scholarly journals Συμβιώνοντας με τον ασθενή με χρόνια νεφρική νόσο

2018 ◽  
Author(s):  
Αθηνά Πάσχου
Keyword(s):  
Zarit Burden Interview ◽  
Eq5d Index

Στόχος: Η διερεύνηση της ψυχικής και της σωματικής υγείας των συζύγων-φροντιστών ασθενών με χρόνια νεφρική νόσο (ΧΝΝ), ο προσδιορισμός των παραγόντων που αυξάνουν την αίσθηση της επιβάρυνσης τους και η σύγκριση τους με μια ομάδα συζύγων ατόμων χωρίς ΧΝΝ. Μέθοδος: Η παρούσα έρευνα πραγματοποιήθηκε στη Νεφρολογική Κλινική του Πανεπιστημιακού Νοσοκομείου Ιωαννίνων και συμμετείχαν 50 σύζυγοι - φροντιστές ασθενών με ΧΝΝ από όλα τα ειδικά ιατρεία της Νεφρολογικής Κλινικής. Οι σύζυγοι-φροντιστές χωρίστηκαν σε δύο υποομάδες, ανάλογα με το αν οι ασθενείς βρίσκονταν εντός νεφρικής κάθαρσης. Επίσης, συμπεριλήφθηκε μια ομάδα 50 συζύγων από το γενικό πληθυσμό ατόμων χωρίς ΧΝΝ. Τα κριτήρια ένταξης ήταν ίδια για τις δύο ομάδες και διέφεραν μόνο στην ύπαρξη ΧΝΝ. Οι παράγοντες που μελετήθηκαν ήταν η επιβάρυνση φροντιστή, η κατάθλιψη, το άγχος, η σχετιζόμενη με την υγεία ποιότητα ζωής, η ντροπή και σημαντικοί δημογραφικοί παράγοντες και χρησιμοποιήθηκαν τα εξής ερωτηματολόγια: PHQ-9, GAD-2, Zarit Burden Interview, EQ-5D- 3L, OAS, λίστα συμπτωμάτων υγείας και ερωτηματολόγιο δημογραφικών. Οι στατιστικές αναλύσεις έγιναν με τα προγράμματα Excel, SPSS και STATA.Αποτελέσματα: Η μέση επιβάρυνση στο σύνολο των συζύγων-φροντιστών ήταν 27.26 (SD, 18.33), δηλαδή ήπια - μέτρια επιβάρυνση. Η μέση τιμή κατάθλιψης ήταν 5.64 (SD, 4.80), δηλαδή ήπια κατάθλιψη. Αντίστοιχα, η μέση τιμή στο άγχος ήταν 1.90 (SD, 1.64). Τέλος, τα επίπεδα συνολικής εξωτερικής ντροπής (μ.ο. 10.98, SD 13.39) βρέθηκαν εντός των μέσων τιμών για τον ελληνικό πληθυσμό. Ο μέσος όρος του EQ5D index (0.747, SD 0.213) και η μέση τιμή του σκορ στην EQ5D VAS (70.86, SD 16.97) αναδεικνύουν καλή ποιότητα ζωής. Οι δυο υπο-ομάδες διέφεραν (P=0.031) στην αυτοαξιολόγηση του επιπέδου υγείας που ήταν υψηλότερη στους συζύγους των ασθενών εκτός νεφρικής κάθαρσης. Η κατάθλιψη και το μηνιαίο εισόδημα βρέθηκαν να επηρεάζουν στατιστικά πάρα πολύ σημαντικά την αίσθηση επιβάρυνσης (B = 2.57, P ≤ .001 και B = -5.95, P ≤ 0.050 αντίστοιχα). Βρέθηκαν ισχυρές συσχετίσεις μεταξύ της πλειοψηφίας των παραγόντων (p≤0.001). Στην ομάδα των συζύγων των υγιών τα επίπεδα ψυχικής και σωματικής υγείας ήταν παρόμοια καλά. Κατά τη σύγκριση των δύο ομάδων προέκυψαν στατιστικά σημαντικές διαφορές μόνο στην αξιολόγηση των παραγόντων που επιδρούν αρνητικά στη σχέση. Επίσης, οι σύζυγοι των ασθενών ανέφεραν υψηλότερη ικανοποίηση από το γάμο τους από ότι οι σύζυγοι των υγιών (P=0.015). Συμπεράσματα: Η ψυχική και σωματική υγεία των συζύγων – φροντιστών ασθενών με ΧΝΝ είναι σε καλά επίπεδα και δε διέφερε από τους συζύγους ατόμων χωρίς ΧΝΝ. Από την παρούσα έρευνα επιβεβαιώθηκε η ισχυρή επίδραση της κατάθλιψης στην αίσθηση επιβάρυνσης και η αρνητική σχέση της με το μηνιαίο εισόδημα, ανεξαρτήτως των υπολοίπων παραγόντων. Ο σχεδιασμός προγραμμάτων ψυχολογικής υποστήριξης και οικονομικής ενίσχυσης της οικογένειας των ασθενών αποτελεί μια απαραίτητη διάσταση της πρόληψης και της Πρωτοβάθμιας Φροντίδας Υγείας.

