Communication in home care: Understanding the lived experiences of formal caregivers communicating with persons living with dementia

2021 ◽  
Author(s):  
Pabiththa Kamalraj ◽  
Marie Y. Savundranayagam ◽  
J. B. Orange ◽  
Marita Kloseck
Keyword(s):  
Home Care ◽  
Lived Experiences ◽  
Formal Caregivers

scholarly journals A Groupware Tool to Facilitate Caregiving for Home-Dwelling Frail Older Persons in the Netherlands: Mixed-Methods Study (Preprint)

2018 ◽  
Author(s):  
Hanneke Breebaart ◽  
Marjolein Broese van Groenou
Keyword(s):  
The Netherlands ◽  
Home Care ◽  
Digital Communication ◽  
Care Organization ◽  
Care Network ◽  
Formal Caregivers ◽  
Care Recipients ◽  
Frail Older Persons ◽  
Informal Carers

BACKGROUND Collaboration among informal and formal caregivers in a mixed care network of home-dwelling elderly may benefit from using a groupware app for digital networked communication (DNC). OBJECTIVE This study aimed to describe and explain differences in the use and evaluation of a DNC app by members of the care network and to come up with a list of conditions that facilitate (or restrict) the implementation of a DNC app by a home care organization. METHODS A pilot study collected information on digital communication in 7 care networks of clients of a home care organization in the Netherlands. Semistructured interviews with 4 care recipients, 7 informal carers (of which 3 spoke on behalf of the care receiver as well on account of receivers’ suffering from dementia), 3 district nurses, 5 auxiliary nurses, and 3 managers were conducted 3 times in a period of 6 months. In addition, we observed relevant workshops initiated by the home care organization and studied log-in data created by the users of the DNC app. RESULTS The qualitative data and the monthly retrieved quantitative log-in data revealed 3 types of digital care networks: arranging the care network, discuss the care network, and staying connected network. Differences between network types were attributed to health impairment and digital illiteracy of the care recipients, motivation of informal caregivers, and commitment of formal caregivers. The easy availability of up-to-date information, the ability to promote a sense of safety for the carers, and short communication lines in case of complex care situations were positively evaluated. CONCLUSIONS It is concluded that digital communication is beneficial for organizing and discussing the care within a care network. More research is needed to study its impact on care burden of informal carers, on quality of care, and on quality of life of home-dwelling frail older adults.

Journaling among home care workers during the COVID-19 pandemic: A promising method for qualitative data collection

2021 ◽  
pp. 147332502110648
Author(s):  
Julia I Bandini ◽  
Julia Rollison ◽  
Jason Etchegaray
Keyword(s):  
Public Health ◽  
Data Collection ◽  
Home Care ◽  
Lived Experiences ◽  
Health Agency ◽  
The United States ◽  
Lessons Learned ◽  
Future Research ◽  
Care Workers ◽  
Home Care Workers

Qualitative methods that capture individual lived experiences throughout rapidly changing circumstances are particularly important during public health emergencies. The COVID-19 pandemic has put home care workers at risk as they provide vital services in homes to individuals with chronic conditions or disabilities. Using a 6-week journaling process in which we enrolled participants at different points, we sought to examine experiences of home care workers ( n = 47) in the United States in New York and Michigan during April–July 2020 of the COVID-19 pandemic. Our methods for data collection and analysis were guided by a general qualitative approach as we aimed to examine the weekly perspectives and lived experiences of home care workers. We asked individuals to respond to our journaling prompts weekly to capture their reflections in “real time.” To better understand home care workers’ perspectives on journaling and the broader external context in which they provided care, we triangulated our data with interviews with home care workers ( n = 19) and home health agency representatives ( n = 9). We explored the feasibility of a rolling journaling process during an unprecedented public health emergency, characterized by rapid changes and uncertainty in day-to-day life, and reflect on lessons learned to guide future research on journaling for data collection, particularly for marginalized workers during public health crises, when events are evolving rapidly.

District nurses' lived experiences of meeting significant others in advanced home care

2014 ◽  
Vol 29 (1) ◽  
pp. 93-100 ◽  
Author(s):  
Susanna Pusa ◽  
Katharina Hägglund ◽  
Maria Nilsson ◽  
Karin Sundin
Keyword(s):  
Home Care ◽  
Lived Experiences ◽  
Significant Others ◽  
District Nurses ◽  
Advanced Home Care
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