A longitudinal study of post-school provision for Irish school-leavers with intellectual disability

2017 ◽  
Vol 45 (3) ◽  
pp. 166-171 ◽  
Author(s):  
Roy McConkey ◽  
Fionnola Kelly ◽  
Sarah Craig ◽  
Fiona Keogh
Keyword(s):  
Intellectual Disability ◽  
Longitudinal Study ◽  
Irish School

Epidemiology of Epilepsy in Older Adults With an Intellectual Disability in Ireland: Associations and Service Implications

2014 ◽  
Vol 119 (3) ◽  
pp. 253-260 ◽  
Author(s):  
Mary McCarron ◽  
Marie O'Dwyer ◽  
Eilish Burke ◽  
Eimear McGlinchey ◽  
Philip McCallion
Keyword(s):  
Older Adults ◽  
Intellectual Disability ◽  
Longitudinal Study ◽  
Refractory Epilepsy ◽  
Demographic Variables ◽  
Health Conditions ◽  
Community Settings ◽  
Morbid Conditions

Abstract There are limited studies on the prevalence of epilepsy and co-morbid conditions in older adults with an ID. To begin to address this prevalence of epilepsy was estimated for participants in the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing. Associations with demographic variables and co morbid health conditions were examined. It was found that prevalence was high (30.7%); but declined as people aged. Those with epilepsy were less likely to live with family, independently or in community settings, rates of refractory epilepsy were high and, despite medication over half of those with epilepsy still reported experiencing seizures. Given these findings, people with ID and their careers have considerable needs for information about epilepsy management, and for support from specialist ID and epilepsy services.

scholarly journals The impact of COVID-19 on people ageing with an intellectual disability in Ireland: Protocol for a follow-up survey

2021 ◽  
Vol 4 ◽  
pp. 95
Author(s):  
Mary McCarron ◽  
Andrew Allen ◽  
Darren McCausland ◽  
Margaret Haigh ◽  
Retha Luus ◽  
...  
Keyword(s):  
Intellectual Disability ◽  
Longitudinal Study ◽  
Similar Proportion ◽  
Healthcare Provision ◽  
Proxy Respondent ◽  
Initial Survey ◽  
The Impact ◽  
Over Time ◽  
Structured Questionnaire

Background:  The COVID-19 pandemic and associated lockdowns have had a dramatic impact on many people, but individuals with an intellectual disability, given the prevalence of congregate living and high levels of co-morbid conditions, may be particularly vulnerable at this time. A prior initial survey of participants of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) found that, despite a majority of participants being tested, only a small proportion had tested positive for COVID-19. Furthermore, despite some reporting positive aspects to the lockdown, a similar proportion were experiencing stress or anxiety during the pandemic. The pandemic and lockdowns have continued, and it is possible that experiences and consequences have changed over time. Aim: To explore over time and in greater depth the impact of COVID-19 and associated lockdowns and to further establish rates of infection, rates of vaccination and participants’ experiences. Methods: A structured questionnaire for people with intellectual disability participating in the IDS-TILDA longitudinal study, to be administered by telephone/video in summer 2021. Where participants are unable to respond independently, a proxy respondent will be invited to either assist the participant or answer questions on their behalf. This questionnaire will include questions from the first COVID-19 questionnaire, with extra questions assessing “long COVID” (i.e. COVID-19 lasting for 12 weeks or longer), infection control behaviours, changes in mental health, social contacts and loneliness, frailty, healthcare, and incidence of vaccination. Impact: The results of this survey will be used to inform healthcare provision for people with intellectual disability during the latter stages of the lockdown and into the future.

Making Reasonable Adjustment to Enable and Support People With Intellectual Disability Engage in Objective Health Measures in a Research Study—The Health Fair in the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing

Inclusion ◽  
2020 ◽  
Vol 8 (2) ◽  
pp. 124-137
Author(s):  
Éilish A. Burke ◽  
J. Bernard Walsh ◽  
Philip McCallion ◽  
Mary McCarron
Keyword(s):  
Intellectual Disability ◽  
Longitudinal Study ◽  
Care Delivery ◽  
Health Assessment ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Fair Process ◽  
Objective Health ◽  
Health Fair ◽  
Communication Challenges

Abstract This observational cross-sectional study presents methods employed in designing and undertaking a suite of eight health assessments, purposely named The Health Fair, as part of Wave 2 (2014) of the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA) study. Overall, 604 persons of all levels of intellectual disability, aged 40 years and above and in different living circumstances, participated. The Health Fair process was mobile and overcame barriers such as communication challenges or access that people with intellectual disability face. This protocol could support researchers and practitioners in clinical practice to guide and improve the health assessment of people with intellectual disability to facilitate a better understanding of their health pathways and improve health care delivery and services.

Prevalence and Characteristics of Falls in Adults with Intellectual Disability Living in a Residential Facility: A Longitudinal Study [PreFallID]

2015 ◽  
Vol 53 (3) ◽  
pp. 228-239 ◽  
Author(s):  
Johannes Salb ◽  
Carol Woodward ◽  
Jens Offenhäußer ◽  
Clemens Becker ◽  
Cornel Sieber ◽  
...  
Keyword(s):  
Intellectual Disability ◽  
Longitudinal Study ◽  
General Population ◽  
Residential Care ◽  
Care Setting ◽  
Residential Facility ◽  
Younger Adults ◽  
Fall Rates ◽  
Residential Care Setting

Abstract The objective of our study was to describe the prevalence and characteristics of falls in adults with intellectual disability living in a residential care setting and to define differences between fallers and non-fallers in younger and older resident groups. In contrast to the general population, falls are a problem for both aged and younger adults with intellectual disability living in a residential care setting. Falls of 147 residents, aged between 21-89 years with different grades of ID, were recorded prospectively over a 12 months period using a digital fall report form. For all participants, a total of 140 falls were reported and high fall rates per person-year were found in the younger (0.85) as well as in the older aged residents (1.06).

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