Zarit Burden Interview

1980 ◽  
Author(s):  
Steven H. Zarit ◽  
Karen E. Reever ◽  
Julie Bach-Peterson
Keyword(s):  
Zarit Burden Interview

scholarly journals Early Surgery Does Not Improve Outcomes for Patients with Periprosthetic Femoral Fractures—Results from the Registry for Geriatric Trauma of the German Trauma Society

Medicina ◽  
2021 ◽  
Vol 57 (6) ◽  
pp. 517
Author(s):  
Christopher Bliemel ◽  
Katherine Rascher ◽  
Tom Knauf ◽  
Juliana Hack ◽  
Daphne Eschbach ◽  
...  
Keyword(s):  
Surgical Treatment ◽  
Mortality Rate ◽  
Femoral Fractures ◽  
Geriatric Trauma ◽  
Outcome Parameters ◽  
Periprosthetic Femoral Fractures ◽  
Trauma Society ◽  
Eq5d Index ◽  
Early Surgical Treatment

Background and Objectives: Appropriate timing of surgery for periprosthetic femoral fractures (PFFs) in geriatric patients remains unclear. Data from a large international geriatric trauma register were analyzed to examine the outcome of patients with PFF with respect to the timing of surgical stabilization. Materials and Methods: The Registry for Geriatric Trauma of the German Trauma Society (Deutsche Gesellschaft für Unfallchirurgie (DGU)) (ATR-DGU) was analyzed. Patients treated surgically for PFF were included in this analysis. As outcome parameters, in-house mortality rate and mortality at the 120-day follow-up as well as mobility, the EQ5D index score and reoperation rate were analyzed in relation to early (<48 h) or delayed (≥48 h) surgical stabilization. Results: A total of 1178 datasets met the inclusion criteria; 665 fractures were treated with osteosynthesis (56.4%), and 513 fractures were treated by implant change (43.5%). In contrast to the osteosynthesis group, the group with implant changes underwent delayed surgical treatment more often. Multivariate logistic regression analysis of mortality rate (p = 0.310), walking ability (p = 0.239) and EQ5D index after seven days (p = 0.812) revealed no significant differences between early (<48 h) and delayed (≥48 h) surgical stabilization. These items remained insignificant at the follow-up as well. However, the odds of requiring a reoperation within 120 days were significantly higher for delayed surgical treatment (OR: 1.86; p = 0.003). Conclusions: Early surgical treatment did not lead to decreased mortality rates in the acute phase or in the midterm. Except for the rate of reoperation, all other outcome parameters remained unaffected. Nevertheless, for most patients, early surgical treatment should be the goal, so as to achieve early mobilization and avoid secondary nonsurgical complications. If early stabilization is not possible, it can be assumed that orthogeriatric co-management will help protect these patients from further harm.

