Space at Home for Families with a Child with Autistic Spectrum Disorder

2009 ◽  
Vol 72 (9) ◽  
pp. 378-383 ◽  
Author(s):  
Sue Pengelly ◽  
Phil Rogers ◽  
Kerri Evans
Keyword(s):  
Home Environment ◽  
Autistic Spectrum Disorder ◽  
Physical Space ◽  
Spectrum Disorder ◽  
Occupational Engagement ◽  
Theoretical Understanding ◽  
Autistic Spectrum ◽  
Children With Asd ◽  
The Family ◽  
At Home

The interrelationship between the home environment, occupations and wellbeing was explored in relation to the lived experiences of three families with a child diagnosed with autistic spectrum disorder (ASD). Each family had acquired an extra downstairs room through moving or adapting their home, which they dedicated to their child with ASD. This project used diary records and narrative interviews to gain an in-depth understanding of how the room was used, the meaning that the family attached to this additional space and its impact on their occupational engagement. The findings reflected the complexity of problems experienced by children with ASD and their families. They revealed that dedicated physical space was experienced as important personal, emotional and occupational space for all family members. This study helps to develop a theoretical understanding of the importance of establishing a good fit between individuals with developmental disabilities and their home environment. It argues that space at home influences the behaviour of children with ASD, the stress levels of their parents and the occupational engagement of all members of their family, and emphasises the importance of adequate space at home for children with ASD and their families.

scholarly journals Children with autistic spectrum disorder: perception and experience of families

2021 ◽  
Vol 31 (2) ◽  
pp. 224-235
Author(s):  
Patricia Poleto Monhol ◽  
Juliana Maria Bello Jastrow ◽  
Yasmin Neves Soares ◽  
Nathalya Das Candeias Pastore Cunha ◽  
Micael Colodette Pianissola ◽  
...  
Keyword(s):  
Autistic Spectrum Disorder ◽  
Ethics Committee ◽  
Qualitative Approach ◽  
Spectrum Disorder ◽  
Human Beings ◽  
Life Changes ◽  
Autistic Spectrum ◽  
Children With Asd ◽  
The Family ◽  
Families With Children

Introduction: Autistic Spectrum Disorder (ASD) is part of neurodevelopmental disorders, which are behavioral and cognitive. These symptoms appear according to the child's development, however, most of the time, they present themselves before the age of three, and they may evolve to greater intensities or not. Objective: To analyze the experience of families with children with Autistic Spectrum Disorder. Methods: Exploratory study with a qualitative approach carried out at the Associação de Pais e Amigos dos Excepcionais (Association of Parents and Friends of the Exceptional/APAE). 46 families and 10 professionals participated in the study. For the analysis of the results, the technique of content analysis proposed by Bardin was used. The research project for this study was approved by the Ethics Committee for Research with Human Beings under opinion No. 3172.942 on February 27, 2019. Results: It was evident that the family is an important instrument for the care of children with ASD and, for this reason, it should be seen in an integrated and not fragmented way in care, thus revealing the need to promote actions that take care of the caregiver and not just of the child itself, because as seen, every process that goes from birth to diagnosis and treatment of the child requires changes that can also bring harm to the health of the family. Conclusion: The experience of families of children with ASD goes through phases of acceptance and adaptation and depends on the interaction and assistance of professionals so that they can, despite life changes, perceive them as important in promoting the child's life from the motor and cognitive interaction with society.

scholarly journals Library Services for Youth with Autism

2021 ◽  
Author(s):  
Lesley S. J. Farmer
Keyword(s):  
Autistic Spectrum Disorder ◽  
School Libraries ◽  
Spectrum Disorder ◽  
Library Services ◽  
Autistic Spectrum ◽  
Rich Variety ◽  
Children With Asd ◽  
Educational Challenges ◽  
Library Staff

At least 1 in 166 children are born with Autistic Spectrum Disorder (ASD), but few school libraries provide resources and services explicitly targeting this population. This paper explains the characteristics and educational challenges of children with ASD; and provides ways to create an inclusive library environment that offers a rich variety of resources and services that engage these children. Tips for training library staff relative to ASD are also given.

