideas and how legal doctrine develops over time to meet the changing needs of societies. Yet because the law generally deals with concrete matters – again, because jurists are paid by people who are unlikely to remunerate those who simply while away their hours making up legal cases – it offers a reservoir of information that can be used, albeit with caution, in fields other than just the history of the law.A partial reconstruction of the law of any given time and place is among the more obvious historical uses of legal documents but statutes, practical decisions, and even theoretical texts can be used to advance other forms of the historical endeavour. Legal works often reflect the values both of jurists and society-at-large, for while the law creates social values it is not immune to changes in these very values.

scholarly journals XXXI.—On the Limits of our Knowledge respecting the Theory of Parallels

1864 ◽  
Vol 23 (3) ◽  
pp. 433-450
Author(s):  
Kelland
Keyword(s):  
Human Mind ◽  
Practical Application ◽  
Very Old ◽  
Metaphysical Problem ◽  
Pure Logic ◽  
History Of ◽  
The Subject ◽  
The Right ◽  
Negative Conclusion ◽  
Positive Results

The subject of this paper is a very old one, and may to many appear to be sufficiently worn; but I venture to hope, that there are some to whom a glimpse of the successive approaches of the human mind towards the right understanding of a question of pure logic, may have an interest,—even although the problem solved be an abstract one, and the conclusion a negative conclusion, having little practical application. Like the kindred problem of the quadrature of the circle, or the metaphysical problem of “Knowing and Being,” the theory of parallels has been attacked in various directions, and although it is true that no one ever reached the goal he aimed at, yet it is not the less certain that great and positive results have followed in the history of human attainment. If no other lesson has been learnt, this at least may have been: that in reasoning it is necessary to look warily around and abroad at every step, seeing that admissions, the most obviously inadmissible, or evasions the most palpable, have foiled generations of thinkers, whilst those who have detected their errors have fallen into others of an equally destructive character.

scholarly journals Argentine Concordat as an International Agreement Regulating the Law of Patronage

2020 ◽  
Vol 25 (1) ◽  
pp. 89-109
Author(s):  
Marta Zuzanna Osuchowska
Keyword(s):  
Social Sciences ◽  
Historical Background ◽  
International Agreement ◽  
Holy See ◽  
Bilateral Relations ◽  
Legal Method ◽  
History Of ◽  
The Subject ◽  
The 1960S ◽  
The Right

In the history of relations between the Argentinean government and the Holy See, two ideas are permanently intertwined: signing the Concordat and defending national patronage. The changes that occurred in the 1960s indicated that exercising the right of patronage, based on the principles outlined in the Constitution, was impossible, and the peaceful establishment of the principles of bilateral relations could only be indicated through an international agreement. The Concordat signed by Argentina in 1966 removed the national patronage, but the changes to the content of the Constitution were introduced only in 1994. The aim of the study is to show the concordat agreement concluded in 1966 by Argentina with the Holy See as an example of an international agreement. The main focus is the presentation of concordat standards for the institution of patronage. Due to the subject and purpose of the study, the work uses methods typical of social sciences in the legal science discipline. The dogmatic-legal method is the basis for consideration of the Concordat as a source of Argentine law, and as an auxiliary method, the historical-legal method was used to show the historical background of the presented issue.

scholarly journals Designing the social estate of odnodvortsy of the western provinces in 1831

2017 ◽  
Vol 6 (2) ◽  
pp. 135-140
Author(s):  
Constantin Vadimovich Troianowski
Keyword(s):  
19Th Century ◽  
Legal Status ◽  
Social Hierarchy ◽  
Social Category ◽  
The Past ◽  
Imperial Russia ◽  
The Social ◽  
The Subject ◽  
The Right ◽  
The 19Th Century

This article investigates the process of designing of the new social estate in imperial Russia - odnodvortsy of the western provinces. This social category was designed specifically for those petty szlachta who did not possess documents to prove their noble ancestry and status. The author analyses deliberations on the subject that took place in the Committee for the Western Provinces. The author focuses on the argument between senior imperial officials and the Grodno governor Mikhail Muraviev on the issue of registering petty szlachta in fiscal rolls. Muraviev argued against setting up a special fiscal-administrative category for petty szlachta suggesting that its members should join the already existing unprivileged categories of peasants and burgers. Because this proposal ran against the established fiscal practices, the Committee opted for creating a distinct social estate for petty szlachta. The existing social estate paradigm in Russia pre-assigned the location of the new soslovie in the imperial social hierarchy. Western odnodvortsy were to be included into a broad legal status category of the free inhabitants. Despite similarity of the name, the new estate was not modeled on the odnodvortsy of the Russian provinces because they retained from the past certain privileges (e.g. the right to possess serfs) that did not correspond to the 19th century attributes of unprivileged social estates.

