An interpretative phenomenological analysis of dignity in people with multiple sclerosis

2020 ◽  
Vol 27 (3) ◽  
pp. 686-700 ◽  
Author(s):  
Katarína Žiaková ◽  
Juraj Čáp ◽  
Michaela Miertová ◽  
Elena Gurková ◽  
Radka Kurucová
Keyword(s):  
Multiple Sclerosis ◽  
Lived Experience ◽  
Interpretative Phenomenological Analysis ◽  
Negative Impact ◽  
Phenomenological Analysis ◽  
Face To Face ◽  
Fighting Spirit ◽  
Negative Effect ◽  
Using Data

Background: Dignity is a fundamental concept in healthcare. The symptoms of multiple sclerosis have a negative effect on dignity. Understanding of lived experience of dignity in people with multiple sclerosis is crucial to support dignity in practice. Research aim: The aim was to explore the sense of dignity experienced by people with multiple sclerosis. Research design and participants: An interpretative phenomenological analysis design was adopted, using data collected through face-to-face interviews with 14 participants. Ethical considerations: The study was approved by the faculty Ethical Committee (No. EC 1828/2016). Findings: Four interconnected superordinate themes emerged from analysis: Loss of a fully-fledged life: Violating the dignity-of-self; To accept and fight: Promoting the dignity-of-self; Contempt and rudeness: Indignity-in-relation; and Those who know and see, help: Promoting dignity-in-relation. The loss of former fully-fledged life has a dramatic impact on integrity and impaired dignity-of-self. Accepting illness and changed identity impaired by multiple sclerosis was the step that the participants considered to be important for reacquiring the sense of dignity. The participants encountered misunderstandings, prejudices, embarrassment, insensitive remarks, labelling, unwillingness and impersonal treatment as indignities. Acceptance of their condition, needed support, the feeling of being part of a group, sensitivity and the sharing of problems had a positive effect on their dignity. Discussion: Continual changes in functional ability threaten an individual’s identity and were experienced as violations of dignity. Based on this, participant’s dignity-of-self was not a moral, but much more existential value. Acceptance of changed identity and fighting spirit were important for restoring their dignity-of-self. The misunderstandings, prejudices and unwillingness had a negative impact on their dignity-in-relation. On the other side, support from others in fighting promoted their dignity-in-relation. Conclusion: Dignity is manifested as a complex phenomenon of lived experience of people with multiple sclerosis and also an umbrella concept for providing good quality of person-centred care.

scholarly journals Biopsychosocial implications of living with multiple sclerosis: a qualitative study using interpretative phenomenological analysis

BMJ Open ◽  
2021 ◽  
Vol 11 (8) ◽  
pp. e049041
Author(s):  
Seada A Kassie ◽  
Jannat Alia ◽  
Lynda Hyland
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
United Arab Emirates ◽  
Interpretative Phenomenological Analysis ◽  
Biopsychosocial Model ◽  
Phenomenological Analysis ◽  
Illness Management ◽  
Lifestyle Modifications ◽  
Semistructured Interviews

BackgroundMultiple sclerosis (MS) is estimated to affect 2.8 million people worldwide, with increasing prevalence in all world regions (Walton et al). While there is no cure for MS, medication and lifestyle modifications can slow disease progression and enhance patients’ quality of life. The biopsychosocial model of health recognises important interactions among biological, psychological and social factors in illness, including those relating to illness management, which contribute to the experience of those diagnosed with MS.ObjectiveThis qualitative, idiographic study aimed to explore the lived experiences of patients in the United Arab Emirates (UAE) diagnosed with S.MethodsSemistructured interviews were conducted with a purposive sample of eight patients with MS ranging in age from 25 to 56 years. All participants were residing in the UAE at the time of data collection. Interpretative phenomenological analysis was used to analyse the data.ResultsThree superordinate themes were identified from patients’ candid accounts of their lives with MS, highlighting issues of illness management, acceptance and gratitude, and adaptive coping. These themes broadly illustrate biological, psychological and social aspects of patients’ MS experiences.ConclusionThe study emphasised the importance of adopting the biopsychosocial model to treat and manage MS. Additionally, it highlights the need for routine assessment and early, multidimensional approach with multidisciplinary team efforts to improve patients’ quality of life.

