scholarly journals The role and activities of the Traveller mental health liaison nurse: Findings from a multi‐stakeholder evaluation

Author(s):  
Karin O’Sullivan ◽  
Anne Marie Brady ◽  
Carmel Downes ◽  
Agnes Higgins ◽  
Louise Doyle ◽  
...  
2020 ◽  
Vol 41 (9) ◽  
pp. 799-806
Author(s):  
Brian Keogh ◽  
Anne Marie Brady ◽  
Carmel Downes ◽  
Louise Doyle ◽  
Agnes Higgins ◽  
...  

2019 ◽  
Author(s):  
Rosa Spencer-Tansley ◽  
Nick Meade ◽  
Farhana Ali ◽  
Amy Simpson ◽  
Amy Hunter

Abstract Background: Rare disease patients and carers report significant impacts on mental health but this has not been extensively studied. We explored the experiences of UK-based individuals through an online survey, and offer recommendations for policy and practice developed with a multi-stakeholder workshop.Results: In total 1,355 patients and 571 carers responded to the survey. Due to their rare condition, the majority of respondents had felt worried/anxious (95%); stressed (93%); low/depressed (90%); emotionally exhausted (88%). Thirty-six percent of patients and 19% of carers had had suicidal thoughts. Challenges that are particular to rare conditions and which negatively affect mental health included low knowledge of the condition amongst healthcare professionals (88%), not being believed or taken seriously by healthcare professionals (80%), and lack of available information about the condition (76%). Only 23% of respondents felt mental health was considered by healthcare professionals as equally important as physical health. Almost half of patients (46%) and carers (48%) reported never having been asked about their mental health, or that of the person they care for, by healthcare professionals. Forty-six percent of respondents had received professional psychological support; the most common reason for not having accessed professional psychological support was that it had not been suggested (41%). Fifty-nine percent of respondents had accessed sources of additional emotional support, such as patient groups, with the majority (75%) having found this support themselves. With input from our multi-stakeholder workshop we developed recommendations for healthcare professionals to be supported to effectively and sensitively recognise and address patients’ and carers’ mental health needs; and for service level coordination of care to integrate professional psychological support with rare disease services.Conclusions: Living with a rare disease can substantially impact mental health. Many of the drivers of poor mental health reflect issues specific to managing rare conditions. To meet existing UK government commitments, there should be a focus on empowering healthcare professionals who treat rare disease patients and on integration of mental health support with rare disease services.


2020 ◽  
Author(s):  
Agnes Higgins ◽  
Carmel Downes ◽  
Rebecca Murphy ◽  
Jennifer Barry ◽  
Mark Monahan ◽  
...  

Abstract Background: Psychoeducation provides a range of benefits to service users with severe mental health illness and their family members. A lack of engagement with mental health services may lead to poorer outcomes and increased healthcare costs. Few studies have explored the problem of engagement in relation to group psychoeducation from a multi-site and multi-stakeholder perspective. Methods: The aim of the study was to explore the factors influencing service user and family engagement with group psychoeducation programmes. The study design was qualitative descriptive. Data were collected through individual and focus group interviews with key stakeholders (n=75) involved with the programme within 14 mental health sites in the Republic of Ireland. Results: Enablers and barriers to engagement were identified at participant, provider and programme level. Motivated participants and clinicians, peer co-facilitation and support, and skilled and responsive facilitators were some of the factors which enhanced engagement. Barriers to engagement included a lack of motivation and readiness among participants, concerns related to stigma and confidentiality, a lack of support for programme participation within families, group discomfort, issues with accessing transport, the time and length of the programme being unsuitable for some participants and a lack of capacity among clinicians.Conclusion: Findings from the study illustrate the multifaceted nature of engagement as well as provide a greater understanding of the multifactorial influences on engagement. Strategies to enhance engagement should therefore reflect a multipronged approach. At the outset of programme implementation, organizations should address their readiness to engage, conduct local needs assessments to anticipate individuals’ needs and plan accordingly in order to maximize engagement, and bolster facilitators’ engagement skills through the provision of training and mentoring opportunities.


2020 ◽  
Vol 29 (6) ◽  
pp. 1202-1217
Author(s):  
Timothy Wand ◽  
Gemma Collett ◽  
Alexa Cutten ◽  
Sally Buchanan‐Hagen ◽  
Amanda Stack ◽  
...  

2017 ◽  
Vol 17 (1) ◽  
Author(s):  
Pooja Lagisetty ◽  
Laura Flamm ◽  
Summer Rak ◽  
Jessica Landgraf ◽  
Michele Heisler ◽  
...  

Sign in / Sign up

Export Citation Format

Share Document