scholarly journals Effectiveness of International Surgical Program Model to Build Local Sustainability

2012 ◽  
Vol 2012 ◽  
pp. 1-6 ◽  
Author(s):  
William P. Magee ◽  
Haley M. Raimondi ◽  
Mark Beers ◽  
Maryanne C. Koech
Keyword(s):  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Local Level ◽  
Models Of Care ◽  
Local Health ◽  
For Profit ◽  
Operation Smile ◽  
Number Of Patients ◽  
Local Capacity ◽  
Local Health Care

Background. Humanitarian medical missions may be an effective way to temporarily overcome limitations and promote long-term solutions in the local health care system. Operation Smile, an international medical not-for-profit organization that provides surgery for patients with cleft lip and palate, not only provides surgery through short-term international missions but also focuses on developing local capacity. Methods. The history of Operation Smile was evaluated globally, and then on a local level in 3 countries: Colombia, Bolivia, and Ethiopia. Historical data was assessed by two-pronged success of (1) treating the surgical need presented by cleft patients and (2) advancing the local capacity to provide primary and ongoing care to patients. Results. The number of patients treated by Operation Smile has continually increased. Though it began by using only international teams to provide care, by 2012, this had shifted to 33% of patients being treated by international teams, while the other 67% received treatment from local models of care. The highest level of sustainability was achieved in Columbia, where two permanent centers have been established, followed by Bolivia and lastly Ethiopia. Conclusions. International missions have value because of the patients that receive surgery and the local sustainable models of care that they promote.

Building Health Communities: Local Health Care Networks in Maryland

2019 ◽  
Vol 50 (1) ◽  
pp. 62-76 ◽  
Author(s):  
Aaron Wachhaus
Keyword(s):  
Health Care ◽  
Local Level ◽  
Collaborative Networks ◽  
Local Health ◽  
Exploratory Research ◽  
The Public ◽  
Health Care Networks ◽  
Local Health Care ◽  
Health Communities ◽  
Treatment Of Obesity

Combatting chronic disease (prevention and treatment of obesity, diabetes, heart health, and stroke) requires action at the local level, both to educate the public and to provide health services. Effective collaboration among local organizations devoted to educating the public about, and treating patients of, these diseases is a key component of successful health care. To better understand local efforts, a social network analysis of five local health care networks spanning eight counties in Maryland was conducted. The purpose of this exploratory research was to discover whether collaborative networks exist at the local level, to map the networks, and to assess their strengths and needs.

Expanding Support Services for Adults Born With Cleft Lip and/or Palate in the United Kingdom: An Exploratory Evaluation of the Cleft Lip and Palate Association Adult Services Programme

2021 ◽  
pp. 105566562110254
Author(s):  
Kenny Ardouin ◽  
Nicky Davis ◽  
Nicola Marie Stock
Keyword(s):  
Health Professionals ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Evidence Base ◽  
Psychosocial Needs ◽  
For Profit ◽  
Adult Services ◽  
The United Kingdom ◽  
Not For Profit ◽  
Valuable Adjunct

Background: The largest group of people living with repaired cleft lip and/or palate (CL/P) are adults. Previous research has identified unmet treatment and psychosocial needs, yet few interventions exist. This article outlines 3 interventions developed by the Cleft Lip and Palate Association as part of its 3-year community-based Adult Services Programme; an Adults Conference, a series of panel discussions (“Cleft Talk”) streamed in podcast/video format, and a Leaver’s Pack of resources for adults wishing to return to cleft care. Methods: Feedback from attendees of the Adults Conferences (2018-2019) was collected using specifically developed evaluation forms. Streaming metrics and social media interactions were extracted for Cleft Talk panel discussions (2019-2020). The Leaver’s Pack was piloted in 2020, using an online evaluation form. Specialist health professionals were invited to provide feedback or participate in a one-to-one interview regarding their perceived impact of the program. Results: All 3 interventions across the different modalities received support from participating adults, demonstrating potential to meet adults’ needs across the life span. Health professionals also offered support for the program, viewing the interventions as a valuable adjunct to formal medical CL/P services. Conclusions: This exploratory evaluation indicates that peer- and community-led interventions, in combination with ongoing access to specialist medical care, can have a range of positive impacts for adults with CL/P. There is scope for similar initiatives to be developed internationally and for individuals with other craniofacial conditions. Not-for-profit organizations are encouraged to routinely evaluate their interventions to create a stronger evidence base for their valuable work.