scholarly journals Sexuality as taboo: using interpretative phenomenological analysis and a Foucauldian lens to explore fathers’ practices in talking to their children about puberty, relationships and reproduction

2019 ◽  
Vol 24 (1-2) ◽  
pp. 22-33 ◽  
Author(s):  
Clare Bennett ◽  
Jane Harden
Keyword(s):  
Public Health ◽  
Lived Experience ◽  
Sex Education ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Promotion Strategy ◽  
Face To Face ◽  
The Public ◽  
Health Promotion Strategy ◽  
History Of

Background Fathers can play an important role in their children’s learning about relationships and sexuality but we know very little about the father’s lived experience in this regard. Aim To explore eight fathers’ perceptions and experiences of discussing puberty, relationships and reproduction with their 10-year-old children. Methods The paper commences with a genealogical analysis of the history of sex education in England from the Public Health Act of 1848 to the present day. Interpretative phenomenological analysis (IPA) was used as both a methodology and a method. Face-to-face interviews were conducted with each father and results were analysed ideographically, followed by analysis across the group. Interpretations were developed using a Foucauldian lens of governmentality and biopower. Findings The paper explores how synthesis of IPA with a Foucauldian lens revealed significant tensions between the fathers’ cognitions, accounts and behaviours, which were underpinned by an enduring perception of sexuality as taboo. Conclusion By providing a contextualised understanding of the fathers’ practices, this study demonstrates that a more informed approach to health promotion strategy can be achieved and the implications for nursing are explored.

Financial Interdependence among Malay Older People in the Community: An interpretative phenomenological analysis

2017 ◽  
Vol 2 (5) ◽  
pp. 135
Author(s):  
Ahmad Shahir Abdul Mutalib ◽  
Akehsan Haji Dahlan ◽  
Ajau Danis
Keyword(s):  
Quality Of Life ◽  
Older People ◽  
Interpretative Phenomenological Analysis ◽  
Publishing House ◽  
Phenomenological Analysis ◽  
Financial Assistance ◽  
Depth Interview ◽  
International Publishing ◽  
Open Access Article

This study explores the practice of financial interdependence among Malay older people who live in the community in Malaysia. Eleven Malay older people participated in this qualitative study by an in-depth interview. The data was analyzed using six stages of the interpretative phenomenological analysis. Two main themes emerged from the interview transcripts are issues regarding living expenses and financial assistance. Financial interdependence is one of the most effective ways for the Malay older people in the community in Malaysia to adapt their retired status, to achieve maximum life satisfaction and productivity thereby improving their overall quality of life.Keywords: Financial interdependence, Older people, Quality of life, Interpretative phenomenological analysisISSN: 2398-4287© 2017. The Authors. Published for AMER ABRA by e-International Publishing House, Ltd., UK. This is an open access article under the CC BYNC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). Peer–review under responsibility of AMER (Association of Malaysian Environment-Behaviour Researchers), ABRA (Association of Behavioural Researchers on Asians) and cE-Bs (Centre for Environment-Behaviour Studies), Faculty of Architecture, Planning & Surveying, Universiti Teknologi MARA, Malaysia.

