scholarly journals Understanding multi‐stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed‐methods study

2021 ◽  
Vol 24 (2) ◽  
pp. 601-616
Author(s):  
Stuart D Faulkner ◽  
Suzanne Sayuri Ii ◽  
Chi Pakarinen ◽  
Fabian Somers ◽  
Maria Jose Vicente Edo ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Patient Engagement ◽  
Mixed Methods Study ◽  
Effective Practices ◽  
Medicine Development ◽  
Multi Stakeholder ◽  
Stakeholder Needs

scholarly journals Evaluation of patient engagement in medicine development: A multi‐stakeholder framework with metrics

2021 ◽  
Vol 24 (2) ◽  
pp. 491-506
Author(s):  
Lidewij Eva Vat ◽  
Teresa Finlay ◽  
Paul Robinson ◽  
Giorgio Barbareschi ◽  
Mathieu Boudes ◽  
...  
Keyword(s):  
Patient Engagement ◽  
Medicine Development ◽  
Multi Stakeholder

scholarly journals Impact of Age on Patients’ Communication and Technology Preferences in the Era of Meaningful Use: Mixed Methods Study (Preprint)

2019 ◽  
Author(s):  
Martina A Clarke ◽  
Ann L Fruhling ◽  
Marilyn Sitorius ◽  
Thomas A Windle ◽  
Tamara L Bernard ◽  
...  
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Mixed Methods ◽  
Patient Engagement ◽  
Medication Reconciliation ◽  
Senior Citizens ◽  
Mixed Methods Study ◽  
Middle Aged ◽  
Aged Patients ◽  
Communication And Technology

BACKGROUND Identifying effective means of communication between patients and their health care providers has a positive impact on patients’ satisfaction, adherence, and health-related outcomes. OBJECTIVE This study aimed to identify the impact of patients’ age on their communication and technology preferences when managing their health. We hypothesize that a patient’s age affects their communication and technology preferences when interacting with clinicians and managing their health. METHODS A mixed methods study was conducted to identify the preferences of patients with cardiovascular diseases. Results were analyzed based on the patients’ age. Grounded theory was used to analyze the qualitative data. Patients were recruited based on age, gender, ethnicity, and zip code. RESULTS A total of 104 patients were recruited: 34 young adults (19-39 years), 33 middle aged (40-64), and 37 senior citizens (&gt;65). Young adults (mean 8.29, SD 1.66) reported higher computer self-efficacy than middle-aged participants (mean 5.56, SD 3.43; <i>P</i>&lt;.05) and senior citizens (mean 47.55, SD 31.23; <i>P</i>&lt;.05). Qualitative analysis identified the following three themes: (1) patient engagement (young adults favored mobile technologies and text messaging, middle-aged patients preferred phone calls, and senior citizens preferred direct interactions with the health care provider); (2) patient safety (young adults preferred electronic after-visit summaries [AVS] and medication reconciliation over the internet; middle-aged patients preferred paper-based or emailed AVS and medication reconciliation in person; senior citizens preferred paper-based summaries and in-person medication reconciliation); (3) technology (young adults preferred smartphones and middle-aged patients and senior citizens preferred tablets or PCs). Middle-aged patients were more concerned about computer security than any other group. A unique finding among senior citizens was the desire for caregivers to have access to their personal health record (PHR). CONCLUSIONS Patients of different ages have different communication and technology preferences and different preferences with respect to how they would like information presented to them and how they wish to interact with their provider. The PHR is one approach to improving patient engagement, but nontechnological options need to be sustained to support all patients.

scholarly journals The PUPPY Study - Protocol for a Longitudinal Mixed Methods Study Exploring Problems Coordinating and Accessing Primary Care for Attached and Unattached Patients Exacerbated During the COVID-19 Pandemic Year

2021 ◽  
Author(s):  
Emily Gard Marshall ◽  
Mylaine Breton ◽  
Benoit Cossette ◽  
Jennifer Isenor ◽  
Maria Mathews ◽  
...  
Keyword(s):  
Primary Care ◽  
Mixed Methods ◽  
Nurse Practitioners ◽  
Qualitative Interviews ◽  
Mixed Methods Study ◽  
Specialist Care ◽  
Policy And Practice ◽  
Care Systems ◽  
Multi Stakeholder ◽  
The Impact

