scholarly journals Managing the Journey of Patients under Chemotherapy in a Pandemic Era: A Nursing Perspective

Chemotherapy ◽  
2021 ◽  
pp. 1-4
Author(s):  
Raffaella Gualandi ◽  
Anna De Benedictis ◽  
Maria Grazia De Marinis ◽  
Daniela Tartaglini
Keyword(s):  
Cancer Patients ◽  
Clinical Pathway ◽  
Family Context ◽  
Hospital Patient ◽  
Chemotherapy Treatment ◽  
Care Needs ◽  
Patient Centered ◽  
Patient Journey ◽  
The Family ◽  
The Impact

<b><i>Background:</i></b> During the COVID-19 pandemic, cancer patients’ care needs to be reconsidered by integrating the patient’s clinical pathway with the hospital patient journey and the family context in a safe and patient-centered way. So far, no systematic reports are available regarding the impact of the COVID-19 pandemic on cancer care. This work gives a first overview of patients’ care needs undergoing chemotherapy treatment from a nursing perspective.

scholarly journals Factors Related to the Quality of the Dying Process in Cancer Patients

2010 ◽  
Vol 18 (4) ◽  
pp. 725-731 ◽  
Author(s):  
Maritza Espinoza Venegas ◽  
Olivia Sanhueza Alvarado
Keyword(s):  
Pain Management ◽  
Cancer Patients ◽  
Social Experiences ◽  
Communication Quality ◽  
Care Needs ◽  
Descriptive Research ◽  
The Family ◽  
The Moment ◽  
Close Relatives

This correlational and descriptive research examined the Quality of the Dying Process (QDP) in cancer patients. Data were collected from one significant person for each of the 78 patients who had died, using QDP and communication quality questionnaires. The highest QDP scores were found for social experiences related to: the moment of death, family company and their concern with the person. The lowest score was for symptoms. A statistically significant association (p<0.001) was found between a better QDP and: preparation for death, spending time with the family, concern and care for the patient, communication quality. Conclusions: patient care needs to be focused on the aspects fostering closeness and dialogue with the patient's close relatives, promoting communication in order to detect and handle the real problems, along with efficient pain management, in which humanized care is essential.

Does chemotherapy reduce stress?

2010 ◽  
Vol 8 (4) ◽  
pp. 455-460 ◽  
Author(s):  
Francisco Gil ◽  
G. Costa ◽  
F.J. Pérez
Keyword(s):  
Cancer Patients ◽  
Performance Status ◽  
Adjustment Disorder ◽  
Clinical Interview ◽  
Screening Tools ◽  
Anxiety And Depression ◽  
Chemotherapy Treatment ◽  
Psychological Care ◽  
Care Needs ◽  
Low Performance

AbstractObjective:The purpose of this study was to assess the psychological care needs of cancer patients throughout the healthcare process: after diagnosis, after medical treatment (surgery, chemotherapy, radiotherapy) and during follow-up.Method:A total of 703 ambulatory cancer patients were assessed in this study. The inclusion period was from April 1, 2005 to April 30, 2007. The first psychological scales used were the 14-item Hospital Anxiety and Depression Scales (HADS), which has two sub-scales for anxiety (7 items) and for depression (7 items). All patients with a score ≥14 were assessed through the Structured Clinical Interview for Psychiatric Disorder (SCID-I) of the DSM-IV. All data were compared with sociodemographic and medical characteristics.Results:Of the 703 cancer patients in the study, 349 were men and 354 women, with a mean age of 53 years. The median time between the cancer diagnosis and our clinical interview was 6 months (range, 12 days to 190 months). Overall, the screening tools indicated that one in four patients needed psychological care. The most common psychiatric diagnosis was adjustment disorder (129 cases), whereas 10 patients were diagnosed with major depression. Using a HADS cut-off score of >7 for anxiety and depression, 28% and 17% of patients, respectively, were classified as “possible clinical cases.” Risk factors for distress included age <65 years, asthenia, constipation, and a low performance status. However, chemotherapy treatment was found to be a protector against distress in cancer patients.Significance of Results:Chemotherapy treatment is interpreted by the patients as a protector against cancer, thereby reducing distress levels.

scholarly journals Understanding and Information in Cancer Patients: The Impact of a Cancer Symposia on Patient Knowledge

