Youth and Parent Preferences for an Ideal AP System: It's All About Reducing Burden

2021 ◽  
Author(s):  
Persis V. Commissariat ◽  
Lindsay C. Roethke ◽  
Jennifer L. Finnegan ◽  
Zijing Guo ◽  
Lisa K. Volkening ◽  
...  
Keyword(s):  
Parent Preferences

Patient and parent preferences for orthodontic practices

1999 ◽  
Vol 2 (3) ◽  
pp. 110-123 ◽  
Author(s):  
E. Kenneth Walley ◽  
Stephen L. Silberman ◽  
Orhan C. Tuncay
Keyword(s):  
Parent Preferences

scholarly journals Parent preferences regarding stimulant therapies for ADHD: a comparison across six European countries

2014 ◽  
Vol 23 (12) ◽  
pp. 1189-1200 ◽  
Author(s):  
Beenish Nafees ◽  
Juliana Setyawan ◽  
Andrew Lloyd ◽  
Shehzad Ali ◽  
Sarah Hearn ◽  
...  
Keyword(s):  
European Countries ◽  
Parent Preferences

scholarly journals Qualitative study: patients’ and parents’ views on brain tumour MRIs

2019 ◽  
pp. archdischild-2019-317306 ◽  
Author(s):  
Natalie Tyldesley-Marshall ◽  
Sheila Greenfield ◽  
Susan Neilson ◽  
Martin English ◽  
Jenny Adamski ◽  
...  
Keyword(s):  
Young People ◽  
Brain Tumour ◽  
No Value ◽  
Brain Tumours ◽  
Emotional Responses ◽  
Working Relationships ◽  
Structured Interviews ◽  
Children And Young People ◽  
Parent Preferences ◽  
Over Time

BackgroundMRI is essential to the clinical management of children and young people with brain tumours. Advances in technology have made images more complicated to interpret, yet more easily available digitally. It is common practice to show these to patients and families, but how they emotionally respond to, understand and value, seeing brain tumour MRIs has not been formally studied.MethodsQualitative semi-structured interviews were undertaken with 14 families (8 patients, 15 parents) purposively sampled from paediatric patients (0 to 18 years) attending a large UK children’s hospital for treatment or monitoring of a brain tumour. Transcripts were analysed thematically using the Framework Method.ResultsFour themes were identified: Receiving results (waiting for results, getting results back, preferences to see images), Emotional responses to MRIs, Understanding of images (what they can show, what they cannot show, confusion) and Value of MRIs (aesthetics, aiding understanding, contextualised knowledge/emotional benefits, enhanced control, enhanced working relationships, no value). All families found value in seeing MRIs, including reassurance, hope, improved understanding and enhanced feeling of control over the condition. However emotional responses varied enormously.ConclusionsClinical teams should always explain MRIs after ‘framing’ the information. This should minimise participant confusion around meaning, periodically evident even after many years. Patient and parent preferences for being shown MRIs varied, and often changed over time, therefore clinicians should identify, record and update these preferences. Time between scanning and receiving the result was stressful causing ‘scanxiety’, but most prioritised accuracy over speed of receiving results.

PRO59 Patient and Parent Preferences for Symptom Control in ASMD Type B and A/B Using Best-Worst Scaling Methodology

2021 ◽  
Vol 24 ◽  
pp. S208
Author(s):  
C. Mansfield ◽  
L. Nalysnyk ◽  
D. Joshi ◽  
J. Coulter ◽  
R. Pulikottil-Jacob
Keyword(s):  
Symptom Control ◽  
Type B ◽  
Best Worst Scaling ◽  
Parent Preferences

Parent preferences in young children's doll-play interviews.

1949 ◽  
Vol 44 (4) ◽  
pp. 490-505 ◽  
Author(s):  
R. B. Ammons ◽  
H. S. Ammons
Keyword(s):  
Parent Preferences ◽  
Doll Play

scholarly journals A discrete choice task to measure preferences for harsh discipline among parents of young children

2017 ◽  
Author(s):  
Eric Green ◽  
Rhea Chase ◽  
John Zayzay ◽  
Amy Finnegan ◽  
Eve Puffer
Keyword(s):  
Discrete Choice Experiment ◽  
Response Bias ◽  
Discrete Choice ◽  
Choice Experiment ◽  
Controlled Trial ◽  
Choice Task ◽  
Self Report ◽  
Harsh Discipline ◽  
Increased Risk ◽  
Parent Preferences

Maltreatment in early childhood is difficult to measure. Self-report surveys of parents and guardians are the most common method used, but in many settings social desirabil- ity may lead to underestimates of prevalence. There is also reason to be concerned about response bias in the context of intervention trials. To diversify the tools available to in- tervention researchers, we created and tested a discrete choice experiment to elicit parent preferences for harsh discipline. This study was conducted in Liberia as part of a random- ized controlled trial of a positive parenting program. Baseline data were collected from 609 parents and guardians living in Monrovia and caring for a child age 3 or 4. Participants completed a discrete choice experiment that consisted of 12 parenting vignettes, in addition to a survey of parenting attitudes and behaviors. The vignettes were presented to parents as digital comic strips. Each scene could vary on four attributes: child gender; child offense; setting; number of adults present. For each scene, participants selected 1 of 5 discipline strategies that they would in that situation. The visual discrete choice task was easy to implement, well understood by participants, and has evidence of construct validity as a measure of parent preferences for harsh discipline. Tools like this expand the options for researchers studying the maltreatment of pre-school age children, particularly in the con- text of program evaluations where post-intervention observations may be at increased risk of response bias. It may also be useful in a clinical context.

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