scholarly journals Effects of a Computerized System to Support Shared Decision Making in Symptom Management of Cancer Patients: Preliminary Results

2003 ◽  
Vol 10 (6) ◽  
pp. 573-579 ◽  
Author(s):  
Cornelia M. Ruland ◽  
Thomas White ◽  
Marguerite Stevens ◽  
Gilbert Fanciullo ◽  
Samir M. Khilani
2013 ◽  
pp. 311-321
Author(s):  
Catharine Clay ◽  
Alice Andrews ◽  
Dale Vidal

2020 ◽  
Vol 203 ◽  
pp. e817-e818
Author(s):  
Kerry Kilbridge ◽  
William Martin-Doyle* ◽  
Christopher Filson ◽  
Quoc-Dien Trinh ◽  
Sierra Williams ◽  
...  

2001 ◽  
Vol 19 (7) ◽  
pp. 684-691 ◽  
Author(s):  
Simon P. Kim ◽  
Sara J. Knight ◽  
Cecilia Tomori ◽  
Kathleen M. Colella ◽  
Richard A. Schoor ◽  
...  

2021 ◽  
Vol Volume 15 ◽  
pp. 2763-2781
Author(s):  
Xuejing Li ◽  
Meiqi Meng ◽  
Junqiang Zhao ◽  
Xiaoyan Zhang ◽  
Dan Yang ◽  
...  

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e18266-e18266
Author(s):  
Juan J. Cruz-Hernández ◽  
Isabel Ruiz ◽  
Ana Fernandez-Marcos ◽  
Rosana Martin ◽  
Enrique Aranda ◽  
...  

e18266 Background: Patients with cancer and their caregivers express unmet needs beyond the clinical approach to cancer. The ECO Foundation (Quality and Excellence in Oncology) and the Spanish Association Against Cancer (AECC) have promoted a qualitative research study with the objective to compare the perceptions of newly diagnosed and 2-3 years after diagnosis cancer patients, caregivers, oncologists, nurses and social workers in relation to a set of non-clinical needs expressed by cancer patients and caregivers, and to obtain concrete and feasible proposals for improvement aimed at satisfying these needs. Methods: A multidisciplinary group of experts developed a questionnaire containing information processes for cancer patients and caregivers, shared decision-making, healthcare circuits, the architecture of consultations, psychological support, support of associations and hospital social workers. Fourteen Medical Oncology Services of Spanish hospitals have participated in this study collecting 310 forms. Data were statistically analyzed using Fisher's exact test. Results: Information processes. The opportunity to have a second opinion is positively valuated for 72.6% of patients and 70.2% of caregivers. However, although 62.5% of oncologists referred to offer this option to their patients, only 10.9% of patients reported having received it. Shared decision-making. For 58% of oncologists, patients are sufficiently trained to share decision-making, but only 24.6% of newly diagnosed patients consider being prepared. In addition, although 95.8% of oncologists report offering the participation of their patients in decision-making, only 45.8% of newly diagnosed patients and 64.4% of 2-3 years after diagnosis patients, consider having received this opportunity. Psychological support. Psychological assistance was considered positive for 94.2% of the patients, 97.4% of the caregivers, 85.4% of the oncologists and 97.1% of the nurses. However, only 21.3% of oncologists and 31.4% of nurses recognize offering such proffessional care given by psychologists to patients. Conclusions: Knowing the non-clinical needs, not only of patients and caregivers, but also from the health care professionals, is essential when designing health strategies that should align the perceptions of patients and health care professionals.


2021 ◽  
Author(s):  
Ying Wang ◽  
Jinna Zhang ◽  
Bo Hu ◽  
Jizhe Wang ◽  
Laixiang Zhang ◽  
...  

Abstract Purpose: The purpose of this study was to investigate and analyze the level of actual participation and perceived importance of shared decision-making on treatment and care of lung cancer patients, to compare their differences and to explore factors that influence them.Methods: A total of 290 lung cancer patients were collected from the department of oncology and thoracic surgery of a comprehensive medical center in Qingdao from October 2018 to December 2019. Participants completed a cross-sectional questionnaire to assess their actual participation and perceived importance in shared decision-making on treatment and care. Descriptive analysis and non-parametric tests were carried out to assess the status quo of patients' shared decision-making on treatment and care. Binary logistic regression analysis with a stepwise back-wards was applied to predict the factors that affected patients' participation in shared decision-making.Results: The results showed that patients with lung cancer had a low degree of participation in shared decision-making. There were significant differences between actual participation and perceived importance of shared decision-making on treatment and care. Education level, younger, gender, income, marital status, personality, the course of the disease (>6 months), and the Pathological TNM staging (Ⅲ) affected the patient's level of participation in shared decision-making.Conclusion: Actual participation in shared decision-making for the treatment and care of lung cancer patients was low and considered unimportant. We could train oncology nurses to use patient decision aids to help patients and families participate in shared decision-making based patients’ value, preferences and needs.


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