Background: The COVID-19 pandemic significantly disrupted primary care in Canada, with many walk-in clinics and family practices initially closing or being perceived as inaccessible, pharmacies remaining open with restrictions on patient interactions, rapid uptake of virtual care, and reduced referrals for lab tests, diagnostics, and specialist care. The PUPPY Study seeks to understand the impact of COVID-19 across the quadruple aim of primary care, with particular focus on the impacts on patients without attachment to a regular provider and those with chronic health conditions. Methods: The PUPPY study builds on an existing research program exploring patient access and attachment to primary care, pivoted to adapt to the emerging COVID-19 context. We will undertake a longitudinal mixed methods study to understand critical gaps in primary care access and coordination, comparing data pre- and post-pandemic in three Canadian provinces (Quebec, Ontario, and Nova Scotia). Multiple data sources will be used including: a policy review; qualitative interviews with primary care policymakers, providers (i.e., family physicians, nurse practitioners, and pharmacists), and patients (N=120); and medication prescribing and healthcare billings. The findings will inform the strengthening of primary care during and beyond the COVID-19 pandemic. Interpretation: This is the first study of its kind exploring the impacts of COVID-19 on primary care systems, with particular focus on the issues of patient's attachment and access to primary care. Our multi-stakeholder, cross-jurisdictional team will collaborate to rapidly disseminate findings and share implications for future policy and practice.

scholarly journals Living labs for patient engagement and knowledge exchange: an exploratory sequential mixed methods study to develop a living lab in paediatric rehabilitation

BMJ Open ◽  
2021 ◽  
Vol 11 (5) ◽  
pp. e041530
Author(s):  
Mandy M Archibald ◽  
Kristy Wittmeier ◽  
Matthew Gale ◽  
Florencia Ricci ◽  
Kelly Russell ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Patient Engagement ◽  
Knowledge Exchange ◽  
Mixed Methods Study ◽  
Integrated Analysis ◽  
Prototype Development ◽  
Sequential Mixed Methods ◽  
Living Lab ◽  
Living Labs ◽  
Paediatric Rehabilitation

IntroductionDespite recognition of the importance of patient engagement in research and knowledge translation, systematic approaches to engagement and co-ideation remain limited. Living labs are collaborative knowledge sharing systems that use multimethod, user-centred approaches that hold potential to catalyse these aims. However, their use in healthcare is limited, and no living lab has been developed in paediatric rehabilitation. In response to this gap and to propel innovative knowledge exchange, we propose a mixed methods study to co-develop a living lab prototype (ie, preliminary infrastructure with opportunity for scale up) in paediatric rehabilitation, with relevance to other healthcare contexts.MethodsAn exploratory sequential mixed methods study will be undertaken to determine research and knowledge exchange priorities and to inform the development of the living lab prototype. Stage 1: we will use a multipronged approach to sample 18–21 youth with developmental differences or rehabilitation needs, their youth siblings and parents/guardians from a provincial paediatric rehabilitation centre, to participate in qualitative and arts-based data collection. Data will provide insight into desirable features of the living lab. Stage 2: E-surveys to youth, siblings, parents/guardians and clinicians who receive or provide services at this same centre will expand on priorities and living lab features. Stage 3: integrated analysis will inform the living lab prototype development.AnalysisInductive thematic analysis using interpretive description, integrated analysis of visual data and descriptive and content analysis of e-survey data will be undertaken. Joint displays will facilitate data integration. Priorities will be identified using a modified rank-order method for each key living lab domain.Ethics and disseminationInstitutional ethics and site approval have been granted. A parent advisory group and rehabilitation engineering partners will confer on data and inform the development of the living lab prototype. User engagement with the prototype will occur during an online or in-person event, and findings shared through non-technical research summaries, journal articles and academic presentations.

scholarly journals Multi-stakeholder perspectives on access, availability and utilization of emergency obstetric care services in Lagos, Nigeria: A mixed-methods study

2017 ◽  
Author(s):  
Aduragbemi Banke-Thomas ◽  
Kikelomo Wright ◽  
Olatunji Sonoiki ◽  
Onaedo Ilozumba ◽  
Babatunde Ajayi ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Health Workers ◽  
Qualitative Interviews ◽  
Emergency Obstetric Care ◽  
Obstetric Care ◽  
Mixed Methods Study ◽  
Clinical Aspects ◽  
Care Organization ◽  
Stakeholder Perspectives ◽  
Multi Stakeholder

Globally, Nigeria is the second most unsafe country to be pregnant, with Lagos, its economic nerve center having disproportionately higher maternal deaths than the national average. Emergency obstetric care (EmOC) is effective in reducing pregnancyrelated morbidities and mortalities. This mixed-methods study quantitatively assessed women’s satisfaction with EmOC received and qualitatively engaged multiple key stakeholders to better understand issues around EmOC access, availability and utilization in Lagos. Qualitative interviews revealed that regarding access, while government opined that EmOC facilities have been strategically built across Lagos, women flagged issues with difficulty in access, compounded by perceived high EmOC cost. For availability, though health workers were judged competent, they appeared insufficient, overworked and felt poorly remunerated. Infrastructure was considered inadequate and paucity of blood and blood products remained commonplace. Although pregnant women positively rated the clinical aspects of care, as confirmed by the survey, satisfaction gaps remained in the areas of service delivery, care organization and responsiveness. These areas of discordance offer insight to opportunities for improvements, which would ensure that every woman can access and use quality EmOC that is sufficiently available.

