The support needs of parents having a child with a chronic kidney disease: a focus group study

2017 ◽  
Vol 43 (6) ◽  
pp. 831-838 ◽  
Author(s):  
W. W. Geense ◽  
B. G. I. van Gaal ◽  
J. L. Knoll ◽  
E. A. M. Cornelissen ◽  
T. van Achterberg
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Focus Group ◽  
Support Needs ◽  
Focus Group Study

scholarly journals General practitioners’ perspectives on management of early-stage chronic kidney disease: a focus group study

2018 ◽  
Vol 19 (1) ◽  
Author(s):  
Carola van Dipten ◽  
Saskia van Berkel ◽  
Wim J. C. de Grauw ◽  
Nynke D. Scherpbier-de Haan ◽  
Bouke Brongers ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Focus Group ◽  
General Practitioners ◽  
Early Stage ◽  
Focus Group Study

scholarly journals Patients' priorities for health research: focus group study of patients with chronic kidney disease

2008 ◽  
Vol 23 (10) ◽  
pp. 3206-3214 ◽  
Author(s):  
A. Tong ◽  
P. Sainsbury ◽  
S. M. Carter ◽  
B. Hall ◽  
D. C. Harris ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Focus Group ◽  
Health Research ◽  
Research Focus ◽  
Focus Group Study

scholarly journals Patient Experiences of Dietary Management in Chronic Kidney Disease: A Focus Group Study

2018 ◽  
Vol 28 (6) ◽  
pp. 393-402 ◽  
Author(s):  
Jaimon T. Kelly ◽  
Katrina L. Campbell ◽  
Tammy Hoffmann ◽  
Dianne P. Reidlinger
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Focus Group ◽  
Patient Experiences ◽  
Dietary Management ◽  
Focus Group Study

scholarly journals Experiences and support needs of older carers: A focus group study of perceptions from the voluntary and statutory sectors

Maturitas ◽  
2019 ◽  
Vol 123 ◽  
pp. 40-44 ◽  
Author(s):  
Nan Greenwood ◽  
Carole Pound ◽  
Raymond Smith ◽  
Sally Brearley
Keyword(s):  
Focus Group ◽  
Support Needs ◽  
Focus Group Study

Building Chronic Kidney Disease Clinical Practice Guidelines Using the openEHR Guideline Definition Language

2016 ◽  
Vol 55 (06) ◽  
pp. 495-505 ◽  
Author(s):  
Pei-Yuan Hung ◽  
Ching-Heng Lin ◽  
Ying-Chih Lo ◽  
Der-Ming Liou
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Focus Group ◽  
Public Health Problem ◽  
Clinical Decision ◽  
Global Public Health ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Ensure Patient Safety ◽  
High Prevalence

SummaryBackground: As a result of the disease‘s high prevalence, chronic kidney disease (CKD) has become a global public health problem. A clinical decision support system that integrates with computer-interpretable guidelines (CIGs) should improve clinical outcomes and help to ensure patient safety.Objectives: The openEHR guideline definition language (GDL) is a formal language used to represent CIGs. This study explores the feasibility of using a GDL approach for CKD; it also attempts to identify any potential gaps between the ideal concept and reality.Methods: Using the Kidney Disease Improving Global Outcomes (KDIGO) anemia guideline as material, we designed a development workflow in order to establish a series of GDL guidelines. Focus group discussions were conducted in order to identify important issues related to GDL implementation.Results: Ten GDL guidelines and 37 archetypes were established using the KDIGO guideline document. For the focus group discussions, 16 clinicians and 22 IT experts were recruited and their perceptions, opinions and attitudes towards the GDL approach were explored. Both groups provided positive feedback regarding the GDL approach, but raised various concerns about GDL implementation.Conclusions: Based on the findings of this study, we identified some potential gaps that might exist during implementation between the GDL concept and reality. Three directions remain to be investigated in the future. Two of them are related to the openEHR GDL approach. Firstly, there is a need for the editing tool to be made more sophisticated. Secondly, there needs to be integration of the present approach into non openEHR-based hospital information systems. The last direction focuses on the applicability of guidelines and involves developing a method to resolve any conflicts that occur with insurance payment regulations.

scholarly journals A Mobile App to Support Self-management of Chronic Kidney Disease: Development Study

10.2196/29197 ◽  
2021 ◽  
Vol 8 (4) ◽  
pp. e29197
Author(s):  
Talar W Markossian ◽  
Jason Boyda ◽  
Jennifer Taylor ◽  
Bella Etingen ◽  
François Modave ◽  
...  
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Focus Group ◽  
Primary Care Physicians ◽  
Self Care ◽  
Health Data ◽  
Mobile App ◽  
Self Management ◽  
Smart Device ◽  
Care Providers