Global Cleft Lip and Palate Outreach: A Google Trends Analysis

2021 ◽  
pp. 105566562110698
Author(s):  
Joshua P Weissman ◽  
Narainsai K Reddy ◽  
Nikhil D Shah ◽  
Arun K Gosain
Keyword(s):  
Cleft Palate ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
The Philippines ◽  
Google Trends ◽  
World Health ◽  
Patient Awareness ◽  
Number Of Patients ◽  
Who Indicators ◽  
Cleft Surgery

Understanding patient awareness of cleft lip and/or palate (CL/P) and evaluating demand for necessary procedures may serve to better target future efforts in global outreach. We utilized internet search query data from Google Trends for the terms: “cleft lip,” “cleft palate,” “cleft lip and palate,” “cleft surgery,” and “cleft repair” from January 2004 to January 2021. Relative search volumes (RSV) recorded for the top 5 highest displaying countries and top 3 available regions within those countries were compared against global outreach by Operation Smile and Smile Train, as measured by the number of patients treated. World Health Organization (WHO) indicators were used to validate the RSV values for each country and better understand the current infrastructure and need for cleft care in those countries. Globally, there was an increase in RSV for the terms “cleft lip,” “cleft palate,” “cleft repair,” and “cleft surgery” between 2004 and 2021. For “cleft lip,” the countries with the highest displaying RSVs included: Ghana (100%), Zimbabwe (97%), Nepal (78%), the Philippines (64%), and Kenya (52%). Countries with high RSVs and moderate to high WHO indicators included Ghana, Kenya, India, Nigeria, and Zimbabwe. Countries with high RSVs and poor WHO indicators included Nepal and Pakistan. Some countries had specific regions with high search demand that are not currently targeted for global outreach. Using Google Trends’ data may help find more feasible locations and targeted care for efforts in global outreach with better patient awareness and turnout where demand for CL/P is increasing.

scholarly journals Retrospective Study of Infants who Visited Pediatric Dentistry

2020 ◽  
Vol 47 (2) ◽  
pp. 157-166
Author(s):  
Yearang Oh ◽  
Koeun Lee ◽  
Misun Kim ◽  
Okhyung Nam ◽  
Sungchul Choi ◽  
...  
Keyword(s):  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Pediatric Dentistry ◽  
Dental Visit ◽  
Oral Diseases ◽  
Dental Visits ◽  
Number Of Patients ◽  
Dental Hospital ◽  
Oral Symptoms ◽  
Gingival Neoplasm

The first dental visit is recommended at the time of the eruption of the first tooth and no later than 12 months of age. However, even before the age of 1, children can visit the dental hospital for various reasons. The purpose of this study was to analyze the reasons for the dental visit of infant. From January 2006 to December 2015, medical records of infants who visited the Department of Pediatric Dentistry of Kyung Hee University were analyzed. The total number of patients was 419 (238 males and 181 females). The reasons for the dental visits were trauma (47.5%), natal/neonatal tooth (19.8%), dental caries (8.1%), teething problem (4.3%), abnormal frenum (3.6%), soft tissue swelling (3.6%), Bohn’s nodule (3.3%), cleft lip and palate (2.9%), gingival neoplasm (1.9%), tongue ulceration (1.7%), oral examination (1.4%), enamel hypoplasia (1.2%) and abnormal temporomandibular joint sound (0.7%). According to this study, there were various oral diseases that could occur in infants. Since infants are usually cared by caregivers, pediatricians, and obstetricians, education of oral diseases of infants is needed to manage the oral symptoms properly.

scholarly journals The Contribution of a Charitable Organization to Regional Cleft Lip and Palate Services in England and Scotland

2019 ◽  
Vol 57 (1) ◽  
pp. 14-20
Author(s):  
Nicola Marie Stock ◽  
Ella Guest ◽  
Kate Stoneman ◽  
Matthew Ridley ◽  
Claire Evans ◽  
...  
Keyword(s):  
Online Survey ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Local Level ◽  
Support Network ◽  
Charitable Organizations ◽  
Charitable Organization ◽  
Qualitative Feedback ◽  
Regional Service ◽  
The Impact