Esito dell'intervento psicologico sui familiari di pazienti affetti da demenza

2013 ◽  
pp. 417-431
Author(s):  
E. Bergonzini ◽  
D. Rebecchi ◽  
C. Sgarbi ◽  
D. Di Francia ◽  
V. Di Castri ◽  
...  
Keyword(s):  
General Health ◽  
General Health Questionnaire ◽  
Sono State ◽  
Health Questionnaire ◽  
Zarit Burden Interview ◽  
Sense Of Competence

Gli interventi sui caregivers di pazienti affetti da demenza hanno fornito esiti contrastanti relativamente alla loro efficacia, in particolare su burden e sintomatologia depressiva. Nel presente studio di intervento si indagano i risultati dell'esito di trattamenti quali il counselling, l'intervento psicologico supportivo, la psicoterapia e il gruppo. Al campione, composto di 46 caregivers afferenti ai Centri per i Disturbi cognitivi dell'AUSL di Modena, sono state somministrate scale di misurazione del benessere (General Health Questionnaire), del burden oggettivo e soggettivo (Zarit Burden Interview) e del senso di competenza (Sense of Competence Questionnaire). I risultati hanno evidenziato come l'intervento psicologico supportivo migliori significativamente tutte le diverse dimensioni mentre il counselling permetta di contenere soprattutto le situazioni di distress acuto. La psicoterapia aumenta la percezione soggettiva del benessere ma presenta gli esiti complessivi piu limitati, il gruppo diminuisce specificamente la percezione soggettiva del burden.

scholarly journals Adaptation, linguistic and clinimetric validation of the Bangla version of Zarit Burden Interview

2016 ◽  
Vol 9 (4) ◽  
pp. 181 ◽  
Author(s):  
Farzana Rabin ◽  
Jhunu Shamsun Nahar ◽  
Mohammad S. I. Mullick ◽  
Helal Uddin Ahmed ◽  
Nafia Farzana
Keyword(s):  
Factor Analysis ◽  
Exploratory Factor Analysis ◽  
Caregiver Burden ◽  
Primary Diagnosis ◽  
Validity And Reliability ◽  
Zarit Burden Interview ◽  
Eigen Values ◽  
Diagnosis Of Dementia ◽  
Highly Correlated ◽  
Test Retest Reliability

<p>The aim of this study was to develop a culturally adapted and validated Bangla version of Zarit Burden Interview  (ZBI-B) questionnaire for use in Bangla speaking caregiver of patient with dementia. This study was conducted on 100 caregivers related to consecutively attending outpatients with a previously established primary diagnosis of dementia, according to DSM-IV criteria. Validity and reliability were evaluated by comparing with the caregiver burden inventory (CBI). An exploratory factor analysis with the principle component with varimax rotation was used to detect the factorial structure in observed measurements. To attain the best-fitting structure and the correct number of factors, the following criteria were used: Eigen values &gt;1.0, factor loadings &gt;0.30. The Cronbach’s alpha value was 0.847 for test and 0.839 retest. The intra-class correlation for the test-retest reliability was 0.89. The ZBI score was highly correlated with the CBI score (Pearson’s correlation coefficient, r=0.909, P=.001). From the exploratory factor analysis six factors comprising 20 items were extracted with Eigen values higher than 1.00 accounting for 69% of the total item variance. In conclusion, ZBI-B is valid, reliable and useful for use in clinical contexts and in future studies that could lead to a better understanding of caregiver burden in dementia.</p>

scholarly journals The Zarit Burden Interview in Portugal: Validity and Recommendations in Dementia and Palliative Care

2014 ◽  
Vol 27 (2) ◽  
pp. 163 ◽  
Author(s):  
Manuel Gonçalves-Pereira ◽  
Steven H. Zarit
Keyword(s):  
Palliative Care ◽  
Social Impact ◽  
Epidemiological Studies ◽  
Public Health Issue ◽  
Small Scale ◽  
Validity And Reliability ◽  
Services Research ◽  
Zarit Burden Interview ◽  
Exploratory Factor Analyses ◽  
The Impact