scholarly journals Teachers’ perspectives on handwriting and collaborative intervention for children with Autistic Spectrum Disorder

2018 ◽  
Vol 46 (1) ◽  
pp. 46-58
Author(s):  
Therese McNamee ◽  
Sandra Patton
Keyword(s):  
Occupational Therapy ◽  
Emergent Literacy ◽  
Autistic Spectrum Disorder ◽  
Spectrum Disorder ◽  
Limited Information ◽  
Occupational Therapy Education ◽  
Autistic Spectrum ◽  
Content Type ◽  
Children With Asd ◽  
The Republic

Purpose This study aims to investigate teacher perspectives on teaching handwriting to children with autistic spectrum disorder (ASD) and collaboration with occupational therapists. Design/methodology/approach A descriptive design was applied. Purpose-designed surveys were distributed to teachers of children with ASD (aged 4-12 years) in the Republic of Ireland. A response rate of 35 per cent (N = 75) was obtained, with 25 responses analysed using descriptive statistics of closed questions and content analysis of open-ended questions. Findings Of 139 children with ASD, 80 (58 per cent) were reported to have difficulties with handwriting. Teachers reported specific difficulties with pencil grasp, letter formation and task concept among the children with ASD. Fourteen (56 per cent, N = 25) respondents did not give handwriting as homework. Teachers valued occupational therapy advice, individualised programmes and ongoing consultation during implementation. Interest in occupational therapy education regarding handwriting was reported. Practical implications Occupational therapy collaboration to address handwriting difficulties for children with ASD should include involvement in teacher education, coordination of teacher–parent collaboration and the need for involvement in early intervention provision within an emergent literacy framework. Originality/value Handwriting development is challenging for children with ASD. There is limited information on teaching or teacher–occupational therapy collaborative practices to address handwriting difficulties of children with ASD.

scholarly journals Child with autistic spectrum disorder: care from the family

2018 ◽  
Vol 22 (4) ◽  
Author(s):  
Lina Domenica Mapelli ◽  
Mayara Caroline Barbieri ◽  
Gabriela Van Der Zwaan Broekman Castro ◽  
Maria Aparecida Bonelli ◽  
Monika Wernet ◽  
...  
Keyword(s):  
Narrative Analysis ◽  
Autistic Spectrum Disorder ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Change Of Direction ◽  
Descriptive Research ◽  
Children With Asd ◽  
The Family ◽  
Family Acceptance ◽  
Stimulation Of

Abstract Objective: To know the experience of the family in the care of the child with Autism Spectrum Disorder (ASD) and to discuss possibilities of health care. Method: Descriptive research with qualitative approach, carried out with 15 families of children with ASD, living in two municipalities in the interior of the state of São Paulo, from October 2016 to March 2017. The Symbolic Interactionism was used as theoretical reference, and Narrative Analysis, as method. Results: Families perceive signs of autism, however, believe that there are not suspicious behaviors, but the child's personalities. When diagnosis is defined, family acceptance is painful and sad. The mother shows to be the main caretaker, while the father remains in the background. A significant change of direction of the family towards the care/attention/stimulation of the autistic child is observed. Conclusion: Unveiling family experience in the care of children with ASD amplifies strategies for reinforcement and adaptation.

scholarly journals Screening for autistic spectrum disorder in early childhood

2021 ◽  
Vol 21 (S1) ◽  
Author(s):  
Sophie Jullien
Keyword(s):  
Young Children ◽  
Universal Screening ◽  
Autistic Spectrum Disorder ◽  
Spectrum Disorder ◽  
Screening Tools ◽  
Current Evidence ◽  
Supporting Evidence ◽  
Autistic Spectrum ◽  
Manual Search ◽  
Children With Asd