Background: From diagnosis through to adulthood, a cleft lip and/or palate (CL/P) poses a number of challenges for those affected. Alongside the care provided by clinical teams, complementary information and support is offered by charitable organizations. In 2011, the Cleft Lip and Palate Association received funding to implement a new regional service across England and Scotland, with the aim of increasing support at a local level. The Centre for Appearance Research at the University of the West of England were commissioned to conduct an independent evaluation of the service over 7 years. Methods: A pragmatic, mixed-methods approach was utilized to assess the impact of the service from the perspective of charity volunteers; children, young people, and adults with CL/P; caregivers; and clinicians. Feedback forms were distributed to stakeholders at a variety of events, and qualitative feedback was collected via focus groups and an online survey. Results: The majority of participants indicated they had gained access to a local support network, felt more able to cope with CL/P-related challenges, and felt more confident in themselves. Qualitative investigation provided further support for these findings and highlighted additional benefits of the regional service for clinical teams. Conclusions: The evaluation provides encouraging evidence toward the contribution of a relatively small charitable organization in the context of cleft care. The importance of a pragmatic approach to community-based evaluation and the benefits of collaborative working between researchers and the charitable sector were also highlighted.

Association of MSX1 with Nonsyndromic Cleft Lip and Palate in a Colombian Population

2007 ◽  
Vol 44 (6) ◽  
pp. 653-656 ◽  
Author(s):  
Liliana Otero ◽  
Sandra Gutiérrez ◽  
Margarita Cháves ◽  
C. Vargas ◽  
Luis Bérmudez
Keyword(s):  
Cleft Lip ◽  
Tandem Repeats ◽  
Cleft Lip And Palate ◽  
Positive Association ◽  
Control Group ◽  
Chi Square ◽  
Operation Smile ◽  
Genotype Frequencies ◽  
Cleft Lip Palate ◽  
Group Population

Objective: To evaluate the association between MSX1 CA polymorphism and nonsyndromic cleft lip with or without cleft palate (CL±P) in a group of patients from Operation Smile Colombia. Design: Four alleles from MSX1 CA microsatellite sequence were analyzed. Polymerase chain reaction was carried out. The amplifications were performed by Short Tandem Repeats (STRs) in ABI PRISM 310 genetic analyzer. Chi-square and odds ratio tests were used to determine the association between genotype frequencies and the risk to the cleft lip/palate in a Colombian group population. Setting: Operation Smile Colombia. Participants: Ninety-four affected patients (49 men and 45 women with CL±P) and 93 control individuals (43 men and 50 women). Results: A significant statistical difference (p < .0106) was found between the patients who carried allele 3 and CL±P. In addition, allele 4 (heterozygous and homozygous form) was the most frequent in CL±P (74%) patients and in the control group (82%). Conclusions: These findings show a positive association between the MSX1 CA polymorphism and CL±P in a Colombian group population.

Comparative Evaluation of Two Different Vestibuloplasty Surgical Procedures in Cleft Patients: A Pilot Study

2005 ◽  
Vol 42 (4) ◽  
pp. 439-441 ◽  
Author(s):  
Ana Lúcia Pompéia Fraga de Almeida ◽  
Patrícia Franco Pedro ◽  
Evelyn Mikaela Kogawa ◽  
Tatiana Pereira ◽  
Guilherme Paes de Barros Carrilho ◽  
...  
Keyword(s):  
Pilot Study ◽  
Surgical Procedures ◽  
Comparative Evaluation ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Number Of Patients ◽  
Experimental Group

Objective Patients with a cleft lip or palate often present alterations in the labial aspect of the ridge, resulting in a shallow vestibule. This study compares the results of two different surgical procedures on deepening of the labial sulcus. Interventions Ten patients with a cleft lip and palate were separated into two groups and underwent different vestibuloplasty procedures. An experimental group used a removable retention splint. Preoperative and 4-month postoperative sulcus heights were measured and analyzed statistically. Results No statistically significant differences could be detected between groups. Conclusion The results indicated that to reach consistent results, a larger number of patients must be submitted to this evaluation.

scholarly journals Educating for Change

2019 ◽  
Vol 5 ◽  
Author(s):  
Ian Brooks ◽  
Mario Kossmann ◽  
Virginie Kossmann
Keyword(s):  
Health Care ◽  
United Nations ◽  
Health Care System ◽  
Local Level ◽  
Local Health ◽  
Wide Range ◽  
Local Health Care ◽  
Local Health Care System ◽  
The United Nations ◽  
Care System

