scholarly journals Bringing Psychosocial Support to Headache Sufferers Using Information and Communication Technology: Lessons Learned from Asking Potential Users What they Want

2014 ◽  
Vol 19 (1) ◽  
pp. e1-e8 ◽  
Author(s):  
Anna Huguet ◽  
Jennifer Stinson ◽  
Bonnie MacKay ◽  
Carolyn Watters ◽  
Michelle Tougas ◽  
...  
Keyword(s):  
Participatory Design ◽  
Psychosocial Support ◽  
Management Strategies ◽  
Psychosocial Interventions ◽  
Daily Basis ◽  
User Preferences ◽  
Lessons Learned ◽  
Easy Access ◽  
Theoretical Frameworks ◽  
Pain Diary

BACKGROUND: Headaches are a major concern for which psychosocial interventions are recommended. However, headache sufferers do not always have ready access to these interventions. Technology has been used to improve access, especially in young people.OBJECTIVES: To examine user preferences to inform the development of an Internet-based psychosocial intervention including smartphone technology, referred to as the Wireless Headache Intervention.METHODS: The methodology followed a participatory design cycle, including 25 headache sufferers (14 to 28 years of age) who informed the prototype design. All participants were familiar with smartphones and the Internet. Through two iterative cycles of focus groups stratified according to age, qualitative data were collected by asking user preferences for the different planned components of the intervention (ie, smartphone pain diary, Internet-based self-management treatment, social support) and other relevant aspects (ie, smartphone versus computer delivery, and ways of reaching target audience). NVivo 8 with content analysis was used to analyze data and reflect themes as guided by the thematic survey.RESULTS: Participants reported a preference for completing the smart-phone pain diary on a daily basis. Participants believed that the program should facilitate easy access to information regarding headaches and management strategies. They also wanted access to other headache sufferers and experts. Participants believed that the program should be customizable and interactive. They reinforced the need and value of an integrated smartphone and Internet-based application.CONCLUSIONS: The results provide insight into a participatory design to guide design decisions for the type of intervention for which success relies largely on self-motivation. The results also provide recommendations for design of similar interventions that may benefit from the integration of mobile applications to Internet-based interventions. The present research contributes to the theoretical frameworks that have been formulated for the development of Internet-based applications.

scholarly journals Effectiveness of self-management interventions in inflammatory arthritis: a systematic review informing the 2021 EULAR recommendations for the implementation of self-management strategies in patients with inflammatory arthritis

RMD Open ◽  
2021 ◽  
Vol 7 (2) ◽  
pp. e001647
Author(s):  
Andréa Marques ◽  
Eduardo Santos ◽  
Elena Nikiphorou ◽  
Ailsa Bosworth ◽  
Loreto Carmona
Keyword(s):  
Systematic Review ◽  
Full Text ◽  
Inflammatory Arthritis ◽  
Data Extraction ◽  
Management Strategies ◽  
Psychosocial Interventions ◽  
Behavioural Therapy ◽  
Self Management ◽  
Cochrane Library ◽  
Management Interventions

ObjectiveTo perform a systematic review (SR) on the effectiveness of self-management interventions, in order to inform the European League Against Rheumatism Recommendations for its implementation in patients with inflammatory arthritis (IA).MethodsThe SR was conducted according to the Cochrane Handbook and included adults (≥18 years) with IA. The search strategy was run in Medline through PubMed, Embase, Cochrane Library, CINAHL Plus with Full Text, and PEDro. The assessment of risk of bias, data extraction and synthesis were performed by two reviewers independently. A narrative Summary of Findings was provided according to the Grading of Recommendations, Assessment, Development and Evaluation.ResultsFrom a total 1577 references, 57 were selected for a full-text review, and 32 studies fulfilled the inclusion criteria (19 randomised controlled trials (RCTs) and 13 SRs). The most studied self-management components were specific interactive disease education in ten RCTs, problem solving in nine RCTs, cognitive–behavioural therapy in eight RCTs, goal setting in six RCTs, patient education in five RCTs and response training in two RCTs. The most studied interventions were multicomponent or single exercise/physical activity in six SRs, psychosocial interventions in five SRs and education in two SRs. Overall, all these specific components and interventions of self-management have beneficial effects on IAs-related outcomes.ConclusionsThe findings confirm the beneficial effect of the self-management interventions in IA and the importance of their implementation. Further research should focus on the understanding that self-management is a complex intervention to allow the isolation of the effectiveness of its different components.

