scholarly journals Validation of an Indian (Kannada) translation of the Family Impact Scale questionnaire and the impact of malocclusion on the families of adolescent school children

2020 ◽  
Vol 70 (4) ◽  
pp. 259-265
Author(s):  
Kalaiselvi Vinayagamoorthy ◽  
Kalyana Chakravarthy Pentapati ◽  
Arun Urala ◽  
Shashidhar Acharya
2020 ◽  
Vol 57 (11) ◽  
pp. 1291-1297
Author(s):  
Caitlin M. Agnew ◽  
Lyndie A. Foster Page ◽  
Sally Hibbert ◽  
William M. Thomson

Objective: To describe the association between children’s orofacial cleft (OFC) and families’ quality of life (QoL), using the short-form Family Impact Scale questionnaire (FIS-SF). Also assessed were the psychometric properties of the FIS-SF, as well as whether certain demographic and clinical variables impacted the family. Design: Observational cross-sectional study. Setting: Tertiary care public children’s hospital in New South Wales, Australia. Participants: Parents/caregivers of children with OFC. Main outcome measure(s): The short-form Family Impact Scale questionnaire. Results: Two hundred and fourteen parents completed the FIS-SF. Excellent convergent validity was evident, but discriminant validity was weaker. Those children with velopharyngeal insufficiency/submucous cleft reported lower scores on the family/parental activity, and lower overall family impact scores than those with cleft lip (CL) or cleft palate (CP). Those with cleft lip and palate (CL/P) had poorer family/parental activity scores than those with CP. There were no systematic differences in FIS-SF scores by the child’s age, gender, private health insurance, living location, the number of cleft-related operations, or whether a child had commenced orthodontic treatment. Conclusions: The FIS-SF is a valid and reliable measure for determining the impact that OFC has on family QoL. The impact of OFC on children’s families differs according to cleft type.


Author(s):  
R. Knapp ◽  
Z. Marshman ◽  
F. Gilchrist ◽  
H. Rodd

Abstract Objective To assess the impact of dental caries and treatment under general anaesthetic (GA) on the everyday lives of children and their families, using child-reported measures of quality of life (QoL) and oral health-related quality of life (OHRQoL). Method Participants, aged 5–16 years old having treatment for dental caries under GA, were recruited from new patient clinics at Charles Clifford Dental Hospital, Sheffield. OHRQoL was measured before and 3-months after treatment using the Caries Impacts and Experiences Questionnaire for Children (CARIES-QC). Overall QoL was measured using the Child Health Utility 9D (CHU9D). Parents/caregivers completed the Family Impact Scale (FIS). Results Eighty five parent–child dyads completed the study. There was statistically significant improvement in OHRQoL (mean interval score difference in CARIES-QC = 4.43, p < 0.001) and QoL (mean score difference in CHU9D = 2.48, p < 0.001) following treatment, with moderate to large effect sizes. There was statistically significant improvement in FIS scores (mean score difference = 5.48, p = 0.03). Conclusions Treatment under GA was associated with improvement in QoL and OHRQoL as reported by children, and reduced impacts on the family. This work highlights the importance of GA services in reducing the caries-related impacts experienced by children. Further work is needed investigate the impact of clinical, environmental and individual factors.


2020 ◽  
pp. 105566562096237 ◽  
Author(s):  
John M. D. Thompson ◽  
S. Louise Ayrey ◽  
Rebecca F. Slykerman ◽  
Peter R. Stone ◽  
Peter V. Fowler

Objective: To determine the level of quality of life (QoL) in children with cleft lip and/or palate (CL/P) and whether this differs by cleft phenotype. Design: A cohort of children with CL/P born in New Zealand. Setting: A nationwide study of children born with CL/P and having primary surgery in New Zealand. Participants: Children with CL/P and their families (n = 397) who attended a cleft clinic between October 1, 2014, and September 30, 2017, and agreed to complete questionnaires on QoL. Main Outcomes: Primary outcomes were QoL from the PedsQL 4.0 core generic questionnaires and the PedsQL 2.0 Family impact scale. Results: Children with CL/P in New Zealand generally have a high QoL as assessed by the PedsQL. The impact of cleft phenotype had limited effects on the child, however there were significant impacts on parents and families. We found that the family impact scale differed by cleft phenotype with those with CL having the highest QoL and those with cleft palate the lowest, and this was consistent across QoL subscales. Quality of life improved as a whole by age, particularly in physical and cognitive functioning, as well as in the ability to undertake family activities. Conclusions: Children with CL/P have generally good levels of QoL in New Zealand, however cleft phenotype impacts on the level, with the lowest levels in those with cleft palate. Psychological support of children with cleft and their families should be an integral part of cleft care.