The United Nations’ Sustainable Development Goals (SDGs) framework was adopted by every member state of the United Nations in 2015, and, albeit not legally binding, it is arguably one of the greatest steps of humanity to address the identified problems of our time, covering a wide range of topics such as environmental protection, equal opportunities, education, eradication of diseases, famine, poverty, slavery and child labour. Both in terms of its comprehensive scope and its worldwide support, this framework arguably represents one of the most significant international frameworks in human history. Using education related examples from a charity project that is concerned with the development of a local health care system in the African rain forest in Cameroon, this paper illustrates how projects can and should implement key aspects of the SDGs framework pre-emptively within their scope, i.e. at the local level, prior to and in support of the full, legally binding implementation of the framework at the national level. This not only helps to make our world a better place, but also very concretely to reduce project risks, create funding opportunities and make the project’s deliverables more sustainable. The ‘Mahola Project’ (‘Mahola’ means ‘Aid’ in the local Bassa language) was founded in 2013 – following an exploration trip to Cameroon in order to assess the real needs of the population in the deprived area around the village Siliyegue – as a response to meet these needs. The main objective of the project is the development and deployment of a sustainable, integrated, local health care system that is fully aligned with the SDGs and brings about dramatic improvements for the quality of life of the people living there; far beyond ‘just’ providing health care and work opportunities. Education is at the core of the necessary efforts to successfully deliver this system, changing minds and hearts.

scholarly journals Clinical and Descriptive Study of Orofacial Clefts in Colombia: 2069 Patients From Operation Smile Foundation

2021 ◽  
pp. 105566562110005
Author(s):  
Alejandro Silva Espinosa ◽  
Julio Cesar Martinez ◽  
Yubahhaline Molina ◽  
María Alejandra Bermúdez Gordillo ◽  
Daniel Ramos Hernández ◽  
...  
Keyword(s):  
Cleft Lip ◽  
Clinical Presentation ◽  
Cleft Lip And Palate ◽  
Descriptive Study ◽  
Psychomotor Retardation ◽  
Clinical Genetics ◽  
Orofacial Clefts ◽  
Smoking During Pregnancy ◽  
Operation Smile ◽  
Group Family

Objective: To describe the population of patients with cleft lip and/or palate (CL/P) in terms of cleft phenotypes, gender, age, ethnic group, family history, clinical presentation (syndromic vs nonsyndromic), some environmental and behavioral factors, and some clinical features. Design: Descriptive retrospective study. Setting: Patients attending the genetics counseling practice in Operation Smile Foundation, Bogotá, Colombia, for over 8 years. Participants: No screening was conducted. All patients requiring clinical genetics assessment in Operation Smile Foundation were included in the study. Results: Left cleft lip and palate (CLP) and nonsyndromic forms were the most frequent types of malformations in this population. Psychomotor retardation and heart disease were the most frequent comorbidities in these patients. A low proportion of mothers exposed to passive smoking during pregnancy was observed and low birth weight accounted for an important number of cases. Aarskog, velocardiofacial, and orofaciodigital syndromes were the most frequent syndromic forms of CLP in this population. Conclusions: In this study, the most frequent type of CL/P was the nonsyndromic complete left CLP. Aarskog, velocardiofacial, and orofaciodigital syndromes were the most frequent syndromic forms of CL/P in this population.

Timeliness of Primary Cleft Lip/Palate Surgery

2009 ◽  
Vol 46 (6) ◽  
pp. 588-597 ◽  
Author(s):  
Cynthia H. Cassell ◽  
Julie Daniels ◽  
Robert E. Meyer
Keyword(s):  
North Carolina ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Health Department ◽  
Vital Statistics ◽  
Local Health ◽  
Factors Associated ◽  
Time Period ◽  
Cleft Lip Palate ◽  
Cleft Surgery

Objective: To examine the timeliness of primary cleft surgery, mean age at which surgery occurred, and factors associated with timely cleft surgery among children with orofacial clefts (OFCs). Design: Retrospective study of children with OFC using North Carolina vital statistics, birth defects registry, and Medicaid files. Participants/Patients: Medicaid-enrolled North Carolina resident children with OFC born from 1995 to 2002. Main Outcome Measures: Proportion of children who underwent primary cleft surgery within 18 months of life, mean age when surgery occurred, and factors associated with timely surgery. Results: 406 children with OFC were continuously enrolled in Medicaid during the first 2 years of life. Overall, 78.1% of children had surgery within 18 months. About 90% of children with cleft lip (CL), 58.0% of children with cleft palate (CP), and 89.6% of children with cleft lip and palate (CLP) received timely cleft surgery; the mean age at which surgery occurred was 5 months. Children whose mothers received maternity care coordination, received prenatal care at a local health department, or lived in the southeastern or northeastern region of the state were more likely to receive timely cleft surgery. Conclusion: Most children with OFC in North Carolina born during this time period received primary cleft surgery within 18 months of life, but this varied by maternal demographics and other factors.

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