scholarly journals Prioritizing progressive MS rehabilitation research: A call from the International Progressive MS Alliance

2021 ◽  
pp. 135245852199997
Author(s):  
Kathleen M Zackowski ◽  
Jennifer Freeman ◽  
Giampaolo Brichetto ◽  
Diego Centonze ◽  
Ulrik Dalgas ◽  
...  
Keyword(s):  
Symptom Management ◽  
Psychosocial Support ◽  
Management Strategies ◽  
Research Priorities ◽  
Significant Progress ◽  
Call To Action ◽  
Rehabilitation Research ◽  
Relapsing Remitting ◽  
Upper Extremity Impairment

Background: People with multiple sclerosis (MS) experience myriad symptoms that negatively affect their quality of life. Despite significant progress in rehabilitation strategies for people living with relapsing-remitting MS (RRMS), the development of similar strategies for people with progressive MS has received little attention. Objective: To highlight key symptoms of importance to people with progressive MS and stimulate the design and implementation of high-quality studies focused on symptom management and rehabilitation. Methods: A group of international research experts, representatives from industry, and people affected by progressive MS was convened by the International Progressive MS Alliance to devise research priorities for addressing symptoms in progressive MS. Results: Based on information from the MS community, we outline a rationale for highlighting four symptoms of particular interest: fatigue, mobility and upper extremity impairment, pain, and cognitive impairment. Factors such as depression, resilience, comorbidities, and psychosocial support are described, as they affect treatment efficacy. Conclusions: This coordinated call to action—to the research community to prioritize investigation of effective symptom management strategies, and to funders to support them—is an important step in addressing gaps in rehabilitation research for people affected by progressive MS.

Ongoing restoration and management of Las Vegas Wash: an evaluation of success criteria

Water Policy ◽  
2014 ◽  
Vol 16 (4) ◽  
pp. 720-738 ◽  
Author(s):  
Mahesh Gautam ◽  
Kumud Acharya ◽  
Seth A. Shanahan
Keyword(s):  
Las Vegas ◽  
Management Strategies ◽  
Management Program ◽  
Lessons Learned ◽  
Lake Mead ◽  
Channel System ◽  
Las Vegas Valley ◽  
Success Criteria ◽  
Southern Nevada ◽  
Channel Degradation

The Las Vegas Wash is a dynamic channel system that drains the Las Vegas Valley (3,950 km2) into Lake Mead and the lower Colorado River, which provides drinking water to southern California, Arizona, and southern Nevada. In the last few decades the Las Vegas Wash has undergone massive changes in terms of channel degradation and bank erosion followed by recovery and restoration efforts. The evolution of the Las Vegas Wash is interlinked with urbanization, water use, and wastewater discharge. This article reviews the historical dynamics of the Las Vegas Wash in the context of restoration: evaluates the ongoing activities in the Las Vegas Wash against an established framework and success criteria; summarizes lessons learned; and discusses challenges. The ongoing activities in the Las Vegas Wash differ from other regional restoration projects in that there is a lack of an appropriate historical reference to which restoration goals should be targeted. Keys to the success of the Las Vegas Wash restoration and management program appear to be strong interagency collaboration, funding availability, effective outreach and monitoring efforts, and adaptive management strategies based on pragmatic urban values. There is a potential for realignment of existing resources for more practical ecological restoration goals.

Optimizing EMR User Experience: A Human Factors Approach to Hardware Assessment and Design for Inpatient and Emergency Units

2018 ◽  
Vol 7 (1) ◽  
pp. 97-102 ◽  
Author(s):  
Catherine Dulude ◽  
Chantal Trudel ◽  
W. James King ◽  
Karen Macaulay ◽  
Jennifer Gillert ◽  
...  
Keyword(s):  
Electronic Medical Records ◽  
User Satisfaction ◽  
Medical Records ◽  
Participatory Design ◽  
Easy Access ◽  
Just In Time ◽  
Successful Implementation ◽  
End User ◽  
System A ◽  
Emergency Units