Background Chronic kidney disease (CKD) is a common and costly condition that is usually accompanied by multiple comorbidities including type 2 diabetes, hypertension, and obesity. Proper management of CKD can delay or prevent kidney failure and help mitigate cardiovascular disease risk, which increases as kidney function declines. Smart device apps hold potential to enhance patient self-management of chronic conditions including CKD. Objective The objective of this study was to develop a mobile app to facilitate self-management of nondialysis-dependent CKD. Methods Our stakeholder team included 4 patients with stage 3-4 nondialysis-dependent CKD; a kidney transplant recipient; a caretaker; CKD care providers (pharmacists, a nurse, primary care physicians, a nephrologist, and a cardiologist); 2 health services and CKD researchers; a researcher in biomedical informatics, nutrition, and obesity; a system developer; and 2 programmers. Focus groups and in-person interviews with the patients and providers were conducted using a focus group and interview guide based on existing literature on CKD self-management and the mobile app quality criteria from the Mobile App Rating Scale. Qualitative analytic methods including the constant comparative method were used to analyze the focus group and interview data. Results Patients and providers identified and discussed a list of requirements and preferences regarding the content, features, and technical aspects of the mobile app, which are unique for CKD self-management. Requirements and preferences centered along themes of communication between patients and caregivers, partnership in care, self-care activities, adherence to treatment regimens, and self-care self-efficacy. These identified themes informed the features and content of our mobile app. The mobile app user can enter health data including blood pressure, weight, and blood glucose levels. Symptoms and their severity can also be entered, and users are prompted to contact a physician as indicated by the symptom and its severity. Next, mobile app users can select biweekly goals from a set of predetermined goals with the option to enter customized goals. The user can also keep a list of medications and track medication use. Our app includes feedback mechanisms where in-range values for health data are depicted in green and out-of-range values are depicted in red. We ensured that data entered by patients could be downloaded into a user-friendly report, which could be emailed or uploaded to an electronic health record. The mobile app also includes a mechanism that allows either group or individualized video chat meetings with a provider to facilitate either group support, education, or even virtual clinic visits. The CKD app also includes educational material on CKD and its symptoms. Conclusions Patients with CKD and CKD care providers believe that a mobile app can enhance CKD self-management by facilitating patient-provider communication and enabling self-care activities including treatment adherence.

scholarly journals Exploring Formal Care Providers’ Perspectives of the Support Needs of Older Male Spousal Care-givers: A Focus Group Study

2020 ◽  
Author(s):  
Anne Fee ◽  
Sonja McIlfatrick ◽  
Assumpta Ryan
Keyword(s):  
Focus Group ◽  
Healthcare Providers ◽  
Support Needs ◽  
Formal Care ◽  
Care Providers ◽  
Focus Group Study ◽  
Formal Support ◽  
Care Givers ◽  
Engaging Men ◽  
Male Care

Abstract Formal support comprises services provided by health, social care and community-based agencies (CBAs), including charities. Evidence indicates poor uptake of formal support by older male care-givers who often fail to accept help until a crisis point is reached. Given the growing recognition of caregiving as gendered, there is a need for an enhanced understanding of how support providers can assess and address the needs of this caregiving sub-group. The aim of this study was to explore formal care providers’ perspectives of support for older male spousal care-givers through focus group interviews. The study was conducted in a region in the United Kingdom (UK) with four CBAs (participants: n = 33), and five statutory healthcare providers (participants: n = 51). Thematic data analysis resulted in the identification of three themes: Service Priorities, Engaging Men, Assessment of Need. Findings revealed that service flexibility was key to providing support; difficulties in engaging men in support and low take-up of carers’ assessments were potential barriers to support. Social workers should have an in-depth understanding of how caregiving is gendered and how this may influence the support needs of older male spousal care-givers. Enhanced carers’ assessment training, which highlights collaboration in planning and delivery of tailored support, may result in support that enables older male care-givers to sustain their caregiving role.

scholarly journals Through the Lens of Chronic Kidney Disease: A Qualitative Study of the Experiences of Young Women Living With CKD

2020 ◽  
Vol 7 ◽  
pp. 205435812094547
Author(s):  
Heather Beanlands ◽  
Elizabeth McCay ◽  
Sheryll Pahati ◽  
Michelle A. Hladunewich
Keyword(s):  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Focus Group ◽  
Qualitative Study ◽  
Young Women ◽  
Qualitative Content Analysis ◽  
Well Being ◽  
Urban Setting ◽  
Focus Group Discussions ◽  
Group Discussions

Background: Young women may be particularly vulnerable to the negative psychosocial consequences of living with chronic kidney disease (CKD). To date, little is known about how women themselves experience and manage their illness. Objectives: This study explored the experiences of young women living with CKD. Design: Qualitative descriptive study. Setting: Nephrology program in an urban setting in Ontario, Canada. Participants: Women with category G1-3 glomerular-based CKD between 18 and 40 years of age. Methods: Focus group discussions guided by semi-structured interview questions. Qualitative content analysis was used to analyze interview transcripts. Results: Eleven women participated in 3 separate focus group discussions. Participants described living life through the lens of CKD, which was the central theme unifying their experiences of encountering CKD, re-encountering CKD, and getting on with life. Life decisions significant to women like pursuing a career or motherhood were often colored by CKD, particularly by illness-related challenges, such as unsatisfactory health care support and the physical implications of chronic illness. The women used a variety of strategies including seeking information and relying on supportive people to mitigate these challenges. Although these strategies sometimes enabled them to balance the demands of illness with other life priorities, the lack of resources directed toward their unique needs as young women with CKD often caused them difficulties in managing their illness. Limitations: Participants were from one nephrology program in an urban setting and were well educated overall. Their experiences may not be reflective of young women in other settings or from diverse backgrounds. Conclusions: The women’s emotional well-being and life choices were considerably influenced by CKD. Although the women were often able to manage challenges associated with CKD, they acknowledged the need to seek additional professional resources to complement their own self-identified strategies. As the women sought out these supports, they identified gaps in resources specific to women with CKD. This article summarizes recommendations from their perspective. Trial Registration: Not applicable as this was a qualitative study.

scholarly journals Support needs for medication use and the suitability of eHealth technologies to address these needs: a focus group study of older patients with rheumatoid arthritis

2018 ◽  
Vol Volume 12 ◽  
pp. 349-358 ◽  
Author(s):  
Elke GE Mathijssen ◽  
Johanna E Vriezekolk ◽  
Agnes MM Eijsbouts ◽  
Frank HJ van den Hoogen ◽  
Bart JF van den Bemt
Keyword(s):  
Rheumatoid Arthritis ◽  
Focus Group ◽  
Older Patients ◽  
Medication Use ◽  
Support Needs ◽  
Focus Group Study
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