<p>The impact of dementia on informal or family caregivers became a public health issue. One well-established tool for the assessment of emotional, physical and social impact on caregivers is the Zarit Burden Interview. Worldwide, it is widely used in epidemiological studies, drug or psychosocial clinical trials, and health services research. The original focus on burden among dementia caregivers has spread to other clinical contexts, mostly in old age and palliative care. Given these diverse applications, issues around the validity and reliability of national translations are crucial to assure that all evidence gathered is indeed of high quality. Moreover, caution is needed on the use of cut-offs for categorizing levels of caregiver strain or of subscales derived from recurrent exploratory factor analyses in small-scale local studies. As with other translations of measures in the health field, researchers and clinicians in Portugal must be aware of how to address bias in using the Zarit Burden Interview and interpreting findings.</p>

scholarly journals Assessing caregiving experience in COPD: content validity of the Zarit Burden Interview

2018 ◽  
Author(s):  
Joana Cruz ◽  
Alda Marques ◽  
Sara Miranda ◽  
Roger Goldstein ◽  
Dina Brooks
Keyword(s):  
Content Validity ◽  
Zarit Burden Interview

scholarly journals . Sobrecarga do cuidador de pacientes atendidos na atenção domiciliar

2020 ◽  
Vol 14 ◽  
Author(s):  
Monique Évellin Alves Cruz ◽  
Daniel Vinícius Alves Silva ◽  
Júlia Rocha do Carmo ◽  
Gabriel Dias de Araújo ◽  
Luiza Rodrigues Camisasca ◽  
...  
Keyword(s):  
Home Care ◽  
Statistical Significance ◽  
Care Program ◽  
Home Care Services ◽  
Cross Sectional Study ◽  
Common Finding ◽  
Bivariate Analysis ◽  
Daily Routine ◽  
Cross Sectional ◽  
Zarit Burden Interview

