scholarly journals Aiming to be a breastfeeding mother in a neonatal intensive care unit and at home: a thematic analysis of peer-support group discussion in social media

2014 ◽  
Vol 11 (4) ◽  
pp. 712-726 ◽  
Author(s):  
Hannakaisa Niela-Vilén ◽  
Anna Axelin ◽  
Hanna-Leena Melender ◽  
Sanna Salanterä
Keyword(s):  
Intensive Care Unit ◽  
Social Media ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Peer Support ◽  
Support Group ◽  
Thematic Analysis ◽  
Neonatal Intensive Care ◽  
Group Discussion ◽  
Peer Support Group

A Mixed Methods Analysis of Parental Perspectives on Diagnosis and Prognosis of Neonatal Intensive Care Unit Graduates With Cerebral Palsy

2020 ◽  
Vol 35 (5) ◽  
pp. 336-343
Author(s):  
Katherine Guttmann ◽  
John Flibotte ◽  
Sara B. DeMauro ◽  
Holli Seitz
Keyword(s):  
Intensive Care Unit ◽  
Cerebral Palsy ◽  
Content Analysis ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Thematic Analysis ◽  
Neonatal Intensive Care ◽  
Free Text ◽  
Word Count ◽  
Linguistic Inquiry

This study aimed to evaluate how parents of former neonatal intensive care unit patients with cerebral palsy perceive prognostic discussions following neuroimaging. Parent members of a cerebral palsy support network described memories of prognostic discussions after neuroimaging in the neonatal intensive care unit. We analyzed responses using Linguistic Inquiry and Word Count, manual content analysis, and thematic analysis. In 2015, a total of 463 parents met eligibility criteria and 266 provided free-text responses. Linguistic Inquiry and Word Count analysis showed that responses following neuroimaging contained negative emotion. The most common components identified through the content analysis included outcome, uncertainty, hope/hopelessness, and weakness in communication. Thematic analysis revealed 3 themes: (1) Information, (2) Communication, and (3) Impact. Parents of children with cerebral palsy report weakness in communication relating to prognosis, which persists in parents’ memories. Prospective work to develop interventions to improve communication between parents and providers in the neonatal intensive care unit is necessary.

scholarly journals Peer Support Group for Intensive Care Unit Survivors: Perceptions on Supportive Recovery in the Era of Social Distancing

2021 ◽  
Vol 18 (1) ◽  
pp. 177-182
Author(s):  
Caroline L. Lassen-Greene ◽  
Mina Nordness ◽  
Amy Kiehl ◽  
Abigail Jones ◽  
James C. Jackson ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Peer Support ◽  
Support Group ◽  
Social Distancing ◽  
Peer Support Group

scholarly journals THE MEANINGS OF CARING FOR PRE-TERM CHILDREN IN THE VISION OF MALE PARENTS

2016 ◽  
Vol 25 (4) ◽  
Author(s):  
Rachel Leite de Souza Ferreira Soares ◽  
Marialda Moreira Christoffel ◽  
Elisa da Conceição Rodrigues ◽  
Maria Estela Diniz Machado ◽  
Adriana Loureiro da Cunha
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Gender Equity ◽  
Thematic Analysis ◽  
Neonatal Intensive Care ◽  
Paternal Care ◽  
Structured Interviews ◽  
Term Infants ◽  
Ethnographic Approach

ABSTRACT The purposes of the study was to analyze the meanings assigned by the father to the assistance of pre-term infants in a Neonatal Intensive Care Unit and to discuss how these meanings influence paternal care. It is a qualitative study with an ethnographic approach, carried out in a neonatal unit in Rio de Janeiro. Twenty-two fathers whose pre-term infants were hospitalized have been interviewed. Data were collected by means of a field logbook, participative observation and semi-structured interviews. Through thematic analysis, the inferred categories were a) father-child proximity and the permanence at the Neonatal Intensive Care Unit: overcoming obstacles and revealing motivations, b) the inclusion of fathers in caring for pre-term children: limits and possibilities. Nurses should favor the proximity of fathers and newborns to strengthen their relationship. The intensivist care neonatal practice should include strategies to support male parenting in pre-term birth considering the perspective of gender equity.

Letter to the Editor

PEDIATRICS ◽  
1994 ◽  
Vol 93 (6) ◽  
pp. 1024-1025
Author(s):  
Helen Harrison
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Neonatal Intensive Care Unit ◽  
Peer Support ◽  
Neonatal Intensive Care ◽  
Relevant Information ◽  
Systematic Investigation ◽  
Neonatal Care ◽  
Family Diversity ◽  
Family Centered

Dr Katcher brings up some important issues related to family diversity that were very much on the minds of the parents who drafted "The Principles for Family-Centered Neonatal Care.1 Rather than isolate these issues into separate principles, however, we chose to incorporate them throughout the document. To address misunderstandings that arise from differences in the backgrounds of parents and staff, we have made a number of proposals including: active encouragement for families to discuss their views with caregivers, full parental access to relevant information, courses in communication for perinatal and neonatal prpfessionals, peer support in the neonatal intensive care unit, and systematic investigation into the issue of how parents with differing needs can best be served by various formats of information.

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