Living with Heart Failure during the COVID-19 Pandemic: An Interpretative Phenomenological Analysis

2021 ◽  
pp. 105477382110166
Author(s):  
Alessia Martina Trenta ◽  
Davide Ausili ◽  
Rosario Caruso ◽  
Cristina Arrigoni ◽  
Massimo Moro ◽  
...  
Keyword(s):  
Heart Failure ◽  
Coping Strategies ◽  
Lived Experience ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Hospital Organization ◽  
Challenging Situation ◽  
And Coping ◽  
Negative Feelings

This study aimed to explore lived experience of patients with heart failure (HF) during the COVID-19 pandemic. A qualitative study was conducted using an interpretative phenomenological analysis (IPA). Data collection performed in March-May 2020, using in-depth, semi-structured interviews on a purposive sample. Data were analyzed according to the IPA methodology, and triangulation, bracketing, journaling, and member checking were used to assure rigor. 14 patients with HF were enrolled, and three main themes described their lived experience during the COVID-19 pandemic: Vulnerability, Hanging in the balance, and Coping strategies. These people felt particularly vulnerable to the novel virus and experienced uncertainty due to hospital organization changes. Because of this, they felt like they were hanging in the balance, experiencing various negative feelings. Nevertheless, they managed to deal with this challenging situation by implementing some peculiar coping strategies. The COVID-19 represents a significant challenge for patients with HF, impacting significantly on their lives.

Combining interpretative phenomenological analysis and existential hermeneutic phenomenology to reveal critical moments of managerial lived experience: a methodological guide

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Lenka Jedličková ◽  
Michal Müller ◽  
Dagmar Halová ◽  
Tereza Cserge
Keyword(s):  
Lived Experience ◽  
Interpersonal Relationships ◽  
Interpretative Phenomenological Analysis ◽  
Qualitative Method ◽  
Hermeneutic Phenomenology ◽  
Phenomenological Analysis ◽  
Content Type ◽  
Managerial Practice ◽  
Interpretative Framework ◽  
Critical Moments

PurposeThe purpose of this paper is to offer a complete guide to a qualitative method for capturing critical moments of managerial practice that combines interpretative phenomenological analysis (IPA) and existential hermeneutic phenomenology (EHP).Design/methodology/approachThis article is based on the findings of extensive research and describes in detail the specific steps that must be taken for complete replication of research. The research uses methods of IPA and critically develops the EHP framework with an emphasis on the analysis of interpersonal relationships.FindingsDepending on the testing of the research method in practice, the article evaluates the IPA-EHP method as suitable for the research on critical moments of managerial lived experience, considering the causes of the crisis.Originality/valueThis article is based on demand from academics who would like to use this method to analyse managerial practice. Especially now, at a time associated with a number of challenging events, such as the ongoing COVID-19 pandemic, qualitative research is gaining in importance, even in management science. The original interpretative framework based on the phenomenology of Fink and Patočka is appropriate in this respect.

scholarly journals Digital Storytelling Experiences of Social Studies Pre-Service Teachers

2020 ◽  
Vol 3 (2) ◽  
pp. 70
Author(s):  
Emine Özlem Yiğit
Keyword(s):  
Human Rights ◽  
Social Studies ◽  
Interpretative Phenomenological Analysis ◽  
Digital Storytelling ◽  
Phenomenological Analysis ◽  
Social Studies Teachers ◽  
Learning And Teaching ◽  
Face To Face ◽  
Survey Questions ◽  
Digital Stories

The purpose of the present study is to determine the pre-service social studies teachers’ opinions about digital storytelling process that they were experienced during 2018-2019 fall term. Mainly, their attitudes towards learning and teaching are tried to determine according to their opinions after their digital storytelling experiences. This study employed an Interpretative Phenomenological Analysis (IPA) as a framework. Pre-service teachers were encouraged to create their own digital stories by telling the story along with the pictures through programs like windows movie maker, IMovie and so on. Data were collected through a survey and with semi-structured face to face interviews. A survey developed by researcher was given to all students who were enrolled to democracy and human rights course in 2018-2019 fall term and a total of 37 students completed it. Six pre-service social studies teachers in the group were selected for face to face interviews depended on their answers to survey questions. Three of them were who generally stated most positive views towards the digital storytelling process and other three were who generally reflected the challenges and difficulties during the process.

scholarly journals P059 QUALITY OF LIFE IN COMPLEX ABDOMINAL WALL HERNIA PATIENTS