AbstractWe looked at existing recommendations and supporting evidence on the effectiveness of screening young children for autistic spectrum disorder (ASD) for improving short- and long-term outcomes.We conducted a literature search up to the 8th of November 2019 by using key terms and manual search in selected sources. We summarized the recommendations and the strength of the recommendation when and as reported by the authors. We summarized the main findings of systematic reviews with the certainty of the evidence as reported.There are discrepancies among the recommendations given by different institutions on universal screening for ASD in children. Some recommend that all children should be screened with an ASD-specific instrument during well-child visits at ages 18 and 24 months in conjunction with ongoing developmental surveillance and broadband developmental screening; some conclude that the current evidence is insufficient to assess the balance of benefits and harms of screening for ASD in young children for whom no concerns of ASD have been raised by their parents or a clinician; and others recommend against universal screening, but for a screening among children with high risks.There is adequate evidence that ASD screening tools applied to children between 12 and 36 months accurately identify those with ASD. There is some evidence showing benefit of early interventions applied to children with ASD, from children identified with developmental concern by their family, teacher or clinicians. We found no evidence on the effectiveness of interventions applied to children with ASD detected through screening.

Using behaviour contracts to decrease antisocial behaviour in four boys with an autistic spectrum disorder at home and at school

2011 ◽  
Vol 38 (4) ◽  
pp. 201-208 ◽  
Author(s):  
Emma Hawkins ◽  
Sheri Kingsdorf ◽  
Jackie Charnock ◽  
Mariann Szabo ◽  
Edi Middleton ◽  
...  
Keyword(s):  
Autistic Spectrum Disorder ◽  
Antisocial Behaviour ◽  
Spectrum Disorder ◽  
Autistic Spectrum ◽  
At Home

scholarly journals Psychiatric Co-Morbidities in Children with Autistic Spectrum Disorder

2021 ◽  
pp. 53-62
Author(s):  
Toka Khaled Mohamed ◽  
Reham Abd-elrahman Lofty Amer ◽  
Amr Adel Mohamed Heiba ◽  
Hosam El-din Fathallah Elsawy
Keyword(s):  
Social Anxiety ◽  
Anxiety Disorders ◽  
Autistic Spectrum Disorder ◽  
Age Groups ◽  
Severe Form ◽  
Spectrum Disorder ◽  
Arabic Version ◽  
Autistic Spectrum ◽  
Children With Asd ◽  
Significant Difference

Background: Autistic Spectrum Disorder (ASD) is considered a neurodevelopmental disorder, characterized by causing marked decrease in social interaction and communication, conversation skills. The aim of this work was to explore the psychiatric co-morbidities among children with ASD. Methods: This cross-sectional, descriptive study was carried out 55 children less than 18 years old fulfilled criteria for ASD. All patients were subjected to: Psychiatric interviewing and Psychometric tests that included Stanford-Binet test 5th edition, Arabic version of Kiddie Schedule for Affective Disorders and Schizophrenia “K-SADS, Arabic version of Childhood Autism Rating Scale (CARS), Arabic version of Conner’s Scale for ADHD and Arabic version of Screen for Child Anxiety Related Disorders (SCARED) (Child and parent versions). Results: The majority of the studied ASD children were males younger than 13 years old, from rural areas, with mild and moderate intellectual disability, and with severe ASD symptoms. There is statistically significant difference between severity of ASD in studied children measured by CARS, and number of co-morbidities. The most prevalent psychiatric co-morbidities among studied              ASD children were anxiety disorders (41.82%), followed by ADHD                                                     (36.36%). There is statistically significant difference between severe form of ASD and psychiatric co-morbidities regarding ADHD, Tic disorder, ODD and elimination disorder, While Social anxiety and GAD were more common among children with milder forms. Among the studied children, the specific phobias, ODD and elimination disorders, were more in younger age groups. While social anxiety and psychotic disorders occurred more frequently with older age groups. GAD, somatization and depression were more frequent with females, while ADHD occurred more with males. Conclusion: Presence of comorbid disorders among children with ASD is the rule rather than exception. Male children had more combined subtype and more severe form of the disorder. The most common comorbid psychiatric disorders with ASD are anxiety disorders and ADHD. The early identification and treatment of ASD and comorbid conditions may reduce the likelihood of impairment and persistence into adulthood.

scholarly journals The autistic spectrum disorder and its relation to intestinal dysbiosis

