scholarly journals Exploring Formal Care Providers’ Perspectives of the Support Needs of Older Male Spousal Care-givers: A Focus Group Study

Author(s):  
Anne Fee ◽  
Sonja McIlfatrick ◽  
Assumpta Ryan

Abstract Formal support comprises services provided by health, social care and community-based agencies (CBAs), including charities. Evidence indicates poor uptake of formal support by older male care-givers who often fail to accept help until a crisis point is reached. Given the growing recognition of caregiving as gendered, there is a need for an enhanced understanding of how support providers can assess and address the needs of this caregiving sub-group. The aim of this study was to explore formal care providers’ perspectives of support for older male spousal care-givers through focus group interviews. The study was conducted in a region in the United Kingdom (UK) with four CBAs (participants: n = 33), and five statutory healthcare providers (participants: n = 51). Thematic data analysis resulted in the identification of three themes: Service Priorities, Engaging Men, Assessment of Need. Findings revealed that service flexibility was key to providing support; difficulties in engaging men in support and low take-up of carers’ assessments were potential barriers to support. Social workers should have an in-depth understanding of how caregiving is gendered and how this may influence the support needs of older male spousal care-givers. Enhanced carers’ assessment training, which highlights collaboration in planning and delivery of tailored support, may result in support that enables older male care-givers to sustain their caregiving role.

Author(s):  
Shaun Speed ◽  
Zeyuan Sun ◽  
Zhenmi Liu

Abstract Background: Cardiovascular disease (CVD) is the leading cause of death for Chinese migrants around the world. Chinese CVD patients rely heavily on their native Chinese language, cultural values and beliefs, which adds challenges for the healthcare providers to offer primary healthcare services with standard protocol. The inappropriate treatment could lead to life loss, mistrust in doctor-patient relationship and heavy burden for healthcare funding. Methods: 28 participants were included for focus group study with the grounded theory methodology. Results: There is considerable misunderstanding among the Chinese community about the role of primary care doctors in the treatment of cardiovascular disease resulting in the variable use of primary care services. Conclusion: Chinese CVD patients or identified risk factors for CVD arguably need closer management, culturally sensitive advice, support and robust follow-up compared to the general population. Doctors and nurses should enhance their practice and give them confidence in their interaction with Chinese patients on the basis of how they think and behave in relation to help seeking.


Midwifery ◽  
2019 ◽  
Vol 69 ◽  
pp. 172-178
Author(s):  
Atcharawadee Sriyasak ◽  
Anna-Lena Almqvist ◽  
Chaweewan Sridawruang ◽  
Elisabet Häggström-Nordin

2000 ◽  
Vol 9 (5) ◽  
pp. 439-444 ◽  
Author(s):  
Suzanne S. Duke ◽  
Sarah A. Mcgraw ◽  
Nancy E. Avis ◽  
Amanda Sherman

2017 ◽  
Vol 43 (6) ◽  
pp. 831-838 ◽  
Author(s):  
W. W. Geense ◽  
B. G. I. van Gaal ◽  
J. L. Knoll ◽  
E. A. M. Cornelissen ◽  
T. van Achterberg

2020 ◽  
Vol 25 (3) ◽  
pp. 596-614 ◽  
Author(s):  
Michael H. Bernstein ◽  
Cosima Locher ◽  
Sif Stewart‐Ferrer ◽  
Sarah Buergler ◽  
Catherine M. DesRoches ◽  
...  

2007 ◽  
Vol 30 (4) ◽  
pp. 38
Author(s):  
S. Bernatsky ◽  
D. Feldman ◽  
M. Roper ◽  
E. Rosenberg

The objective of our work was to identify facilitators of optimal care, as well as potential barriers, for patients with rheumatoid arthritis (RA). The design was a focus group study. Individuals with established RA were identified through invitation letters sent using a random sample of the Quebec Arthritis Society mailing list. Patients were eligible for participation if they had a diagnosis of RA confirmed by a rheumatologist and if they had sought care within the McGill Réseau Universitaire Intégré de Santé network. We planned a series of focus group meetings (90 minutes each) to obtain sufficient data in terms of spectrum of ideas. In each moderator-led group, participants were asked to discuss five questions related to quality care. A co-moderator was available to document non-verbal communication, with audio-taping of all sessions and professional transcription for data analysis. Qualitative content analysis, based on grounded theory, was the chosen means of identifying recurring themes and categories. Two focus group sessions have been completed with two more scheduled. Preliminary findings indicate the importance of good communication between family physicians, specialists, and allied health care workers. Final coding of transcripts and computer-assisted content analysis is being completed. However it appears that focus group may be useful in studying optimal care for chronic diseases such as RA. Our preliminary findings emphasize the necessity of good communication among health care providers. Ultimately we hope to generate knowledge that can be transformed into better health for Canadians with arthritis and other chronic diseases.