2016 ◽  
Vol 18 (2) ◽  
pp. 364 ◽  
Author(s):  
Leidy Lozano-Avendaño ◽  
Alix Zoraida Bohórquez-Ortiz ◽  
Gloria Esperanza Zambrano-Plata

ResumenIntroducción: La mortalidad materna es considerada un indicador sensible al desarrollo social, porque muchas de estas muertes ocurren por razones evitables, vinculadas a condiciones de pobreza. Hay datos estadísticos sobre el número de muertes maternas a nivel internacional y local, que resaltan la magnitud del problema, así como el conocimiento científico de las causas de estos fallecimientos; pero escasa información publicada sobre el impacto familiar y el desequilibrio que se produce cuando ocurre una muerte materna, situación que trae consigo desconocimiento sobre la real situación de los hijos huérfanos y la familia. Objetivo: Conocer las implicaciones familiares y sociales de la muerte materna a través de la revisión sistemática de la literatura científica publicada. Materiales y métodos: Se realizó una búsqueda en las bases de datos incluidas en los servicios LILACS, ProQuest, MEDLINE y en la biblioteca virtual de salud SciELO. La muestra final fue de 20 artículos. Resultados: Los estudios mostraron que la pérdida inesperada de la madre genera consecuencias emocionales, económicas y de salud en todos los miembros del hogar. Conclusiones: Los hallazgos indican que esta problemática debe ser abordada de manera integral con el fin de mitigar el impacto que genera la muerte materna. AbstractIntroduction: Maternal mortality is considered a sensitive indicator of social development, as many of these deaths occur for preventable reasons, linked to poverty. There is statistical data on the number of internationally and locally maternal deaths, which highlights the magnitude of the problem as well as the scientific knowledge of the causes of these deaths; but there is limited published information on the family impact and imbalance that occurs when a maternal death occurs, which leads to lack of knowledge about the real situation of orphaned children and family. Objective: To know the family and social implications of maternal death through a systematic review of the published scientific literature. Materials and methods: A search in the databases including LILACS, PROQUEST, MEDLINE services and virtual health library SCIELO was conducted. The final sample consisted of 20 articles. Results: The studies showed that the unexpected loss of the mother generates emotional, economic and health consequences for all household members. Conclusions: The findings indicate that this problem must be addressed comprehensively in order to mitigate the impact generated by maternal death. 


Children ◽  
2021 ◽  
Vol 8 (7) ◽  
pp. 586
Author(s):  
Mir Faeq Ali Quadri ◽  
Fatimah Rasheed M. Jaafari ◽  
Noha Ahmed A. Mathmi ◽  
Nouf Hassan F. Huraysi ◽  
Maryam Nayeem ◽  
...  

The impact of poor oral health may not just be limited to the children themselves but can impact their families. The current study aims to perform psychometric analyses of the Arabic version of the Family Impact Scale and investigate the association of its domains with the oral health status of children. This cross-sectional study was carried out in a sample of 500 parent-child dyads from high schools of Jazan city of the Kingdom of Saudi Arabia. The Arabic version of the Family Impact Scale was subjected to reliability and validity tests. The explanatory variables in the current study are: the oral health status, parents combined income, parents’ education, age and sex of the child. The descriptive analysis was reported using proportions, this was followed by the bivariate and multivariable analyses. About 24.2% of children were reported to have fair, poor, and very poor oral health. A lower frequency of family impact corresponded with better oral health (OH) status of children (p < 0.001). The likelihood of parent’s taking time off from work and having financial difficulties was nearly two-times greater if their children had poor oral health. Similarly, interruption in sleep and other normal activities of parents is four times and five times greater, respectively, if the child has poor oral health status. Thus, the poor oral health of school children in the Jazan region of Saudi Arabia is a matter of grave concern as it is observed to be associated with family impacts; particularly affecting the parent’s work, sleep, and other normal family activities.


Author(s):  
Alyne Aparecida Ferreira Freitas ◽  
Ivone Félix de Sousa ◽  
Júlia da Paixão Oliveira Mello e Pargeo ◽  
Antonio Márcio Teodoro Cordeiro Silva ◽  
Rogério José de Almeida

