scholarly journals Modeling Good Research Practices—Overview: A Report of the ISPOR-SMDM Modeling Good Research Practices Task Force-1

2012 ◽  
Vol 15 (6) ◽  
pp. 796-803 ◽  
Author(s):  
J. Jaime Caro ◽  
Andrew H. Briggs ◽  
Uwe Siebert ◽  
Karen M. Kuntz
Keyword(s):  
Task Force ◽  
Research Practices ◽  
Good Research

scholarly journals Measuring What Matters for Children: A Systematic Review of Frequently Used Pediatric Generic PRO Instruments

2021 ◽  
Author(s):  
Tasneem Arsiwala ◽  
Nuzhat Afroz ◽  
Kattayoun Kordy ◽  
Christel Naujoks ◽  
Francesco Patalano
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Clinical Studies ◽  
Task Force ◽  
Emotional Health ◽  
Research Practices ◽  
European Collaboration ◽  
Patient Reported ◽  
Good Research

Abstract Objective To provide an assessment of the quality of the most frequently used self-reported, generic patient-reported outcome measures (PROMs) that measure health-related quality of life (HRQoL) in children against the good research practices recommended by ISPOR task force for the pediatric population. Method Literature search was conducted on OvidSP database to identify the generic pediatric PROMs used in published clinical studies. The quality of PROMs used in more than ten clinical studies were descriptively evaluated against the ISPOR task force’s good research practices. Results Six PROMs were evaluated, namely Pediatric Quality-of-Life inventory 4.0 (PedsQL), Child Health Questionnaire (CHQ), KIDSCREEN, KINDL, DISABKIDS and Child Health and Illness Profile (CHIP). All PROMs, except KIDSCREEN, had versions for different age ranges. Domains of physical, social, emotional health and school activities were common across all the instruments, while domains of family activities, parent relations, independence, and self-esteem were not present in all. Children’s input was sought during the development process of PROMs. Likert scales were used in all the instruments, supplemented with faces (smileys) in instruments for children under 8 years. KIDSCREEN and DISABKIDS were developed in a European collaboration project considering the cross-cultural impact during development. Conclusion The comparison of the instruments highlights differences in the versions for different pediatric age groups. None of the PROMs fulfill all the good research practices recommended by the ISPOR task force. Further research is needed to define which age-appropriate domains are important for older children and adolescents.

scholarly journals Improving Model Validation in Health Technology Assessment: Comments on Guidelines of the ISPOR-SMDM Modeling Good Research Practices Task Force

2013 ◽  
Vol 16 (6) ◽  
pp. 1106-1107 ◽  
Author(s):  
Pepijn Vemer ◽  
P.F.M. Krabbe ◽  
T.L. Feenstra ◽  
G.A.K. Van Voorn ◽  
Corro Ramos ◽  
...  
Keyword(s):  
Health Technology Assessment ◽  
Model Validation ◽  
Technology Assessment ◽  
Task Force ◽  
Health Technology ◽  
Research Practices ◽  
Good Research

scholarly journals Modeling using Discrete Event Simulation: A Report of the ISPOR-SMDM Modeling Good Research Practices Task Force-4

2012 ◽  
Vol 15 (6) ◽  
pp. 821-827 ◽  
Author(s):  
Jonathan Karnon ◽  
James Stahl ◽  
Alan Brennan ◽  
J. Jaime Caro ◽  
Javier Mar ◽  
...  
Keyword(s):  
Discrete Event Simulation ◽  
Task Force ◽  
Discrete Event ◽  
Research Practices ◽  
Event Simulation ◽  
Good Research

scholarly journals State-Transition Modeling: A Report of the ISPOR-SMDM Modeling Good Research Practices Task Force-3

2012 ◽  
Vol 15 (6) ◽  
pp. 812-820 ◽  
Author(s):  
Uwe Siebert ◽  
Oguzhan Alagoz ◽  
Ahmed M. Bayoumi ◽  
Beate Jahn ◽  
Douglas K. Owens ◽  
...  
Keyword(s):  
State Transition ◽  
Task Force ◽  
Research Practices ◽  
Transition Modeling ◽  
Good Research
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