scholarly journals Evaluation of Quality of Life in Patients with Differentiated Thyroid Cancer by Means of the Thyroid-Specific Patient-Reported Outcome Questionnaire: A 5-Year Longitudinal Study

2019 ◽  
Vol 9 (5) ◽  
pp. 247-255
Author(s):  
Massimo Giusti ◽  
Stefano Gay ◽  
Lucia Conte ◽  
Francesca Cecoli ◽  
Lorenzo Mortara ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Thyroid Cancer ◽  
Longitudinal Study ◽  
Differentiated Thyroid Cancer ◽  
Patient Reported Outcome ◽  
Outcome Questionnaire ◽  
Specific Patient ◽  
Patient Reported

scholarly journals Quality improvement in vascular access: The role of patient-reported outcome measures

2019 ◽  
Vol 21 (1) ◽  
pp. 19-25 ◽  
Author(s):  
Melanie Field ◽  
Karen Tullett ◽  
Aurangzaib Khawaja ◽  
Robert Jones ◽  
Nicholas G Inston
Keyword(s):  
Quality Of Life ◽  
Quality Improvement ◽  
Outcome Measures ◽  
Vascular Access ◽  
Venous Catheter ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Specific Patient ◽  
Patient Reported

Quality improvement initiatives should be aimed to enhance clinical outcomes, service delivery and quality of life for patients. For patients reliant on haemodialysis, vascular access is a lifeline. Survival differences relating to the type of vascular access are evident and many initiatives have focussed on increasing absolute rates of arteriovenous fistulas and/or decreasing central venous catheter use. While these have achieved some success quantitatively, the qualitative effects are less obvious. The aims of this review article are to explore the concepts of quality of care in vascular access. There is a paucity of studies into the effects of vascular access on the quality of life of dialysis patients, and where studies have been performed, generalised patient-reported outcome measures have been used. To facilitate the implementation of quality improvement programmes specifically for vascular access requires suitable tools. While existing patient-reported outcome measures may be applicable to vascular access, it is likely that these will require further evaluation, and the development of vascular access–specific patient-reported outcome measures may be required.

Adaptation and cross-cultural validation of the Spanish version of the Thyroid-Related Quality-of-Life Patient-Reported Outcome questionnaire

2018 ◽  
Vol 65 (9) ◽  
pp. 500-507
Author(s):  
Mauro Boronat ◽  
Ana González-Lleó ◽  
Carlos Rodríguez-Pérez ◽  
Ulla Feldt-Rasmussen ◽  
Yaiza López-Plasencia ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Patient Reported Outcome ◽  
Cross Cultural ◽  
Spanish Version ◽  
Outcome Questionnaire ◽  
Patient Reported ◽  
Related Quality ◽  
Cultural Validation

Adaptation and cross-cultural validation of the Spanish version of the Thyroid-Related Quality-of-Life Patient-Reported Outcome questionnaire

2018 ◽  
Vol 65 (9) ◽  
pp. 500-507 ◽  
Author(s):  
Mauro Boronat ◽  
Ana González-Lleó ◽  
Carlos Rodríguez-Pérez ◽  
Ulla Feldt-Rasmussen ◽  
Yaiza López-Plasencia ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Patient Reported Outcome ◽  
Cross Cultural ◽  
Spanish Version ◽  
Outcome Questionnaire ◽  
Patient Reported ◽  
Related Quality ◽  
Cultural Validation

scholarly journals Improving CKD-Specific Patient-Reported Measures of Health-Related Quality of Life

2019 ◽  
Vol 30 (4) ◽  
pp. 664-677 ◽  
Author(s):  
John E. Ware ◽  
Michelle M. Richardson ◽  
Klemens B. Meyer ◽  
Barbara Gandek
Keyword(s):  
Quality Of Life ◽  
Clinical Status ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Comorbid Condition ◽  
Adaptive Tests ◽  
Specific Patient ◽  
Patient Reported ◽  
Mean Differences

BackgroundPatient-reported outcome measures that are more practical and clinically useful are needed for patients with CKD. We compared a new CKD-specific quality-of-life impact scale (CKD-QOL) with currently used measures.MethodsPatients (n=485) in different treatment groups (nondialysis stages 3–5, on dialysis, or post-transplant) completed the kidney-specific CKD-QOL and Kidney Disease Quality of Life-36 (KDQOL-36) forms and the generic SF-12 Health Survey at baseline and 3 months. New items summarizing quality of life (QOL) impact attributed to CKD across six QOL domains yielded single impact scores from a six-item static (fixed-length) form and from computerized adaptive tests (CATs) with three to six items. Validity tests compared the CKD-QOL, KDQOL-36 (Burden, Effects, and Symptoms/Problems subscales), and generic SF-12 measures across groups in four tests of clinical status and clinician assessment of change (CKD-specific tests), and number of comorbidities. ANOVA was used to test for group mean differences, variances in each measure explained by groups, and relative validity (RV) in comparison with the referent KDQOL-36 Burden subscale.ResultsKDQOL-36 and CKD-QOL measures generally discriminated better than generic SF-12v2 measures. The pattern of variances across CKD-specific tests comparing validity favored CKD-QOL two-fold over KDQOL-36. Two RV test results confirmed CKD-QOL improvements over the referent KDQOL scale. Results for static and CAT CKD-QOL forms were similar. SF-12 Physical and KDQOL-36 Symptoms scores worsened with increasing comorbid condition counts.ConclusionsOverall, compared with the KDQOL-36, the new approach to summarizing CKD-specific QOL impact performed better across multiple tests of validity. CAT surveys were more efficient than static surveys.

scholarly journals Systematic review of health-related quality of life following thyroid cancer

2021 ◽  
pp. 030089162110250
Author(s):  
Emma G Walshaw ◽  
Mike Smith ◽  
Dae Kim ◽  
Jonathan Wadsley ◽  
Anastasios Kanatas ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Thyroid Cancer ◽  
Patient Reported Outcome ◽  
Health Related Quality ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related ◽  
The Impact

This systematic review provides a summary of all studies published between 2000 and 2019 using a health-related quality of life (HRQOL) patient-completed questionnaire to report outcomes following diagnosis and treatment of thyroid cancer. The search terms were “thyroid cancer” or “thyroid carcinoma,” “quality of life” or “health related quality of life,” and “questionnaire” or “patient reported outcome.” EMBASE, PubMed, Medline, PsycINFO, CINAHL, and HaNDLE-On-QOL search engines were searched between 2 February and 23 February 2020. A total of 811 identified articles were reduced to 314 when duplicates were removed. After exclusion criteria (not thyroid specific, no quality of life questionnaires, and conference abstracts) were applied, 92 remained. Hand searching identified a further 2 articles. Of the 94 included, 16 had a surgical, 26 a primarily medical, and 52 a general focus. There were articles from 27 countries. A total of 49 articles were published from 2015 through 2019 inclusive. A total of 72 questionnaires were used among the articles and a range of 7 to 2215 participants were included within each article. This review demonstrated an increasing number of publications annually. The scope of enquiry into aspects of HRQOL following thyroid cancer is broad, with relatively few addressing surgical aspects and many focusing on the impact of radio-iodine. More research is required into shared decision-making in initial management decisions and HRQOL and interventions aimed specifically at addressing long-term HRQOL difficulties.

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