scholarly journals Validation of the Diabetes Family Impact Scale: a new measure of diabetes-specific family impact

2015 ◽  
Vol 32 (9) ◽  
pp. 1227-1231 ◽  
Author(s):  
M. L. Katz ◽  
L. K. Volkening ◽  
C. E. Dougher ◽  
L. M. B. Laffel
Keyword(s):  
Family Impact ◽  
Impact Scale ◽  
Diabetes Family

Development and Preliminary Validation of the Cancer Family Impact Scale for Colorectal Cancer

2008 ◽  
Vol 12 (1) ◽  
pp. 161-169 ◽  
Author(s):  
Pamela S. Sinicrope ◽  
Sally W. Vernon ◽  
Pamela M. Diamond ◽  
Christi A. Patten ◽  
Steven H. Kelder ◽  
...  
Keyword(s):  
Colorectal Cancer ◽  
Family Impact ◽  
Cancer Family ◽  
Preliminary Validation ◽  
Impact Scale

Quality of Life Using General Population Validated Questionnaires in Children With Cleft Lip and/or Palate in New Zealand

2020 ◽  
pp. 105566562096237 ◽  
Author(s):  
John M. D. Thompson ◽  
S. Louise Ayrey ◽  
Rebecca F. Slykerman ◽  
Peter R. Stone ◽  
Peter V. Fowler
Keyword(s):  
Quality Of Life ◽  
New Zealand ◽  
Cleft Palate ◽  
Cleft Lip ◽  
Family Impact ◽  
Primary Surgery ◽  
Impact Scale ◽  
Pedsql 4.0 ◽  
The Impact

Objective: To determine the level of quality of life (QoL) in children with cleft lip and/or palate (CL/P) and whether this differs by cleft phenotype. Design: A cohort of children with CL/P born in New Zealand. Setting: A nationwide study of children born with CL/P and having primary surgery in New Zealand. Participants: Children with CL/P and their families (n = 397) who attended a cleft clinic between October 1, 2014, and September 30, 2017, and agreed to complete questionnaires on QoL. Main Outcomes: Primary outcomes were QoL from the PedsQL 4.0 core generic questionnaires and the PedsQL 2.0 Family impact scale. Results: Children with CL/P in New Zealand generally have a high QoL as assessed by the PedsQL. The impact of cleft phenotype had limited effects on the child, however there were significant impacts on parents and families. We found that the family impact scale differed by cleft phenotype with those with CL having the highest QoL and those with cleft palate the lowest, and this was consistent across QoL subscales. Quality of life improved as a whole by age, particularly in physical and cognitive functioning, as well as in the ability to undertake family activities. Conclusions: Children with CL/P have generally good levels of QoL in New Zealand, however cleft phenotype impacts on the level, with the lowest levels in those with cleft palate. Psychological support of children with cleft and their families should be an integral part of cleft care.

scholarly journals Psychometric properties of the Arabic version of the PedsQL Family Impact Scale

2016 ◽  
Vol 21 (8) ◽  
pp. 599-608 ◽  
Author(s):  
Ekhlas Al-Gamal ◽  
Tony Long
Keyword(s):  
Negative Impact ◽  
Parent Report ◽  
Family Impact ◽  
Arabic Version ◽  
Children With Cancer ◽  
Quality Of Life Inventory ◽  
Impact Scale ◽  
Vital Resource ◽  
Life Inventory

Treatment of childhood cancer and its side effects can exert a negative impact on patients’ parents. A valid and reliable instrument to measure family functioning in Arabic families was considered to be a vital resource. The Pediatric Quality of Life Inventory (PedsQL) Family Impact Scale and the PedsQL Healthcare Satisfaction Hematology/Oncology Scale – Parent Report were completed by 113 Jordanian parents of children with cancer. Cronbach’s alpha coefficient was found to be excellent at 0.93 for the total PedsQL Family Impact Scale, which correlated significantly with the PedsQL Healthcare Satisfaction Hematology/Oncology Scale – Parent Report demonstrating good construct validity. The Arabic version of the PedsQL Family Impact Scale is both valid and reliable for use with parents of children with cancer.

scholarly journals Impact of the Poor Oral Health Status of Children on Their Families: An Analytical Cross-Sectional Study

Children ◽  
2021 ◽  
Vol 8 (7) ◽  
pp. 586
Author(s):  
Mir Faeq Ali Quadri ◽  
Fatimah Rasheed M. Jaafari ◽  
Noha Ahmed A. Mathmi ◽  
Nouf Hassan F. Huraysi ◽  
Maryam Nayeem ◽  
...  
Keyword(s):  
Health Status ◽  
Oral Health ◽  
Cross Sectional Study ◽  
Oral Health Status ◽  
Family Impact ◽  
Arabic Version ◽  
Sectional Study ◽  
Cross Sectional ◽  
Impact Scale ◽  
The Family