Blood ◽  
2014 ◽  
Vol 124 (21) ◽  
pp. 6011-6011
Author(s):  
Leslie J Padrnos ◽  
Qing Wu ◽  
Robyn M Scherber ◽  
Donald W. Northfelt ◽  
Joseph R. Mikhael ◽  
...  
Keyword(s):  
Risk Factors ◽  
Health Care ◽  
Side Effects ◽  
Cancer Patients ◽  
Cancer Diagnosis ◽  
Disease Risk ◽  
Symptom Burden ◽  
Screening Tests ◽  
Patient Centered ◽  
The Impact

Abstract Background: Patients diagnosed with cancer experience a significant influx of health care information while continuing to demonstrate understanding deficit regarding their disease and health. This knowledge deficit can negatively impact a patient’s acute and long term health care experience. By identifying patient information deficits and needs, health care providers may be better able to provide targeted education to patients and families. Aims: The aim of this study is to evaluate the impact of a patient centered cancer symposium on knowledge level, reported symptom burden, and desired information from a broad population of cancer patients. Methods: Surveys were distributed to the attendees of the third annual Mayo Clinic “Living with Cancer” patient symposium in January 2014. While 700 individuals registered for the event, only individuals with a past or present cancer diagnosis were asked to participate. Surveys included demographic data in addition to a questionnaire evaluating disease comprehension, symptom burden, desired information and desired role in the health care decision making process. Results: 75 patients completed the pre-intervention and post-intervention survey. There were slightly more female participants (60.2%). Disease types included 40% hematologic malignancies, 27% breast cancer, 20% prostate cancer and 13% other. The majority of patients were greater than 3 years from cancer diagnosis (62%). Baseline Patient Understanding: Most respondents reported understanding their disease quite a bit (54%) or very much (30%). Respondents reported the majority of their knowledge regarding their disease came from their oncologist (56%), oncology nurse (24%), previous symposiums (22%), or the internet (15%). Most respondents reported “quite a bit” or greater comprehension of screening tests (75%), monitoring disease response to treatment (70%), monitoring disease recurrence (70%), treatment options (67%) and treatment side effects (73%). There was no consensus among participants regarding understanding or limiting risk factors, symptoms associated with disease relapse, fatigue and pain management, navigating the health care system, financial considerations, or confidence in their primary care physician’s involvement in their cancer or post-cancer care. A large proportion of attendees reported “quite a bit” or greater desire for increased information/understanding regarding their disease (83%), risk factors (83%), nutrition (80%), screening tests (69%), and management of fatigue (69%) and stress (68%). Knowledge Improvement Durable at 3 months: There was improvement in 18 of 20 areas of self-reported knowledge. This was noted in increased percentage of respondents reporting “quite a bit” or greater comprehension, especially in areas of disease risk factors(55%pre vs 63%post), disease side effects(55%pre vs 63%post), and health care navigation(53%pre vs 69%post). The reported desire for “quite a bit” or more increased understanding on various topics did decrease post symposium regarding their disease(87.9% pre vs 68.9%post), disease risk factors(86.3%pre vs 64.0%post), screening tests(74.7%pre vs 63.3%post), and nutrition(78.4%pre vs 64.9%post)(all p<0.05). There was no significant decrease in the desire for increased understanding managing stress and fatigue. Summary: Demonstrated in this study, individuals choosing to attend a patient-centered cancer symposium, seek to improve an already solid knowledge base. Study participants indicate a significant desire for increased information on all topics, even those with sufficient level of knowledge reported. This indicates that some cancer patients’ thirst for knowledge is difficult to quench, and may benefit from recurrent education opportunities. The improvement in almost all topics assessed indicates a patient centered symposium is an effective method to provide information to patients regarding the spectrum of cancer health management. Disclosures No relevant conflicts of interest to declare.

Social inequalities in supportive care needs and quality of patient-centered care of cancer patients in Mexico

2020 ◽  
Author(s):  
Svetlana V. Doubova ◽  
Ingrid Patricia Martinez-Vega ◽  
Claudia Infante-Castañeda ◽  
Carlos E. Aranda-Flores ◽  
Felicia M Knaul ◽  
...  
Keyword(s):  
Supportive Care ◽  
Cancer Patients ◽  
Social Inequalities ◽  
Patient Centered Care ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Patient Centered ◽  
Centered Care

CONTINUOUS INTENTION CRITERIA OF SNS APPROPRIATION PROCESS IN FAMILY CONTEXT: A SYSTEMATIC LITERATURE REVIEW

2015 ◽  
Vol 75 (1) ◽  
Author(s):  
Yuzi Mahmud ◽  
Nor Zairah Ab. Rahim ◽  
Suraya Miskon ◽  
Nazean Jomhari
Keyword(s):  
Social Network ◽  
Family Environment ◽  
Family Relationships ◽  
Communication Technologies ◽  
Family Context ◽  
Research Attention ◽  
The Family ◽  
Level 3 ◽  
The Impact ◽  
Level 2

