scholarly journals Perspectives of self-direction: a systematic review of key areas contributing to service users’ engagement and choice-making in self-directed disability services and supports

2016 ◽  
Vol 26 (3) ◽  
pp. 295-313 ◽  
Author(s):  
Ali Lakhani ◽  
Donna McDonald ◽  
Heidi Zeeman
Keyword(s):  
Systematic Review ◽  
Disability Services ◽  
Service Users ◽  
Choice Making ◽  
Services And Supports

Systematic review of the role of service users as researchers in mental health studies

2005 ◽  
Vol 14 (4) ◽  
pp. 217-226 ◽  
Author(s):  
Giovanni Salvi ◽  
Julia Jones ◽  
Mirella Ruggeri
Keyword(s):  
Mental Health ◽  
Systematic Review ◽  
Mental Health Service ◽  
Health Service ◽  
User Involvement ◽  
Active Role ◽  
Research Process ◽  
Service Development ◽  
Service Users ◽  
Stage Of Development

SUMMARYAims – Service user involvement in mental health service development and research is becoming more common in countries like the UK. USA and Canada. This systematic review of the international scientific literature has been carried out to assess the stage of development of mental health service users involvement in research. Method – Systematic review of any research project actively involving service users in any part of the research process. Results – Thirty-five studies met the inclusion and exclusion criteria and were included in the systematic review. Nine studies used quantitative techniques, 24 used qualitative techniques and two studies used both quantitative and qualitative techniques. While three studies were user-led, in three other studies the users were simply consulted but did not have any active role in the research. The remaining 29 studies were based on a collaboration between service users and professional researchers. Conclusions – The involvement of mental health service users in the research process is feasible both in quantitative and qualitative research studies. The involvement of service users in research has a number of benefits; such research requires more accurate planning and more time than the traditional research.Declaration of Interest: none.

scholarly journals Recovery From Severe Mental Health Problems: A Systematic Review of Service User and Informal Caregiver Perspectives

2021 ◽  
Vol 12 ◽  
Author(s):  
Norha Vera San Juan ◽  
Petra C. Gronholm ◽  
Margaret Heslin ◽  
Vanessa Lawrence ◽  
Matthew Bain ◽  
...  
Keyword(s):  
Mental Health ◽  
Systematic Review ◽  
Low Income ◽  
Mental Health Problems ◽  
Health Problems ◽  
Social Needs ◽  
Low Income Countries ◽  
Service Development ◽  
Service Users ◽  
Personal Recovery

Introduction: The recovery approach aims to have users' perspectives at the heart of service development and research; it is a holistic perspective that considers social needs, personal growth and inclusion. In the last decade recovery-oriented research and practice has increased greatly, however, a comprehensive model of recovery considering exclusively the perspectives of people with lived experience has not been devised.Aims: This review aimed to develop a framework and contextualize service users' and informal caregivers' understanding of recovery from severe mental health problems.Methods: We systematically searched 6 databases including key terms related to knowledge, experience and narratives AND mental health AND personal recovery. The search was supplemented with reference sourcing through gray literature, reference tracking and expert consultation. Data analysis consisted of a qualitative meta-synthesis using constant comparative methods.Results: Sixty-two studies were analyzed. A pattern emerged regarding the recovery paradigms that the studies used to frame their findings. The resulting recovery framework included the domains Social recovery; Prosperity (Legal, political, and economic recovery); Individual Recovery; and Clinical Recovery Experience (SPICE). Service users' definitions of recovery tended to prioritize social aspects, particularly being accepted and connecting with others, while caregivers focused instead on clinical definitions of recovery such as symptom remission. Both groups emphasized individual aspects such as becoming self-sufficient and achieving personal goals, which was strongly linked with having economic means for independence.Conclusions: The recovery model provided by this review offers a template for further research in the field and a guide for policy and practice. Predominant definitions of recovery currently reflect understandings of mental health which focus on an individual perspective, while this review found an important emphasis on socio-political aspects. At the same time, only a small number of studies took place in low-income countries, focused on minoritized populations, or included caregivers' perspectives. These are important gaps in the literature that require further attention.Systematic Review Registration: The review protocol was registered on PROSPERO (CRD42017076450); https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=76450.

scholarly journals Provider and LGBT Individuals’ Perspectives on LGBT Issues in Long-Term Care: A Systematic Review

2019 ◽  
Vol 60 (3) ◽  
pp. e169-e183 ◽  
Author(s):  
Billy A Caceres ◽  
Jasmine Travers ◽  
Jillian E Primiano ◽  
Rachel E Luscombe ◽  
Caroline Dorsen
Keyword(s):  
Systematic Review ◽  
Older Adults ◽  
The United States ◽  
Lgbt Health ◽  
Term Care ◽  
Lgbt Issues ◽  
Services And Supports ◽  
Meta Analyses ◽  
Lgbt Individuals

Abstract Background and Objectives Discrimination toward the lesbian, gay, bisexual and transgender (LGBT) population has raised concerns about the type of long-term services and supports (LTSS) that will be available to them as they age. To understand the unique needs of aging LGBT populations, we sought to synthesize and critique the evidence related to LTSS providers and LGBT individuals’ perspectives of LGBT issues in LTSS in the United States. Research Design and Methods Following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses, a systematic review of the literature was conducted. The Crowe Critical Appraisal Tool was used to appraise the quality of the included studies. Results Nineteen studies met inclusion criteria. Seven studies that examined the perspectives of LTSS providers identified two themes, including that they lack knowledge and training on LGBT health issues and generally report negative attitudes toward same-sex relations among older adults. In addition, 12 studies that examined the perspectives of LGBT individuals found that they (i) are concerned about LTSS planning, (ii) fear discrimination from providers in LTSS, and (iii) identify several strategies for improving care of LGBT older adults receiving LTSS. Discussion and Implications This systematic review highlights the importance for LTSS providers to receive training in LGBT health and be reflective of potential biases toward the LGBT population. LGBT individuals identified concerns related to LTSS planning and fear of discrimination from LTSS providers. LGBT individuals also identified a need for increased training of providers to improve the care of LGBT older adults in LTSS.

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