scholarly journals Impact of Age on Patients’ Communication and Technology Preferences in the Era of Meaningful Use: Mixed Methods Study

10.2196/13470 ◽  
2020 ◽  
Vol 22 (6) ◽  
pp. e13470 ◽  
Author(s):  
Martina A Clarke ◽  
Ann L Fruhling ◽  
Marilyn Sitorius ◽  
Thomas A Windle ◽  
Tamara L Bernard ◽  
...  
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Mixed Methods ◽  
Patient Engagement ◽  
Medication Reconciliation ◽  
Senior Citizens ◽  
Mixed Methods Study ◽  
Middle Aged ◽  
Aged Patients ◽  
Communication And Technology

Background Identifying effective means of communication between patients and their health care providers has a positive impact on patients’ satisfaction, adherence, and health-related outcomes. Objective This study aimed to identify the impact of patients’ age on their communication and technology preferences when managing their health. We hypothesize that a patient’s age affects their communication and technology preferences when interacting with clinicians and managing their health. Methods A mixed methods study was conducted to identify the preferences of patients with cardiovascular diseases. Results were analyzed based on the patients’ age. Grounded theory was used to analyze the qualitative data. Patients were recruited based on age, gender, ethnicity, and zip code. Results A total of 104 patients were recruited: 34 young adults (19-39 years), 33 middle aged (40-64), and 37 senior citizens (>65). Young adults (mean 8.29, SD 1.66) reported higher computer self-efficacy than middle-aged participants (mean 5.56, SD 3.43; P<.05) and senior citizens (mean 47.55, SD 31.23; P<.05). Qualitative analysis identified the following three themes: (1) patient engagement (young adults favored mobile technologies and text messaging, middle-aged patients preferred phone calls, and senior citizens preferred direct interactions with the health care provider); (2) patient safety (young adults preferred electronic after-visit summaries [AVS] and medication reconciliation over the internet; middle-aged patients preferred paper-based or emailed AVS and medication reconciliation in person; senior citizens preferred paper-based summaries and in-person medication reconciliation); (3) technology (young adults preferred smartphones and middle-aged patients and senior citizens preferred tablets or PCs). Middle-aged patients were more concerned about computer security than any other group. A unique finding among senior citizens was the desire for caregivers to have access to their personal health record (PHR). Conclusions Patients of different ages have different communication and technology preferences and different preferences with respect to how they would like information presented to them and how they wish to interact with their provider. The PHR is one approach to improving patient engagement, but nontechnological options need to be sustained to support all patients.

Determining Emotional Tone and Verbal Behavior in Patients With Tinnitus and Hyperacusis: An Exploratory Mixed-Methods Study

2019 ◽  
Vol 28 (3) ◽  
pp. 660-672
Author(s):  
Suzanne H. Kimball ◽  
Toby Hamilton ◽  
Erin Benear ◽  
Jonathan Baldwin
Keyword(s):  
Mixed Methods ◽  
Verbal Behavior ◽  
Coping Strategies ◽  
Mixed Methods Study ◽  
Self Report ◽  
Anxiety And Depression ◽  
Negative Consequences ◽  
Emotional Tone ◽  
Explanatory Mixed Methods ◽  
Quantitative Results

Purpose The purpose of this study was to evaluate the emotional tone and verbal behavior of social media users who self-identified as having tinnitus and/or hyperacusis that caused self-described negative consequences on daily life or health. Research Design and Method An explanatory mixed-methods design was utilized. Two hundred “initial” and 200 “reply” Facebook posts were collected from members of a tinnitus group and a hyperacusis group. Data were analyzed via the LIWC 2015 software program and compared to typical bloggers. As this was an explanatory mixed-methods study, we used qualitative thematic analyses to explain, interpret, and illustrate the quantitative results. Results Overall, quantitative results indicated lower overall emotional tone for all categories (tinnitus and hyperacusis, initial and reply), which was mostly influenced by higher negative emotion. Higher levels of authenticity or truth were found in the hyperacusis sample but not in the tinnitus sample. Lower levels of clout (social standing) were indicated in all groups, and a lower level of analytical thinking style (concepts and complex categories rather than narratives) was found in the hyperacusis sample. Additional analysis of the language indicated higher levels of sadness and anxiety in all groups and lower levels of anger, particularly for initial replies. These data support prior findings indicating higher levels of anxiety and depression in this patient population based on the actual words in blog posts and not from self-report questionnaires. Qualitative results identified 3 major themes from both the tinnitus and hyperacusis texts: suffering, negative emotional tone, and coping strategies. Conclusions Results from this study suggest support for the predominant clinical view that patients with tinnitus and hyperacusis have higher levels of anxiety and depression than the general population. The extent of the suffering described and patterns of coping strategies suggest clinical practice patterns and the need for research in implementing improved practice plans.

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