scholarly journals Outcome in children with brain tumours diagnosed in the first year of life: long-term complications and quality of life

2008 ◽  
Vol 93 (7) ◽  
pp. 582-589 ◽  
Author(s):  
N U Gerber ◽  
D Zehnder ◽  
T J Zuzak ◽  
A Poretti ◽  
E Boltshauser ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Brain Tumours ◽  
First Year ◽  
First Year Of Life

scholarly journals Long-term results of treatment of newborns and infants with necrosis and perforation of the stomach and duodenum

2021 ◽  
Vol 11 (1) ◽  
pp. 7-16
Author(s):  
Anastasiia A. Skopetc ◽  
Svetlana A. Karavaeva ◽  
Tatiana K. Nemilova
Keyword(s):  
Quality Of Life ◽  
Nutritional Status ◽  
Neurological Deficits ◽  
Long Term Results ◽  
First Year ◽  
Health Profile ◽  
Results Of Treatment ◽  
First Year Of Life

INTRODUCTION: Necrosis and perforation of the stomach and /or duodenum in newborns and infants is a rare but severe disease with high mortality. There are many theories about the etiology and pathogenesis of the necrosis and perforation of the stomach and duodenum in children of this age. Various treatment options are described, but neither foreign nor Russian publications have assessed the long-term results of the treatment of patients with perforation of the stomach and duodenum during the first year of life and the quality of their life. AIM: This study aimed to analyze the results of treatment of newborns and infants with perforation of the stomach and duodenum and to assess their long-term quality of life. MATERIALS AND METHODS: The study analyzes the long-term results of treatment of 21 children, aged 212 yrs, with perforation of the stomach and duodenum. The volumetric evacuation function of the stomach and duodenum and the childs nutritional status were assessed. A survey of patients and their parents was also carried out to assess the quality of life of the child using questionnaires from the EuroQol Research Foundation version EQ5D-Y. RESULTS: The volumetric evacuation function of the stomach and duodenum recovered completely. The nutritional status of 16 (76%) children corresponds to their age. According to the results of the analysis of the questionnaire of the quality of life, eight patients aged 8 yrs and 15 parents consider the health profile of children as the best (71%), the parents of one patient assess the health profile of their child as satisfactory, and five mothers of children with neurological deficits rated as unsatisfactory. CONCLUSION: Owing to the high adaptation capacity of the newborn and infants of the first year of life, most of the examined patients have a good quality of life and a normal nutritional status. The volumetric evacuation function of the stomach and duodenum recovered in all patients within 13 yrs after surgery.

scholarly journals Valuing Health Status in the First Year of Life: The Infant Health-Related Quality of Life Instrument

2019 ◽  
Vol 22 (6) ◽  
pp. 721-727 ◽  
Author(s):  
Ruslan Jabrayilov ◽  
Karin M. Vermeulen ◽  
Patrick Detzel ◽  
Livia Dainelli ◽  
Antoinette D.I. van Asselt ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Infant Health ◽  
First Year ◽  
Health Related Quality ◽  
Life Instrument ◽  
Related Quality ◽  
Health Related ◽  
First Year Of Life

Asthma-like symptoms in the first year of life and health-related quality of life at age 12 months: the Generation R study

2011 ◽  
Vol 21 (3) ◽  
pp. 545-554 ◽  
Author(s):  
Ashna D. Mohangoo ◽  
Harry J. de Koning ◽  
Johan C. de Jongste ◽  
Jeanne M. Landgraf ◽  
Johannes C. van der Wouden ◽  
...  
Keyword(s):  
Quality Of Life ◽  
First Year ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
First Year Of Life

Comparison of the quality of life in patients with early and long-term rheumatoid arthritis (Preprint)

2020 ◽  
Author(s):  
Lyudmila Sizova
Keyword(s):  
Quality Of Life ◽  
Rheumatoid Arthritis ◽  
Life Quality ◽  
Correct Choice ◽  
First Year ◽  
Early Ra ◽  
Sf 36 ◽  
State Medical Academy