Communication technologies such as Social Network Sites (SNSs) are increasingly being used within family settings to support and extend the family relationships. Although many previous researchers have highlighted the impact of SNSs in family environment, criteria of SNS adoption and use in family context have received little research attention. This paper highlights selected SNS appropriation process criteria in family, individual and technical perspectives in order to understand why and how the SNS is being used in family context. Using the procedure of Bandara et al. (2011), NVivo 9.0 was employed to conduct content analysis of 284 articles published between the year of 2006 until 2014. As a result, the adoption and use criteria of SNS appropriation process were identified, and has been categorized in family, individual and technical perspectives using the Family Appropriation Process of Social Network Site (FAPSNS) framework. The understanding of the criteria could assist in effective and healthy adoption and use of SNSs among family members. However, this paper is merely focusing on level 2 and level 3 of SNS appropriation process in family, individual and technical perspectives. 

scholarly journals Education in Quality Improvement for Practice in Primary Care During Residency Training and Subsequent Activities in Practice

2014 ◽  
Vol 6 (1) ◽  
pp. 50-54 ◽  
Author(s):  
Peter J. Carek ◽  
Lori M. Dickerson ◽  
Michele Stanek ◽  
Charles Carter ◽  
Mark T. Godenick ◽  
...  
Keyword(s):  
South Carolina ◽  
Quality Improvement ◽  
Family Medicine ◽  
Patient Care ◽  
Patient Centered ◽  
Residency Programs ◽  
Family Medicine Residency ◽  
The Family ◽  
The Impact ◽  
Standardized Curriculum

Abstract Background Quality improvement (QI) is an integral aspect of graduate medical education and an important competence for physicians. Objective We examined the QI activities of recent family medicine residency graduates and whether a standardized curriculum in QI during residency resulted in greater self-reported participation in QI activities in practice after graduation. Methods The family medicine residency programs affiliated with the South Carolina Area Health Education Consortium (N  =  7) were invited to participate in this study. Following completion of introductory educational activities, each site implemented regularly occurring (at least monthly) educational and patient care activities using QI principles and tools. Semiannually, representatives from each participating site met to review project aims and to provide updates regarding the QI activities in their program. To examine the impact of this project on QI activities, we surveyed graduates from participating programs from the year prior to and 2 years after the implementation of the curriculum. Results Graduates in the preimplementation and postimplementation cohorts reported participating in periodic patient care data review, patient care registries, QI projects, and disease-specific activities (57%–71% and 54%–63%, respectively). There were no significant differences in QI activities between the 2 groups except in activities associated with status of their practice as a patient-centered medical home. Conclusions Most but not all family medicine graduates reported they were actively involved in QI activities within their practices, independent of their exposure to a QI curriculum during training.

scholarly journals Toward Patient-Centered Cancer Care: Patient Perceptions of Problematic Events, Impact, and Response

2012 ◽  
Vol 30 (15) ◽  
pp. 1784-1790 ◽  
Author(s):  
Kathleen M. Mazor ◽  
Douglas W. Roblin ◽  
Sarah M. Greene ◽  
Celeste A. Lemay ◽  
Cassandra L. Firneno ◽  
...  
Keyword(s):  
Medical Care ◽  
Cancer Patients ◽  
Cancer Care ◽  
Information Exchange ◽  
Health Care Systems ◽  
Care Patient ◽  
Physician Patient Relationship ◽  
Patient Centered ◽  
Delay In Diagnosis ◽  
The Impact

Purpose Cancer treatments are complex, involving multiple clinicians, toxic therapies, and uncertain outcomes. Consequently, patients are vulnerable when breakdowns in care occur. This study explored cancer patients' perceptions of preventable, harmful events; the impact of these events; and interactions with clinicians after such events. Patients and Methods In-depth telephone interviews were conducted with cancer patients from three clinical sites. Patients were eligible if they believed: something “went wrong” during their cancer care; the event could have been prevented; and the event caused, or could have caused, significant harm. Interviews focused on patients' perceptions of the event, its impact, and clinicians' responses to the event. Results Ninety-three of 416 patients queried believed something had gone wrong in their care that was preventable and caused or could have caused harm. Seventy-eight patients completed interviews. Of those interviewed, 28% described a problem with medical care, such as a delay in diagnosis or treatment; 47% described a communication problem, including problems with information exchange or manner; and 24% described problems with both medical care and communication. Perceived harms included physical and emotional harm, disruption of life, effect on family members, damaged physician-patient relationship, and financial expense. Few clinicians initiated discussion of the problematic events. Most patients did not formally report their concerns. Conclusion Cancer patients who believe they experienced a preventable, harmful event during their cancer diagnosis or care often do not formally report their concerns. Systems are needed to encourage patients to report such events and to help physicians and health care systems respond effectively.

