scholarly journals Does the Level of Reproductive Knowledge Specific to Inflammatory Bowel Disease Predict Childlessness among Women with Inflammatory Bowel Disease?

2015 ◽  
Vol 29 (2) ◽  
pp. 95-103 ◽  
Author(s):  
Vivian W Huang ◽  
Hsiu-Ju Chang ◽  
Karen I Kroeker ◽  
Karen J Goodman ◽  
Kathleen M Hegadoren ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Family Planning ◽  
Bowel Disease ◽  
Lower Odds ◽  
Voluntarily Childless ◽  
Voluntary Childlessness ◽  
Childless Women ◽  
Knowledge Questionnaire ◽  
Point Increase ◽  
Inflammatory Bowel

BACKGROUND: Women with inflammatory bowel disease (IBD) may choose to remain childless due to a lack of IBD-specific reproductive knowledge.OBJECTIVES: To examine the effects of IBD-specific reproductive knowledge and discussion of family planning with a physician on childlessness among women with IBD.METHODS: Female IBD patients 18 to 45 years of age completed the Crohn’s and Colitis Pregnancy Knowledge questionnaire (CCPKnow), and answered questions regarding reproductive history, plans to have children and discussion of family planning with a physician. CCPKnow scores were grouped according to poor (0 to 7), adequate (8 to 10), good (11 to 13) and very good (14 to 17).RESULTS: Of 434 eligible women, 248 (57.1%) completed the questionnaires. Of these 248 women, 51.6% were childless and, among these, 12.9% were voluntarily childless and 12.1% were trying to become pregnant. Childless women had a lower median CCPKnow score than women with children (6.0 versus 8.0; P=0.001). After adjusting for current age and marital status, each one point increase in the CCPKnow score corresponded to 8% lower odds of childlessness (OR 0.92 [95% CI 0.86 to 0.99]), 9% lower odds of voluntary child-lessness (OR 0.91 [95% CI 0.79 to 1.0]) and 20% higher odds of trying to become pregnant (OR 1.2 [95% CI 1.0 to 1.4]). Discussion of family planning with a gastroenterologist corresponded to 72% lower odds of a poor CCPKnow score (OR 0.28 [95% CI 0.15 to 0.53]) and of voluntary childlessness (OR 0.28 [95% CI 0.057 to 1.3]).CONCLUSION: In the present study, higher IBD-specific reproductive knowledge lowered the odds of childlessness among women with IBD. Discussion of family planning with a physician was associated with higher CCPKnow scores and lower odds of voluntary childlessness.

Family planning with inflammatory bowel disease: the challenge of childlessness and parent concerns

2021 ◽  
Author(s):  
Jens Walldorf ◽  
Emilia Pijan ◽  
Robin Greinert ◽  
Anica Riesner-Wehner ◽  
Patrick Michl
Keyword(s):  
Inflammatory Bowel Disease ◽  
Family Planning ◽  
Bowel Disease ◽  
Factual Knowledge ◽  
Multiple Choice Questions ◽  
Childbearing Age ◽  
Poor Knowledge ◽  
Voluntarily Childless ◽  
Inflammatory Bowel ◽  
Parent Concerns

Abstract Background In patients with inflammatory bowel disease (IBD), diagnosis is often established at the beginning of childbearing age. Accordingly, concerns about family planning and pregnancy (FPP) are common. Poor knowledge regarding FPP might contribute to increased childlessness in patients with IBD. Methods The Crohn’s and Colitis Pregnancy Knowledge Score (CCPKnow, 17 multiple-choice questions) was translated into German and then used for a web-based survey. Childlessness was analyzed with respect to socio-demographic and disease-related information, and the knowledge (CCPKnow) and concerns of IBD patients with children were compared to those of voluntarily childless (VC) and non-voluntarily childless (NVC) IBD patients. Results Childlessness was observed in 57.4 % of the 533 participants (90.6 % women, 63.0 % Crohn’s disease, 31.5 % ulcerative colitis, mean age 33.2 ± 8.6 years), voluntary childlessness in 9 %. The mean overall CCPKnow was adequate (9.38 ± 3.96). Poor knowledge was not associated with increased childlessness (CCPKnow of < 8 was found in 29.8 % of patients with children and 28.9 % of childless patients, p > 0.5). Instead, the patients’ education, medical advice, FPP-related concerns, impaired body image, and sexual dysfunction had a significant impact on childlessness. Frequent concerns included adverse effects of the patient’s medication on their child (36 % of the respondents), malformation (33 %), miscarriage (34.5 %), and the inheritability of IBD (57 %). Conclusions Factual knowledge does not reduce disease-related concerns or childlessness. Correct but possibly bothersome information on FPP might contribute to childlessness in patients with IBD. Our findings underline the need for qualified counseling of IBD patients regarding FPP by an experienced IBD physician.

