Editorial endorsement of good research practices

2021 ◽  
Vol 54 (12) ◽  
pp. 2332-2333
Author(s):  
Rafael Sarkis‐Onofre ◽  
Lara Dotto ◽  
Tatiana Pereira‐Cenci ◽  
Bernardo Antonio Agostini
Keyword(s):  
Research Practices ◽  
Good Research

scholarly journals Measuring What Matters for Children: A Systematic Review of Frequently Used Pediatric Generic PRO Instruments

2021 ◽  
Author(s):  
Tasneem Arsiwala ◽  
Nuzhat Afroz ◽  
Kattayoun Kordy ◽  
Christel Naujoks ◽  
Francesco Patalano
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Clinical Studies ◽  
Task Force ◽  
Emotional Health ◽  
Research Practices ◽  
European Collaboration ◽  
Patient Reported ◽  
Good Research

Abstract Objective To provide an assessment of the quality of the most frequently used self-reported, generic patient-reported outcome measures (PROMs) that measure health-related quality of life (HRQoL) in children against the good research practices recommended by ISPOR task force for the pediatric population. Method Literature search was conducted on OvidSP database to identify the generic pediatric PROMs used in published clinical studies. The quality of PROMs used in more than ten clinical studies were descriptively evaluated against the ISPOR task force’s good research practices. Results Six PROMs were evaluated, namely Pediatric Quality-of-Life inventory 4.0 (PedsQL), Child Health Questionnaire (CHQ), KIDSCREEN, KINDL, DISABKIDS and Child Health and Illness Profile (CHIP). All PROMs, except KIDSCREEN, had versions for different age ranges. Domains of physical, social, emotional health and school activities were common across all the instruments, while domains of family activities, parent relations, independence, and self-esteem were not present in all. Children’s input was sought during the development process of PROMs. Likert scales were used in all the instruments, supplemented with faces (smileys) in instruments for children under 8 years. KIDSCREEN and DISABKIDS were developed in a European collaboration project considering the cross-cultural impact during development. Conclusion The comparison of the instruments highlights differences in the versions for different pediatric age groups. None of the PROMs fulfill all the good research practices recommended by the ISPOR task force. Further research is needed to define which age-appropriate domains are important for older children and adolescents.

scholarly journals Improving Model Validation in Health Technology Assessment: Comments on Guidelines of the ISPOR-SMDM Modeling Good Research Practices Task Force

2013 ◽  
Vol 16 (6) ◽  
pp. 1106-1107 ◽  
Author(s):  
Pepijn Vemer ◽  
P.F.M. Krabbe ◽  
T.L. Feenstra ◽  
G.A.K. Van Voorn ◽  
Corro Ramos ◽  
...  
Keyword(s):  
Health Technology Assessment ◽  
Model Validation ◽  
Technology Assessment ◽  
Task Force ◽  
Health Technology ◽  
Research Practices ◽  
Good Research

scholarly journals Striving for State of the Art with Paradigm Interplay and Meta-Synthesis: Purpose-oriented Network Research Challenges and Good Research Practices as a Way Forward

2019 ◽  
Vol 2 (3) ◽  
pp. 175-186 ◽  
Author(s):  
Robin H Lemaire ◽  
Remco S Mannak ◽  
Sonia M Ospina ◽  
Martijn Groenleer
Keyword(s):  
Public Sector ◽  
State Of The Art ◽  
Research Field ◽  
Research Practices ◽  
The Public ◽  
Research Perspectives ◽  
Current State ◽  
Research Challenges ◽  
Network Research ◽  
Good Research

Abstract With the growing amount and increasing heterogeneity of research on purpose-oriented networks (PONs) in the public sector, it is imperative to find a way to synthesize this research. Drawing on the varied research perspectives on PONs, we advance the idea of paradigm interplay and meta-synthesis as aspirations for the field and argue this is especially key if we want the study of PONs to inform practice. However, we recognize several challenges in the current state of the PON research that prevent the field from making strides in paradigm interplay and meta-synthesis. We discuss six challenges which we consider the most critical: different labels, differences across research foci, variation in measurement, the nestedness of networks, the dynamism of networks, and variation in the network context. We suggest six good research practices that could contribute to overcoming the challenges now so as to make integration of the research field more of a possibility in the future.

scholarly journals Modeling Good Research Practices—Overview: A Report of the ISPOR-SMDM Modeling Good Research Practices Task Force-1

2012 ◽  
Vol 15 (6) ◽  
pp. 796-803 ◽  
Author(s):  
J. Jaime Caro ◽  
Andrew H. Briggs ◽  
Uwe Siebert ◽  
Karen M. Kuntz
Keyword(s):  
Task Force ◽  
Research Practices ◽  
Good Research

scholarly journals Modeling using Discrete Event Simulation: A Report of the ISPOR-SMDM Modeling Good Research Practices Task Force-4

2012 ◽  
Vol 15 (6) ◽  
pp. 821-827 ◽  
Author(s):  
Jonathan Karnon ◽  
James Stahl ◽  
Alan Brennan ◽  
J. Jaime Caro ◽  
Javier Mar ◽  
...  
Keyword(s):  
Discrete Event Simulation ◽  
Task Force ◽  
Discrete Event ◽  
Research Practices ◽  
Event Simulation ◽  
Good Research
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