Family embeddedness and business performance: evidences from women-owned firms

2016 ◽  
Vol 54 (2) ◽  
pp. 476-500 ◽  
Author(s):  
Michela Mari ◽  
Sara Poggesi ◽  
Luisa De Vita
Keyword(s):  
Family Life ◽  
Business Owners ◽  
Work And Family ◽  
Three Dimensions ◽  
Family Context ◽  
Female Entrepreneurship ◽  
Related Factors ◽  
Content Type ◽  
The Family ◽  
The Impact

Purpose – The purpose of this paper is to investigate how the family context may affect female firms’ performance by contextualising the study within Italy and empirically analysing 307 Italian women-owned firms. Design/methodology/approach – By using ordinal regressions, this paper empirically investigates the influence of three dimensions of the family context on female firms’ performance, namely: the motivations to start a business; the support from the family once the business is established; and the mechanisms to achieve a suitable balance between work and family life. Findings – Overall, the results offer substantial support for the assumption that female business owners benefit from being pulled into the endeavour, from specific linkages with family and also from selected mechanisms to balance work and family life, thus contributing to show how strong the relationship between a firm’s performance and the family context is for women. Originality/value – Today female entrepreneurship represents an important economic driver worldwide, leading scholars to strongly advocate the need to shift the female entrepreneurship research focus from the analysis of women business owners’ characteristics to the investigation of those specific factors able to directly affect female firms’ activities. In this vein, this paper aims at pushing further into the still less studied domain of work/family intertwinement as, surprisingly, the impact that family-related factors exert on women-owned businesses’ performance is still under-researched.

scholarly journals Families Affected by Parental Cancer: Quality of Life, Impact on Children and Psychosocial Care Needs

2021 ◽  
Vol 12 ◽  
Author(s):  
Laura Inhestern ◽  
Lene Marie Johannsen ◽  
Corinna Bergelt
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Support Needs ◽  
Life Questionnaire ◽  
Parental Cancer ◽  
Psychosocial Needs ◽  
Care Needs ◽  
Minor Children ◽  
The Impact

Parental cancer poses major challenges for families with minor children. Due to diagnosis and treatment family life is disrupted. To prevent long-term consequences in all family members and to design needs-oriented family-centered interventions, further understanding of the family's situation including the impact on the children, quality of life levels and the parental psychosocial needs is necessary. This study aims at investigating the impact of parental cancer on the minor children, family-specific psychosocial needs and quality of life levels of parents and children. Cancer patients parenting at least 1 minor child (&lt;18 years) were eligible for study participation. In total, n=86 cancer patients under treatment participated in the study. After excluding participants without a minor child, 78 patients remained for analyses. We assessed children's quality of life using the parent proxy version of the KIDSCREEN-10 and parental quality of life using the EORTC QLQ C30 quality of life questionnaire. Additionally, the questionnaire comprised open questions about positive and negative changes parents perceived in their children as well as questions on specific family- and child-related psychosocial needs. The majority of participants were mothers (91%), mainly diagnosed with breast cancer (59%). The participating parents provided data on 117 minor children. Parents mentioned positive changes in 38% of the children (e.g., being more attentive and helpful). Negative changes were reported in 37% of the children (e.g., being more anxious and clingy). Parents reported family-specific psychosocial supportive care needs for themselves as a parent (e.g., support regarding parenting concerns), support needs for the partner or the children. Moreover, parents expressed family-related information needs and needs regarding practical aspects (e.g., childcare, household help). Global quality of life was M = 55.7 (SD = 23.4) for parents and M = 57.5 (SD = 15.5) for children. Pearson's correlation coefficient between parental and children's quality of life was 0.377 (p &lt; 0.001). To identify parents with cancer and children in need for additional support, health care providers should proactively inquire about the impact of the disease on the children. In terms of a comprehensive cancer care, the direct assessment of family impact and family-specific support needs in cancer patients with minor children allows for needs-based allocation to support offers.

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