The Self beyond Somatic Symptoms: A Narrative Approach to Self-Experience in Adolescent Chronic Fatigue Syndrome

2015 ◽  
Vol 48 (5) ◽  
pp. 278-286 ◽  
Author(s):  
Stefan M. van Geelen ◽  
Coralie E. Fuchs ◽  
Rolf van Geel ◽  
Patrick Luyten ◽  
Elise M. van de Putte
2002 ◽  
Vol 32 (6) ◽  
pp. 1075-1089 ◽  
Author(s):  
M. C. ARNOLD ◽  
D. A. PAPANICOLAOU ◽  
J. A. O'GRADY ◽  
A. LOTSIKAS ◽  
J. K. DALE ◽  
...  

Background. Individuals with acute infections experience a range of symptoms including fatigue, malaise, muscle aches, and difficulties with concentration and memory that are usually self-limited. This cluster of symptoms is otherwise, similar to those that characterize chronic fatigue syndrome (CFS). The goal of the present study was to evaluate the cognitive and psychological functioning of CFS patients and normal controls (NCs) when they both were experiencing acute influenza-like symptoms. To induce influenza-like symptoms, we administered interleukin-6 (IL-6), a cytokine that temporarily activates the acute phase immunological and endocrine responses.Methods. Nineteen patients who met the 1994 International CFS Study Group Criteria and ten normal controls (NCs) completed routine clinical evaluations, neuropsychological tests of short-term memory, selective attention, and executive control, and self-ratings of somatic symptoms and psychological mood before, shortly following, and 1 day after IL-6 administration.Results. CFS patients consistently reported more somatic symptoms, even when both groups perceived that they were ill. Both groups somatic symptoms increased during the IL-6 challenge, but the CFS patients symptoms increased more rapidly than controls. In general, the CFS patients performed similarly to NCs on the cognitive measures before, during, and after the IL-6. In contrast to predictions, IL-6 provocation did not impair the cognitive performance of either CFS patients or NCs.Conclusions. The IL-6 provocation exacerbated the patients self-reported symptoms but did not reveal notable cognitive impairments between patients and controls during cytokine-induced acute influenza-like symptoms.


2008 ◽  
Vol 49 (3) ◽  
pp. 235-242 ◽  
Author(s):  
Michael E. Geisser ◽  
Cathy Strader Donnell ◽  
Frank Petzke ◽  
Richard H. Gracely ◽  
Daniel J. Clauw ◽  
...  

2004 ◽  
Vol 184 (2) ◽  
pp. 142-146 ◽  
Author(s):  
Pauline Powell ◽  
Richard P. Bentall ◽  
Fred J. Nye ◽  
Richard H. T. Edwards

BackgroundAn earlier trial demonstrated good outcomes after 1 year for patients with chronic fatigue syndrome (CFS) who received an educational intervention designed to encourage graded activity.AimsTo determine 2-year outcomes for the same treated patients and the response to treatment of patients formerly in the control condition.MethodPatients in the treatment groups (n=114) were followed up at 2 years; 32 patients from the control group were offered the intervention after 1 year and were assessed 1 year later. Assessments were the self-rated measures used in the original trial.ResultsAt 2 years 63 of the treated patients (55%) no longer fulfilled trial criteria for CFS compared with 64 patients (56%) at 1 year. Fourteen of 30 crossover patients (47%) achieved a good outcome at 1 year and seven (23%) no longer fulfilled criteria for CFS.ConclusionsBenefits of the intervention were maintained at 2 years. Delaying treatment is associated with reduced efficacy and required more intensive therapy.


1997 ◽  
Vol 3 (3) ◽  
pp. 43-51 ◽  
Author(s):  
Tiffany M. Field ◽  
William Sunshine ◽  
Maria Hernandezreif ◽  
Olga Quintino ◽  
Saul Schanberg ◽  
...  

2021 ◽  
Author(s):  
Tingting Ma ◽  
Rui Gong ◽  
Rui Zheng ◽  
Jie Wu

Abstract Background Chronic fatigue syndrome (CFS) is a disease with high incidence rate and great impact on life, but it lacks for specific pharmacological treatment and diagnostic indicators. In the theory of traditional Chinese medicine (TCM), fatigue is the result of Yang deficiency. Long-snake-like moxibustion, as one of a special moxa therapy, has been applied in Yang deficiency patients for thousands of years in China and it is used widely to relieve fatigue symptoms for its strong function of Yang warming. However, the does-effect relationship is unclear in the moxibustion research. Hence, we design this trial to assess the duration-effect of long-snake-like moxibustion through combining measurements of the subjective patient-reported scales with objective medical infrared imaging technology─Thermal Texture Maps (TTM). Methods This is a single-center, randomized controlled trial. Thirty healthy women and sixty female CFS patients will be recruited to receive the first TTM scanning, then CFS patients will be allocated to 60-minute long-snake-like moxibustion (Group A) and 30-minute long-snake-like moxibustion (Group B) equally. These two groups will receive corresponding treatment once a day, three sessions per week every other day for consecutive 4 weeks. The second TTM scanning will be employed for CFS patients after the end of treatment. The primary outcome will be the score improvement of the Fatigue scale-14 (FS-14). Secondary outcomes include the change of the Self-rating depression scale (SDS),the Self-rating anxiety scale (SAS), and the Symptoms Scale of spleen-kidney Yang deficiency. Discussion The trial will provide evidence for the choice of treatment duration for long-snake-like moxibustion in treating CFS. The results will contribute to explore the dose-effect relationship of moxibustion, and optimize the efficacy of moxibustion therapy. Trial registration: Chinese Clinical Trail Registry (No. ChiCTR2000041000), on 16th December, 2020, http://www.chictr.org.cn/showproj.aspx?proj=62488


2005 ◽  
Vol 35 (2) ◽  
pp. 286-307 ◽  
Author(s):  
Ansie Lombaard ◽  
Johann Mouton

In a study directed towards the development of a greater understanding of the subjective illness experience of those who suffer from Chronic Fatigue Syndrome (CFS), we identified the sufferer's relationship with the body as one of the dimensions of the self most affected by CFS. We found that the profound changes instigated by CFS transform the relationship between the self and the body into a frontline where conflict prevails and inner dissension threaten. Participants' experiences fortunately revealed that such discord can be attenuated when the self makes it its personal responsibility to listen attentively to the body and to then respond to it in a way that will support a sensible balance between activity and restriction.


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