Many factors contribute to the successful implementation and adoption of electronic medical records (EMRs). Easy access to the EMR, where and when required by clinicians, is a key component of adoption and end-user satisfaction with the system. A pediatric hospital implementing an integrated EMR used multiple methods within an iterative human-centered design (HCD) framework to develop hardware and access solutions supporting future EMR workflows in Inpatient and Emergency Departments. Context of use analysis, participatory design methods, preliminary analysis of evaluative simulations and tacit knowledge of the project team led to the development of guiding principles for hardware implementation and solutions supporting just-in-time documentation within the constraints of existing facility design.

scholarly journals Partizipative Erarbeitung von Bewirtschaftungsszenarien für den Tessiner Kastaniengürtel

2018 ◽  
Vol 169 (1) ◽  
pp. 18-25
Author(s):  
Francesca Cellina ◽  
Luca Pampuri ◽  
Marco Conedera ◽  
Davide Bettelini ◽  
Rudy Genazzi ◽  
...  
Keyword(s):  
Forest Management ◽  
Interest Groups ◽  
Participatory Design ◽  
Management Strategies ◽  
Additional Benefit ◽  
Forest Planning ◽  
Management Scenarios ◽  
Management Schemes ◽  
Near Future ◽  
Current Guidelines

Participatory design of management scenarios for the Ticino chestnut belt Current guidelines for forest management ask for multi-functional management schemes, allowing a balance between different forest functions, such as production, protection, recreation and ecology. This requires adoption of multi-criteria processes for forest planning. In such a framework, involving stakeholders from the very beginning of the process might be an additional benefit: it would allow to identify possible broadly accepted forest management strategies, thus facilitating their implementation. In this paper, we present the methodologies and tools we developed between 2013 and 2016, in a process aimed at designing and assessing management scenarios for the chestnut belt forests in the Canton of Ticino (Switzerland). Structured and transparent comparison among the scenarios allowed around twenty representatives of cantonal offices and interest groups to make rational and informed choices, leading to the identification of two low-conflict, compromise management scenarios to be implemented in the near future.

scholarly journals 2nd International Arctic Ungulate Conference

Rangifer ◽  
1996 ◽  
Vol 16 (2) ◽  
pp. 49
Author(s):  
A. Anonymous
Keyword(s):  
Population Dynamics ◽  
Behavior Genetics ◽  
Management Strategies ◽  
The United States ◽  
Research Unit ◽  
Federal Agencies ◽  
Lessons Learned ◽  
Ecosystem Level ◽  
Commercial Organizations ◽  
The University

The 2nd International Arctic Ungulate Conference was held 13-17 August 1995 on the University of Alaska Fairbanks campus. The Institute of Arctic Biology and the Alaska Cooperative Fish and Wildlife Research Unit were responsible for organizing the conference with assistance from biologists with state and federal agencies and commercial organizations. David R. Klein was chair of the conference organizing committee. Over 200 people attended the conference, coming from 10 different countries. The United States, Canada, and Norway had the largest representation. The conference included invited lectures; panel discussions, and about 125 contributed papers. There were five technical sessions on Physiology and Body Condition; Habitat Relationships; Population Dynamics and Management; Behavior, Genetics and Evolution; and Reindeer and Muskox Husbandry. Three panel sessions discussed Comparative caribou management strategies; Management of introduced, reestablished, and expanding muskox populations; and Health risks in translocation of arctic ungulates. Invited lectures focused on the physiology and population dynamics of arctic ungulates; contaminants in food chains of arctic ungulates and lessons learned from the Chernobyl accident; and ecosystem level relationships of the Porcupine Caribou Herd.

scholarly journals The VIADUC project: innovation in climate adaptation through service design

2015 ◽  
Vol 12 (1) ◽  
pp. 199-205
Author(s):  
L. Corre ◽  
P. Dandin ◽  
D. L'Hôte ◽  
F. Besson
Keyword(s):  
Rural Areas ◽  
Climate Adaptation ◽  
End Users ◽  
Lessons Learned ◽  
Easy Access ◽  
Climate Projections ◽  
Adaptation To Climate Change ◽  
Economic Sectors ◽  
Major Step ◽  
Climate Services

