scholarly journals Patient and public involvement in mental health research: En route to maturity?

2021 ◽  
Vol 24 (S1) ◽  
pp. 1-2
Author(s):  
Alison Faulkner ◽  
Mary Chambers
Keyword(s):  
Mental Health ◽  
Health Research ◽  
Public Involvement ◽  
Patient And Public Involvement ◽  
Mental Health Research

scholarly journals Patient and Public Involvement in Youth Mental Health Research: Protocol for a Systematic Review of Practices and Impact

2021 ◽  
Vol 12 ◽  
Author(s):  
Célia M. D. Sales ◽  
Filipa Martins ◽  
Marisa M. Alves ◽  
Sara Carletto ◽  
Sonia Conejo-Cerón ◽  
...  
Keyword(s):  
Mental Health ◽  
Young People ◽  
Systematic Reviews ◽  
Health Research ◽  
Public Involvement ◽  
Relevant Information ◽  
Patient And Public Involvement ◽  
Mental Health Research ◽  
Children And Young People ◽  
Meta Analyses

Various health settings have advocated for involving patients and members of the public (PPI) in research as a means to increase quality and relevance of the produced knowledge. However, youth PPI has been an understudied area. This protocol paper describes a new project that aims to summarize what is known about PPI with young people in mental health research. In line with the Preferred Reporting Items for Systematic reviews and Meta-Analyses Statement guidelines we will identify and appraise suitable articles and extract and synthesize relevant information including at least two reviewers at each stage of the process. Results will be presented in two systematic reviews that will describe (a) how youth PPI has been conducted (Review1) and (b) what impact youth PPI had on the subsequent research and on stakeholders (Review2). To our knowledge, this is the first set of reviews that uses a critical appraisal tool, which is co-developed with children and young people. Findings from this project will provide valuable insights and set out the key steps to adopting adequate PPI methods when involving children and young people in mental health research.

scholarly journals A feasibility evaluation of Discovery Group: determining the acceptability and potential outcomes of a patient-led research group in a secure mental health inpatient setting

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Anne Aboaja ◽  
Oluwatosin Atewogboye ◽  
Mudassar Arslan ◽  
Lucia Parry-Newton ◽  
Lindsey Wilson
Keyword(s):  
Mental Health ◽  
Health Research ◽  
Public Involvement ◽  
Patient And Public Involvement ◽  
Potential Outcomes ◽  
Inpatient Setting ◽  
Mental Health Setting ◽  
Inpatient Mental Health ◽  
Inpatient Settings ◽  
High Level

Abstract Background Patient and public involvement and engagement (PPIE) is recognised as an essential part of health research. In addition to providing an opportunity for patients to shape health research and acquire research skills, in the inpatient mental health setting, PPIE may have additional value in providing meaningful activity and enhancing recovery, as defined using connectedness, hope, identity, meaning and empowerment (CHIME) principles. However, there have been challenges in applying PPIE principles in secure mental health inpatient settings. An eight -session PPIE programme (“Discovery Group”) was designed to support patient-led research in a secure mental health hospital. This feasibility study aims to evaluate the acceptability of the programme from the perspective of patients and identify potential outcomes. Methods A retrospective single-arm post-programme evaluation of Discovery Group was undertaken. Participants attended an evaluation workshop where they were interviewed individually to complete an acceptability questionnaire designed using the domains of the Theoretical Framework of Acceptability. Participants also completed an outcomes questionnaire, which included CHIME-based recovery items, and were invited to share their ideas for programme improvement on posters. Quantitative data were analysed descriptively. Direct content analysis was applied to qualitative data. Results In our sample, eight participants attended at least one session of the discovery group with one patient attending all sessions. Most of the participants felt positive about taking part in the group and expressed interest in joining another group in future. All participants experienced some burden from the effort required during group sessions, but a low level of opportunity cost in terms of the extent to which they perceived they had to forfeit benefits to participate in the programme.. Some described the group as effective in helping them learn about research. Of the five CHIME recovery domains, only connectedness was reported as a benefit of the group. The participants valued the opportunity to use their time well and demonstrate that they were undertaking purposeful activity as part of their rehabilitation and recovery. Conclusions Discovery Group is a tool to overcome barriers to effective PPIE in research in a secure inpatient mental health setting. The programme has a high level of acceptability among participants and offered several potential outcomes which require testing through further study.

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