scholarly journals From «Commercial» to «Economic» Education: the Case of Irkutsk Financial and Economic Institute of 1941–1945

2021 ◽  
Vol 22 (3) ◽  
pp. 377-405
Author(s):  
Dmitry Maidachevsky
Keyword(s):  
Subject Area ◽  
Economic Education ◽  
Economic Knowledge ◽  
Business Economics ◽  
History Of ◽  
Science And Education ◽  
The Subject ◽  
Economic Institute ◽  
The Right ◽  
Point Of Intersection

The author of the article reconstructs the shift, which occurred in the model and disciplinary structure of «commercial» education towards «economic» one. The research is based on disciplinary approach in the history of education, which builds on subject-oriented character of knowledge and empirical analysis of Irkutsk Financial and Economic Institute case. Although the shift was being discreetly prepared for several decades and included many attempts to integrate commercial functions of education with economic field, its real start was caused by external to science and education factors. The subject area of a business economics became the point of intersection for economic and commercial disciplines. The area appeared mainly due to political and ideological campaign aimed at making the enterprises’ party core groups aware of economic knowledge. The 18th All-Union Conference of Communist Party initiated the campaign in 1941. The outbreak of war forced people to view the business economics as a scientific and practical field of study, which applies many techniques and methods of economic analysis in order to ensure effective operation and reveal its potential reserves. After obtaining the right to operate beyond the scientific and practical environment, the subject area of business economics entered the higher education area, transforming its educational and research programs and integrating the disciplinary models and structures of economic and commercial education.

scholarly journals El pacifismo-antimilitarismo en España desde el siglo XIX hasta la Guerra Civil: los «efectos desplazamiento»

2019 ◽  
Vol 12 (1) ◽  
Author(s):  
Juli Antoni Aguado Hernández
Keyword(s):  
Social Imaginary ◽  
La Paz ◽  
Democratic Principle ◽  
The Social ◽  
Nonviolent Resistance ◽  
History Of ◽  
The Subject ◽  
Siglo Xix ◽  
Sociedad Civil ◽  
The 19Th Century

La historia del antimilitarismo en el Estado español es, en gran medida, desconocida. El presente trabajo pretende subsanar parcialmente esta carencia mediante la compilación de la literatura y las fuentes existentes sobre la materia, parciales o basadas en períodos específicos, exponiendo estas resistencias desde el pacifismo inicial del siglo XIX hasta el final de la Guerra Civil. Esta labor se realiza desde la confluencia entre la historia y la sociología, insertando estas movilizaciones en los conflictos y los movimientos internacionales, mostrando cómo se influyen mutuamente, así como la convergencia entre el feminismo y el antimilitarismo. Asimismo, se constata cómo la defensa de la paz o la resistencia al servicio de armas y la militarización social sólo pueden ser movilizadas cuándo la narrativa del sometimiento puede ser percibida como opresión, al imponerse el principio democrático de libertad e igualdad en el imaginario social (tesis de los efectos de desplazamiento). De forma paralela, se evidencia cómo el antimilitarismo proporciona el espacio para la emergencia de nuevos conocimientos y prácticas de resistencia noviolentas (tesis de los movimientos como laboratorios de la sociedad civil), extendiendo la concepción prevaleciente del derecho.The history of antimilitarism in the Spanish State is largely unknown. The present work intends to complete particularly this lack by compiling literature and existing sources on the subject, partial or based on specific periods, exposing these resistances from the initial pacifism of the 19th century until the end of the Civil war. This work is carried out from the confluence between history and sociology, inserting these mobilizations in conflicts and international movements, and showing how they influence each other, as well as the convergence between feminism and antimilitarism.Furthermore, it can be seen how the defense of peace or resistance to arms service and social militarization can only be mobilized when the narrative of subjugation can be perceived as oppression by imposing the democratic principle of freedom and equality in the social imaginary (thesis of the displacement effects). Similarly, it is evident how antimilitarism provides the space for the emergence of new knowledge and practices of nonviolent resistance (thesis of movements as laboratories of civil society) extending the prevailing conception of right.

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