Strategies and Stakeholders: Minority Recruitment in Cancer Genetics Research

2008 ◽  
Vol 11 (4) ◽  
pp. 241-249 ◽  
Author(s):  
Rosalina D. James ◽  
Joon-Ho Yu ◽  
Nora B. Henrikson ◽  
Deborah J. Bowen ◽  
Stephanie M. Fullerton
Keyword(s):  
Cancer Genetics ◽  
Minority Recruitment ◽  
Genetics Research

scholarly journals Pediatric Cancer Genetics Research and an Evolving Preventive Ethics Approach for Return of Results after Death of the Subject

2015 ◽  
Vol 43 (3) ◽  
pp. 529-537
Author(s):  
Sarah Scollon ◽  
Katie Bergstrom ◽  
Laurence B. McCullough ◽  
Amy L. McGuire ◽  
Stephanie Gutierrez ◽  
...  
Keyword(s):  
Cancer Genetics ◽  
Recurrence Risk ◽  
Genomic Research ◽  
Return Of Results ◽  
Genetics Research ◽  
Personal Significance ◽  
Pediatric Diseases ◽  
Increased Risk ◽  
Preventive Ethics ◽  
Risk Of Cancer

In the pediatric clinical setting, the parent/guardian will almost always be the authorized representative and designated recipient of clinical and research results, making the issue of to whom results should be returned in the pediatric setting less complex than in adult settings. It is also clear that, in genomic research related to pediatric diseases such as cancer, results may be of considerable clinical, ethical, and personal significance for parents in a number of ways, including a genomic explanation of the origin of their child’s cancer, implications for the genetic testing and medical care of other siblings and of the parents themselves, and reproductive planning with regard to the recurrence risk for future children to have an increased risk of cancer. However, what remains unclear is which results should be disclosed, and under what circumstances, to parents of deceased children.

scholarly journals Donation Intentions for Cancer Genetics Research Among African Americans

2012 ◽  
Vol 16 (4) ◽  
pp. 252-258 ◽  
Author(s):  
Jasmine A. McDonald ◽  
Benita Weathers ◽  
Frances K. Barg ◽  
Andrea B. Troxel ◽  
Judy A. Shea ◽  
...  
Keyword(s):  
African Americans ◽  
Cancer Genetics ◽  
Genetics Research

Accrual Strategies for Cancer Genetics Research: Blurred Boundaries

2010 ◽  
Vol 28 (18) ◽  
pp. e308-e308 ◽  
Author(s):  
Daniel Rayson ◽  
Karen A. Gelmon
Keyword(s):  
Cancer Genetics ◽  
Genetics Research

Retention of African American women in cancer genetics research

2007 ◽  
Vol 146A (2) ◽  
pp. 166-173 ◽  
Author(s):  
Chanita Hughes Halbert ◽  
Deja Love ◽  
Tynisha Mayes ◽  
Aliya Collier ◽  
Benita Weathers ◽  
...  
Keyword(s):  
African American ◽  
African American Women ◽  
Cancer Genetics ◽  
American Women ◽  
Genetics Research

scholarly journals A Survey of Web Resources for Basic Cancer Genetics Research

1999 ◽  
Vol 9 (5) ◽  
pp. 397-408
Author(s):  
Carol J. Bult ◽  
Debra M. Krupke ◽  
Barbara J. Tennent ◽  
Janan T. Eppig
Keyword(s):  
Cancer Genetics ◽  
Web Resources ◽  
Genetics Research

scholarly journals Testing Targeted Approaches to Enhance Cancer Genetics Network Minority Recruitment within Asian Populations

2008 ◽  
Vol 11 (4) ◽  
pp. 234-240 ◽  
Author(s):  
Lari Wenzel ◽  
Deborah Bowen ◽  
Rana Habbal ◽  
Nancy Leighton ◽  
Thuy Vu ◽  
...  
Keyword(s):  
Cancer Genetics ◽  
Minority Recruitment ◽  
Asian Populations

scholarly journals Participant views on consent in cancer genetics research: preparing for the precision medicine era

2016 ◽  
Vol 7 (2) ◽  
pp. 133-143 ◽  
Author(s):  
Karen L. Edwards ◽  
Diane M. Korngiebel ◽  
Lesley Pfeifer ◽  
Deborah Goodman ◽  
Anne Renz ◽  
...  
Keyword(s):  
Precision Medicine ◽  
Cancer Genetics ◽  
Genetics Research

scholarly journals Understanding Participation by African Americans in Cancer Genetics Research

2012 ◽  
Vol 104 (7-8) ◽  
pp. 324-330 ◽  
Author(s):  
Jasmine A. McDonald ◽  
Frances K. Barg ◽  
Benita Weathers ◽  
Carmen E. Guerra ◽  
Andrea B. Troxel ◽  
...  
Keyword(s):  
African Americans ◽  
Cancer Genetics ◽  
Genetics Research
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