scholarly journals Donation Intentions for Cancer Genetics Research Among African Americans

2012 ◽  
Vol 16 (4) ◽  
pp. 252-258 ◽  
Author(s):  
Jasmine A. McDonald ◽  
Benita Weathers ◽  
Frances K. Barg ◽  
Andrea B. Troxel ◽  
Judy A. Shea ◽  
...  
2012 ◽  
Vol 104 (7-8) ◽  
pp. 324-330 ◽  
Author(s):  
Jasmine A. McDonald ◽  
Frances K. Barg ◽  
Benita Weathers ◽  
Carmen E. Guerra ◽  
Andrea B. Troxel ◽  
...  

2013 ◽  
Author(s):  
Henry T. Lynch ◽  
Olugbemi T. Ekundayo ◽  
Sade Kosoko-Lasaki ◽  
Sarah Buxbaum ◽  
Carrie Synder ◽  
...  

2015 ◽  
Vol 43 (3) ◽  
pp. 529-537
Author(s):  
Sarah Scollon ◽  
Katie Bergstrom ◽  
Laurence B. McCullough ◽  
Amy L. McGuire ◽  
Stephanie Gutierrez ◽  
...  

In the pediatric clinical setting, the parent/guardian will almost always be the authorized representative and designated recipient of clinical and research results, making the issue of to whom results should be returned in the pediatric setting less complex than in adult settings. It is also clear that, in genomic research related to pediatric diseases such as cancer, results may be of considerable clinical, ethical, and personal significance for parents in a number of ways, including a genomic explanation of the origin of their child’s cancer, implications for the genetic testing and medical care of other siblings and of the parents themselves, and reproductive planning with regard to the recurrence risk for future children to have an increased risk of cancer. However, what remains unclear is which results should be disclosed, and under what circumstances, to parents of deceased children.


2004 ◽  
Vol 23 (1) ◽  
pp. 60-66 ◽  
Author(s):  
Paul Achter ◽  
Roxanne Parrott ◽  
Kami Silk

2012 ◽  
Vol 8 (4S_Part_10) ◽  
pp. P377-P377 ◽  
Author(s):  
Rosalyn Lang ◽  
Goldie Byrd ◽  
Takiyah Starks ◽  
Dora Som-Pimpong ◽  
Ruth Phillips ◽  
...  

2010 ◽  
Vol 28 (18) ◽  
pp. e308-e308 ◽  
Author(s):  
Daniel Rayson ◽  
Karen A. Gelmon

2007 ◽  
Vol 146A (2) ◽  
pp. 166-173 ◽  
Author(s):  
Chanita Hughes Halbert ◽  
Deja Love ◽  
Tynisha Mayes ◽  
Aliya Collier ◽  
Benita Weathers ◽  
...  

1999 ◽  
Vol 9 (5) ◽  
pp. 397-408
Author(s):  
Carol J. Bult ◽  
Debra M. Krupke ◽  
Barbara J. Tennent ◽  
Janan T. Eppig

2003 ◽  
Vol 118A (2) ◽  
pp. 146-155 ◽  
Author(s):  
Bonnie Jeanne Baty ◽  
Anita Yeomans Kinney ◽  
Sara Marie Ellis

2016 ◽  
Vol 7 (2) ◽  
pp. 133-143 ◽  
Author(s):  
Karen L. Edwards ◽  
Diane M. Korngiebel ◽  
Lesley Pfeifer ◽  
Deborah Goodman ◽  
Anne Renz ◽  
...  

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