Objetiva-se avaliar o impacto familiar em pais de crianças diagnosticadas com microcefalia pelo Zika vírus. Trata-se deum estudo transversal analítico com abordagem quantitativa, utilizando-se de um questionário sociodemográfico e aescala de impacto familiar (EIF). Foram pesquisados 76 pais com filhos em tratamento de reabilitação e readaptaçãoem um centro de referência de Goiânia/GO. Foram realizadas análises descritivas utilizando-se frequência relativa eabsoluta, média e desvio padrão. O teste utilizado para avaliar a existência ou não de diferença estatisticamente significativa (p≤0,05) foi a análise de variância (ANOVA) Scheffé. O pré-natal foi o período predominante do recebimentodo diagnóstico de microcefalia. Foi evidenciado uma dificuldade por parte dos pais em encontrar pessoas de confiançapara cuidar do filho, bem como, falta de compreensão de outras pessoas pelo fardo que é cuidar do filho deficiente.Os participantes que apresentaram maior tendência em empreender atividades com amigos, festas e bares, também semostraram mais propensos a atividades físicas e de lazer. Após o choque inicial do recebimento do diagnóstico, os paispassam reorganizar e adaptar aos desafios, alterando a rotina familiar. É fundamental o envolvimento dos profissionaisde saúde, fornecendo suporte e orientação a essas famílias.Palavra-chave: Infecção pelo Zika vírus; Microcefalia; Saúde da Família. ABSTRACTAimed to evaluate the family impact in parents of children diagnosed with microcephaly by the Zika virus. This is a crosssectional analytical study with a quantitative approach, using a sociodemographic questionnaire and the Family Impact Scale(FIA). A total of 76 parents with children in rehabilitation and rehabilitation treatment were surveyed at a reference centerin Goiânia / GO. Descriptive analyzes were performed using relative and absolute frequency, mean and standard deviation.The test used to evaluate the existence or not of a statistically significant difference (p≤0.05) was the analysis of variance(ANOVA) Scheffé. Prenatal care was the predominant period for the diagnosis of microcephaly. It was evidenced a difficultyfor the parents to find reliable people to take care of the child, as well as lack of understanding of others for the burdenof caring for the disabled child. Participants who showed a greater tendency to engage in activities with friends, parties andbars were also more prone to physical and leisure activities. After the initial shock of receiving the diagnosis, the parentsreorganize and adapt to the challenges, changing the family routine. The involvement of health professionals is essential,providing support and guidance to these families.Keywords: Zika Virus infection; Microcephaly; Family health.


2020 ◽  
pp. JNM-D-20-00008
Author(s):  
Hayley Henrikson Estrem ◽  
Britt Frisk Pados ◽  
Jinhee Park ◽  
Suzanne Thoyre ◽  
Cara McComish ◽  
...  

Background and PurposeFamilies of children with feeding disorder face significant challenges in supporting their child’s feeding, growth, and development. The Feeding Impact Scales were developed to assess how child feeding impacts parent and family.MethodsItems were adapted from an existing scale. Parents of children with feeding difficulty completed the online survey. Item response theory (IRT) analyses were used to evaluate and reduce items. Internal consistency reliability, convergent validity, and readability were tested.ResultsIRT analyses (n = 317) identified 12 items for the Parent Impact and 13 items for the Family Impact. Internal reliability for the scales were acceptable. Convergent validity was supported.ConclusionsThe Feeding Impact Scales have evidence of reliability and validity. They can be utilized in practice and research.


2009 ◽  
Vol 17 (5) ◽  
pp. 397-403 ◽  
Author(s):  
Taís de Souza Barbosa ◽  
Maria Beatriz Duarte Gavião

2014 ◽  
Vol 3 (1) ◽  
pp. 29-34 ◽  
Author(s):  
Ashley E. Nordsletten ◽  
Lorena Fernández de la Cruz ◽  
Helena Drury ◽  
Sana Ajmi ◽  
Sana Saleem ◽  
...  

Author(s):  
Ludmila Sevcikova ◽  
Jana Babjakova ◽  
Jana Jurkovicova ◽  
Martin Samohyl ◽  
Zuzana Stefanikova ◽  
...  

ETS exposure has been shown as an important environmental risk factor in vulnerable population groups. The aim of the project is to analyze the relationships among the ETS and behavior and health in 6&minus;15-year-old children in Slovakia. The status of physical and mental health of children in relation to exposure to tobacco smoke was examined in the representative group of 1478 school children. The methods used, included anonymous questionnaires filled in by parents, Columbia Impairment Scale (CIS), Behavior Problem Index (BPI) and anthropometry. The prevalence of passive smoking is the highest in the capital (27%) and southern cities. Significant relationships have been confirmed between ETS and the age, socio-economic status, the incompleteness of the family, the level of mother's education and the significantly higher prevalence of respiratory diseases (26.7%).The relationships of ETS with emotional (CIS scores &ge;16) and behavioral functions (BPI score &ge;14) were significant in children exposed to mother&lsquo;s and father&lsquo;s smoking at home. In the multivariate analysis this association was not significant; the factors such as income and completeness of the family were dominant. The results confirmed the impact of ETS and social factors on health state and health behavior and could be the argumentation for legislative changes.


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