scholarly journals Is parent perception of walking ability in children with cerebral palsy appropriately identified on the Gillette functional assessment questionnaire?

2018 ◽  
Vol 60 ◽  
pp. 39-39
2021 ◽  
Author(s):  
Michael H Schwartz ◽  
Nanette Aldahondo ◽  
Bruce MacWilliams

Background Locomotor function is often impaired in children diagnosed with cerebral palsy (CP). Improving locomotor function is a common goal of treatment. The current gold standard for assessing locomotor function in CP is the gross motor function measure (GMFM-66). The GMFM-66 requires an in-person assessment by a trained clinician. It would be useful to have a measure of function that is like the GMFM-66 but can be assessed through patient report. Methods We queried the clinical databases of two motion analysis centers (Gillette Children's Specialty Healthcare and Shriners Hospital - Salt Lake City) for individuals with a diagnosis of cerebral palsy (CP) who were 18 years old or younger and had undergone instrumented clinical gait analysis that included the functional assessment questionnaire (FAQ). We computed the transformed FAQ (FAQt) as the weighted sum of the skills an individual was able to perform, where the weighting was the difficulty of the skills. We assessed concurrent and external validity of the FAQt by comparing it to the GMFM-66. Results The FAQt exhibited strong concurrent and external validity. Linear regression showed that the GMFM-66 explained 54% of the variance in FAQt, and the linear fit was independent of center. The FAQt evolved with age in a manner similar to the GMFM-66, with higher functioning individuals, as measured by gross motor function classification system level, achieving higher levels of function at a higher rate and an earlier age compared to their lower functioning peers. The findings with respect to GMFM-66 did not depend on the center at which the data was acquired. Conclusions The FAQt demonstrates strong concurrent and external validity, making it a useful measure of locomotor function


2012 ◽  
Vol 46 (4) ◽  
pp. 960-966 ◽  
Author(s):  
Nilce Maria de Freitas Santos ◽  
Darlene Mara dos Santos Tavares

Este estudo objetivou descrever as características sociodemográficas e a qualidade de vida dos cuidadores de idosos com histórico de acidente vascular cerebral e correlacionar o número de morbidades com os escores de qualidade de vida do cuidador. Inquérito domiciliar transversal que entrevistou cuidadores de idosos utilizando-se de instrumentos: semi-estruturado; World Health Organization Quality of Life-abreviado e Brazilian Multidimensional Functional Assessment Questionnaire. Foi realizada análise descritiva e correlação de Pearson (p<0,05). Prevaleceu o sexo feminino (93,5%), idade média de 55,4±14,17 anos, casados ou moram com companheiro (58,7%), com 4| - 8 anos de estudo (28,3%) e renda de 1 salário mínimo (34,8%). O maior escore de qualidade de vida foi no domínio relações sociais (67,57) e, menor no meio ambiente (54,82). O maior número de morbidades do cuidador correlacionou-se com menores escores em todos os domínios de qualidade de vida.


2015 ◽  
Vol 29 (3) ◽  
pp. 43-49
Author(s):  
Agnieszka Strączyńska ◽  
Agnieszka Radzimińska ◽  
Magdalena Weber-Rajek ◽  
Katarzyna Strojek ◽  
Aleksander Goch

Abstract Many new definitions, classifications and ways of treating cerebral palsy (CP) have been identified within the last few years. Numerous tools determining the functional condition of children suffering from CP were developed, however, the ones which were approachable, were modified accordingly. Currently applied classifications take into account participation in a social life, activity ,as well as secondary alterations. The majority of results obtained from worldwide clinical research conducted in a group of children with CP are based on popular tests. The main aim of this paper is to show and analyse the crucial scales used for the functional assessment of children with the CP by taking into consideration the age and activity of patients and reliability of classifications.


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