Abstract. From the French National Adaptation to Climate Change Plan, the "Drias, les futurs du climat" service has been developed to provide easy access to French regional climate projections. This is a major step for the implementation of French Climate Services. The usefulness of this service for the end-users and decision makers involved with adaptation planning at a local scale is investigated. As such, the VIADUC project is: to evaluate and enhance Drias, as well as to imagine future development in support of adaptation. Climate scientists work together with end-users and a service designer. The designer's role is to propose an innovative approach based on the interaction between scientists and citizens. The chosen end-users are three Natural Regional Parks located in the South West of France. The latter parks are administrative entities which gather municipalities having a common natural and cultural heritage. They are also rural areas in which specific economic activities take place, and therefore are concerned and involved in both protecting their environment and setting-up sustainable economic development. The first year of the project has been dedicated to investigation including the questioning of relevant representatives. Three key local economic sectors have been selected: i.e. forestry, pastoral farming and building activities. Working groups were composed of technicians, administrative and maintenance staff, policy makers and climate researchers. The sectors' needs for climate information have been assessed. The lessons learned led to actions which are presented hereinafter.

scholarly journals Updated meta-review of evidence on support for carers

2018 ◽  
Vol 23 (3) ◽  
pp. 196-207 ◽  
Author(s):  
Jane Dalton ◽  
Sian Thomas ◽  
Melissa Harden ◽  
Alison Eastwood ◽  
Gillian Parker
Keyword(s):  
Mental Health ◽  
Systematic Reviews ◽  
Mental Health Problems ◽  
Psychosocial Support ◽  
Psychosocial Interventions ◽  
Negative Effects ◽  
High Quality ◽  
People With Dementia ◽  
Meta Review

Objective To update a 2010 meta-review of systematic reviews of effective interventions to support carers of ill, disabled, or older adults. In this article, we report the most promising interventions based on the best available evidence. Methods Rapid meta-review of systematic reviews published from January 2009 to 2016. Results Sixty-one systematic reviews were included (27 high quality, 25 medium quality, and nine low quality). The quality of reviews has improved since the original review, but primary studies remain limited in quality and quantity. Fourteen high quality reviews focused on carers of people with dementia, four on carers of those with cancer, four on carers of people with stroke, three on carers of those at the end of life with various conditions, and two on carers of people with mental health problems. Multicomponent interventions featured prominently, emphasizing psychosocial or psychoeducational content, education and training. Improved outcomes for carers were reported for mental health, burden and stress, and wellbeing or quality of life. Negative effects were reported in reviews of respite care. As with earlier work, we found little robust evidence on the cost-effectiveness of reviewed interventions. Conclusions There is no ‘one size fits all’ intervention to support carers. There is potential for effective support in specific groups of carers, such as shared learning, cognitive reframing, meditation, and computer-delivered psychosocial support for carers of people with dementia. For carers of people with cancer, effective support may include psychosocial interventions, art therapy, and counselling. Carers of people with stroke may also benefit from counselling. More good quality, theory-based, primary research is needed.

Supporting, tinkering, adjusting and resisting: a typology of user translations of the built environment

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Ahlam Ammar Sharif ◽  
Andrew Karvonen
Keyword(s):  
Architectural Design ◽  
Participant Observation ◽  
User Involvement ◽  
Actor Network Theory ◽  
Daily Basis ◽  
User Preferences ◽  
Building Performance ◽  
Structured Interviews ◽  
Content Type

PurposeArchitectural theorists have a long tradition of acknowledging the centrality of building users to architectural production. This article contributes to the discourse on architecture, actor–network theory (ANT), and users by proposing a typology of user translations ranging from supporting to tinkering to adjusting to resisting.Design/methodology/approachThe research utilises an ANT-inspired ethnography of sustainable lighting scripts at the Masdar Institute of Science and Technology (MIST). It comprises semi-structured interviews with MIST designers and students, and site visits and participant observation to understand how the users interpret the scripts and how they interact and change them on a daily basis.FindingsThere is a shared understanding that users do not simply receive architectural designs but interpret and change them to suit their preferences. The findings reveal the multiple ways that users interpret and respond to the assumptions of designers and in the process, recast the relations between themselves and their material surroundings.Originality/valueThe research contributes to acknowledging the centrality of users to architectural design processes and the interpretation of design scripts, addressing the limitation in current literature in demonstrating the diversity of ways that users react to such scripts. The research suggests that user actions have significant implications on long-term building performance. It accordingly points to the need for devising multiple means of user involvement in the design process and allowing greater flexibility in design scripts to improve the alignment with user preferences.

Sign in / Sign up

Export Citation Format

Share Document