A Study on the Effected the Family Adaptability to Families Burden of Children with Disabilities

2016 ◽  
Vol 20 (2) ◽  
pp. 49-72
Author(s):  
Yeun Hee Nam ◽  
◽  
Young Sam Kim ◽  
Sook Hee Yeom ◽  
◽  
...  
Keyword(s):  
Children With Disabilities ◽  
Family Adaptability ◽  
The Family

SITUATION OF CHILDREN WITH DISABILITIES IN CONTEMPORARY LEGAL, MEDICAL AND SOCIAL PROCESSES IN THE RUSSIAN FEDERATION

2021 ◽  
Vol 100 (4) ◽  
pp. 198-207
Author(s):  
R.N. Terletskaya ◽  
◽  
I.V. Vinyarskaya ◽  
E.V. Antonova ◽  
A.P. Fisenko ◽  
...  
Keyword(s):  
Children With Disabilities ◽  
Social Assistance ◽  
The State ◽  
Main Task ◽  
Persons With Disabilities ◽  
Rehabilitation Programs ◽  
The Family ◽  
The Status ◽  
The Russian Federation ◽  
The Individual

Despite the positive developments in the sphere of ensuring the special needs of disabled children, a comprehensive socio-hygienic assessment of the conditions and lifestyles, as well as of their families, has not been carried out in the recent years. The purpose of the study is to identify, through a sociological survey, the problems that a disabled child encounters in his life, in order to further improve the provision of medical and social assistance to him. Materials and methods of research: 506 legal representatives of minors (aged 0–17 years) with the status of a disabled child were interviewed. Study design: single-center, non-randomized, uncontrolled. Results: the study of the living conditions of a disabled child in the family, the assessment by the parents of the state of his health, the problems arising during the registration of disability, in the provision of medical and rehabilitation assistance, and issues of medical and social support, made it possible to determine the position of this part of the child population in modern legal and medical and social conditions. The main problems were the large number of documents required for the registration of a disability, the long wait for the day of the examination, the remoteness of the location of the medical and social examination bureau, the shortage of specialist doctors, the problem with subsidized drugs, the lack of taking into account the individual needs of the child when carrying out rehabilitation programs, the need to contact different organizations and departments, lack of medical and social assistance, violation of rights in the provision of medical services to a disabled child. Conclusion: The acquired information is important for the further improvement of the provision of medical and social assistance to handicapped children and children with disabilities. The main task today is to develop mechanisms for fulfilling the declared rights and freedoms of persons with disabilities and the obligations undertaken by the state in relation to them. The principle of individualization of the provision of various benefits, depending on the condition of a disabled child, his needs, material security, remains relevant.

scholarly journals Sexual abuse against children with disabilities in the community

2021 ◽  
Vol 2 (1) ◽  
pp. 1-15
Author(s):  
Rania El-Sawy Abdo Abdel-Qawi
Keyword(s):  
Sexual Abuse ◽  
Sex Education ◽  
Children With Disabilities ◽  
Effective Means ◽  
People With Disabilities ◽  
Social Effects ◽  
Scientific Methods ◽  
The Family ◽  
Awareness Programs ◽  
The Subject

The current study aimed to review the most prominent axes related to sexual abuse against children with disabilities in society, including1- Learn about the concept and forms of sexual abuse for people with disabilities.2- Recognizing the physical, psychological, and social effects of abuse.3- Responsible for exposing a child with disabilities to harassment or exploitation.4- The available treatment methods to reduce the consequences of the abuse if it develops into sexual assault. 5- Educating the family of people with disabilities about the possibility that their child will be exposed to sexual harassment.6- Adding the subject of sexual education as an effective means of preventing harassment against people with disabilities. 7- Educating the family, society and those working with people with disabilities about the correct scientific methods and concepts of sex education as a healthy and preventive means against harassment of all kinds. 8- Establishing proposed procedural mechanisms that help workers in the field of special education to know the most important preventive and awareness programs and to activate them in all educational stages.

scholarly journals Sexual and Marital Relationship Satisfaction in Parents of Children With Disabilities