BACKGROUND The research interest is the study of the quality of life of patients with rheumatoid arthritis of different duration. OBJECTIVE The aim of study was to compare the quality of life in patients with early rheumatoid arthritis (RA) against patients with long-term RA. METHODS The study included 164 participants: 114 outpatients with early RA, and 50 outpatients with long-term RA. Assessment of life quality in patients with RA detected impaired parameters of the HAQ, SF-36, QOL-RA Scale already during the first year of the disease. RESULTS The HAQ test found a comparable frequency of severe functional disorders in patients with early and long-term RA. According to the SF-36 questionnaire, patients with early RA suffered from physical pain than patients with long-term RA. The QOL-RA Scale demonstrated that patients in the early stages of the disease, the lowest scores for the "arthritis" and "joint pain", and participants with long-term RA for "health" also. CONCLUSIONS Results indicated that these questionnaires may be used for scientific purposes to identify the most susceptible parameters of the quality of life and to provide benefits for monitoring health status and correct choice of drugs. CLINICALTRIAL The Scientific Council of the Orenburg State Medical Academy (currently the University) approved research in 2005 year (Protocol No. 5). All patients gave their written consent to participate in the scientific study.

Adult outcome after neurosurgical treatment of brain tumours in the first year of life: long-term follow-up of a single consecutive institutional series of 34 patients

2019 ◽  
Vol 161 (9) ◽  
pp. 1793-1798
Author(s):  
Tryggve Lundar ◽  
Bernt Johan Due-Tønnessen ◽  
Radek Frič ◽  
Petter Brandal ◽  
Einar Stensvold ◽  
...  
Keyword(s):  
Brain Tumours ◽  
First Year ◽  
Adult Outcome ◽  
Long Term Follow Up ◽  
Neurosurgical Treatment ◽  
First Year Of Life

Functional Outcomes and Quality of Life in Elderly Patients after Restorative Proctocolectomy for Ulcerative Colitis

Digestion ◽  
2019 ◽  
Vol 101 (6) ◽  
pp. 737-742 ◽  
Author(s):  
Tomohiro Minagawa ◽  
Hiroki Ikeuchi ◽  
Ryuichi Kuwahara ◽  
Yuki Horio ◽  
Hirofumi Sasaki ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Ulcerative Colitis ◽  
Elderly Patients ◽  
Functional Outcomes ◽  
The Elderly ◽  
First Year ◽  
Significant Difference ◽  
Fecal Soiling

<b><i>Background/Aim:</i></b> Ileal pouch anal anastomosis (IPAA) has become the surgical procedure of choice for patients with ulcerative colitis (UC). However, to date few studies have examined functional outcomes or quality of life (QOL) in elderly patients after pouch construction. <b><i>Methods:</i></b> In December 2017, we sent questionnaires to 224 patients aged 65 years and older at the time who underwent an IPAA at our hospital between June 1987 and May 2015 regarding issues related to QOL and functional outcomes. Responders aged 65–69 years old were defined as the elderly group (EG), while those 70 years old and over comprised the super-EG (SEG). <b><i>Results:</i></b> The response rate was 60.7% (136/224); 70 patients were classified as EG, and 66 were classified as SEG. The SEG were older at the time of the IPAA and during the follow-up period (<i>p</i> &#x3c; 0.01). The stool frequency per day was 8 times in both groups (<i>p</i> = 0.21). There was no significant difference between the EG and SEG with regard to daytime (53 vs. 56%, <i>p</i> = 0.73) or nighttime (65.7 vs. 53%, <i>p</i> = 0.16) soiling. There was also no difference in the exacerbation of daytime or nighttime soiling compared to the first year after the operation (daytime 5.7 vs. 12.1%, <i>p</i> = 0.23; nighttime 7.1 vs. 9.1%, <i>p</i> = 0.76). QOL was evaluated using the modified fecal incontinence QOL (mFIQL) scale, with no significant difference between the EG and SEG (27 vs. 31 points). Since both groups had mFIQL scores &#x3c;50, QOL was considered to be maintained. <b><i>Conclusion:</i></b> In our analysis of elderly patients in the long-term period following surgery for UC, some noted fecal soiling, though QOL was largely maintained, and there were no serious effects on daily life.