Maturitas ◽  
2019 ◽  
Vol 123 ◽  
pp. 40-44 ◽  
Author(s):  
Nan Greenwood ◽  
Carole Pound ◽  
Raymond Smith ◽  
Sally Brearley

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 202-202
Author(s):  
Tamara Herrick ◽  
Michelle Ward

Abstract The MaineHealth Alzheimer’s Disease Partnership is working to improve integration between the healthcare system and community partners through training and a referral network. Primary care providers are often the first to assess cognitively impaired patients, so it is important to understand their attitudes and confidence in dealing with dementia. The objective of this study is to determine barriers to care and evaluate healthcare providers’ attitudes towards their dementia capability, which includes screening for cognitive impairment, disclosing diagnoses, and making referrals to community-based organizations or specialists. A 27-item survey was developed and sent to 474 providers from MaineHealth practices via email. Fifty-three providers responded to the survey. Five healthcare professionals also took part in a focus group; looking more specifically at challenges encountered throughout the dementia care system. This poster will present the findings from the survey and focus group. There was strong agreement that much can be done to improve the quality of life for patients with dementia (86% agreed/strongly agreed) and that screening all patients over age 65 is important (85% agreed/strongly agreed). Confidence levels in ability to diagnose dementia, provide memory loss information, and refer patients to specialists were significantly associated with training (p<.05). The majority of providers identified barriers to cognitive screening and referring patients to community-based organizations, showing that improvements are needed at the system level to remove these barriers. Overall, the results suggest that dementia specific training can improve confidence in care and allow physicians to provide more information about memory loss to patients.


2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Therese Rydberg Sterner ◽  
Synneve Dahlin-Ivanoff ◽  
Pia Gudmundsson ◽  
Stefan Wiktorsson ◽  
Sara Hed ◽  
...  

Abstract Background Knowledge about experiences of depression among younger-old adults from the general population is limited. The aim was to explore experiences of depression in early late life. Methods Sixteen participants in the population-based Gothenburg H70 Birth Cohort Studies (12 women and 4 men) who had reported a history of depression between ages 60–70 took part in focus group discussions (n = 4). Data were analyzed using focus group methodology. Results The analysis resulted in the overall theme ‘I wanted to talk about it, but I couldn’t’. The participants expressed unmet needs of communication about depression with family, friends, and healthcare staff. Participants wanted to know more about the causes and effects of depression, available treatment options and how to avoid recurrence. Lack of knowledge was a source of frustration; trust in health care providers was diminished. Being retired meant that opportunities for communication with co-workers were no longer available, and this made it harder to break negative thought and behavioral patterns. Being depressed meant losing one’s normal self, and participants were grieving this. Thoughts of death and suicide were experienced in solitude; knowing that there was an escape could generate a feeling of comfort and control. Conclusions Younger-old adults have expressed a need to talk about their experiences of depression. They would like to know more about available treatments, potential side effects, and how to avoid recurrence. Care providers also need to be aware there is a need for an existential dialogue about death.


Technologies ◽  
2020 ◽  
Vol 8 (3) ◽  
pp. 42
Author(s):  
Ana Luísa Jegundo ◽  
Carina Dantas ◽  
João Quintas ◽  
João Dutra ◽  
Ana Leonor Almeida ◽  
...  

This article reports a study aiming to determine the perceptions of older adults needing formal care about the usefulness, satisfaction, and ease of use of CaMeLi, a virtual companion based on an embodied conversational agent, and the perceptions of formal caregivers about the potential of virtual companions to support care provision. An observational study involving older adults needing formal care was conducted to assess CaMeLi using a multi-method approach (i.e., an auto-reported questionnaire—the Usefulness, Satisfaction, and Ease of use questionnaire; a scale for the usability assessment based on the opinion of observers—the International Classification of Functioning Disability and Health-based Usability Scale; and critical incident registration). Moreover, a focus group was conducted to collect data regarding the perceived utility of virtual companions to support care provision. The observational study was conducted with 46 participants with an average age of 63.6 years, and the results were associated with a high level of usefulness, satisfaction, and ease of use of CaMeLi. Furthermore, the focus group composed of four care providers considered virtual companions a promising solution to support care provision and to prevent loneliness and social isolation. The results of both the observational study and the focus group revealed good perceptions regarding the role of virtual companions to support the care provision for older adults.


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