2021 ◽  
Author(s):  
Fábio Dias Nogueira ◽  
Ana Klara Rodrigues Alves ◽  
Barbara Beatriz Lira da Silva ◽  
Ana Kamila Rodrigues Alves ◽  
Marlilia Moura Coelho Sousa ◽  
...  
Keyword(s):  
Intestinal Microbiota ◽  
Autistic Spectrum Disorder ◽  
Neurodevelopmental Disorder ◽  
Clinical Manifestations ◽  
Gastrointestinal Symptoms ◽  
Spectrum Disorder ◽  
Autistic Spectrum ◽  
Children With Asd ◽  
Intestinal Dysbiosis ◽  
The Relationship

Introduction: Autistic Spectrum Disorder (ASD) is characterized by a neurodevelopmental disorder, in which the child has persistent deficits in verbal and / or non-verbal communication, social interaction and behavior. One of the factors related to the cause of ASD are nutritional aspects, such as intestinal dysbiosis. Objective: To analyze the relationship between imbalance in the intestinal microbiota and the pathophysiological characteristics of ASD. Methodology: This is a systematic review, carried out in the Pubmed, SciELO databases, in order to answer the question: what is the relationship between intestinal microbiota imbalance and ASD? 139 articles were found, of which 12 were selected, through the simultaneous crossing between the descriptors “Autistic Disorder”, “Dysbiosis”. Articles written in Portuguese and English published from 2016 to 2021 were inserted. Results/Discussion: Most children with ASD exhibit gastrointestinal symptoms, such as constipation and diarrhea, and greater intestinal permeability, with major differences in the composition of microorganisms in the gastrointestinal tract (GIT). Patients with ASD have a lower microbiota diversity in the GIT. However, it is not possible to identify the origin of this change, since children with ASD often have changes in diet and eating behavior, which could alter the microbiota. Conclusion: It is still complex to understand what are the main causes of ASD. The gut-brain axis is an important associated factor both in the etiology and in the clinical manifestations of ASD. The use of diets, together with the modulation of the microbiota, by the use of probiotics and specific antibiotics, are possibilities for promising therapy.

scholarly journals O desenvolvimento de uma alimentação adequada para crianças portadoras de TEA - transtorno do espectro autista / The development of proper food for children with ASD - autistic spectrum disorder

2021 ◽  
Vol 7 (11) ◽  
pp. 105134-105146
Author(s):  
Maiza Nogueira Oliveira ◽  
Samia Lima dos Santos ◽  
Slane Frazão De Souza ◽  
José Carlos de Sales Ferreira ◽  
Rebeca Sakamoto Figueiredo
Keyword(s):  
Autistic Spectrum Disorder ◽  
Spectrum Disorder ◽  
Autistic Spectrum ◽  
Children With Asd

scholarly journals THE IMPACT OF AUTISTIC-TEA SPECTRUM DISORDER DIAGNOSIS ON FAMILY EXPERIENCE: ROUTINE CHANGES

2021 ◽  
pp. 67-68
Author(s):  
Silvia Rejane Andrade de Arruda ◽  
Cleison Guimarães Pimentel
Keyword(s):  
Autistic Spectrum Disorder ◽  
Spectrum Disorder ◽  
Google Scholar ◽  
Electronic Database ◽  
Family Experience ◽  
Autistic Spectrum ◽  
Ways Of Coping ◽  
The Family ◽  
Bibliographic Search ◽  
The Impact

The impacts of the diagnosis of Autistic Spectrum Disorder can change the routine of the family as a whole.The aim of this study is to analyze the impacts of the ASD diagnosis on the family's experience. And its specific objectives are: contextualize the diagnosis of ASD and the family; raise changes in the family's routine; know the impacts of the ASD diagnosis on the family nucleus;identify the main ways of coping with common difficulties in prognosis.The procedure was through a bibliographic search of articles published from 2015 to 2020, using the electronic database of articles in the Scientific electronic libraly (SCIELO) and Google Scholar databases, using keywords: diagnosis of autism; family; impacts.The strategies for coping with ASD are due to the set of attitudes and solutions found by the family members of the person with autism,which requires an effort to adapt and deal with adverse and stressful circumstances and impacts that are characteristics of living and care of a person diagnosed with ASD.

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