scholarly journals Quality of Life and Events in the First Year of Life. Results from the Prospective Copenhagen Birth Cohort 1959?61

2006 ◽  
Vol 6 ◽  
pp. 106-115 ◽  
Author(s):  
Søren Ventegodt ◽  
Trine Flensborg-Madsen ◽  
Niels Jørgen Andersen ◽  
Mohammed Morad ◽  
Joav Merrick
Keyword(s):  
Quality Of Life ◽  
Birth Cohort ◽  
Good Life ◽  
Adult Child ◽  
Psychomotor Development ◽  
First Year ◽  
Full Time ◽  
In The Beginning ◽  
First Year Of Life

The objective of this paper was to explore the association between diverse factors occurring during the first year of a child?s life and the quality of life later as an adult. The design was a prospective cohort study based on material from the Copenhagen Birth Cohort 1959–61 with 7,222 participants and two sets of questionnaires used: one by a physician during the child's first year and one by the ?adult child? 31–33 years later. The results showed that a mother's attitude towards her pregnancy, unsuccessful abortions, and/or institutionalization left a permanent trace on the child, since these children, as adults, have a quality of life 3% below the average. Meningitis during the first year of life resulted in a quality of life 11.7% below the average, while other illnesses or accidents did not have an effect. The largest associations were found with psychomotor development, where “walking with support” showed a difference of 14.2% in overall quality of life between the fastest and slowest group. Generally, diet is not correlated with quality of life, however, we find a small, but essential, correlation between the quality of life of the adult and the early cessation of suckling (4%). Full-time institutionalization during the first year of life showed a connection with the quality of life of the adult (7.1%). It is concluded that our quality of life, health and ability as adults are primarily determined by what we ourselves choose to do with our lives as young people and as adults - and only to a marginal degree determined by factors related to our background. This suggests that we as adults have a great freedom to achieve a good life despite our experiences in the beginning of life.

scholarly journals A Longitudinal Study on the Prevalence and Risk Factors for Depression and Anxiety, Quality of Life, and Clinical Outcomes in Incident Peritoneal Dialysis Patients

2019 ◽  
Vol 39 (1) ◽  
pp. 74-82 ◽  
Author(s):  
Maggie M.Y. Mok ◽  
Carmen K.M. Liu ◽  
Man Fai Lam ◽  
Lorraine P. Y. Kwan ◽  
Gary C.W. Chan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Risk Factors ◽  
Peritoneal Dialysis ◽  
Clinical Outcomes ◽  
World Health ◽  
First Year ◽  
Depression And Anxiety ◽  
Younger Age

Background Starting dialysis is an important life event. The prevalence and evolution of psychological symptoms at commencement of long-term dialysis is unclear. We examined the prevalence of and risk factors for depression and anxiety, and the quality of life (QOL) of incident peritoneal dialysis (PD) patients, and also the change of these parameters in the first year of PD in relation to clinical outcomes under the PD-first policy. Methods All patients commencing long-term PD from March 2011 to April 2015 were asked to complete the Hospital Anxiety and Depression Scale (HADS), World Health Organization Quality of Life-BREF and the Kidney Disease Quality of Life Instrument Short Form questionnaire. Patient demographics and the incidence of hospitalization, peritonitis, exit-site infection, and all-cause mortality were studied. The HADS was repeated after 9 – 12 months. Results A high depression score was present in 39.6% of 191 patients at commencement of PD and was more common in diabetes patients (odds ratio [OR] 2.03, 95% confidence interval [CI] 1.09 – 3.81). A high anxiety score was present in 23.6%, and the risk factors included younger age (OR 0.96 per year, 95% CI 0.94 – 0.99) and diabetes (OR 2.59, 95% CI 1.20 – 5.57). Both high depression and anxiety scores were associated with an inferior QOL, overall and across most QOL domains. Depression and anxiety symptoms did not change in the first year of PD and were not associated with short-term clinical outcomes. Conclusions High depression and anxiety scores were prevalent in incident PD patients where PD-first policy is adopted and were associated with inferior QOL. There was no improvement after 1 year of PD. The impact of strategic interventions targeting patient groups at risk such as those with diabetes or of younger age warrants further investigation.

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