scholarly journals Public engagement in setting priorities in health care

2008 ◽  
Vol 179 (1) ◽  
pp. 15-18 ◽  
Author(s):  
R. A. Bruni ◽  
A. Laupacis ◽  
D. K. Martin ◽  
Keyword(s):  
Health Care ◽  
Public Engagement ◽  
Priorities In Health Care

Supporting tough decisions in Norway: A healthcare system approach

2010 ◽  
Vol 26 (4) ◽  
pp. 398-404 ◽  
Author(s):  
Berit Mørland ◽  
Ånen Ringard ◽  
John-Arne Røttingen
Keyword(s):  
Health Care ◽  
Decision Making ◽  
Organizational Structure ◽  
Healthcare System ◽  
Priority Setting ◽  
System Approach ◽  
Health Technology ◽  
Complex Task ◽  
Key Stakeholders ◽  
Priorities In Health Care

Objectives: We describe, in general, the principles used in priority setting and, in particular, policy processes and decision making in Norway.Methods: A newly established council for setting priorities in health care is presented to illustrate how health technology assessments (HTAs) can support national advisors in complex priority-setting processes.Results and Conclusions: Setting priorities in health care is a complex task. Careful thinking is, therefore, required in determining the components of a system for priority-setting. Based on recent Norwegian experiences, we believe that the following generic parts may provide some of the solution: a common set of values; an organizational structure made up of key stakeholders; supporting mechanisms in the form of HTA organizations and documented best evidence; and loyalty to decisions by stakeholders responsible for implementing national policies.

scholarly journals Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation

2021 ◽  
Vol 6 ◽  
pp. 311
Author(s):  
Madeleine J. Murtagh ◽  
Mavis Machirori ◽  
Clara L. Gaff ◽  
Mwenza T. Blell ◽  
Jantina de Vries ◽  
...  
Keyword(s):  
Health Care ◽  
Public Engagement ◽  
Data Use ◽  
Responsible Leadership ◽  
Single Individual ◽  
Diversity And Inclusion ◽  
Genomics Research ◽  
Patient And Public Engagement ◽  
One Step ◽  
Genomic Science

Genomic science is increasingly central to the provision of health care. Producing and applying robust genomics knowledge is a complex endeavour in which no single individual, profession, discipline or community holds all the answers.  Engagement and involvement of diverse stakeholders can support alignment of societal and scientific interests, understandings and perspectives and promises better science and fairer outcomes. In this context we argue for F.A.I.R.E.R. data and data use that is Findable, Accessible, Interoperable, Reproducible, Equitable and Responsible. Yet there is a paucity of international guidance on how to engage publics, patients and participants in genomics. To support meaningful and effective engagement and involvement we developed an Engagement Framework for involving and engaging participants, patients and publics in genomics research and health implementation. The Engagement Framework is intended to support all those working in genomics research, medicine, and healthcare to deliberatively consider approaches to participant, patient and public engagement and involvement in their work. Through a series of questions, the Engagement Framework prompts new ways of thinking about the aims and purposes of engagement, and support reflection on the strengths, limitations, likely outcomes and impacts of choosing different approaches to engagement. To guide genomics activities, we describe four themes and associated questions for deliberative reflection: (i) fairness; (ii) context; (iii) heterogeneity, and (iv) recognising tensions and conflict. The four key components in the Engagement provide a framework to assist those involved in genomics to reflect on decisions they make for their initiatives, including the strategies selected, the participant, patient and public stakeholders engaged, and the anticipated goals. The Engagement Framework is one step in an actively evolving process of building genomics research and implementation cultures which foster responsible leadership and are attentive to objectives which increase equality, diversity and inclusion in participation and outcomes.

scholarly journals Age as a Criterion for Setting Priorities in Health Care? A Survey of the German Public View

PLoS ONE ◽  
2011 ◽  
Vol 6 (8) ◽  
pp. e23930 ◽  
Author(s):  
Adele Diederich ◽  
Jeannette Winkelhage ◽  
Norman Wirsik
Keyword(s):  
Health Care ◽  
Priorities In Health Care
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