The impact of poor oral health may not just be limited to the children themselves but can impact their families. The current study aims to perform psychometric analyses of the Arabic version of the Family Impact Scale and investigate the association of its domains with the oral health status of children. This cross-sectional study was carried out in a sample of 500 parent-child dyads from high schools of Jazan city of the Kingdom of Saudi Arabia. The Arabic version of the Family Impact Scale was subjected to reliability and validity tests. The explanatory variables in the current study are: the oral health status, parents combined income, parents’ education, age and sex of the child. The descriptive analysis was reported using proportions, this was followed by the bivariate and multivariable analyses. About 24.2% of children were reported to have fair, poor, and very poor oral health. A lower frequency of family impact corresponded with better oral health (OH) status of children (p < 0.001). The likelihood of parent’s taking time off from work and having financial difficulties was nearly two-times greater if their children had poor oral health. Similarly, interruption in sleep and other normal activities of parents is four times and five times greater, respectively, if the child has poor oral health status. Thus, the poor oral health of school children in the Jazan region of Saudi Arabia is a matter of grave concern as it is observed to be associated with family impacts; particularly affecting the parent’s work, sleep, and other normal family activities.

scholarly journals Avaliação do impacto familiar em pais de crianças diagnosticadas com microcefalia pelo Zika Vírus

2019 ◽  
Vol 87 (25) ◽  
Author(s):  
Alyne Aparecida Ferreira Freitas ◽  
Ivone Félix de Sousa ◽  
Júlia da Paixão Oliveira Mello e Pargeo ◽  
Antonio Márcio Teodoro Cordeiro Silva ◽  
Rogério José de Almeida
Keyword(s):  
Zika Virus ◽  
Leisure Activities ◽  
Family Health ◽  
Family Impact ◽  
Predominant Period ◽  
Impact Scale ◽  
Significant Difference ◽  
The Family ◽  
The Disabled ◽  
Family Routine

Objetiva-se avaliar o impacto familiar em pais de crianças diagnosticadas com microcefalia pelo Zika vírus. Trata-se deum estudo transversal analítico com abordagem quantitativa, utilizando-se de um questionário sociodemográfico e aescala de impacto familiar (EIF). Foram pesquisados 76 pais com filhos em tratamento de reabilitação e readaptaçãoem um centro de referência de Goiânia/GO. Foram realizadas análises descritivas utilizando-se frequência relativa eabsoluta, média e desvio padrão. O teste utilizado para avaliar a existência ou não de diferença estatisticamente significativa (p≤0,05) foi a análise de variância (ANOVA) Scheffé. O pré-natal foi o período predominante do recebimentodo diagnóstico de microcefalia. Foi evidenciado uma dificuldade por parte dos pais em encontrar pessoas de confiançapara cuidar do filho, bem como, falta de compreensão de outras pessoas pelo fardo que é cuidar do filho deficiente.Os participantes que apresentaram maior tendência em empreender atividades com amigos, festas e bares, também semostraram mais propensos a atividades físicas e de lazer. Após o choque inicial do recebimento do diagnóstico, os paispassam reorganizar e adaptar aos desafios, alterando a rotina familiar. É fundamental o envolvimento dos profissionaisde saúde, fornecendo suporte e orientação a essas famílias.Palavra-chave: Infecção pelo Zika vírus; Microcefalia; Saúde da Família. ABSTRACTAimed to evaluate the family impact in parents of children diagnosed with microcephaly by the Zika virus. This is a crosssectional analytical study with a quantitative approach, using a sociodemographic questionnaire and the Family Impact Scale(FIA). A total of 76 parents with children in rehabilitation and rehabilitation treatment were surveyed at a reference centerin Goiânia / GO. Descriptive analyzes were performed using relative and absolute frequency, mean and standard deviation.The test used to evaluate the existence or not of a statistically significant difference (p≤0.05) was the analysis of variance(ANOVA) Scheffé. Prenatal care was the predominant period for the diagnosis of microcephaly. It was evidenced a difficultyfor the parents to find reliable people to take care of the child, as well as lack of understanding of others for the burdenof caring for the disabled child. Participants who showed a greater tendency to engage in activities with friends, parties andbars were also more prone to physical and leisure activities. After the initial shock of receiving the diagnosis, the parentsreorganize and adapt to the challenges, changing the family routine. The involvement of health professionals is essential,providing support and guidance to these families.Keywords: Zika Virus infection; Microcephaly; Family health.

scholarly journals Validation of an Indian (Kannada) translation of the Family Impact Scale questionnaire and the impact of malocclusion on the families of adolescent school children

2020 ◽  
Vol 70 (4) ◽  
pp. 259-265
Author(s):  
Kalaiselvi Vinayagamoorthy ◽  
Kalyana Chakravarthy Pentapati ◽  
Arun Urala ◽  
Shashidhar Acharya
Keyword(s):  
School Children ◽  
Family Impact ◽  
Impact Scale ◽  
The Family ◽  
The Impact
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