2021 ◽  
Vol 35 (2) ◽  
Author(s):  
Remigiusz Kijak
Keyword(s):  
Relationship Satisfaction ◽  
Sexual Satisfaction ◽  
Children With Disabilities ◽  
Marital Relationship ◽  
Satisfaction Scale ◽  
Men And Women ◽  
Independent Variables ◽  
Number Of Children ◽  
The Family

The purpose of this study was to determine the level of sexual satisfaction and type of relationship between spouses, and then to determine the correlation between these variables and independent variables. These include: disability type of the child, the number of children in the family, and the gender of the parents. The hypothesis was that ‘the level of sexual satisfaction in parents is significantly related to the type of disability possessed by their children’ and similarly it was found that disability type significantly affects the type of relationship between parents. The research was conducted using the Matched Marriage Questionnaire (MMQ) and the Sexual Satisfaction Scale (SSS). The data obtained in the study showed that most spouses experience high and average sexual satisfaction and no particular differences between men and women were observed. The differences appeared when analyzing parents of a child with autism. In this group the results were more diverse in the detailed descriptions of the scale. The results obtained regarding marital relationship satisfaction indicate a not very favorable picture of the relationships of the surveyed subjects.

scholarly journals The Family Adaptability and Cohesion Evaluation Scale (FACES): an instrument worthy of rehabilitation?

2005 ◽  
Vol 29 (6) ◽  
pp. 215-218 ◽  
Author(s):  
Maurice Place ◽  
Jessica Hulsmeier ◽  
Allan Brownrigg ◽  
Alison Soulsby
Keyword(s):  
Family Functioning ◽  
School Refusal ◽  
Clinical Implications ◽  
Clinical Settings ◽  
Specific Measure ◽  
Discriminatory Ability ◽  
Family Adaptability ◽  
The Family ◽  
Different Types ◽  
Mental Health Difficulties

Aims and MethodThere have been a variety of instruments developed for evaluating family functioning, but no specific measure has emerged as appropriate for routine clinical use. The Family Adaptability and Cohesion Evaluation Scale (FACES) was viewed as a useful tool for a period, but has been less popular of late. This paper looks at its use in families with two very different types of problem to assess its discriminatory ability.ResultsMothers with depression whose children were not showing mental health difficulties reported a very different pattern of family functioning from those whose children were showing chronic school refusal.Clinical ImplicationsThe FACES is capable of discriminating between different patterns of family functioning. Its ease of administration, and the information it provides, should recommend it for wider use in clinical settings.

scholarly journals Perceptions of communication, family adaptability and cohesion: a comparison of adolescents newly diagnosed with cancer and their parents

2014 ◽  
Vol 26 (1) ◽  
pp. 19-26 ◽  
Author(s):  
Celeste R. Phillips-Salimi ◽  
Sheri L. Robb ◽  
Patrick O. Monahan ◽  
Amy Dossey ◽  
Joan E. Haase
Keyword(s):  
Correlation Coefficients ◽  
Parent Communication ◽  
Intra Class Correlation ◽  
Significant Relationships ◽  
Family Adaptability ◽  
Starting Point ◽  
The Family ◽  
Adolescent Parent ◽  
Pearson Correlations ◽  
Communication Scale

Abstract Purpose: To describe and compare adolescent and parent perspectives on communication, family adaptability and cohesion, as well as relationships among these variables, during the first month of an adolescent’s cancer diagnosis. Methods: Seventy adolescent-parent dyads were enrolled as part of a larger multi-site study. The adolescents ranged in age from 11 to 19, and 61% were males. Parents were predominately mothers (83%). Dyads were predominately non-Hispanic Caucasian (63%). Measures included the Parent-Adolescent Communication Scale and the Family Adaptability and Cohesion Evaluation Scale (FACES II). Paired t-tests, Pearson correlations, intra-class correlation coefficients and multiple linear regression analyses were completed. Results: Adolescent scores on communication, family adaptability and cohesion were significantly lower than parent scores. The inter-dyadic agreement between adolescents and parents was low. Communication, family adaptability and cohesion were examined separately for adolescents and for parents, and significant relationships were found. Both adolescent- and parent-perceived communication was significantly associated with family adaptability and cohesion outcomes. Conclusions: Differences were found in adolescent and parent perceptions of communication, family adaptability and cohesion. When both adolescents and parents had better perceived communication, this was associated with better perceived family adaptability and cohesion. Results suggest that the development of interventions to enhance adolescent-parent communication could help foster better family adaptability and cohesion, which may ultimately impact their psychological adjustment. In addition, understanding the degree to which adolescents and parents disagree on their perceptions, including the results that parents generally have more favorable perceptions, may be a useful starting point when developing interventions.