2021 ◽  
Vol 108 (Supplement_8) ◽  
Author(s):  
Olivia Smith ◽  
Srinivas Chintapatla ◽  
Praminthra Chitsabesan
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Abdominal Wall ◽  
Interpretative Phenomenological Analysis ◽  
Abdominal Wall Hernia ◽  
Phenomenological Analysis ◽  
Social Processes

Abstract Aim determine themes reported as important to Quality of Life (QoL) in Complex Abdominal Wall Hernia (CAWH) patients Material and Methods 15 purposively sampled CAWH patients were interviewed using topic guides (8 men and 7 women aged between 36 to 85 years [median = 65 years] covering all VHWG grades). All verbatim transcripts were coded and analysed using NVIVO12 software and Interpretative Phenomenological Analysis (IPA) until thematic saturation. Results 3 overarching groupings and 5 superordinate themes were identified. Each superordinate theme is associated with several subordinate themes: Conclusions This is the first phenomenological qualitative study in CAWH patients. The themes presented are interrelated and should shape our understanding of QoL in CAWH. Current QoL tools do not incorporate all aspects identified by this study. Further research is needed in order to generate a standardised CAWH QoL instrument which incorporates bio-psycho-emotional-social processes important to patients as identified by patients.

“Intertwined Lives”

2022 ◽  
pp. 1486-1508
Author(s):  
Shyamani Hettiarachchi ◽  
Gopi Kitnasamy ◽  
Dilani Gopi ◽  
Fathima Shamra Nizar
Keyword(s):  
Sri Lanka ◽  
Lived Experience ◽  
Interpretative Phenomenological Analysis ◽  
Children With Disabilities ◽  
Sibling Relationships ◽  
Phenomenological Analysis ◽  
Kinetic Family Drawings ◽  
Young Children With Disabilities ◽  
Interview Guide ◽  
Parenting Role

Sibling relationships are complex and unique, often spanning a range of deep emotions. The experiences of children with disabilities and their siblings are arguably seldom documented, particularly in the Global South. The aim of this chapter was to uncover the narratives of young children with disabilities and their siblings in Sri Lanka. Ten dyads of children with disabilities and their siblings and one quartet of siblings were included in this study. Opportunities were offered to the participants to engage in conversation aided by kinetic family drawings. An interview guide was used to support this process. The participant data were analyzed through the lens of the “lived experience” of family dynamics in the tradition of interpretative phenomenological analysis. This chapter will discuss the two complex broad themes of a surrogate parenting role and normative sibling relationships, which at times converge and at times diverge.

Exploring the lived experience of acquiring life skills with congenital total blindness: An interpretative phenomenological analysis

2019 ◽  
Vol 37 (3) ◽  
pp. 227-239
Author(s):  
Errol Ingram ◽  
Pat Dorsett ◽  
Kym Macfarlane
Keyword(s):  
Young Adults ◽  
Lived Experience ◽  
Skill Acquisition ◽  
Interpretative Phenomenological Analysis ◽  
Life Skills ◽  
Phenomenological Analysis ◽  
Childhood And Adolescence ◽  
Life Skill ◽  
Skills Acquisition ◽  
Total Blindness

This phenomenological study explored how individual young adults understood their lived experience of acquiring life skills with congenital total blindness (CTB). Four young adults with CTB, and five parents of the young adults, participated in the study. In depth, semi-structured interviews were used to gather information from the research participants. The interviews were analysed using interpretative phenomenological analysis (IPA). Five superordinate themes emerged from the IPA: (1) life skills acquisition as ‘a means to an end’, (2) appraising life skills acquisition, (3) acquiring disability-specific skills, (4) reaching adulthood with life skill gaps, and (5) making sense of independence. The findings revealed that the young adults had reached adulthood with significant gaps in their acquisition of basic life skills. This indicates that more needs to be done, to improve the efficacy and meaning of life skill acquisition programmes provided in childhood and adolescence, to young people living with CTB.

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