Objetivo: avaliar a sobrecarga de cuidadores de pacientes atendidos por um programa de atenção domiciliar público. Método: trata-se de um estudo quantitativo, descritivo, transversal, com 127 cuidadores de pacientes atendidos pelo Programa Melhor em Casa. Coletaram-se dados sociodemográficos e clínicos e aplicaram-se também a Escala Zarit Burden Interview reduzida e a Escala de Desesperança de Beck. Realizou-se análise descritiva e bivariada de dados. Resultados: verificou-se que, dos 127 cuidadores, a maioria era do sexo feminino (114=89,8%), de cor parda (81=63,8%); composta por solteiros (56=44,1%) e a média de idade foi de 46,66 anos. Destaca-se que 38,6% (49) apresentaram sobrecarga de moderada a grave, 78,7% (110) afirmaram que houve mudanças em sua rotina diária, 59,8% (76) dizem ter sofrido alguma mudança no estado emocional após iniciar o cuidado do paciente e 56,7% (72) sentem dores no corpo. Confirmaram-se, na análise bivariada, 15 variáveis independentes que obtiveram significância estatística. Conclusão: conclui-se que a sobrecarga do cuidador de pacientes da atenção domiciliar é um achado comum e cuidados para a sua prevenção devem ser estabelecidos. Descritores: Cuidadores; Esgotamento Psicológico; Serviços de Assistência Domiciliar; Assistência Domiciliar; Pacientes Domiciliares; Enfermagem.AbstractObjective: to assess the burden of caregivers of patients treated by a public home care program. Method: this is a quantitative, descriptive, cross-sectional study, with 127 caregivers of patients treated by the Melhor em Casa Program. Sociodemographic and clinical data were collected, and the reduced Zarit Burden Interview Scale and the Beck Hopelessness Scale were also applied. Descriptive and bivariate data analyses were performed. Results: of the 127 caregivers, the majority was female (114=89.8%), pardos (81=63.8%); composed of unmarried (56=44.1%) and the mean age was 46.66 years. Importantly, 38.6% (49) had moderate to severe burden, 78.7% (110) stated the occurrence of changes in their daily routine, 59.8% (76) mentioned having suffered some change in emotional state after starting the care with the patients and 56.7% (72) have body ache. The bivariate analysis confirmed the statistical significance of 15 independent variables. Conclusion: the burden of caregivers of homebound patients is a common finding, requiring care actions for its prevention. Descriptors: Caregivers; Burnout, Psychological; Home Care Services; Home Nursing; Homebound Persons; Nursing. ResumenObjetivo: evaluar la sobrecarga de los cuidadores de pacientes tratados mediante un programa de atención domiciliaria público. Método: se trata de un estudio cuantitativo, descriptivo, transversal, con 127 cuidadores de pacientes tratados por el Programa Melhor em Casa. Recogieron datos sociodemográficos y clínicos y se aplicaron la escala Zarit Burden Interview reducida y la Escala de Desesperanza de Beck. Se realizó el análisis descriptivo y bivariado de los datos. Resultados: se constató que, de 127 cuidadores, la mayoría eran mujeres (114=89,8%), pardos (81=63,8%); compuesto de solteros (56=44,1%) y el promedio de edad fue de 46.66 años. Cabe destacar que el 38,6% (49) presentó sobrecarga moderada a severa, el 78,7% (110) declaró que ha habido cambios en su rutina diaria, el 59,8% (76) afirmó tener sufrido algún cambio en el estado emocional después de iniciar los cuidados del paciente, y el 56,7% (72) siente dolor en el cuerpo. Se confirman, en el análisis bivariado, 15 variables independientes que tuvieron significación estadística. Conclusión: se concluye que la sobrecarga de los cuidadores de pacientes en atención domiciliaria es un hallazgo común y cuidados en su prevención deben ser establecidos. Descriptores: Cuidadores; Agotamiento Psicológico; Servicios de Atención de Salud a Domicilio; Atención Domiciliaria de Salud; Personas Imposibilitadas; Enfermería.

scholarly journals Prevalência da sobrecarga psicossocial e dos sintomas osteomusculares em cuidadores de crianças com paralisia cerebral

2017 ◽  
Vol 12 (3) ◽  
pp. 173
Author(s):  
Levy Aniceto Santana
Keyword(s):  
Zarit Burden Interview

Os cuidadores são componentes essenciais nos cuidados das crianças com paralisia cerebral. por isso é importante entender e conhecer os problemas que se passam com eles e assim implementar programas que visem à prevenção de doenças e à assistência à saúde dos cuidadores. o objetivo do estudo foi avaliar a sobrecarga psicossocial e a prevalência de sintomas osteomusculares nas cuidadoras primárias de crianças com paralisia cerebral. Para isso foram utilizados os questionários Zarit Burden Interview e o Questionário Nórdico de Sintomas Osteomusculares, validados para língua portuguesa, autoaplicados na Clínica Escola de Fisioterapia da Universidade Católica de Brasília em 33 cuidadoras de crianças com paralisia cerebral. Constatou-se que a sobrecarga psicossocial das cuidadoras estava entre leve e moderada; não houve diferença significativa entre a sobrecarga psicossocial das cuidadoras nos diferentes diagnósticos topográficos; as regiões corporais de maior acometimento de sintomas osteomusculares foram: cervical, ombros, braços e região dorsal; cuidadoras de quadriplégicos indicaram uma maior quantidade de regiões corporais com sintomas osteomusculares e relataram, em sua maioria, sentir sempre esses sintomas. Concluímos que as cuidadoras possuíam baixa sobrecarga psicossocial e que as regiões corporais mais afetadas são aquelas mais utilizadas durante a prática de cuidados diários com as crianças com paralisia cerebral.Palavras-chave: cuidadores, paralisia cerebral, sistema osteomuscular, sobrecarga. 

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