scholarly journals Reproductive Health and Medication Concerns for Patients With Inflammatory Bowel Disease: Thematic and Quantitative Analysis Using Social Listening (Preprint)

2018 ◽  
Author(s):  
Michelle Sophie Keller ◽  
Sasan Mosadeghi ◽  
Erica R Cohen ◽  
James Kwan ◽  
Brennan Mason Ross Spiegel
Keyword(s):  
Inflammatory Bowel Disease ◽  
Social Media ◽  
Reproductive Health ◽  
Bowel Disease ◽  
Medication Use ◽  
Reproductive Age ◽  
Office Visits ◽  
Voluntary Childlessness ◽  
Qualitative Descriptive ◽  
Inflammatory Bowel

BACKGROUND Inflammatory bowel disease (IBD) affects many individuals of reproductive age. Most IBD medications are safe to use during pregnancy and breastfeeding; however, observational studies find that women with IBD have higher rates of voluntary childlessness due to fears about medication use during pregnancy. Understanding why and how individuals with IBD make decisions about medication adherence during important reproductive periods can help clinicians address patient fears about medication use. OBJECTIVE The objective of this study was to gain a more thorough understanding of how individuals taking IBD medications during key reproductive periods make decisions about their medication use. METHODS We collected posts from 3000 social media sites posted over a 3-year period and analyzed the posts using qualitative descriptive content analysis. The first level of analysis, open coding, identified individual concepts present in the social media posts. We subsequently created a codebook from significant or frequently occurring codes in the data. After creating the codebook, we reviewed the data and coded using our focused codes. We organized the focused codes into larger thematic categories. RESULTS We identified 7 main themes in 1818 social media posts. Individuals used social media to (1) seek advice about medication use related to reproductive health (13.92%, 252/1818); (2) express beliefs about the safety of IBD therapies (7.43%, 135/1818); (3) discuss personal experiences with medication use (16.72%, 304/1818); (4) articulate fears and anxieties about the safety of IBD therapies (11.55%, 210/1818); (5) discuss physician-patient relationships (3.14%, 57/1818); (6) address concerns around conception, infertility, and IBD medications (17.38%, 316/1818); and (7) talk about IBD symptoms during and after pregnancy and breastfeeding periods (11.33%, 206/1818). CONCLUSIONS Beliefs around medication safety play an important role in whether individuals with IBD decide to take medications during pregnancy and breastfeeding. Having a better understanding about why patients stop or refuse to take certain medications during key reproductive periods may allow clinicians to address specific beliefs and attitudes during office visits.

scholarly journals P058 The lived experience of family planning of female patients diagnosed with inflammatory bowel disease and their partners during key reproductive stages: a qualitative study

2020 ◽  
Vol 14 (Supplement_1) ◽  
pp. S163-S164
Author(s):  
W Czuber-Dochan ◽  
R Homer ◽  
M Brookes ◽  
C Selinger ◽  
S Purewal ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Family Planning ◽  
Lived Experience ◽  
Bowel Disease ◽  
Normal Population ◽  
Post Partum ◽  
Geographic Location ◽  
Sources Of Information ◽  
Inflammatory Bowel ◽  
The Impact

