Living with schizophrenia: Health-related quality of life among primary family caregivers

2017 ◽  
Vol 26 (23-24) ◽  
pp. 5151-5159 ◽  
Author(s):  
Chiu-Yueh Hsiao ◽  
Chun-Te Lee ◽  
Huei-Lan Lu ◽  
Yun-Fang Tsai
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Primary Family

scholarly journals Health-related quality of life of family caregivers—Evidence from Hesse

2010 ◽  
Vol 19 (3) ◽  
pp. 269-280 ◽  
Author(s):  
Birgit Rösler-Schidlack ◽  
Harald Stummer ◽  
Herwig Ostermann
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Health-Related Quality of Life and Caregiver Burden among Peritoneal Dialysis Patients and Their Family Caregivers in Japan

2003 ◽  
Vol 23 (2_suppl) ◽  
pp. 200-205 ◽  
Author(s):  
Setsuko Shimoyama ◽  
Orie Hirakawa ◽  
Keiko Yahiro ◽  
Toshimi Mizumachi ◽  
Andrea Schreiner ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Peritoneal Dialysis ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Short Form ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Objective Recent studies have found that patients with chronic renal failure suffer from depression and other symptoms of decreased mental health. However, little is know about caregiver burden and mental health among patients’ families. In the present study, we examined the relationship in Japan between peritoneal dialysis (PD) patients and caregivers with regard to health-related quality of life (HRQOL) and caregiver burden. Method In March of 2002, we recruited 60 subjects—26 patients on continuous ambulatory peritoneal dialysis (CAPD), and 34 caregivers—from a PD patient support group in southern Japan. We used the Kidney Disease Quality of Life Short Form (KDQOL-SF) and the Medical Outcomes Study Short Form 36 (SF-36) to measure HRQOL. We used the Zarit Burden Interview (ZBI) to measure caregiver burden. Data was also collected on each patient's duration of illness, treatment modality, age, sex, and medical history. All data were collected by mail surveys. Results Mean age of the PD patients was 48.2; mean age of the caregivers was 46.6. Mean caregiver burden on the ZBI was 14.1, which is considerably lower than that reported among caregivers for patients with dementia or stroke. Caregivers and patients both rated their general health and vitality among the lowest of the eight dimensions on the KDQOL-SF. In addition, patients scored lower than a normative population in all dimensions and significantly lower than caregivers in the dimensions of role physical functioning, role emotional functioning, and social functioning. Compared to national normative data for their age group, caregivers scored substantially lower in general health, vitality, and mental health. Conclusions Patients on CAPD are at risk for social role dysfunction, and their caregivers are at risk for decreased mental health. Further research is needed to identify interventions that can improve the HRQOL of CAPD patients and their family caregivers.

scholarly journals Analyzing the situation of older family caregivers with a focus on health-related quality of life and pain: a cross-sectional cohort study

2020 ◽  
Vol 18 (1) ◽  
Author(s):  
Cecilia Fagerström ◽  
Sölve Elmståhl ◽  
Lena Sandin Wranker
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Pain Intensity ◽  
Family Caregivers ◽  
Health Related Quality ◽  
Related Quality ◽  
Lower Pain ◽  
Health Related ◽  
Mental Hrqol

Abstract Background For a significant proportion of the older population, increasing age is associated with health problems and worsening health. Older family caregivers are largely responsible for care of next-of-kin living at home, which impacts their own physical and mental health both positively and negatively. However, evidence is insufficient regarding the health situation of older caregivers. The aim of this study was to investigate health-related quality of life (HRQoL) and pain, and their associations, among caregivers aged ≥60 years. Methods The participants (n = 3444) were recruited from the Swedish National Study on Aging and Care-Blekinge and Good Aging in Skåne during 2001–2004. Participants aged ≥60 years were selected randomly and underwent cognitive tests, with demographic information obtained through questionnaires. The response rate was 60%. A predefined research protocol was used. HRQoL was measured with the Short-Form Health Survey, dimension mental health. Logistic regression models were used to investigate the associations between HRQoL and pain as well as control factors. Results Family caregiving was reported by 395 (11.5%) of the participants, and 56.7% of the caregivers reported pain. Family caregivers reported lower pain intensity on the Visual Analogue Scale and were younger, on median, than non-caregivers. Irrespective of caregiver status, pain was associated with mental HRQoL. Concerns about personal health and financial status had the strongest associations with mental HRQOL in both groups, but the levels were higher among caregivers. Conclusion Pain was one factor associated with low HRQoL regardless of family caregiver status and remained important when controlling for factors related to advanced age. This finding remained among family caregivers, though they reported lower pain intensity. Factors other than pain were shown to be important to mental HRQoL and should also be taken into consideration when discussing actions for family caregivers to maintain and improve health and HRQoL. Trial registration number Not applicable.

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