The Adult Who is an Only Child: Achieving Separation or Individuation

1993 ◽  
Vol 73 (1) ◽  
pp. 171-177 ◽  
Author(s):  
Barbara Byrd ◽  
Arnold P. DeRosa ◽  
Stephen S. Craig
Keyword(s):  
Birth Order ◽  
Interaction Analysis ◽  
Family Interaction ◽  
Data Sheet ◽  
California Psychological Inventory ◽  
Only Child ◽  
Family Adaptability ◽  
The Family ◽  
Main Effects ◽  
Psychological Inventory

60 women and 60 men between the ages of 18 and 45 years ( M = 30.5, SD = 9.6) were categorized by sex, age, and birth order (only child, firstborn, last-born) to assess the differences among the adult only-child, the youngest child, and the oldest child in autonomous characteristics and cohesiveness in family interaction. Analysis of the responses on a biographical data sheet, the California Psychological Inventory, and the Family Adaptability Cohesion Scales III showed that main effects for birth order and sex are significant in the process of separation-individuation and that the only child is less autonomous than the oldest child.

Hurtin' Words

2018 ◽  
Author(s):  
Ted Ownby
Keyword(s):  
Civil Rights ◽  
Family Life ◽  
Rock Music ◽  
American South ◽  
Family Values ◽  
Family Crisis ◽  
Family Adaptability ◽  
Wide Range ◽  
The Family ◽  
Innovative Work

When Tammy Wynette sang "D-I-V-O-R-C-E," she famously said she "spelled out the hurtin' words" to spare her child the pain of family breakup. In this innovative work, Ted Ownby considers how a wide range of writers, thinkers, activists, and others defined family problems in the twentieth-century American South. Ownby shows that it was common for both African Americans and whites to discuss family life in terms of crisis, but they reached very different conclusions about causes and solutions. In the civil rights period, many embraced an ideal of Christian brotherhood as a way of transcending divisions. Opponents of civil rights denounced "brotherhoodism" as a movement that undercut parental and religious authority. Others, especially in the African American community, rejected the idea of family crisis altogether, working to redefine family adaptability as a source of strength. Rather than attempting to define the experience of an archetypal "southern family," Ownby looks broadly at contexts such as political and religious debates about divorce and family values, southern rock music, autobiographies, and more to reveal how people in the South used the concept of the family as a proxy for imagining a better future or happier past.

Factors Relevant to Parental Alliance for Parents of Children with Disabilities

2003 ◽  
Vol 34 (3) ◽  
pp. 10-15 ◽  
Author(s):  
Abeer Abdo ◽  
Jerome M. Fischer
Keyword(s):  
Multiple Regression ◽  
Children With Disabilities ◽  
Strong Relationship ◽  
The Other ◽  
Rehabilitation Counselors ◽  
Rehabilitation Process ◽  
The Family ◽  
Two Factors

This study investigated factors relevant to parental alliance using the Parental Alliance Measure (PAM) with parents of children with disabilities. A total of 139 parents of children with disabilities participated in the study. Using multiple regression two factors were examined as relevant to parental alliance: satisfaction with the partnership and percent of caregiving provided by the other partner. Findings showed that parents who perceived a strong relationship with their partner and those who perceived their partner contributing a greater percent of caregiving for the child or children with disabilities in the family had a stronger parental alliance. Rehabilitation counselors may use the PAM with families to understand parenting dynamics, develop strategies, and increase involvement in the rehabilitation process.

An evaluation of the family adaptability and cohesion evaluation scales and the circumplex model

1986 ◽  
Vol 14 (1) ◽  
pp. 77-87 ◽  
Author(s):  
J. Douglas Rodick ◽  
Scott W. Henggeler ◽  
Cindy L. Hanson
Keyword(s):  
Circumplex Model ◽  
Family Adaptability ◽  
The Family
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