Development of an osteogenesis imperfecta specific quality of life measure

2017 ◽  
Author(s):  
Claire Hill ◽  
Wendy Baird ◽  
Stephen Walters
Keyword(s):  
Quality Of Life ◽  
Osteogenesis Imperfecta ◽  
Life Measure

The Vietnamese Version of the Health-related Quality of Life Measure for Children with Epilepsy (CHEQOL-25): Reliability

MedPharmRes ◽  
2017 ◽  
Vol 1 (1) ◽  
pp. 9-14
Author(s):  
Tri Doan ◽  
Tuan Tran ◽  
Han Nguyen ◽  
◽  
◽  
...  
Keyword(s):  
Quality Of Life ◽  
Good Practice ◽  
The Self ◽  
Self Report ◽  
Health Related Quality ◽  
Life Measure ◽  
Related Quality ◽  
Health Related ◽  
Parent Proxy

Purpose: This study aimed to translate and culturally adapt the self-report and parent-proxy Health-Related Quality of Life Measure for Children with Epilepsy (CHEQOL-25) into Vietnamese and to evaluate their reliability. Methods: Both English versions of the self-report and parent-proxy CHEQOL-25 were translated and culturally adapted into Vietnamese by using the Principles of Good Practice for the Translation and Cultural Adaptation Process. The Vietnamese versions were scored by 77 epileptic patients, who aged 8–15 years, and their parents/caregivers at neurology outpatient clinic of Children Hospital No. 2 – Ho Chi Minh City. Reliability of the questionnaires was determined by using Cronbach’s coefficient α and intra-class correlation coefficient (ICC). Results: Both Vietnamese versions of the self-report and parent-proxy CHEQOL-25 were shown to be consistent with the English ones, easy to understand for Vietnamese children and parents. Thus, no further modification was required. Cronbach’s α coefficient for each subscale of the Vietnamese version of the self-report and parent-proxy CHEQOL-25 was 0.65 to 0.86 and 0.83 to 0.86, respectively. The ICC for each subscale of the self-report and parent-proxy CHEQOL-25 was in the range of 0.61 to 0.86 and 0.77 to 0.98, respectively. Conclusion: The Vietnamese version of the self-report and parent-proxy CHEQOL-25 were the first questionnaires about quality of life of epileptic children in Vietnam. This Vietnamese version was shown to be reliable to assess the quality of life of children with epilepsy aged 8–15 years.

Further development of a quality of life measure for cancer patients: The rotterdam symptom checklist (revised)

1992 ◽  
Vol 1 (1) ◽  
pp. 35-44 ◽  
Author(s):  
M. Watson ◽  
M. Law ◽  
G. P. Maguire ◽  
B. Robertson ◽  
S. Greer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Symptom Checklist ◽  
Life Measure ◽  
Further Development ◽  
Rotterdam Symptom Checklist

scholarly journals Quality of life in children with osteogenesis imperfecta treated with oral bisphosphonates (Olpadronate): a 2-year randomized placebo-controlled trial

2007 ◽  
Vol 166 (11) ◽  
pp. 1155-1161 ◽  
Author(s):  
Dieke H. J. Kok ◽  
Ralph J. B. Sakkers ◽  
Arieke J. Janse ◽  
Hans E. H. Pruijs ◽  
Ab J. Verbout ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Osteogenesis Imperfecta ◽  
Controlled Trial ◽  
Oral Bisphosphonates

scholarly journals A new quality-of-life measure for men experiencing involuntary childlessness

2005 ◽  
Vol 20 (10) ◽  
pp. 2858-2865 ◽  
Author(s):  
S. Schanz ◽  
I.T. Baeckert-Sifeddine ◽  
C. Braeunlich ◽  
S.E. Collins ◽  
A. Batra ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Life Measure

A health-related quality of life measure for multiple sclerosis

1995 ◽  
Vol 4 (3) ◽  
pp. 187-206 ◽  
Author(s):  
B. G. Vickrey ◽  
R. D. Hays ◽  
R. Harooni ◽  
L. W. Myers ◽  
G. W. Ellison
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Health Related Quality ◽  
Life Measure ◽  
Related Quality ◽  
Health Related

scholarly journals Development Of A Multi-Dimensional Health Related Quality Of Life Measure Specific For Pulmonary Tuberculosis Patients In Iraq

2013 ◽  
Vol 16 (3) ◽  
pp. A95-A96 ◽  
Author(s):  
J.A. Dujaili ◽  
A.Q. Blebil ◽  
A. Awaisu ◽  
J. Bredle ◽  
M.A. Dujaili ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pulmonary Tuberculosis ◽  
Health Related Quality ◽  
Life Measure ◽  
Tuberculosis Patients ◽  
Related Quality ◽  
Health Related

Developing a quality of life measure for children aged 5-8 years

2000 ◽  
Vol 5 (3) ◽  
pp. 299-321 ◽  
Author(s):  
Pragai Jirojanakul ◽  
Suzanne Skevington
Keyword(s):  
Quality Of Life ◽  
Life Measure
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