Abstract Background Inflammatory bowel disease (IBD) is a chronic illness affecting patients in their childbearing years. The physical effects of IBD on fertility and pregnancy in IBD in remission (e.g. disease is well controlled during conception and throughout pregnancy) are similar to the normal population. However, many women with IBD have high pregnancy-related anxieties and are more likely not to have children compared with women without IBD. The reasons cited for not having children include high levels of pregnancy-related anxieties have been insufficiently explored. The study aimed to explore the lived experience of family planning of women with inflammatory bowel disease (IBD) and their partners with or without IBD, during the reproductive stages of pre-conception, pregnancy and the postnatal period. Methods Descriptive phenomenology was used to conduct face-to-face in-depth individual interviews. Purposive sampling was used to select participants with a maximum variation of different demographic and clinical factors, e.g. age, sex, UC/CD diagnosis, disease duration, surgery and geographic location. The NVivo 12 software programme was used to manage the data and Colaizzi’s framework was utilised in thematic data analysis. Results Twenty-four participants (21 women 11CD/10UC and three partners) were recruited from out-patient clinics (22 participants) or through the Crohn’s and Colitis UK website (two participants). Women, average age 31 years old (range 27–38), were at different family planning stages: pre-conception six women (three actively planning family and three voluntarily childless); pregnant eight women and two partners; and postpartum seven women and one partner. Three women’s partners, age 32–39, were recruited allowing for additional perspective of the experience being captured. In total, 19 h of interviews data were collected. Six themes were identified: (1) being diagnosed and controlling IBD symptoms, (2) relationship and family planning, (3) sources of information, (4) worries and concerns about pregnancy, (5) post pregnancy care and problems and (6) ways of improving care. Women in pre-pregnancy stage and pregnant expressed a need for more information around these themes: (1) their medication and the impact of IBD on the baby, (2) the genetic risk of passing the disease on. While pregnant and during post-partum stage, women identified a greater need for practical advice and support in relation to breastfeeding and looking after the baby. Conclusion Information specific to family planning stages need to be provided, to help women and their partners make the informed decision about family planning. Those who decided not to go down the family route also expressed a need for counselling and support.

A Patient Knowledge Questionnaire in Inflammatory Bowel Disease

1993 ◽  
Vol 17 (1) ◽  
pp. 21-24 ◽  
Author(s):  
Susan C. Jones ◽  
Beverley Gallacher ◽  
Alan J. Lobo ◽  
A. T.R. Axon
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Patient Knowledge ◽  
Knowledge Questionnaire ◽  
Inflammatory Bowel

Family planning in inflammatory bowel disease

2018 ◽  
Vol 30 (3) ◽  
pp. 310-315 ◽  
Author(s):  
Jens Walldorf ◽  
Susanne Brunne ◽  
Fleur S. Gittinger ◽  
Patrick Michl
Keyword(s):  
Inflammatory Bowel Disease ◽  
Family Planning ◽  
Bowel Disease ◽  
Inflammatory Bowel

Voluntary childlessness is increased in women with inflammatory bowel disease

2007 ◽  
Vol 13 (5) ◽  
pp. 591-599 ◽  
Author(s):  
Sheetal R. Marri ◽  
Chul Ahn ◽  
Alan L. Buchman
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Voluntary Childlessness ◽  
Inflammatory Bowel

Fear and fertility in inflammatory bowel disease: A mismatch of perception and reality affects family planning decisions

2009 ◽  
Vol 15 (5) ◽  
pp. 720-725 ◽  
Author(s):  
Réme Mountifield ◽  
Peter Bampton ◽  
Ruth Prosser ◽  
Kate Muller ◽  
Jane M. Andrews
Keyword(s):  
Inflammatory Bowel Disease ◽  
Family Planning ◽  
Bowel Disease ◽  
Planning Decisions ◽  
Inflammatory Bowel

Sa1261 Association of Family Planning Issues and Quality of Life and in Inflammatory Bowel Disease

2012 ◽  
Vol 142 (5) ◽  
pp. S-257
Author(s):  
Ali S. Khan ◽  
Lindsay S. Robison ◽  
Sadie Cole ◽  
Robert A. Oster ◽  
Elizabeth Parrish ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Inflammatory Bowel Disease ◽  
Family Planning ◽  
Bowel Disease ◽  
Inflammatory Bowel
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